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Mum with dementia in hospital I need practical help

36 replies

Zazz101 · 13/09/2024 16:23

Hello, I am looking for help as the title says. My mum has dementia and has just been sectioned. I am just off to visit mum, but I wondered if anyone had any practical help I could offer her.
I am going to write a letter that explains to her that she is in hospital for a short while, so when she gets confused about where she is she can read it, but really hoped someone had any other suggestions. Many thanks.

OP posts:
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Muchtoomuchtodo · 14/09/2024 10:11

Pairing socks is often enjoyed.
Did your mum work? I know one lady who previously worked in admin who had several files that had papers paper and dividers in and she used to be very content organising her files.

Fivebyfive2 · 14/09/2024 09:32

Zazz101 · 14/09/2024 09:10

So I have another request if that’s okay. The notebook I bought Mum had a big sticker on it that I asked her to remove. She felt she was being extremely helpful doing it and actually took her about 20 minutes and she really enjoyed it. Can anyone think of any activities that would be similar to this for her, thank you as ever.

For my nan I used to "accidentally" take all of the tissues out of her box and she'd happily fold each one up and put them in a neat pile on her table.

SophiaSW1 · 14/09/2024 09:28

If you look on Amazon you'll find activity kits and fidget type "toys" or blankets that are specifically made for people with dementia. It might be a good distraction for her mind.

Roystonv · 14/09/2024 09:21

Sorting crayon colours, buttons into different piles. I have seen articles about occupying children with similar ideas so you could search for them. I think they see it as a useful sort of housekeeping task so it links to their life before dementia; they have a purpose.

Zazz101 · 14/09/2024 09:10

So I have another request if that’s okay. The notebook I bought Mum had a big sticker on it that I asked her to remove. She felt she was being extremely helpful doing it and actually took her about 20 minutes and she really enjoyed it. Can anyone think of any activities that would be similar to this for her, thank you as ever.

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Zazz101 · 14/09/2024 08:22

Again thank you everyone. Mum was already in a dementia specialist home, so I’m hoping she can return when they stabilise her.
i took things in for her to do, colourings, magazines for her to look through, an absurdly bright toy llama which she loved !! The staff I have to say are outstanding which is reassuring

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DPotter · 13/09/2024 22:21

She's in the right place and as pusskins says any future care home placements will be paid for without any financial assessment. Don't worry if she's there for a while - can be several months. Most local authorities have a flat rate they pay towards care home placements, which will just about cover the cost. We used DFIL money to top up so we could move him to a care home nearer to us and DSIL.

The local authority will probably require a EMI registered care home and they can be tricky to find. You don't have to accept they one they suggest, but it will be up to you to find an alternative.

I'm so sorry you and your DM are in the position - dementia is an absolutely shitty disease. Please make contact with the Alzheimer's society for some support. We also found the Aged UK website and invaluable source of information of the financial side of things

pusskins06 · 13/09/2024 22:04

Justsayit123 · 13/09/2024 18:04

Contact adult social services as she won’t be able to stay in hospital for ever and they need to find a care home I guess?

No need to do this The hospital will refer mum to social services when mum is nearing discharge She will have a care act assesment to identify care needs and I'm guessing an appropriate residential home will be found If mum goes onto a Section 3 her placement will be paid for ( Look up 117 aftercare funding ) this does not apply to a section 2

Margaritasandmojitos · 13/09/2024 21:20

I wouldn’t write a letter. My dh had dementia and although he could read he couldn’t understand what it was he was reading. Just visit her and be there for her even if she doesn’t remember you. Take care of yourself too. It’s a hard journey.

Bollihobs · 13/09/2024 18:23

Another who recommends the Alz Society's website forum - the Talking Point section is a fantastic source of knowledge, info and support.

Balletdreamer · 13/09/2024 18:21

i am sorry you are going through this. Alzheimer’s society has a forum, highly recommend it. There will always be someone who has been through it before,

Notquitegrownup2 · 13/09/2024 18:16

My mum loved a giant teddy bear I bought for her when she had to move into a care home. I tied a label round his neck saying "Notquite will visit you very soon. Until then, please cuddle me. I love you" The nurses said that it gave her a lot of comfort.

Seconding the advice to take jewellery, hearing aids and glasses home before they are lost."

Justsayit123 · 13/09/2024 18:05

Have you got POA?

Justsayit123 · 13/09/2024 18:04

Contact adult social services as she won’t be able to stay in hospital for ever and they need to find a care home I guess?

Snowdrops17 · 13/09/2024 18:01

Might be of help later dunno about while in hospital but a lot of dementia patients love having a doll they think it's a real baby and they take care of it , also stops them getting upset , I wonder would she assume that's why she is in hospital ?

https://www.dementiauk.org/information-and-support/living-with-dementia/doll-therapy/

Supersimkin7 · 13/09/2024 17:53

Can she still read?

If so, try a postcard with explanation as above. Letter too long for goldfish bowl memory.

Be prepared for DM to get worse. Hospitals are very bad news for dementia patients.

LolaLouise · 13/09/2024 17:53

family and pet photos are good too, and talking points for staff, where she was born, jobs, parents/sibling/children/grandchildrens names and jobs, significant events like if they live abroad or know someone famous. These can sometimes help as distractions for staff if they can say "ohh betty, hows your john getting on as a dr?" etc

LolaLouise · 13/09/2024 17:50

Any squash or drinks she enjoys, take a few bottle each time you go to encourage her to drink as dementia patients often have a reduced fluid intake. Snacks too. Alot of activities can depend on patients, but particularly female patients, there are crocheted dolls with outfits you can get they can dress and undress, fiddle mitts too if you can source them. Clothing washed in her regular washing powders, and proper clothing not just pyjamas/nighties. Pyjama paralysis is a known phenomena, getting dressed every day is important and can help with routines. My elderly relative with dementia loved to doodle, so we always took notebooks and pens for her.

Zazz101 · 13/09/2024 17:47

Thank you so much for everyone’s help. When I say a letter that may be a bit misleading. I have just written where she is, and why and that I will see her every day. I’m going to ask for it to be stuck on the cabinet by her bed. I know she will forget the second she has read it, but I thought if she could constantly see it, it may offer a bit or reassurance as she won’t have a clue where she is. I have also stuck a photo of myself on it !
unfortunately she can’t do anything now, she used to knit, draw all sorts.
i like the idea about ‘home smells’
Again thank you everyone

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MandUs · 13/09/2024 17:45

I know there's a risk of glasses, hearing aids etc getting lost in a hospital but people that are left without these tools are at a massive risk of getting delirium on top of dementia which really will make their situation so much worse.

What sort of ward is she on and why was she sectioned?

Her own clothes will be helpful as well as something to distract her. Familiar magazines, something she can have in her hands. Colouring books if she is still able etc. Family pictures. A document for the nursing staff giving information about your mum (her likes and dislikes, previous job, family etc.).

I'm a nurse in an acute admissions unit and often look after people who are medically unwell with delirium or dementia on top. Keeping these patients distracted when they have nothing with them is our biggest challenge.

Muchtoomuchtodo · 13/09/2024 17:41

The staff will be experienced in supporting your mum and reassuring her why she’s there.
Familiar things for her - pictures/ photo albums, cd player with some favourite music will be nice for her.
If you’re able to do her laundry regularly that will save it from disappearing to the hospital laundry for weeks and possibly not returning. Keep her well stocked with her favourite smellies, snacks etc
Ask if they have a Read About Me form that you can complete to help staff get to know your mum.
This must be a very difficult time, I’m sorry for what you’re both going through

Zazz101 · 13/09/2024 17:40

She’s on an elderly mental health ward

OP posts:
GETTINGLIKEMYMOTHER · 13/09/2024 17:37

Viviennemary · 13/09/2024 16:39

I don't think writing a letter would be much good either. You could ask the hospital for advice or get in touch with one of the dementia charities to see if they have any suggestions. The muff sounds a good idea. I've not heard of that.

I wish I’d known about twiddle muffs when my poor mother had dementia! I found out too late to help her.

GETTINGLIKEMYMOTHER · 13/09/2024 17:36

SoftandQuiet · 13/09/2024 16:46

It does depend on the person but a short note that the staff can keep reading to her could calm her. For example “You’re in X Hospital, Zazz knows you’re here and will come and see you tomorrow”

IMO this is a v good suggestion.

Lincslady53 · 13/09/2024 17:36

My mums last 2 years were in a bedin a care home getting progressively more unresponsive. I used to drive 3 hours each way to see her, sit by her side and come home having had little response. I started to play her, what I remembered she used to listen to, so Salvation Army bands playing carols, Daniel O Donnell, and the two singers that Vic and Bob used to mock, whose names I can never remember. It sometimes got a response, and sometimes didn't. My thoughts are with you. It's a horrible time watching your love ones fade away. Good luck xx

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