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Suddenly can't move legs

216 replies

Whitfloor · 18/09/2024 14:52

My friend had a general anaesthetic two days ago (her first) to correct a minor problem. She seemed fine. She's in her late thirties.

Two hours ago she felt very sick and became unable to stand. She became unresponsive. No raised temperature. An ambulance was called.

Waiting on a CT scan. She can't move her legs.

She was frightened about the possibility of having a reaction to the anaesthetic. Could this be a delayed reaction?

Reduced sensation in all four limbs. SATS fine throughout. Now perfectly clear mentally but passed out for a while in the ambulance.

What could be happening?

OP posts:
Alifemoreordinary123 · 18/09/2024 22:45

Obviously it’s not possible to diagnose anything but a young member of my family lost the use of their legs suddenly a year ago (no warning, no illnesses etc). They were diagnosed as having a functional neurological disorder. It was explained to me by one expert as a problem with your software rather than your hardware - basically, neurological messages your brain would usually send to your legs misfire and don’t hit the target. It’s a nervous system issue not a structural issue in other words. It seemed poorly diagnosed and understood (took us ages to get the diagnosis - the local DGH were clueless). Just something to consider if none of the tests your friend has prove another explanation. Some explain it as a psychosomatic issue - having done a lot of research I think that’s bullshit and a way of professionals inexperiences in the issue explaining away something when they can’t find a logical cause on a scan. It’s not about MH. Though there is an interplay between biological, psychological and environmental factors. Some information below.

btw my family member is recovering slowly with physio and has started to walk again. It’s been a long road and a battle to get appropriate physio etc.

www.sth.nhs.uk/services/a-z-of-services?id=115&page=293

comedycentral · 18/09/2024 22:35

You sound like a lovely and very worried friend. I hope it's nothing too serious, our bodies can react oddily to illness, operations, immune reactions and stress. My DH had a sort of neurological reaction to extreme stress around a decade ago, it mimicked stroke symptoms, he went onto make a full recovery. Wishing your friend the best of health.

OrwellianTimes · 18/09/2024 22:28

Twistybranch · 18/09/2024 19:58

Well if you read what the Doctors have said- they believe it has a psychological root.

I was explaining to the OP how anxiety can cause the symptoms her friend is experiencing.

So calm down

No, you’re stating with full authority What It Is when you don’t know.

Psychological is one suggestion on the table but there are many things that had to be ruled out first.

Also it wouldn’t exactly be the first time “it’s psychological” has been used incorrectly. I was told heavy periods and subsequent exhaustion was psychological until I measured my blood loss, took it to another GP who said “woah that’s not right”, sent me for tests and found that I have adenomyosis, bicornate uterus, and was severely anemic.

comeondover · 18/09/2024 22:14

pissedpocket · 18/09/2024 17:51

Sounds like functional neurological disorder (fnd). It used to be thought as psychological (was called conversion disorder or hysteria in the past) but new research shows it's not. However the general public and a lot of the NHS aren't aware of this. It'll be a positive diagnosis via the hoover test if it is, not a diagnosis of exclusion of anything else. She's in the best place to be investigated and looked after. X

Can you say more about the new research on fnd please? How new? And if it's recognised as having a physiological basis (presumably it is, if no longer seen as psychological), then is there anything specific known about this?

RedHotWings · 18/09/2024 22:11

Potential causes

  1. Delayed Anesthetic Reaction:
- Uncommon but possible - Usually occur within 24 hours post-anesthesia - Typically not associated with such severe neurological symptoms
  1. Acute Inflammatory Demyelinating Polyradiculoneuropathy (Guillain-Barré Syndrome):
- Can be triggered by surgery or anesthesia - Presents with ascending paralysis and sensory changes - Consistent with the described symptoms
  1. Transverse Myelitis:
- Inflammation of the spinal cord - Can cause sudden onset of paralysis and sensory changes - May be triggered by immune system activation post-surgery
  1. Conversion Disorder:
- Psychological stress manifesting as neurological symptoms - Pre-existing anxiety about anesthesia noted - Less likely given the severity and pattern of symptoms
  1. Acute Disseminated Encephalomyelitis (ADEM):
- Rare inflammatory condition affecting the brain and spinal cord - Can occur post-surgery or infection - Consistent with rapid onset of neurological symptoms
LivelyGoldOrca · 18/09/2024 22:11

TheVeryAngryCaterpillar · 18/09/2024 22:09

I remember a post ages ago that mentioned similar symptoms and Cauda Equina. Which can apparently be postoperative and needs urgent medical attention but other than I remember nothing about it, worth an ask?

Normal CT though. Im with psychological on this one…

TheVeryAngryCaterpillar · 18/09/2024 22:09

I remember a post ages ago that mentioned similar symptoms and Cauda Equina. Which can apparently be postoperative and needs urgent medical attention but other than I remember nothing about it, worth an ask?

justasking111 · 18/09/2024 21:53

What a worrying time. I hope there's a diagnosis soon.

Othergirlswereneverquitelikethis · 18/09/2024 21:53

Whitfloor · 18/09/2024 17:15

CT scan clear.
Still waiting for blood work.
She's having bad pins and needles.
She can feel touch but she can't move legs at all, fingers just a fraction sometimes. When she falls asleep her body shivers and jerks.
The staff are beginning to suggest it's psychological...I really don't think so.

Why don’t you think it is psychological? Psychosomatic symptoms are much more common than some of the other diagnoses being suggested on here. It doesn’t make those symptoms any less real - they are absolutely experienced in a physical way.

I think people still feel there’s a shame or stigma attached to a psychological cause, which makes them resist it. People are much more willing to accept a diagnosis with a physical cause and think any suggestion of a psychological cause must mean their symptoms are being ignored or dismissed. That’s not the case at all and any diagnosis will be based on the symptoms and tests, whether a physical or psychological cause. One isn’t more valid than the other.

merryandbrightdelight · 18/09/2024 21:49

My goodness op I didn't want to read and run, I hope your poor friend gets some answers and makes a swift recovery and I hope you have some support with you too

AnnaCBi · 18/09/2024 21:45

pissedpocket · 18/09/2024 17:51

Sounds like functional neurological disorder (fnd). It used to be thought as psychological (was called conversion disorder or hysteria in the past) but new research shows it's not. However the general public and a lot of the NHS aren't aware of this. It'll be a positive diagnosis via the hoover test if it is, not a diagnosis of exclusion of anything else. She's in the best place to be investigated and looked after. X

Medical professionals understanding of FND is surprisingly poor. There is an FND charity that can help.

Othergirlswereneverquitelikethis · 18/09/2024 21:45

pissedpocket · 18/09/2024 17:51

Sounds like functional neurological disorder (fnd). It used to be thought as psychological (was called conversion disorder or hysteria in the past) but new research shows it's not. However the general public and a lot of the NHS aren't aware of this. It'll be a positive diagnosis via the hoover test if it is, not a diagnosis of exclusion of anything else. She's in the best place to be investigated and looked after. X

Anything with functional in the name is psychological. It means the patient is experiencing symptoms which have no known medical cause. Having positive symptoms doesn’t change that. It just means that, as with most psychological diagnoses, there a collection of symptoms which many patients share.

schloss · 18/09/2024 21:43

Your friend, or someone advocating for her, must insist on seeing a neuro consult. FND is a convenient diagnosis, and for some, is not considered a diagnosis at all. GBS is a possibility, as are plenty of other things - time is of the essence to ensure no further damage or normality is not resumed. Do not accept it is psychological until everything else is investigated by a neuro team.

Newmumburnout · 18/09/2024 21:40

How is she doing now ?.

Londonrach1 · 18/09/2024 21:25

Hope your friend feels better soon. she is in the right place. Hope the doctors find some answers.

Greybeardy · 18/09/2024 21:20

countrysidelife2024 · 18/09/2024 21:19

Vestibulocochlear Nerve, Glossopharyngeal Nerve ?? Don't think any of the others would be the cause.

Causing leg weakness?!

countrysidelife2024 · 18/09/2024 21:19

Greybeardy · 18/09/2024 21:15

Which nerve?

Vestibulocochlear Nerve, Glossopharyngeal Nerve ?? Don't think any of the others would be the cause.

OhMaria2 · 18/09/2024 21:18

Ohmycarrots · 18/09/2024 20:20

Exactly. My psychological symptoms can be downright terrifying.

I don't see why deciding its psychological is a bad thing.

Because they say everything is when you're a woman. Then you don't get help whilst your condition worsens/ runs your life.

supportpangolin · 18/09/2024 21:17

If a patient has had a TIA, it won't necessarily show up on a CT scan.

Strokes won't always show up on a CT scan done within a few hours of the symptoms, either.

I have a family member who has had two strokes. On both occasions the area of damage left by the stroke did not show up on either of the CT scans carried out within a couple of hours of arriving at the rapid assessment stroke ward. However, three or four weeks later damage done by both strokes could be clearly seen on an MRI scan.

One of the reasons a CT scan is carried out quickly following presentation with symptoms that are suggestive of a TIA or stroke is to ascertain whether the patient has had a brain bleed due to the rupture of a blood vessel rather than an ischemic stroke due to a blood clot, as in some cases a brain bleed can be repaired by surgery.

Greybeardy · 18/09/2024 21:15

countrysidelife2024 · 18/09/2024 21:12

or a Nerve Compression

Which nerve?

countrysidelife2024 · 18/09/2024 21:13

Cerebrospinal Fluid (CSF) Leak?

countrysidelife2024 · 18/09/2024 21:12

or a Nerve Compression

DiscoinFrisco · 18/09/2024 21:12

Christ some people are being awful to the OP.
People use Mumsnet for all kinds of crap. Have a heart and at least be nice. Jeez

countrysidelife2024 · 18/09/2024 21:12

id be thinking Functional Neurological Disorder (FND) or GBS

Whitfloor · 18/09/2024 21:04

Twistybranch · 18/09/2024 20:02

People on this thread, desperate for it to be something sinister. It’s macabre.

The doctors have said it’s psychological, believe them

They haven't come out and said it. They've just implied that there are a limited number of things it could be as if it's not any of those, well...

I just feel it's so close to the anaesthetic that something to do with that is more likely than a psychological reason as that is so rare and she has navigated poor mental health without that manifesting before. I'm fully aware that to say it's psychosomatic is not an insult, it can happen to anyone and it's very real. But my family member had very similar symptoms and it was not psychosomatic and they were too slow.

OP posts: