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Getting myself in a state about 2yo speech delay

94 replies

bluesacalling · 30/08/2024 21:19

I’m spiralling this evening and just want some hand holding. My 2y 3m old is a happy, cheeky, energetic, funny boy and is meeting all other milestones but is struggling with his speech.

We are seeing a private speech therapist and are seeing some slow progress, but he particularly struggles with making certain sounds and refuses to imitate sounds/words which makes me think it’s something more than a speech delay. Speech therapist doesn’t suspect ASD (he’s very communicative in other ways and points, shows/brings me things and will look at me for reactions etc) but is concerned about his lack of muscle movement around his mouth (doesn’t purse his lips to kiss, can’t blow bubbles etc) and now I’ve gone down a Google rabbit hole of verbal dyspraxia and I’m spiralling.

Not even sure why I’m posting on here, I’ve heard countless of stories from people whose child/grandchild/nephew/friend/Einstein didn’t speak until they were 3 etc and all of a sudden had a speech explosion. But something in me just can’t imagine this happening with my son and I don’t know why. I’ve recently had a second baby so my hormones/emotions are admittedly all over the place and I’m absolutely exhausted so maybe this explains a lot. I just want to stop being an anxious, worrisome mess and help my boy 😔

OP posts:
SpanThatWorld · 31/08/2024 21:17

bluesacalling · 31/08/2024 13:16

Thank you! I’m going to speak to the NDCS next week as I’m a member of their glue ear Facebook group which is super helpful.

That’s interesting that your son passed hearing tests too despite having glue ear. He had flat lines on the tympanogram back in June and then last week, so he definitely has fluid in there which isn’t shifting. I have a history of ear problems so I’m hoping its that and not something more serious.

It really is possible to have fluid in the middle ear and still have hearing "satisfactory for speech". Hearing levels do fluctuate with glue ear but ENT will be very reluctant to do grommets on a child who has hearing within normal limits. It is not risk-free. It's a GA and cutting into the ear drum risks infection and scarring.

If there is a suggestion that hearing is being affected, ask whether audiology would consider a bone conduction hearing device. This is a hearing aid which bypasses the glue, transmitting sound through the temporal bone direct to the cochlea. It works whatever the level of glue and there is no down side to them - except getting the child to keep it on. Not all hospitals are as proactive in providing them - especially as there is no clinical evidence of hearing loss in your case - but they might respond positively to a direct request.

SandandSky · 31/08/2024 20:22

My eldest was soooooooo slow to speak. Like at all. Barely made noises that sounded like words and wasn’t even much of a babbler when little. But could follow instructions so you knew they understood you. Honestly they were nearly 3 by the time they did much talking at all.

they are now an incredible chatty, articulate and funny child. We get comments on how good their vocabulary is all the time. It was very slow and then like something just clicked all of a sudden and fell into place. (And no, no evidence of ASD)

I always wondered if was because of being quite quick to walk… they never needed to learn to ask for things because they just got it themself!

bluesacalling · 31/08/2024 20:16

orangetriangle · 31/08/2024 20:08

to add my son didn't say anything until he was 2 years 8 months but was very switched on and always understood everything you said within weeks he was speaking in full sentences

Thank you! This sounds exactly like my son, he’s very switched on and understands what is being said to him and can follow instructions. He probably has about 20 words but uses them quite inconsistently. Speech therapist said he is very good at getting what he wants without speaking so he hasn’t quite grasped the ‘power’ that comes with speaking!

OP posts:
orangetriangle · 31/08/2024 20:08

to add my son didn't say anything until he was 2 years 8 months but was very switched on and always understood everything you said within weeks he was speaking in full sentences

orangetriangle · 31/08/2024 20:04

I would add understanding is more important than speech that's what we were told so if they can understand simple instructions like bring me your shoes etc then no worries and speech will come
someone with verbal dysplasia will have week mouth muscles this gives them something called delayed sound where they say the wrong sound at the beginning of words so for example for ages my daughter would say yem for them or at for that etc etc I could understand every word at the time when I look back at old videos now I can't understand a word!!

bluesacalling · 31/08/2024 13:16

Glueear17 · 31/08/2024 09:14

My son got grommets at 13 months old. The watch and wait period is 3 months - he had fluctuating tests for 6 months - some passed/some failed. I was so scared I was putting him under GA and they would find nothing there. But I had to rule out it was a hearing problem. Following the surgery the surgeon said we 100% made the right decision, his glue ear was so thick and there was so much of it, it would never have cleared by itself. It was a huge risk we took as nobody wants to put their child through surgery but without doing that, I couldn't be sure if it was a hearing issue or something else. Winter time it is likely to be much worse which sounds like you already know. I joined NDCS and had some calls with an audiologist who was so helpful and explained the tests so I knew what they all meant before any consultant appointments. My son also had a temporary hearing aid prior to the surgery and we did see improvement with it which added to my thoughts that it was his ears.

Thank you! I’m going to speak to the NDCS next week as I’m a member of their glue ear Facebook group which is super helpful.

That’s interesting that your son passed hearing tests too despite having glue ear. He had flat lines on the tympanogram back in June and then last week, so he definitely has fluid in there which isn’t shifting. I have a history of ear problems so I’m hoping its that and not something more serious.

OP posts:
TeenLifeMum · 31/08/2024 11:45

I have twins and dtd2 didn’t speak until over 2 years although she walked before dtd1, who was chatty. We went to see the health visitor and as we walked in the door dtd2 started speaking in sentences and hv thought I’d muddled the identities twins as dtd1 said nothing. Good to check him out but I wouldn’t stress yet.

Disturbia81 · 31/08/2024 11:42

My son babbled nonsense until he was 3 and then started nursery and it all started coming together from there.

Glueear17 · 31/08/2024 09:14

My son got grommets at 13 months old. The watch and wait period is 3 months - he had fluctuating tests for 6 months - some passed/some failed. I was so scared I was putting him under GA and they would find nothing there. But I had to rule out it was a hearing problem. Following the surgery the surgeon said we 100% made the right decision, his glue ear was so thick and there was so much of it, it would never have cleared by itself. It was a huge risk we took as nobody wants to put their child through surgery but without doing that, I couldn't be sure if it was a hearing issue or something else. Winter time it is likely to be much worse which sounds like you already know. I joined NDCS and had some calls with an audiologist who was so helpful and explained the tests so I knew what they all meant before any consultant appointments. My son also had a temporary hearing aid prior to the surgery and we did see improvement with it which added to my thoughts that it was his ears.

Ireolu · 31/08/2024 08:58

Get a second ENT opinion. You are within your rights to have another one. You know him best and if you feel something isn't right keep asking the professionals the questions. Children will vary though and my nephew didn't really say much till he was 3.5yrs old. Now nearly 6 and chats alot.

bluesacalling · 31/08/2024 07:40

@Newmummy343 @Cleargemlikeflame I am hoping that it’s glue ear so that it’s something that is treatable. But I saw a private ENT consultant who said they wouldn’t operate on under 3s unless he was failing hearing tests. He passed his last test but it was in the summer time so I’ve read this can often happen with glue ear so have pushed for a test in winter. Meanwhile all I can do is keep on with the speech therapy and work I’m doing at home with him but last night I think I just felt so despondent from not seeing a massive improvement. I need to be more patient; both with him and myself.

@AtouchOfCloth thank you 🙏🏼 that’s exactly how I feel. All I want to hear is a proper ‘mummy’

OP posts:
AtouchOfCloth · 31/08/2024 06:43

I've been in your shoes. My daughter was pretty much the same at 2 years old and was still under SALT up until the end of key stage 1. By the time she got to year 3, she caught up in all areas and now is in set 1 for every lesson in high school. I vividly remember crying on many occasion because all I wanted to hear was mummy. That came when she was 4 years old.

Cleargemlikeflame · 31/08/2024 05:30

My son was very similar except our specialist was adamant the glue ear was a problem. She said the prime cause of a speech delay was a hearing problem. He got grommets and had some minor speech therapy. He is a medical student now.

Glue ear fluctuates - it can wax and wane. Sometimes a child can hear well enough to hear somewhat but not well enough to form their own sounds. My son was treated very quickly because we went privately - within abot 10 days of comprehensively failing the audiology test - but in the meantime I was told to get down to his level and have him face me when I was talking.

I did a little experiment and standing behind him so he couldnt see my lips offered him a chocolate bar. He loved chocolate and very rarely got. There was absolutely no response and we realised he had been largely lipreading.

CookingApron · 31/08/2024 05:03

Hi OP.
Lots of wise advice on this thread.
I will add some anecdotal reassurance: my youngest was completely unable to make recognisable words at 5 yrs old. No one could explain why. It was when she went to school and suddenly developed an urgent need to communicate with people outside her immediate family that it all fell into place. By 6 yrs old we had absolutely no worries. She's now a tweenage chatterbox.

Newmummy343 · 31/08/2024 04:55

Hi OP, please push for the grommets. I was just referred on Thursday for my nearly 3 year old to get grommets. Dr at ENT said they cut a hole in the eardrum to get the fluid out and this is the most important part. She said the fluid can make the hearing all distorted. I'm so shocked they aren't even considering it. My son had glue ear and kept saying his ear wasn't working and couldn't hear. I know its an operation but this will help him so much I promise. Also glue ear for more than 3 months can do damage to the ears. Thinking of you

lunar1 · 31/08/2024 02:37

Ds1 didn't put two words together until well after he was three, he went from single words, to conversations in a week.

He never crawled, he went from nothing to walking in a weekend when he was almost 2.

You're doing the right thing getting things checked, but some children just do things differently.

He's due to take his GCSE's this time and is predicted all 8/9's, he has no additional needs.

DS2 hit all his milestones on the early side, he's equally bright, with a diagnosis of ADHD.

CountryMumof4 · 31/08/2024 00:36

It's completely natural to worry, as a mum. Children develop at different rates and it may well be possible that your son is having hearing difficulties. Equally, he may just be taking a bit longer - my eldest didn't start talking properly until he was 3 and you couldn't stop him after that! He's now a happy, confident adult. Another of my boys had a tracheostomy for his first 2.5 years, and didn't say anything. Once the trach was out though, literally within months he was speaking in coherent sentences. Keep on with audiology and see how you go. The most important thing is that your son is loved and happy - and it sounds like he has a super supportive mum to fight his corner. Hope all goes well. X

Bigcat25 · 31/08/2024 00:24

My son was behind in speech, but now at four he's caught up. I know that's just an anecdote, but thought I'd mention it fwiw. Speech therapy will probably help him, and sometimes kids show a sudden burst of improvement mixed in with plateaus.

stripeymonster · 31/08/2024 00:03

Definitely keep going with the speech therapy. As much as you can. My child was speaking by 4 but very poorly. Ended up in a Speech and language unit which was the best place for them. Now back in mainstream and no speech issues but is diagnosed ASC. Very academic . Chats away happily. They always understood everything but struggled to make the correct sounds. Try not to worry - a good speech therapist will really make the difference.

heartbroken22 · 30/08/2024 23:55

Miss Rachel helped.

Also I can't find the link or evidence for this but I once came across pomegranate helping speech. I'm not sure how but the acidic sour taste helped the tongue. I've tried to find proof again and again but cannot find it. But yeah as soon as we give my child pomegranate seeds she started improving with words etc

bluesacalling · 30/08/2024 23:51

@IAmClemFandango it’s reassuring to know that other people have felt the same and I’m not just losing my mind! Thank you for the advice.

OP posts:
IAmClemFandango · 30/08/2024 23:39

Hi

Firstly this resonated SO hard for me.

DC2 had a speech delay. I got all the usual "lines" - DC1 talks for him, lazy boys etc. But I knew this was not that. He also passed all his hearing screens but got a few ear infections in a short space of time despite having no risk factors (BF, non smoking household etc) and we got referred to ENT when he was 2.5, they kept telling us it was glue ear, he'd grow out of it or they would do grommets when he got to 8+.

I learned some basic sign language which eased the frustration for him - he was signing about 100 words and speaking 30 or so within 6 weeks. And I kept going to ENT, showing up like a bad penny every 6 months until we turned up one day when he was 5, not a drop of fluid in his ears and same result on hearing screen. They fitted him with hearing aids 5 weeks later and he was a different child.

He's now 13, and he wears his deafness like a badge of honour. Don't panic, don't get yourself in a state, your DC is doing just fine, you just have to be THAT parent and keep banging down doors for a little while.

bluesacalling · 30/08/2024 23:38

Lilyhatesjaz · 30/08/2024 23:33

I worked in a preschool for many years. I saw quite a lot of children who were barely talking at 2and a1/2. In later years more were being referred to SALT and quite a few no longer had a problem by the time they got to the top of the waiting list.
Does your son understand what you say to him? Can he follow simple instructions such as put the teddy on the table. If so it is likely he will get there at his own pace.
Asking him to copy words can be counterproductive you can model correct pronunciation by repeating words he says but don't get him to copy.
Songs and rhymes are really helpful.
Most children develop language really quickly between 3 and 4 but they find their own pace.

Yes his understanding is fine for his age (nursery have said the same too) and he can follow most instructions but I do wonder if he has just got used to the same instructions each day as he knows what is coming.

I am learning to model the words that he should be saying, so if he brings me his empty cup I will say ‘mum drink please’ etc and I narrate everything that I do to him and try to get him involved. It’s just all so exhausting doing this with a newborn too and I felt guilty that I’m not giving him all of my time.

OP posts:
bluesacalling · 30/08/2024 23:33

SatinHeart · 30/08/2024 23:22

Hey OP, I can relate, it's so easy to start spiralling about anything development- related. My eldest DS didn't speak much until he was 3. He had glue ear, for which he had temporary hearing aids (they don't do grommets under 3 in our area). He also has short sight and autism. They all contributed to speech delay and it was a hideously worrying time. He is 6 now and talks an awful lot. I haven't spiralled for a couple of years now.
Every child is different but what I would say is that DS has still never once nodded for yes or shaken his head for no.

Edited

The spiralling is the worst part isn’t it, I’ve made myself feel sick with worry tonight.

He has started to accompany the shaking of his head with a ‘nnn’ sound, and a ‘yeah’ sound with the nodding. Not all the time but it’s emerging so I’m just continuing to model it and say it for him each time.

OP posts:
Lilyhatesjaz · 30/08/2024 23:33

I worked in a preschool for many years. I saw quite a lot of children who were barely talking at 2and a1/2. In later years more were being referred to SALT and quite a few no longer had a problem by the time they got to the top of the waiting list.
Does your son understand what you say to him? Can he follow simple instructions such as put the teddy on the table. If so it is likely he will get there at his own pace.
Asking him to copy words can be counterproductive you can model correct pronunciation by repeating words he says but don't get him to copy.
Songs and rhymes are really helpful.
Most children develop language really quickly between 3 and 4 but they find their own pace.

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