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GP refusing to send me to private investigations

157 replies

Wobblyheart · 19/09/2024 15:38

I want to preface this with saying that my GP practice is really amazing compared to what I have experienced before, on time, understanding, caring, accommodating. They have ordered a significant number of investigations for me already, but not being able to find anything abnormal. So I do understand why they are doing it but I feel so incredibly frustrated.

Long story short, I have been suffering with relentless fatigue (nothing like any thing i have experienced before) for 2 years, my muscles hurt and burn on a minimal exertion and out of breath from minimal activity. I have a bloated stomach all the time, and some digestive issues. Recently I discovered a really large - maybe 10 cm or so - sausage shaped lump in my right side. GP could feel it too on the examination. Suggested it could be my ascending colon. However, my worry is that the lump is ALWAYS there, irrespective of bowel movements or anything else. After 3 FIT tests and normal bloods, GP refused to refer me for a private scan. I understand and dont want to be a burden for NHS anymore but why refuse to send me privately?

I do suffer from health anxiety and the rationing is that it will not help me. However, without knowing what this lump is, my anxiety meds (a high dose) doesnt do anything for me, without knowing i wont be able to try for another pregnancy (and I am 38 already). I understnad why having another scan might make anxiety worth but i feel like denying it to me just resorts me to a half-living in a state of tourteous uncertainty. If i did not a physical lump and this 2 year exhaustion, I would find it much easier to move one, but this is not the case here. I know that no amount of CBT, drugs etc wont be able to help me whilst I feel utterly drained of energy for no obvious reason and feeling the "swelling/lump" in my abdomen.

I hate this situation so much. Because I totally understand where the GP is coming from but it is not going to be helpful for me. I hear people and some people say this to me too: "advocate for yourself". I'd like them to try and be a young woman with health anxiety and real physical symptoms and try to advocate for themselves. I am burnt out. Scared. and so so so so tired.

OP posts:
supportpangolin · 19/09/2024 18:08

Paganpentacle · 19/09/2024 16:47

You will have arranged your own appointment initially- letter from GP is a courtesy.
NHS staff DO NOT book/arrange/refer for private anything. Thats down to the patient.

This was the chain of communication for me (in South West England, two years ago):

Telephone consultation with NHS GP to discuss worsening condition.
GP refers me for NHS X-ray.
GP phones to say he has the X-ray report, my condition is severe and I need surgery.
Tell GP I am considering self funded surgery at local private hospital.
GP asks whether I would like him to make the referral.
I say yes and ask for his recommendations for a surgeon. He recommends Mr A.

GP practice secretary phones a couple of days later to say that Mr A is no longer working at that hospital and would I like to suggest a different surgeon. I suggest Mr B. Secretary write letter of referral to Mr B.

Mr B's secretary phones me to book an initial consultation.
Have consultation and Mr B accesses X-ray imaging from NHS system and also reviews recent CT and MRI scans carried out for another condition but which also imaged and reported on the condition that needs surgery.

Wait for quote from hospital for price for self funded package.
Accept quote and book date for surgery.
Mr B liaises with NHS consultant about other condition which may impact on fitness for surgery. Letters CCd to me and to GP.
Have operation.

So yes, my GP did make the referral, then I booked the initial consultation and operation date.

As I have said, I could have self-referred directly to my private surgeon but there was the choice of self-referring or having the GP write a referral letter/form with the hospital phoning me to book the initial consultation.

This is my private hospital group's protocol for referrals:

https://www.circlehealthgroup.co.uk/paying-for-treatment/self-pay-step-by-step-guide

The first step is booking your private consultation. There are three ways you can do this...

MakeMineAJaffa · 19/09/2024 18:07

That link is possibly misleading, as you may still need a consultant to refer you. I can't see where it says you can self-refer for the procedure.

MakeMineAJaffa · 19/09/2024 18:05

Jaxhog · 19/09/2024 17:34

My mum paid to see a private cardiologist. It saved her life.

Book to see someone privately - they will send results to your GP.,

OP says she can't afford the actual tests.

A colonoscopy is around £1K+ depending where it's done.

MakeMineAJaffa · 19/09/2024 18:02

As others have said, you can't book yourself in for a CT/MRI etc but you can do it in 2 steps.

1 Refer yourself to a gastro consultant
2 They will discuss your issues and refer you for tests if necessary.

You will pay for both.

The 3rd option is you pay to see a private consultant and they will refer you via the NHS for tests.

Choose a consultant who also works in the NHS.

Jaxhog · 19/09/2024 17:34

My mum paid to see a private cardiologist. It saved her life.

