Suddenly can't move legs

My daughter had this diagnosis, and the hoover test was definitive. It’s a strange one, she has had previous gynae trauma and her body seems to have shut off, it’s as if her body can no longer cope.

I have M.S and an MRI scan showed where the lesions were located, this can then help to identify which parts of the body are affected. I have several in my brain affecting cognition, dexterity, short term memory, and a significant one on my spine that affects my legs and mobility.

I have relapsing remitting M.S so symptoms are up and down. Having a general anaesthetic, which I needed due to a badly broken arm caused a relapse, I have to be careful and pace myself. Stress is also a major factor, but life is never straight forward and at times you can’t avoid it. I didn’t have a lumbar puncture, thankfully, the scan showed enough evidence. I can still drive, I’m on a 3 yearly license, I don’t go far now as it’s very draining.

It’s awful when your body suddenly stops functioning and very bloody scary. I had CBT to help with the diagnosis and greave for a life I once had, a very active one. I have a different outlook on life now and certainly don’t take anything for granted.

I recently took my daughter to a neurologist privately as she was presenting similar symptoms to mine, I paid privately. Upon the MRI it showed no lesions but a colloidal cyst, the same as Davina McCall has had removed. The brain surgeon did further neurological tests and has diagnosed FND, I’d never heard of it. The way he explained it is that M.S is a hardware problem and they can see it on a scan FND is a software problem. She’s has had gynaecological issues since she was 14 and still not resolved completely at 29, basically her body has spat it’s dummmy out, it can no longer cope. Womens health services is abhorrent, she has now been referred to a Endometriosis Specialist Centre with a 53 week wait, as even after a hysterectomy the endometriosis has returned, we knew it could, but it stopped her periods and excruciating pain that would last for weeks and leaving her unable to work. Life at times is very bloody trying, 🥴

she needs an MRI NOT A CT scan..............

MS doesn't respond well to General anaesthesia..........She'll need a brain and spinal MRI and lumbar puncture...

What a shame that you were left to suffer to the point where it caused neuropathy. It takes far too long to get a diagnosis of this condition.

Friend had this it was Aneurysm of illiac artery

I had GBS many years ago i don’t remember much about it. The last thing i remember whilst conscious was that they were going to get someone to put a needle through my leg to see if if i could feel it.
Im not sure what the outcome of that was as i was in a coma.

They aren't prescribed as a first line treatment, and also if you read my post I was talking about the persistent refusal to take me seriously, for many years, resulting in over a decade of severe pain and non treatment of someone with a serious condition.its difficult to be prescribed anything much if you keep being told you are "just tired".

I always find it astonishing when people are so desperate to defend the NHS when it has repeatedly been found to be dangerously poor.

There was an article on this on one of those medical radio 4 programmes. Last week's I think. Possibly "All In The Mind" I was driving so not 100% concentrating.

Biologics are prescribed on the NHS for arthritis.

And regards Spain, you have mountains of forms to fill in to get anything done.

https://theenglishacademyblog.wordpress.com/2016/02/15/spanish-bureaucracy-a-pain-in-the-arse/

Please have your friend see a neurologist and have a work up….if anything for peace of mind. Go private if possible.

i had numbness in my hands and legs and a b12 deficiency. B12 injections didn’t help one bit…. Because it turned out to be MS after all. I hope your friend will have regular check ups.

What was the minor problem that needed correcting? Might be more revelant than thought? Maybe she has mast cell activation syndrome. I struggle to move my legs now but that's because of vaccine causing me adult onset tethered cord. Hope your friend's issues are temporary.

B12 doesn't cause immediate bilateral weakness (coming from a Dr with a peripheral neuropathy from b11 deficiency

Hi, if you have a look at the b12 society there is a great amount of advice, they have a support group linked via the website.
For b12 they test b12 serum, folate
MMA
Homocysteine
Holo TC active b12
Intrinsic factor is 40-60% reliable.

I am glad your friend has recovered, op, I thought she would.

Can I ask what test(s) are needed re functional b12? Thanks

I'm happy that your daughter received a good level of care, but you should be able to expect that.

The NHS is, I'm afraid, absolutely terrible. The UK have done a fantastic job of gaslighting the British public into believing they should be grateful for it, despite the extraordinarily poor level of care that is given

I have rheumatoid arthritis. On many many occasions throughout my teen years I had classic symptoms including excruciating pain and loss of mobility. I was never given so much as a blood test, I was accused of lying to cover up for "not having revised for my Alevels", I was told that I was to "stop wasting appointments that people who are actually ill need" when I cam back in my early 20s as a single mother and was told I was "just tired" it was incredible, and it wasn't just one doctor, it was multiple places in Manchester. Birmingham and Cambridge (born in one, studied in the other 2).

In Spain, I had one bad flare, went to the GP, blood test the next day, specialist rheumatology appointment within a week, within a month I was prescribed a biologic that changed my life. If I still lived in the UK, and the treatment had continued as is was (and I see no reason why it wouldn't have) I would have permanent damage and probably be in a wheelchair by 50.

My story is not unique. The maternity care in the UK is dangerously poor, the fact that people can barely get a GP appointment is absurd (here I live in a working class area of a major Spanish city and if a child has a fever and you call the GP at any time between 0800-2000 Monday to Friday you will be given an appointment with your paediatrician the same day and usually within an hour or so. If outside those hours then there are out of hours services. Same for an adult

I could go on and on and I'm sure there are good doctors and nurses in the NHS but as an organisation is is dangerous underfunded and routinely fails to pick up on complex illnesses because of the dismissive attitude that is often given towards patients and I suspect this is partly due to lack of funding, burnout etc but also due to a culture where noone dares criticise -you only need to look through Mumsnet for a day to see multiple posts of women who are clearly unwell wringing their hand about whether they "really need" medical attention, because there is this culture of "you need to be half dead to take up one of our valuable appointments " it's extremely sad.

So, I'm sorry your daughter broke her arm, the poor thing must have been in a lot of pain and I'm glad she was seen quickly. But this is not an illness requiring a diagnosis, it's a fairly simple and clear injury that was fixed. As it bloody well should be! A child with a broken arm should always be seen quickly and taken care of - that's basic.

But the NHS, is still, unbelievably shit.

Actually, the NHS isn't "unbelievably shit" as you so kindly put it

My youngest DD had a broken arm anf surgery over the past couple of days, and her care was the absolute best. Kind, sympathetic , and very good in an acute emergency setting. A consultant met her literally at the door on the emergency department desk, briefly examined her, and expertly / accurately said she needed an x-ray and pain relief.

Yes, the NHS is understaffed and underfunded, but not once did I see any evidence of that whatsoever at the very modern, state of the art teaching hospital in Norwich. It couldn't have been better care.

If you aren't family, I don't suppose the doctors can talk to you about her conditon. Yhe nurses might be more helpful.

Isnt it just! It's more so the fact that even specialists seem to ignore this dangerous condition with a simple treatment!
My deficiency was functional so all basic blood tests came back fine. You really need to find someone aware which I now know (to my horror) is a needle in a haystack x

@Poopants1000 that is quite amazing and worrying all at the same time. So glad you kept going and investigating this. I might take a look at the B12 website, not for me, but for someone else.

Thank you so very much for that information, it’s very interesting 🤗

that's interesting, i can't have adrenaline anaesthetic as i start to pass out and will shake so much it looks like a seizure.......i have cataplexy so if i'm under stress i literally shut down......if i laugh too much my legs lose their tone and i fall in laughing heap.....lol.......so i make sure i'm either seated or i have someone to grab......it's just a quirk of mine......it's not dangerous and my MS is under control for now.......but i do have NO ADRENALINE ANAESTHETIC on my medical and dental notes....... :o)

😀😀