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Suddenly can't move legs

216 replies

Whitfloor · 18/09/2024 14:52

My friend had a general anaesthetic two days ago (her first) to correct a minor problem. She seemed fine. She's in her late thirties.

Two hours ago she felt very sick and became unable to stand. She became unresponsive. No raised temperature. An ambulance was called.

Waiting on a CT scan. She can't move her legs.

She was frightened about the possibility of having a reaction to the anaesthetic. Could this be a delayed reaction?

Reduced sensation in all four limbs. SATS fine throughout. Now perfectly clear mentally but passed out for a while in the ambulance.

What could be happening?

OP posts:
linsey2581 · 20/09/2024 20:39

@Whitfloor Don’t think it’s appropriate for you to be publishing your friends medical details online .

Bs0u416d · 20/09/2024 20:37

In amazed they discharged her before she had regained the use of her legs? Did they provide her with a wheel chair? Or did you have to carry her?

ThisFunHedgehog · 20/09/2024 20:28

Whitfloor · 20/09/2024 07:36

Apologies for not updating sooner. I have good news.

She was discharged yesterday morning with movement in her hands returned. She had breakfast by herself. The walking wasn't far behind.

About six hours after this all began, she started having horribly painful pins and needles. Six hours into that, she could move some fingers a little and has better head control. Fast-forward another ten hours and she was able to pick up s coffee cup. Another six hours after that and she was able to use her phone by herself.

They have ruled out anything sinister but don't have an explanation for her. I would have liked them to do an MRI just to see what they could see as I cannot imagine how difficult it will be for her to face future operations without this experience ruled out as a side effect. However we're just thankful she's safe and well.

Thank you to everyone who offered support and sent good wishes. They are so appreciated and it's wonderful to come back with a positive conclusion.

Hi OP, not read the full thread but just wanted to mention about checking B12 levels via blood test (sorry if this has already been mentioned) . Glad they are improving.

CassandraWebb · 20/09/2024 20:15

MumblesParty · 20/09/2024 19:48

She has recovered within 24 hours spontaneously, so maybe it was psychological after all. But don’t let that stop you slagging of the medics. I expect you know better.

Spontaneous recovery doesn't mean it is necessarily psychological. my condition usually improves rapidly with rest. It doesnt make it any less real.

Just because we don't know what caused something, it doesn't mean it had a psychological cause. That's such a backwards way of thinking. It took 20 years of doctors telling me my illness was psychological before the very real physical cause was confirmed.

H0210zero · 20/09/2024 20:05

It could very well be psychological if she has worried about the general anathetic prior to her surgery. I suffer from FND Functional Neurological Disorder which is a psychological illness. I lost the use of my right arm during high times of stress and have never regained it. No medical explanation physically all scans are fine. But the situation I was going through at the time literally felt like I was.cutting.ky right arm off. It also began triggering seizures. I've come to accept it is psychological after diagnosis but only because after every medical team even the one diagnosing me couldn't do anything else I tried my hand at Lucid dreaming. Entering and.co trolling my dreams I can control my arm in my dream and as I wake I sometimes get a brief moment of feeling sometimes that lasts a little longer and the more I persist with lucid dreaming the more I feel my arm upon waking. If it had been physical that would be unlikely to work.

Faldodiddledee · 20/09/2024 19:59

My first hemiplegic migraine mimicked stroke symptoms. Incredibly dramatic, loss of ability to stand, speak, co-ordination difficulties, balance issues, taken to A and E. Lasted several days. Had many since then but that first one was the worst.

Have no idea if this experience is similar, and the most important thing is to rule out other causes. I had an MRI a few months later. I take preventive medication now, which makes them much less frequent and milder although still sometimes lose ability to walk temporarily.

MumblesParty · 20/09/2024 19:48

IOSTT · 20/09/2024 19:20

Staff suggest it’s psychological when they don’t have a Fu**ing clue what they are doing. Tell them she is a man and they will take it more seriously 😡

She has recovered within 24 hours spontaneously, so maybe it was psychological after all. But don’t let that stop you slagging of the medics. I expect you know better.