Book to see someone privately - they will send results to your GP.,

Orangesandlemons77 · 19/09/2024 17:33

Kitkat1523 · 19/09/2024 17:28

Yep that would be about right price wise where I live

I'd recommend jointing something like benenden in future OP. You get up to 2,500 for initial tests and consultations and it is really easy to use and only about £15 a month.

Kitkat1523 · 19/09/2024 17:28

Wobblyheart · 19/09/2024 17:19

No, I estimated that MRI + colonoscopy will put me in debt as it will likely be around £3,5k in total

Yep that would be about right price wise where I live

MissyB1 · 19/09/2024 17:27

Paganpentacle · 19/09/2024 16:40

GPs and the NHS don't refer for private anything.
If you want it- you arrange and pay for it.

Not true. NHS GPs often refer to private healthcare. My dh is a consultant who does some private work on top of his NHS, he prefers to have a GP referral (and usually does), but he will see self referrals too.

Wobblyheart · 19/09/2024 17:22

ChocolateTurtle · 19/09/2024 17:17

Hi OP, what test/s did you have to rule out ovarian cancer?

C125 blood and pelvic/vaginal ultrasound

OP posts:
Wobblyheart · 19/09/2024 17:21

Kitkat1523 · 19/09/2024 17:15

Are you wanting a Ct/mri scan Op? Or a colonoscopy as well? …..it’s relatively cheap for a mri ( my DD recently paid 750 including the gp consultation and referral) ….but a colonoscopy will be much more expensive….here in NW iTs around 200 to 300 for initial consultation…..then payments for bloods and whatever else needed….then around 2k for the procedure…..then around 200 for follow up appointments ( to discuss results etc)…..at this point you can request. A transfer back to nhs …..have you looked at how long the waiting list is in your area for routine colonoscopy? ……..it’s around 2 months for a routine endoscopy where I am…..so guessing colonoscopy is similar? ….depends where you are though….I’m NW

Its an average of 4 moths here...

OP posts:
Wobblyheart · 19/09/2024 17:19

WinterisComing95 · 19/09/2024 17:17

Sorry OP, but if you’re self-funding and £250 will put you into debt then private healthcare isn’t a viable option for you. I have accessed private healthcare several times and it’s cost in the thousands once it’s all added up. If the GP referred everyone for private investigations - the NHS would be in even more trouble because everyone would be asking for it.

No, I estimated that MRI + colonoscopy will put me in debt as it will likely be around £3,5k in total

OP posts:
Wobblyheart · 19/09/2024 17:18

Kitkat1523 · 19/09/2024 17:15

Are you wanting a Ct/mri scan Op? Or a colonoscopy as well? …..it’s relatively cheap for a mri ( my DD recently paid 750 including the gp consultation and referral) ….but a colonoscopy will be much more expensive….here in NW iTs around 200 to 300 for initial consultation…..then payments for bloods and whatever else needed….then around 2k for the procedure…..then around 200 for follow up appointments ( to discuss results etc)…..at this point you can request. A transfer back to nhs …..have you looked at how long the waiting list is in your area for routine colonoscopy? ……..it’s around 2 months for a routine endoscopy where I am…..so guessing colonoscopy is similar? ….depends where you are though….I’m NW

Well originally I asked for a abdo & pelvis CT but GP (rightly so) said that it carries a significant load of radiation. So whilst CT could look at all the possible abnormalities + the bowels / intestines quite efficiently, I think colonoscopy + MRI would be preferable but I will have to wait to see what the private gastro consultant will say. I just want to be okay and enjoy my 2 year old and know that I am going to be around for him. So hard at this age when all he wants is his mummy.

OP posts:
ChocolateTurtle · 19/09/2024 17:17

Wobblyheart · 19/09/2024 17:14

It has been ruled out.

I should have stated more clearly that I really do understand why GP did not refer me for the 2WW path, as we have ruled out so many things with them in the last 2 years. I had many scans, but no colonoscopy or abdominal scans.

I was even refered to a rapid diagnostic service for unspecified cancers but they turned out my referral, however at that point i didnt yet notice the lump in my abdomen.

So I can see why GPs advised what they did, I just still find it frustrating as I think a lump would warrant a quicker referral and that the number of other investigations you have had before shouldnt be a factor in deciding anything like this.

Hi OP, what test/s did you have to rule out ovarian cancer?

WinterisComing95 · 19/09/2024 17:17

Sorry OP, but if you’re self-funding and £250 will put you into debt then private healthcare isn’t a viable option for you. I have accessed private healthcare several times and it’s cost in the thousands once it’s all added up. If the GP referred everyone for private investigations - the NHS would be in even more trouble because everyone would be asking for it.

