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Getting myself in a state about 2yo speech delay

94 replies

bluesacalling · 30/08/2024 21:19

I’m spiralling this evening and just want some hand holding. My 2y 3m old is a happy, cheeky, energetic, funny boy and is meeting all other milestones but is struggling with his speech.

We are seeing a private speech therapist and are seeing some slow progress, but he particularly struggles with making certain sounds and refuses to imitate sounds/words which makes me think it’s something more than a speech delay. Speech therapist doesn’t suspect ASD (he’s very communicative in other ways and points, shows/brings me things and will look at me for reactions etc) but is concerned about his lack of muscle movement around his mouth (doesn’t purse his lips to kiss, can’t blow bubbles etc) and now I’ve gone down a Google rabbit hole of verbal dyspraxia and I’m spiralling.

Not even sure why I’m posting on here, I’ve heard countless of stories from people whose child/grandchild/nephew/friend/Einstein didn’t speak until they were 3 etc and all of a sudden had a speech explosion. But something in me just can’t imagine this happening with my son and I don’t know why. I’ve recently had a second baby so my hormones/emotions are admittedly all over the place and I’m absolutely exhausted so maybe this explains a lot. I just want to stop being an anxious, worrisome mess and help my boy 😔

OP posts:
Cleavagecleavagecleavage · 30/08/2024 23:29

I would ditch the dummy asap. Apparently it’s unusual for it to cause a problem with speech sounds, but sometimes it does. Also, my late speaker, who had recurrent ear infections was a dummy user, and I wish I’d known at the time, but dummy use can be related to increased risk of middle ear infections, so worth ditching for that reason alone.

bluesacalling · 30/08/2024 23:29

Melroses · 30/08/2024 23:12

My DS did not start talking until he was over 3 yo. He had some sounds that got him by and he did learn to say 'no' when he was about 2.

It was a very frustrating time. I did everything I could to communicate with him, made eye contact, gave instructions in the correct order. We had loads of songs with actions. We ran out of parts of the body to point to, even when getting a bit technical, colours and I grew jaded with counting every stair for him.

When I had finally by-passed the HV and he had been seen by audiology and speech therapy, he suddenly started talking, progressed in leaps and bounds and ST signed him off as normal for 4 yo eight months later.

I too had looked forward to that time of toddler chat, but even as an adult he is reluctant to put anything into words so conversations can be hard work. Yet when he does it is worth waiting for. 🤷‍♀️

Edited

This is very relatable! I feel very jaded as I’m putting in such an effort with him daily and only seeing a small amount of progress. Some days he will be very engaged and think we are getting somewhere only for him to be silent the next day. I need to be more patient but the longer it’s taking the more I am spiralling.

OP posts:
bluesacalling · 30/08/2024 23:24

Glueear17 · 30/08/2024 23:13

Another one for glue ear causing the issues. Grommets changed my boy. The hearing test pass shows he can hear a sound but he is still likely hearing a muffled sound. I have never understood this and pushed for multiple hearing tests followed by grommets. Best decision I ever made for my son.

This is exactly my thought and what the SAL therapist says too. She says with the fluctuating nature of glue ear the sounds will sound different every day so he doesn’t know what the correct one is so is reluctant to say anything at all.

If I had a crystal ball and knew it was definitely glue ear causing it then I would push and push for grommets but I don’t want to put him through surgery and a general anaesthetic for nothing.

OP posts:
SatinHeart · 30/08/2024 23:22

Hey OP, I can relate, it's so easy to start spiralling about anything development- related. My eldest DS didn't speak much until he was 3. He had glue ear, for which he had temporary hearing aids (they don't do grommets under 3 in our area). He also has short sight and autism. They all contributed to speech delay and it was a hideously worrying time. He is 6 now and talks an awful lot. I haven't spiralled for a couple of years now.
Every child is different but what I would say is that DS has still never once nodded for yes or shaken his head for no.

Coughsweet · 30/08/2024 23:19

My now-18 year old didn’t speak much at that age. I didn’t think much about it tbh because speach was clearly starting to develop but it was gradual. Also had glue ear and had grommets in and adenoids out aged 3.

CeruleanBelt · 30/08/2024 23:15

Mine didn't start talking till gone 3.

Now they're 8 and i can't shut them up! But i very well remember the stress of the speech delay and wondering when it would happen.

Try not to worry. It'll happen when they're ready.

Glueear17 · 30/08/2024 23:13

Another one for glue ear causing the issues. Grommets changed my boy. The hearing test pass shows he can hear a sound but he is still likely hearing a muffled sound. I have never understood this and pushed for multiple hearing tests followed by grommets. Best decision I ever made for my son.

Melroses · 30/08/2024 23:12

My DS did not start talking until he was over 3 yo. He had some sounds that got him by and he did learn to say 'no' when he was about 2.

It was a very frustrating time. I did everything I could to communicate with him, made eye contact, gave instructions in the correct order. We had loads of songs with actions. We ran out of parts of the body to point to, even when getting a bit technical, colours and I grew jaded with counting every stair for him.

When I had finally by-passed the HV and he had been seen by audiology and speech therapy, he suddenly started talking, progressed in leaps and bounds and ST signed him off as normal for 4 yo eight months later.

I too had looked forward to that time of toddler chat, but even as an adult he is reluctant to put anything into words so conversations can be hard work. Yet when he does it is worth waiting for. 🤷‍♀️

bluesacalling · 30/08/2024 23:06

IVFmumoftwo · 30/08/2024 22:53

Yes my boy is two and a half. On the waiting list for SALT. He is going to nursery to help him. Is yours at nursery?

Yes he goes to nursery and they have no concerns other than his expressive communication. They have said everything else is on track.

OP posts:
bluesacalling · 30/08/2024 23:05

GHSP · 30/08/2024 22:50

My DS had glue ear. Actually we had a bit of a battle with audiology as they insisted he could hear but he was passing the test because he was watching the audiologist. When he was retested it showed how little he could hear. He was good at lip reading though.

anyway, he didn’t talk until after he was 2, he had his hearing retested, was referred to ENT and had grommets fitted.

He’s fine now, except very loud and never stops talking. He’s off to university next month.

This sounds very familiar. From reading about glue ear he seems to have all the hallmarks - he only really engages when I’m down on his level, 1 on 1. If there is any sort of background noise then he won’t respond. He also focuses on my lips when talking to him which SALT picked up on. He tends to drift off and daydream in his own little world a lot too. I had grommets and adenoids out as a child and so did my husband.

But then I don’t know if I’m just pinning my hopes on it being that and not something more severe. Especially when audiology are telling me he is passing his hearing tests.

OP posts:
IVFmumoftwo · 30/08/2024 22:55

Though I do have a slight suspicion my son is on the autistic spectrum.

IVFmumoftwo · 30/08/2024 22:53

Yes my boy is two and a half. On the waiting list for SALT. He is going to nursery to help him. Is yours at nursery?

GHSP · 30/08/2024 22:50

My DS had glue ear. Actually we had a bit of a battle with audiology as they insisted he could hear but he was passing the test because he was watching the audiologist. When he was retested it showed how little he could hear. He was good at lip reading though.

anyway, he didn’t talk until after he was 2, he had his hearing retested, was referred to ENT and had grommets fitted.

He’s fine now, except very loud and never stops talking. He’s off to university next month.

bluesacalling · 30/08/2024 22:41

@MummySam2017 that’s very kind of you. I feel like I’m letting him down by being such an anxious mess and not just enjoying him for who he is 😭

OP posts:
MummySam2017 · 30/08/2024 22:33

I know this probably isn’t very helpful in regards to your concern but I just want to say, you sound like a fantastic Mum. Whatever it is, I have no doubt all will be okay, because he has you x

Sammyk85 · 30/08/2024 22:25

bluesacalling · 30/08/2024 22:19

@Sammyk85 she also thought it could be related to enlarged adenoids which again ENT pooh-poohed saying it was an outdated and not really a school of thought any more…

They say adanoids shrink (apparently) we were poo pooed on that one too

Sammyk85 · 30/08/2024 22:22

bluesacalling · 30/08/2024 22:16

We are just north of London. Our therapist is part of the Nuffield Dyspraxia Programme so hopefully she is best placed to help us. We’ve been seeing her every six weeks and have a session next week so will ask more then.

If she’s part of the dyspraxia programme, she’d know and definitely best placed for you. The Nuffield don’t give diagnosis of dyspraxia anymore- however ours is a severe phonological speech disorder with traits of VD. You’re a long way off for school- but when you’re school age push for an EHCP. There are private schools within the UK that specialises in dyspraxia and associated disabilities, my son attends a private school that’s funded by the LA as it’s named on his EHCP. my son is also severely dyslexic and speech and dyslexia (not always) go hand in hand.
As mentioned the groups on FB already, have a look at them, another person has mentioned DLA, apply for that too. It helps a lot towards costly speech sessions, private reports etc.
if your son does happen to have a speech condition it’s not the end of the world, it’s very common and doesn’t mean he won’t be able to achieve anything he wants to.
good luck!

Applestrudel71 · 30/08/2024 22:20

I have been in a similar position to you also OP. My DD had disordered speech and even I struggled to understand her if she went off topic, let alone anyone outside the family. I worried so much for her and what her future would look like. We started amazing private speech and Lang, online initially as it was all through covid at the start. Very gradually things started to get into place and now at age 9 you would never know that she was initially unintelligible! I think it impacted her phonics, not being able to sound the parts of the words correctly so we had to give her extra help there but now she’s doing really well.
I anticipate that as he gets a bit older and able to engage with speech and Lang more and more his speech will come on leaps and bounds.

bluesacalling · 30/08/2024 22:19

@Sammyk85 she also thought it could be related to enlarged adenoids which again ENT pooh-poohed saying it was an outdated and not really a school of thought any more…

OP posts:
bluesacalling · 30/08/2024 22:16

Sammyk85 · 30/08/2024 22:11

Where about are you based? We didn’t really get any help towards a diagnosis or speech until infants school and it was by chance he had a sessions with a private school salt where she mentioned dyspraxia- we were then referred to the Nuffield hospital (London) who have some of the best consultants in (UK/Europe) specialising in VD and speech delay, however I believe the referral process has changed.

We are just north of London. Our therapist is part of the Nuffield Dyspraxia Programme so hopefully she is best placed to help us. We’ve been seeing her every six weeks and have a session next week so will ask more then.

OP posts:
Sammyk85 · 30/08/2024 22:11

bluesacalling · 30/08/2024 22:07

@Gummybear23 just the one language at home unfortunately!

@HolidaySwears I’m pinning my hopes on it being the glue ear (SALT think it’s a factor) but doesn’t help that audiology are telling me it’s not! My main concern is that he won’t attempt to even copy a word. Just shakes his head at me. I know I shouldn’t force it, and we are seeing some progress with the techniques SALT have given us, just not quick enough for my liking!

@RickiRaccoon he has a handful of animal noises - cow, monkey, duck, tiger/lion/dinosaur (all the same sound!), sometimes sheep. He loves nursery rhymes and doing the actions (on his terms) and likes doing puzzles, matching colours etc.

@abbs1 ENT have said they would only consider grommets if he was displaying moderate hearing loss but he passed the last test (and this was a private ENT appointment) I’m going to see how he tests in the winter and if he is displaying some loss then I will pursue grommets. Thank you for your kind words.

@PandaOrLion he was breastfed and we did baby leg weaning, very little spoon feeding.

@Alwaystired23 I’m finding the comparison the hardest, seeing other similar age children chatting away and having conversations. Makes me feel so sad for my boy even though I am doing all I can for him it doesn’t feel enough.

@Sammyk85 he has glue ear which is being monitored, although apparently no hearing loss. He had tongue tie snipped as a baby and the practitioner at the time said he had a high palate. I told ENT all this but they weren’t particularly interested and said he was a boy and to just continue SALT if I was concerned…

Where about are you based? We didn’t really get any help towards a diagnosis or speech until infants school and it was by chance he had a sessions with a private school salt where she mentioned dyspraxia- we were then referred to the Nuffield hospital (London) who have some of the best consultants in (UK/Europe) specialising in VD and speech delay, however I believe the referral process has changed.

bluesacalling · 30/08/2024 22:07

@Gummybear23 just the one language at home unfortunately!

@HolidaySwears I’m pinning my hopes on it being the glue ear (SALT think it’s a factor) but doesn’t help that audiology are telling me it’s not! My main concern is that he won’t attempt to even copy a word. Just shakes his head at me. I know I shouldn’t force it, and we are seeing some progress with the techniques SALT have given us, just not quick enough for my liking!

@RickiRaccoon he has a handful of animal noises - cow, monkey, duck, tiger/lion/dinosaur (all the same sound!), sometimes sheep. He loves nursery rhymes and doing the actions (on his terms) and likes doing puzzles, matching colours etc.

@abbs1 ENT have said they would only consider grommets if he was displaying moderate hearing loss but he passed the last test (and this was a private ENT appointment) I’m going to see how he tests in the winter and if he is displaying some loss then I will pursue grommets. Thank you for your kind words.

@PandaOrLion he was breastfed and we did baby leg weaning, very little spoon feeding.

@Alwaystired23 I’m finding the comparison the hardest, seeing other similar age children chatting away and having conversations. Makes me feel so sad for my boy even though I am doing all I can for him it doesn’t feel enough.

@Sammyk85 he has glue ear which is being monitored, although apparently no hearing loss. He had tongue tie snipped as a baby and the practitioner at the time said he had a high palate. I told ENT all this but they weren’t particularly interested and said he was a boy and to just continue SALT if I was concerned…

OP posts:
Sammyk85 · 30/08/2024 22:01

As a parent of a child a nearly 12yo boy that had speech delay OP, and subsequently a diagnosis of Verbal dyspraxia (the same condition that Chris Kamara has) I’d say trust your gut.
I'm not saying there is anything wrong with your child, however, explore all avenues- referral to ENT, possible glue ear, cleft pallet, get the roof of their mouth checked for hole, tongue tie.
there’s lots of good groups on Facebook for speech delayed children- Mikeys wish, apraxia, dyspraxia are a couple.
good luck.

Alwaystired23 · 30/08/2024 21:59

My son had severe speech problems. He did a year in mainstream school before moving to a speech and language unit. It did him the world of good. He's nearly 13 now and has been back in mainstream for years. He's bright and has no other problems. He still struggles with some words. I know how hard it it. Also, look at claiming DLA, which might help with the cost towards the private speech and language cost. I know its a worry, and it's hard when everyone around them of their age seems to be so different. I learnt not to compare in the end. He will get there. He just needs the early intervention he seems to be getting?

PandaOrLion · 30/08/2024 21:53

How was he fed?

DS and I did some research when he was about a year into language and relationship between feeding. Basically babies that are spoon fed don’t develop develop their oral muscles as quickly as babies who are fed less soft food and have to chew more. So they do get there (obv) but often they seem delayed compared to peers.

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