YYBU · 20/09/2024 19:26

Whitfloor · 18/09/2024 15:40

Making no apologies for the post.

Sorry, but you should.
Listen to good advice when it's given. This is not the place for Doctor Google hysteria. Just leave it to the experts and not the untrained.

Beautifulweeds · 20/09/2024 19:26

I'm no expert but my first thoughts were blood clot or infection.

IOSTT · 20/09/2024 19:20

Whitfloor · 18/09/2024 17:15

CT scan clear.
Still waiting for blood work.
She's having bad pins and needles.
She can feel touch but she can't move legs at all, fingers just a fraction sometimes. When she falls asleep her body shivers and jerks.
The staff are beginning to suggest it's psychological...I really don't think so.

Staff suggest it’s psychological when they don’t have a Fu**ing clue what they are doing. Tell them she is a man and they will take it more seriously 😡

MotherJessAndKittens · 20/09/2024 19:20

It could be related to the ear surgery as the ear helps with balance.

ObieJoyful · 20/09/2024 18:44

pissedpocket · 18/09/2024 17:51

Sounds like functional neurological disorder (fnd). It used to be thought as psychological (was called conversion disorder or hysteria in the past) but new research shows it's not. However the general public and a lot of the NHS aren't aware of this. It'll be a positive diagnosis via the hoover test if it is, not a diagnosis of exclusion of anything else. She's in the best place to be investigated and looked after. X

My daughter has FND, it presents as seizures with her.

naw131 · 20/09/2024 18:42

your friend MUST GET AN MRI NOW!!!..........she needs to be checked for any Demyelination on her brain or spinal cord. She shouldn't accept their excuses, this is very serious stuff......even something temporary can end up coming back with a vengence. This is from experience.

Greybeardy · 20/09/2024 18:38

Tricey · 20/09/2024 18:28

Glad to hear your friend is feeling better. Might suggest she check out her MTHFR genes status. Some people who have it can't detox well and are better with different anesthesia types and other products. Here's a quote from someone who has posted a lot of her research on it after a neuro experience for her son. This is not her research, but it is a quick quote that might help lead to more answers if applicable. Quote: "...people with (compromised) MTHFR cannot detox well. Thus, when given certain medication, vitamins and supplements, there can be adverse reactions. In many cases where anesthesia is used, the situation is immediate or an emergency and there isn’t much time to gather needed information on the spot. This is why it’s important to have looked into it and to have the information in a handy spot as a ‘just in case.’ Certain anesthesias, including ones used in dentistry, can lead to a stroke, serious neurologic outcomes, or even worse for some. Please note, I am not a doctor."

Once again, in the context of anaesthesia, this relates to nitrous…which is extremely unlikely to have been used.

naw131 · 20/09/2024 18:33

I agree that it sounds a lot like Guillan Barre too......however, i was diagnosed with MS, after an operation to have my wisdom teeth out resulted in similar symptoms to your friend. She'll need an MRI on her brain and spine.......a spinal stroke is another option.

Poopants1000 · 20/09/2024 18:29

Greybeardy · 20/09/2024 18:23

its extremely unlikely that nitrous will have been used.

Best to ask them, no?!? 🤔

Tricey · 20/09/2024 18:28

Glad to hear your friend is feeling better. Might suggest she check out her MTHFR genes status. Some people who have it can't detox well and are better with different anesthesia types and other products. Here's a quote from someone who has posted a lot of her research on it after a neuro experience for her son. This is not her research, but it is a quick quote that might help lead to more answers if applicable. Quote: "...people with (compromised) MTHFR cannot detox well. Thus, when given certain medication, vitamins and supplements, there can be adverse reactions. In many cases where anesthesia is used, the situation is immediate or an emergency and there isn’t much time to gather needed information on the spot. This is why it’s important to have looked into it and to have the information in a handy spot as a ‘just in case.’ Certain anesthesias, including ones used in dentistry, can lead to a stroke, serious neurologic outcomes, or even worse for some. Please note, I am not a doctor."

Greybeardy · 20/09/2024 18:23

Poopants1000 · 20/09/2024 18:07

Have a look at this, if nitrous oxide was used by the anesthetist, I'd be asking them to check her b12/folate.

its extremely unlikely that nitrous will have been used.

supportpangolin · 20/09/2024 18:15

supportpangolin · 20/09/2024 17:57

"So yes CT scans are used to identify strokes caused by clots because early intervention can be life changing."

I did not say that CT scans are not used to identify strokes.

What I said was that CT scans carried out within hours of a stroke may not show that the patient has had a stroke (which was the case in my family member and also evidenced in the study I posted).

"Without a CT they cannot differentiate between haemorrhages and ischaemic strokes so would be unable to use the anticoagulant therapy."

Which is what I have said,

Two personal examples (in addition to the study I posted):

Family member referred to rapid stroke assessment clinic in 2015 by GP following subtle potential stroke/TIA symptoms. CT scan carried out a couple of hours after admission. CT scan shows no evidence of stroke. MRI carried out three or four weeks later shows ischaemic stroke.

Family member collapses in the middle of the night with stroke symptoms in 2020. CT scan carried out the following morning shows no evidence of stroke. MRI carried out three weeks later shows area of damage from an ischaemic stroke.

I stand by my statement that CT scan carried out shortly after a stroke has happened will not always show evidence of the stroke - though the stroke damaged area will show up on a later MRI.

Glasgomammy · 20/09/2024 18:13

Very high chance it is related, praying for a quick recovery for your friend xx

Poopants1000 · 20/09/2024 18:08

1st part ...on BBC news

Suddenly can't move legs
Poopants1000 · 20/09/2024 18:07

Have a look at this, if nitrous oxide was used by the anesthetist, I'd be asking them to check her b12/folate.

Suddenly can't move legs
supportpangolin · 20/09/2024 17:57

Angrymum22 · 19/09/2024 21:02

CT scan is the standard for patients presenting with stroke symptoms. Current treatment includes rapid anticoagulation if the stroke is cause by a clot visible using a contrast dye. Speed is of the essence since the anti coagulant needs to be administered within 4.5hrs of onset of the symptoms. As a result this rules out anyone with an haemorrhaging stroke and anyone whose stroke was not witnessed. Once the anticoagulant has been administered a further CT is carried out due to high risk of haemorrhage. The patient has to meet a strict set of criteria aswell resulting in only around 15% of stroke victims benefitting from anti coagulant therapy. There are other treatments.
So yes CT scans are used to identify strokes caused by clots because early intervention can be life changing.
My DH had a witnessed stroke, was in hospital in under an hour and diagnosed with a clot via CT in under 2hrs, then treated within the 4 hr window.
He was admitted at 6pm on a Friday and walked out of hospital unaided 3days later. On admission he couldn’t support his head or upper body and lost full function of his right limbs. The only visible sign that he has had a stroke is a slightly lobsided smile and he struggle with fine motor function in his right hand.

Without a CT they cannot differentiate between haemorrhages and ischaemic strokes so would be unable to use the anticoagulant therapy.
The CT scan is to quickly identify ischaemic strokes. No clot present does not necessarily mean it’s a stoke but if one is present they can proceed with what can only be described as a miracle treatment.

"So yes CT scans are used to identify strokes caused by clots because early intervention can be life changing."

I did not say that CT scans are not used to identify strokes.

What I said was that CT scans carried out within hours of a stroke may not show that the patient has had a stroke (which was the case in my family member and also evidenced in the study I posted).

"Without a CT they cannot differentiate between haemorrhages and ischaemic strokes so would be unable to use the anticoagulant therapy."

Which is what I have said,

Mombie87 · 20/09/2024 17:52

Something somewhat similar happened my aunt. Had minor surgery. Anaesthetic triggered a bad prolonged QT (had been undiagnosed) which caused a stroke.
She's had a pace maker fitted and is 110% now.

Doubledenim305 · 20/09/2024 17:47

Whitfloor · 18/09/2024 15:40

Making no apologies for the post.

Good for you. Other people know things and I think it to hear other people's experiences is really helpful. Not all answers might be good, but who cares. If u get a little nugget it's definitely a win.
Hope Ur friend is ok and better soon.