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AIBU?

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Autism at 19 Months

64 replies

Claire123e · 13/09/2024 12:16

Hi Mums
I have been lurking here for a while and would like your opinion on something.
I am not asking for advice on whether my child is autistic or not as I know she is showing symptoms but it is all so vague that I’d like a feedback from mums/ families that have encountered this type of behaviour. I have an 19 months old DD who can say 100 words , can distal pointing , waves and claps , does a lot of pretend play , has always brought us toys / books etc , follow commands , always answer to her name and understand everything we say . She is also a good sleeper ( can put herself to sleep after the bottle ) and very affectionate, a bit wilful though . She imitates everything . She has good joint attention and always look where I am pointing . Now to the point of this post .
She has meltdowns / panic when faced with unfamiliar people or situations ( including her grandparents) . She doesn’t let people get near her to touch her . She is an only child and doesn’t go to nursery .
She is not a good eater and prefers being fed by me . She pulls faces when she has unfamiliar food and not adventurous in trying new food .
My issue is that my HV , GP and paediatrician don’t see a reason to refer her for an assessment as she passes the Mchat test . I don’t know what to do at this point or what other families have tried or how things have evolved for them . If you could point me in the right direction I’d be grateful ☺️

OP posts:
stargirl1701 · 13/09/2024 19:50

My autistic DD's meltdowns lasted anything up to 8 consecutive hours at that age. She fell asleep during one and started again when she woke the next day.

Toddlers get fussy at that age. Just keep offering all food without comment.

Have you tried a church toddler group for socialisation?

Babyenroute · 13/09/2024 19:46

I would speak to the GP about her restrictive eating rather than autism as there are classes you can both go to to help- one of my friends DD would barely eat anything and she's not autistic in any way, the classes really helped

confusedthirtysomething2 · 13/09/2024 19:39

op, I mean this in the nicest way, are you seeing a lot of neurodivergent/autism videos on your algorithm lately?

sounds perfectly normal to be honest.

Statsworry1 · 13/09/2024 19:31

Claire123e · 13/09/2024 17:55

Thank you for your input but i have a 19 M D who only self feeds three type of food . Cracker , toast and fruits .

@Claire123e my cousin lived on chocolate, yoghurt and bread for nearly 5 years…she’s not autistic in any way!

Owmyelbow · 13/09/2024 18:27

Is there any chance of getting her into a nursery or similar? She just sounds like she'd benefit from socialising

BeMintBee · 13/09/2024 18:18

Being picky with food is not a stand alone red flag for autism but it’s not uncommon for children with autism to have sensory issues and a restrictive diet.

I think it’s perfectly possible to spot autism in very young babies but at this point with your dd I’m not sure there is enough to suggest it. That’s not to say other evidence won’t present itself in the future. In your case I would wait until she is at nursery/pre school so you can get a better idea of her social interaction skills. I highly doubt you will get an NHS referral at this point with these current concerns.

Aliciainwunderland · 13/09/2024 18:12

This seems perfectly normal if a little picky. Most children enter a picky pass around this time - it’s developmental. And actually evolutionary. Listen to the experts - they are there to guide you.

PleaseBePacific · 13/09/2024 18:11

Sounds totally normal to me too. Children are all different - I have 3 - 1 with autistic traits but no formal diagnosis, 2 totally NT. My 6 year old (the youngest and NT) still prefers someone to feed him at home as he is lazy. Funnily enough he manages fine when not at home

TheKeatingFive · 13/09/2024 18:09

Claire123e · 13/09/2024 17:55

Thank you for your input but i have a 19 M D who only self feeds three type of food . Cracker , toast and fruits .

I'm not sure that's so terribly unusual. She eats more things when you feed her right? For many toddlers, food is a very important means of exerting control.

Allthegoodnamesarechosen · 13/09/2024 18:06

Cracker , toast and fruits are actually different food groups and texturally and taste wise different from each other, so not that restrictive.

Zanatdy · 13/09/2024 18:00

It’s definitely too early to know. Many children are fussy with food and not autistic. All you can do is wait and see as she develops but so far she sounds developmentally normal

cleowasmycat · 13/09/2024 17:56

Is there a reason for not going to nursery? You'd be surprised how much kids will eat when they sit with other kids eating. Great for socialisation too.

Claire123e · 13/09/2024 17:55

coxesorangepippin · 13/09/2024 17:54

Stop looking for a diagnosis

Thank you for your input but i have a 19 M D who only self feeds three type of food . Cracker , toast and fruits .

OP posts:
coxesorangepippin · 13/09/2024 17:54

Stop looking for a diagnosis

Claire123e · 13/09/2024 17:53

BusMumsHoliday · 13/09/2024 13:12

Parent of an autistic child (and I probably knew by 2.5). I don't know where you get the idea she's showing signs of autism. She's not showing any at all. She's at the peak age for separation anxiety (and she's an only child who spends all her time with you - which is fine - but obviously contributing). A lot of young toddlers are fussy with food and prefer to be fed (quicker, easier) - unless she's not gaining weight or only eating five foods, brand specific, this isn't a problem.

Your daughter cannot be autistic without delays/differences in social communication. You've not described those at all. She sounds more like my DD who is the same age and about whom I have no worries than my DS who is autistic.

You sound like you've spent a lot of time worrying about this? Is there a reason why?

It’s mainly the food thing . She has a very restrictive diet only cracker , toast with marmite , biscuits . Other things she gags and spit out . Which I know this type of food is a major red flag

OP posts:
LostTheMarble · 13/09/2024 13:38

Statsworry1 · 13/09/2024 12:27

And as far as I know, no one is going to send her for an assessment until she is at least two

Not technically true. The process was started (assessments with ASD in mind) were started with my youngest (edit!) at 18 months. However he has two older siblings diagnosed and was showing the same traits.

OP, your daughter is reading like she’s developing typically at the moment. Unless there’s a family history of autism (sibling, parent, cousin), with the information given it’s unlikely any HCP would wish to take it further. In the meantime I’d look at a nursery setting and see if that either develops social skills or highlights needs for further support.

I do want to ask though, have you posted about this before? Writing out the above, I feel I’ve replied to a very similar post recently.

Tiredalwaystired · 13/09/2024 13:18

Claire123e · 13/09/2024 13:02

Hi many many thanks for your kind words .. when you say explosive child what do you mean ? Also food wise things got easier with time ? ☺️

Her anxiety manifests itself as anger. She is prone to lashing out. She (and we) recognise where it comes from but she’s terrible at managing it so we get a wave of anger followed by a wave of remorse when she feels out of control in her life (for example honework she can’t answer, or being told to hurry up because we’re late). Can’t say it’s not still tough but I understand it better so manage my response better.

Yes she’s a brilliant eater now but still has clear things she has never liked. She won’t eat cheese unless it’s on a pizza (and isn’t too cheese heavy) for example. She hates the texture of kidney beans so we actually blend her chilli when we have it and she eats it in a wrap with rice (which she prefers to picking out the beans as she likes the flavour). And it’s not just savoury foods - she really dislikes the texture of donuts.

But last week she asked to try a mushroom and decided she liked it so she’s still willing to try new stuff.

BusMumsHoliday · 13/09/2024 13:12

Parent of an autistic child (and I probably knew by 2.5). I don't know where you get the idea she's showing signs of autism. She's not showing any at all. She's at the peak age for separation anxiety (and she's an only child who spends all her time with you - which is fine - but obviously contributing). A lot of young toddlers are fussy with food and prefer to be fed (quicker, easier) - unless she's not gaining weight or only eating five foods, brand specific, this isn't a problem.

Your daughter cannot be autistic without delays/differences in social communication. You've not described those at all. She sounds more like my DD who is the same age and about whom I have no worries than my DS who is autistic.

You sound like you've spent a lot of time worrying about this? Is there a reason why?

Tandora · 13/09/2024 13:07

You child sounds completely neurotypical for 19 months.

SilenceInside · 13/09/2024 13:07

My autistic child had and has a noticeable lack of awareness of other people being strangers and will go up to anyone and talk to them, even hug them—people he has never met before and doesn't know at all. Your DD sounds developmentally normal and just a bit shy/clingy and a bit fussy around food.

Claire123e · 13/09/2024 13:02

Tiredalwaystired · 13/09/2024 12:48

Sounds a bit like my daughter. No autism but over time there were clear sensory issues. Food texture has always been an issue as well as loud noises and also touch, especially when she is tired. That also made her fussy with certain clothes. She is also a naturally anxious and, as a result, explosive child (still working on that one).

have a look at the food that triggers her. There might be something in the textures that becomes obvious. We found that my daughter liked fish fingers sometimes and not others. Turned out if it had been anywhere near the water residue from peas she didn’t like the texture of the breadcrumbs. Something as simple as putting the peas in a different bowl solved that one. We still make small adapts like that at 13. No more issues and she eats well now.

Hi many many thanks for your kind words .. when you say explosive child what do you mean ? Also food wise things got easier with time ? ☺️

OP posts:
Tiredalwaystired · 13/09/2024 12:48

Sounds a bit like my daughter. No autism but over time there were clear sensory issues. Food texture has always been an issue as well as loud noises and also touch, especially when she is tired. That also made her fussy with certain clothes. She is also a naturally anxious and, as a result, explosive child (still working on that one).

have a look at the food that triggers her. There might be something in the textures that becomes obvious. We found that my daughter liked fish fingers sometimes and not others. Turned out if it had been anywhere near the water residue from peas she didn’t like the texture of the breadcrumbs. Something as simple as putting the peas in a different bowl solved that one. We still make small adapts like that at 13. No more issues and she eats well now.

UnbeatenMum · 13/09/2024 12:39

I have one child diagnosed at 5 and one at 12. They both would have passed the MCHAT and I don't think either would have been diagnosable at 2, meeting milestones etc. So your instincts might be right but you might just need to keep taking notes for a while longer. We were fairly sure our DD was autistic by 9, our son we had concerns by 3.5.

BananaGrapeMelon · 13/09/2024 12:33

Honestly OP this all sounds typical for her age.

Beth216 · 13/09/2024 12:33

She's still a tiny tot so definitely doesn't sound out of the ordinary - although I just thought mine was very shy and fussy at that age and it turned out he had Aspergers and was diagnosed at 11. He definitely wouldn't have got a diagnosis at 19 months though.
Just enjoy her for who she is, keep a note of anything that is out of the ordinary and see how she develops. If she is very high functioning (yes i know MN hates those terms) like DS is then it might not become obvious until around secondary school. But don't worry about something that may never happen! She's little more than a baby right now.