Wobblyheart · 19/09/2024 17:15

supportpangolin · 19/09/2024 17:13

At many private hospitals you can have scans and other investigations carried out but would need to pay for a consultant's appointment first (itro £200-250).

Having had the scan and report reviewed by the private consultant, you can then re-enter the NHS system if you choose to do so.

Yes and I think this is one of positives of going through a private consultant in your area as they can refer you back to their own clinic under NHS.

OP posts:
Kitkat1523 · 19/09/2024 17:15

Are you wanting a Ct/mri scan Op? Or a colonoscopy as well? …..it’s relatively cheap for a mri ( my DD recently paid 750 including the gp consultation and referral) ….but a colonoscopy will be much more expensive….here in NW iTs around 200 to 300 for initial consultation…..then payments for bloods and whatever else needed….then around 2k for the procedure…..then around 200 for follow up appointments ( to discuss results etc)…..at this point you can request. A transfer back to nhs …..have you looked at how long the waiting list is in your area for routine colonoscopy? ……..it’s around 2 months for a routine endoscopy where I am…..so guessing colonoscopy is similar? ….depends where you are though….I’m NW

Wobblyheart · 19/09/2024 17:14

ChocolateTurtle · 19/09/2024 17:11

YANBU please get a scan to rule out ovarian cancer

It has been ruled out.

I should have stated more clearly that I really do understand why GP did not refer me for the 2WW path, as we have ruled out so many things with them in the last 2 years. I had many scans, but no colonoscopy or abdominal scans.

I was even refered to a rapid diagnostic service for unspecified cancers but they turned out my referral, however at that point i didnt yet notice the lump in my abdomen.

So I can see why GPs advised what they did, I just still find it frustrating as I think a lump would warrant a quicker referral and that the number of other investigations you have had before shouldnt be a factor in deciding anything like this.

OP posts:
supportpangolin · 19/09/2024 17:13

At many private hospitals you can have scans and other investigations carried out but would need to pay for a consultant's appointment first (itro £200-250).

Having had the scan and report reviewed by the private consultant, you can then re-enter the NHS system if you choose to do so.

ChocolateTurtle · 19/09/2024 17:11

YANBU please get a scan to rule out ovarian cancer

Wobblyheart · 19/09/2024 17:05

C152 · 19/09/2024 17:03

No, if you have private health insurance (rather than self fund i.e. pay from your own pocket whenever you need to), it's a requirement that you get a referral from a GP.

OP, I don't think your GP is reasonable at all. And I don't understand their reluctance to refer you when you're saying you'll pay to have the test/scans done privately. If you keep hitting a brick wall, pay £50 for a private GP consultatation and get them to refer you.

They are doing it because I have a health anxiety. I would like to see anyone who wouldnt in my shoes.

OP posts:
supportpangolin · 19/09/2024 17:03

Paganpentacle · 19/09/2024 16:40

GPs and the NHS don't refer for private anything.
If you want it- you arrange and pay for it.

GPs can and do make private referrals.

Some private hospitals will ask for a GP referral and some will not - it depends on the hospital and the consultant.

I had major surgery carried out privately two years ago and self-funded. I had a choice, I could have self referred to the consultant of my choice by contacting the consultant's private hospital secretary or I could ask my NHS GP to send a referral letter to the consultant. I elected to have the GP make the referral as I had already had an NHS X-ray which showed that my condition was severe.

Once the referral had been made, the private consultant's secretary set up an appointment and the GP had no further input.

My consultant also worked in my local NHS hospital and was able to access my hospital scans and the X-ray. Because I had another condition which might impact my fitness for surgery, the private consultant also liaised with my NHS consultant about the other condition and the need to stop the medication I was taking at that time before my surgery took place.

C152 · 19/09/2024 17:03

TheNinny · 19/09/2024 15:42

I didn’t think GP’s did private referrals, in that it is up to the patient to arrange the private treatment by contacting the private hospital provider for an appointment etc. i’m in scotland though, could be different

No, if you have private health insurance (rather than self fund i.e. pay from your own pocket whenever you need to), it's a requirement that you get a referral from a GP.

OP, I don't think your GP is reasonable at all. And I don't understand their reluctance to refer you when you're saying you'll pay to have the test/scans done privately. If you keep hitting a brick wall, pay £50 for a private GP consultatation and get them to refer you.

OP posts:
Wobblyheart · 19/09/2024 17:01

PeachRose1986 · 19/09/2024 16:58

Unfortunately, I have lost 2 relatives and a friend because the GP did not refer for scans. All 3 of these people saw their GP repeatedly for over a year. Two finally diagnosed through A+E admissions. So ‘GP doesn't think so’ means nothing to me. They miss it all the time. If you are concerned, be firm.

It is devastating to hear.

OP posts: