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Suddenly can't move legs

216 replies

Whitfloor · 18/09/2024 14:52

My friend had a general anaesthetic two days ago (her first) to correct a minor problem. She seemed fine. She's in her late thirties.

Two hours ago she felt very sick and became unable to stand. She became unresponsive. No raised temperature. An ambulance was called.

Waiting on a CT scan. She can't move her legs.

She was frightened about the possibility of having a reaction to the anaesthetic. Could this be a delayed reaction?

Reduced sensation in all four limbs. SATS fine throughout. Now perfectly clear mentally but passed out for a while in the ambulance.

What could be happening?

OP posts:
CassandraWebb · 20/09/2024 14:14

Pleased to see this @Whitfloor I agree she should make sure this is followed up though

TheOriginalEmu · 20/09/2024 14:05

Ah I’m glad she’s feeling better @Whitfloor!

Whitfloor · 20/09/2024 07:36

Apologies for not updating sooner. I have good news.

She was discharged yesterday morning with movement in her hands returned. She had breakfast by herself. The walking wasn't far behind.

About six hours after this all began, she started having horribly painful pins and needles. Six hours into that, she could move some fingers a little and has better head control. Fast-forward another ten hours and she was able to pick up s coffee cup. Another six hours after that and she was able to use her phone by herself.

They have ruled out anything sinister but don't have an explanation for her. I would have liked them to do an MRI just to see what they could see as I cannot imagine how difficult it will be for her to face future operations without this experience ruled out as a side effect. However we're just thankful she's safe and well.

Thank you to everyone who offered support and sent good wishes. They are so appreciated and it's wonderful to come back with a positive conclusion.

OP posts:
Aussieland · 20/09/2024 01:58

LBFseBrom · 19/09/2024 22:30

t couldn't find what I originally copied but this is from the NIH:

"... evidence suggests that undetected residual paralysis during emergence from anesthesia is common and may have deleterious clinical consequences."

"It may help to think of numbness and tingling as natural side effects of surgery. They can occur because of anesthesia, inability to move during the procedure, the surgical cut itself, or irritated nerves. In most cases, numbness lasts for only a day or two after surgery."

"Myoclonic movement is a rare side effect after general anesthesia."

However the op hasn't come back with an update so we still don't know what is happening with the patient. Hopefully she is now recovering.

Yeah I think an anaesthetist knows what anaesthetics can do 😂 And that google search is entirely irrelevant in this case

Greybeardy · 19/09/2024 22:50

LBFseBrom · 19/09/2024 22:30

t couldn't find what I originally copied but this is from the NIH:

"... evidence suggests that undetected residual paralysis during emergence from anesthesia is common and may have deleterious clinical consequences."

"It may help to think of numbness and tingling as natural side effects of surgery. They can occur because of anesthesia, inability to move during the procedure, the surgical cut itself, or irritated nerves. In most cases, numbness lasts for only a day or two after surgery."

"Myoclonic movement is a rare side effect after general anesthesia."

However the op hasn't come back with an update so we still don't know what is happening with the patient. Hopefully she is now recovering.

I suspect you’ve wildly misinterpreted your search results.

Residual paralysis is only a problem if muscle relaxants were used and the anaesthetist was an idiot. It would not suddenly develop 2 days later and, as your quote suggests, it would be obvious on emergence and would be managed then. You don’t even know if the OP’s friend had muscle relaxants.

numbness from lying still might develop during an operation just like it would if you fell asleep in a daft position although padding and care with positioning minimises this as far as possible. It would typically affect a single nerve if it were to happen. Or if local anaesthetic had been used as part of the procedure clearly that could cause numbness/tingling however given that the operation was ear surgery it’s not relevant. An incision can cause nerve injury at the operative site. Clearly also not relevant here.

you can occasionally get some unusual movements as part of induction or emergence of GA. They happen during those brief periods then stop.

LBFseBrom · 19/09/2024 22:30

Greybeardy · 19/09/2024 19:45

Rubbish. (Doi: anaesthetist)

t couldn't find what I originally copied but this is from the NIH:

"... evidence suggests that undetected residual paralysis during emergence from anesthesia is common and may have deleterious clinical consequences."

"It may help to think of numbness and tingling as natural side effects of surgery. They can occur because of anesthesia, inability to move during the procedure, the surgical cut itself, or irritated nerves. In most cases, numbness lasts for only a day or two after surgery."

"Myoclonic movement is a rare side effect after general anesthesia."

However the op hasn't come back with an update so we still don't know what is happening with the patient. Hopefully she is now recovering.

YOYOK · 19/09/2024 21:23

CutthroatDruTheViolent · 19/09/2024 21:15

Yes I agree. I was replying to someone who said anxiety can't make you not feel your legs. At this stage I think it's supremely unhelpful for OP to be speculating, the doctors probably haven't even got all their test results back.

Oh sorry, I misread your post. Apologies!

CutthroatDruTheViolent · 19/09/2024 21:15

YOYOK · 19/09/2024 19:23

It is dangerous to diagnose anxiety based on the few tests undertaken in A&E. Once the friend has received the full and appropriate specialist testing, then they can rule out a physiological cause.

Yes I agree. I was replying to someone who said anxiety can't make you not feel your legs. At this stage I think it's supremely unhelpful for OP to be speculating, the doctors probably haven't even got all their test results back.

Angrymum22 · 19/09/2024 21:02

supportpangolin · 19/09/2024 13:38

https://www.seattletimes.com/nation-world/study-ct-scans-often-miss-strokes/#:~:text=The%20scans%20were%20independently%20interpreted,26%20percent%20of%20the%20time.

The most common method of diagnosing a stroke in emergency rooms catches only about one out of every four cases — far fewer than an MRI scan, which also was better at spotting the type of stroke, a U.S. government funded study showed...

...Chalela and colleagues examined 356 patients, of whom 217 were ultimately diagnosed with an acute stroke. Patients were scanned both by CT and MRI machines. CT scans are a type of X-ray, whereas magnetic resonance imaging uses powerful magnets instead of radiation to produce an image.

The scans were independently interpreted by four experts, who had no other patient information. Based only on the MRI scans, experts accurately diagnosed acute strokes 83 percent of the time. Using the CT scans, however, they were right just 26 percent of the time.

MRI scans were also more precise in spotting the cause of the stroke — a blood clot or bleeding in the brain. The vast majority of strokes are caused by clots. In patients scanned within three hours of symptoms, MRIs detected strokes caused by clots in 41 of 90 patients, while CT scans picked up only six of the 90 patients.

The first few hours after a stroke are critical, since clot-busting drugs must be given within three hours to have a real impact. If they are given to the wrong patients, however, death or severe disability can result.

--

Can posters please stop saying that a CT scan will "rule out a stroke".

CT scan is the standard for patients presenting with stroke symptoms. Current treatment includes rapid anticoagulation if the stroke is cause by a clot visible using a contrast dye. Speed is of the essence since the anti coagulant needs to be administered within 4.5hrs of onset of the symptoms. As a result this rules out anyone with an haemorrhaging stroke and anyone whose stroke was not witnessed. Once the anticoagulant has been administered a further CT is carried out due to high risk of haemorrhage. The patient has to meet a strict set of criteria aswell resulting in only around 15% of stroke victims benefitting from anti coagulant therapy. There are other treatments.
So yes CT scans are used to identify strokes caused by clots because early intervention can be life changing.
My DH had a witnessed stroke, was in hospital in under an hour and diagnosed with a clot via CT in under 2hrs, then treated within the 4 hr window.
He was admitted at 6pm on a Friday and walked out of hospital unaided 3days later. On admission he couldn’t support his head or upper body and lost full function of his right limbs. The only visible sign that he has had a stroke is a slightly lobsided smile and he struggle with fine motor function in his right hand.

Without a CT they cannot differentiate between haemorrhages and ischaemic strokes so would be unable to use the anticoagulant therapy.
The CT scan is to quickly identify ischaemic strokes. No clot present does not necessarily mean it’s a stoke but if one is present they can proceed with what can only be described as a miracle treatment.

TheOriginalEmu · 19/09/2024 20:39

OrangeCarrot · 19/09/2024 06:45

As someone that works in medicine these kinds of threads are terrifying to read with the amount of misinformation and terror stirring.

It’s so clear that most commenters that spew their medical thoughts know little about what they are talking about but post as if they are an expert.

It sounds very much like the doctors are taking her seriously by the tests OP has mentioned and the fact they are keeping her in overnight.

I think people forget that in the vast vast majority of cases healthcare workers try their best. When they are faced with symptoms that don’t fit a certain clinical picture they do further tests and get other specialist opinions.

Of course diagnoses will be missed at times because medicine is hard and everyone presents differently, but I promise you that no doctor wants to miss a diagnosis.

The sentiments we see on this thread are exactly why UK medicine has become so defensive. Defensive medicine is one of the major reasons that the NHS is so unsustainable as doctors order expensive tests after expensive test instead of practicing evidence based medicine.

It’s also true that doctors don’t take holistic views or listen to patients a decent percentage of the time and that they make mistakes. I’m only alive right now because I ordered an MRI on a lump by mistake when I wanted one id had on my back for my chiropractor. When that came I found out that the cancer that was in my hip was ignored for an entire year. And would have continued to be ignored until I was dead presumably. As it is I lost a leg and might still die. So people are right to advocate for themselves.

Greybeardy · 19/09/2024 19:45

LBFseBrom · 19/09/2024 19:36

Is it not a reaction to the anaesthetic? Her symptoms fit that. Of course we can't diagnose on here but from what you say, op, it sounds like that. Reaction to some anaesthetic can manifest as paraesthesia, neuropathic pain (pins and needles), numbness and, rarely, jerking about. Having just written all that I think I already said it not long after you first posted so sorry if I did manage to post, am having problems with wifi going off and on.and my posts sometimes aren't 'sent' I'll try and find where I read it.

However it might have worn off by now. I do hope so.

Rubbish. (Doi: anaesthetist)

LBFseBrom · 19/09/2024 19:36

Is it not a reaction to the anaesthetic? Her symptoms fit that. Of course we can't diagnose on here but from what you say, op, it sounds like that. Reaction to some anaesthetic can manifest as paraesthesia, neuropathic pain (pins and needles), numbness and, rarely, jerking about. Having just written all that I think I already said it not long after you first posted so sorry if I did manage to post, am having problems with wifi going off and on.and my posts sometimes aren't 'sent' I'll try and find where I read it.

However it might have worn off by now. I do hope so.

YOYOK · 19/09/2024 19:23

CutthroatDruTheViolent · 19/09/2024 19:06

Anxiety can cause a lot of psychological problems.

I just feel it's so close to the anaesthetic that something to do with that is more likely than a psychological reason as that is so rare and she has navigated poor mental health without that manifesting before

With respect OP, you're not a doctor. I get you're worried and upset but you have literally no idea.

It is dangerous to diagnose anxiety based on the few tests undertaken in A&E. Once the friend has received the full and appropriate specialist testing, then they can rule out a physiological cause.

CutthroatDruTheViolent · 19/09/2024 19:06

SnowFrogJelly · 19/09/2024 00:55

It’s anxiety. An extreme anxiety attack

I don't think anxiety causes loss of movement in the legs

Anxiety can cause a lot of psychological problems.

I just feel it's so close to the anaesthetic that something to do with that is more likely than a psychological reason as that is so rare and she has navigated poor mental health without that manifesting before

With respect OP, you're not a doctor. I get you're worried and upset but you have literally no idea.

BlackStrayCat · 19/09/2024 14:16

... had I been able to type, I bet someone on here would have said "GBS" and I could have spoken uploud and clear. Advocated for myself.

Nobody is "armchair diagnosing", posters are suggesting things that have perhaps been misdiagnosed for them, friends or family. In order to help.

As for "GBS is 1:1,000000, yes. I was told that too. Since then, I personally found 5 people I know who had had family members that have had it.

BlackStrayCat · 19/09/2024 13:57

stayathomegardener · 18/09/2024 20:11

Having had GBS it comes on gradually as said by a previous poster.
It started immediately after a vaccination and crept up both arms and legs for a few days before I couldn't walk. I think that's pretty typical.
How worrying for you and your friend.

My GBS was in the space of 2 hours.

It can be weeks or hours. I ended up in ICU unable to breathe.
I will never be the same as they did not diagnose me in time. My nerves are buggered.

supportpangolin · 19/09/2024 13:38

https://www.seattletimes.com/nation-world/study-ct-scans-often-miss-strokes/#:~:text=The%20scans%20were%20independently%20interpreted,26%20percent%20of%20the%20time.

The most common method of diagnosing a stroke in emergency rooms catches only about one out of every four cases — far fewer than an MRI scan, which also was better at spotting the type of stroke, a U.S. government funded study showed...

...Chalela and colleagues examined 356 patients, of whom 217 were ultimately diagnosed with an acute stroke. Patients were scanned both by CT and MRI machines. CT scans are a type of X-ray, whereas magnetic resonance imaging uses powerful magnets instead of radiation to produce an image.

The scans were independently interpreted by four experts, who had no other patient information. Based only on the MRI scans, experts accurately diagnosed acute strokes 83 percent of the time. Using the CT scans, however, they were right just 26 percent of the time.

MRI scans were also more precise in spotting the cause of the stroke — a blood clot or bleeding in the brain. The vast majority of strokes are caused by clots. In patients scanned within three hours of symptoms, MRIs detected strokes caused by clots in 41 of 90 patients, while CT scans picked up only six of the 90 patients.

The first few hours after a stroke are critical, since clot-busting drugs must be given within three hours to have a real impact. If they are given to the wrong patients, however, death or severe disability can result.

--

Can posters please stop saying that a CT scan will "rule out a stroke".

supportpangolin · 19/09/2024 13:30

CassandraWebb · 19/09/2024 10:25

This has nothing to do with stigma and everything to do with people missing out on their actual diagnosis because hard to solve neurological symptoms are just dumped in the "FND" bucket.

I know so many people (as a result of my condition) who went without treatment for years because they were wrongly diagnosed as having FND.

Or take a look at "thattillyrose" on Instagram, who was told time and again that doctors couldn't find a cause so it must be psychological and yet now doctors have been able to pinpoint that there are very real physical causes.

It's not about stigma it's about the lack of curiosity that leads to missed chances for treatment

Patients with ME and Long Covid are also sometimes incorrectly re-diagnosed with FND by neurologists.

supportpangolin · 19/09/2024 13:25

For those who keep repeating that a CT scan will rule out a stroke:

CT scan won't always reliably rule out an ischaemic stroke (due to a blood clot).

Sometimes a stroke won't be visualised on a CT scan if it is carried out within a few hours of development of stroke symptoms. Whereas an MRI undertaken later will show the areas of damage and may also show evidence of historical damage from "silent" strokes which the patient had not been aware of at the time.

In our experience, patients referred to rapid assessment stroke units are often given a CT scan within a couple of hours after presentation and this is followed by an MRI several weeks later.

A CT scan may differentiate between an ischaemic stroke or a haemorrhagic stroke and guide rapid treatment.

NHS:

https://www.nhs.uk/conditions/stroke/diagnosis/#:~:text=If%20a%20stroke%20is%20suspected,to%20receive%20appropriate%20treatment%20sooner.

"If a stroke is suspected, a CT scan is usually able to show whether you have had an ischaemic stroke or a haemorrhagic stroke. It's generally quicker than an MRI scan and can mean you're able to receive appropriate treatment sooner."

pissedpocket · 19/09/2024 12:39

Efacsen · 19/09/2024 11:39

In what way is it surprising/unexpected that there would be MRI changes in the amygdala given it's role in in mediating emotions? Could it not be a reflection of emotional distress?

I didn't say it was surprising or unexpected. Yes, it's no surprise the amygdala is involved. This could be useful information as part of diagnostic tests in the future, especially for those that may have had functional symptoms for extended periods of time without a diagnosis so far. Or it may be too complicated to ever get to the bottom of FND. Who knows! But like IBS, the more research and awareness there is the better.

I appreciate people's willingness to try and understand something that is really misunderstood. I myself may be completely wrong about how I understand my FND. And I agree, no one should armchair diagnose anything. I hope OPs friend gets the answer she needs.

Efacsen · 19/09/2024 11:39

pissedpocket · 19/09/2024 09:36

There was a fMRI study a year or so back that showed changes in the amygdala of FND patients. The FND hope website has it referenced. I also just found this one published this year about blood oxygen. Admittedly it could be that these changes come after the onset of FND rather than before. The research is all new and small scale and the disorder is very varied in symptoms.

In response to other posters. Yes, FND has a psychological part. All humans experience functional neurological symptoms FNS (sleep paralysis, being so angry you stutter/splutter/can't talk, blushing because you feel embarrassed, shaking or trembling after shocking news, bowl issues when nervous). It's when it goes out of whack and turns into full blown FND (or IBS) and impacts the quality of people's lives.

Just like anyone with psychological distress or poor mental health is going to feel worse when they are physically unwell, psychological distress and poor mental health or trauma will make functional symptoms worse, and possibly turn it into a full blown disorder, though not in all cases.

Positive diagnostic criteria such as the hoover test, or tremor entrainment should be combined with significant recent or historical psychological factors if relevant. But, all other possible causes of what is happening should be investigated too.

Also my favourite thing to remember is that the placebo effect is very real, but not stigmatised, FND is very real but very stigmatised by a lot of people.

In what way is it surprising/unexpected that there would be MRI changes in the amygdala given it's role in in mediating emotions? Could it not be a reflection of emotional distress?

Whatspots · 19/09/2024 11:26

although I wish people weren’t giving this lady an armchair diagnosis of FND it’s good to see how much more aware people are of it but equally how many misperceptions exist, for eg, it’s not a disease as someone has said. Western medicine is very good at dividing the brain from the body but it’s more helpful to see ourselves as a whole amazing system. We all have a “ fight, flight or freeze” response…a rabbit caught in a field has the option of running for its life or freezing in the hope the predator will pass by….the rabbit isn’t paralysed in this instance, its system has decided the best chance of survival is to freeze until danger has passed. As a physio if I went to see a person who was paralysed or had stroke symptoms, that person with FND would TRULY not be able to move the affected limbs if I asked them…but if I moved that limb or if I tried to stand that person ,their automatic functions might kick in and help,whereas with someone with a massive stroke or paralysis resulting from a spinal cord injury, that would not happen. The latter group, if you put them in bed would still be in the same position when the nurse comes to turn them; someone with FND may have changed position because their automatic responses have kicked in during sleep. We need to be incredibly carefully of presumptions when it comes to making diagnosis …as someone has said upthread ,many people get missed diagnoses of all sorts of conditions because a judgement is made on face value, and bias against certain groups ( women,ethnic minorities,the elderly etc) is very real!

YOYOK · 19/09/2024 11:14

Twistybranch · 19/09/2024 10:52

That’s not how it works though. It’s only after other conditions have been excluded, that this is the conclusion taken. It’s not an immediate diagnosis if you can’t find an underlying medical reason.

Lots of posters on here, overly sensitive to this issue of it being psychological and are projecting.

The symptoms are just as real, the pain and discomfort- regardless if it psychological or a medical condition. The denial and rejection of it being labeled mental health, just further prolongs the problem. Acceptance is key to any treatment.

I agree with your last paragraph. In general, there is still a stigma around mental health and psychological health disorders.

However, it is dangerous to rule of physiological causes of neurological symptoms based on the very basic tests in A&E. They have ruled out of the common, major life threatening causes of symptoms which is good news. They need to rule out other neurological causes too.

CassandraWebb · 19/09/2024 11:09

Sorry, my first sentence should say "that is how it should work"

CassandraWebb · 19/09/2024 11:02

Twistybranch · 19/09/2024 10:52

That’s not how it works though. It’s only after other conditions have been excluded, that this is the conclusion taken. It’s not an immediate diagnosis if you can’t find an underlying medical reason.

Lots of posters on here, overly sensitive to this issue of it being psychological and are projecting.

The symptoms are just as real, the pain and discomfort- regardless if it psychological or a medical condition. The denial and rejection of it being labeled mental health, just further prolongs the problem. Acceptance is key to any treatment.

That's not how it should work. Agreed.

But in my experience and that of many others that is unfortunately how it often does work.

I was quite happy to accept the symptoms were psychological when doctors insisted and I accepted put up with them for a long time. I am incredibly cross to now find they were entirely treatable. Likewise the people I know who ensured "IBS" for years only to find out they had coeliac.