Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To wish I could stop paying into the utterly broken NHS black hole

357 replies

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

OP posts:
Thread gallery
5
Dolliesdisasterousdayout · 29/08/2024 14:50

under the "care" of people I wouldn't usually trust to look after a dog

Ouch.

I don’t think that you are being unreasonable. You deserve good care and you don’t seem to have got it. I can imagine that it’s very scary for you and your family.

The only way to make things change is to keep reporting them. You shouldn’t put up and shut up or feel lucky to have a system that hasn’t helped you.

Fwiw I said ouch as an nhs nurse. I understand that some staff are awful but some of us are ok! We aren’t immune from receiving bad treatment either. I don’t expect that helps in the slightest but needed to say that some of us really do care!

RickyGervaislovesdogs · 29/08/2024 14:50

I’m so sorry, it must be very stressful and utterly crap. The NHS is broken, I understand your anger and frustration.

Therightcoffee · 29/08/2024 14:48

Also, early detection of cancers is a particular nhs weak point at the moment.

Mindfulofmuddle · 29/08/2024 14:47

YANBU. You will get a host of shouty NHS diehards on here telling you that you should be grateful for what you get, and how very dare you have any other option, but the truth is we are paying more and more for a rapidly deteriorating service because the system is irretrievably broken. Having experienced an excellent and affordable healthcare system that is insurance-based in another country, I had my eyes opened to how much better and proactive healthcare could be, and how much we have been brainwashed into lauding the NHS regardless of our poor experiences. There are undoubtedly some excellent people in the NHS, but the service has not kept pace with rapidly changing needs of the UK population over the past 30 years or so.

Therightcoffee · 29/08/2024 14:47

I competent understand why you're fuming, given your history of cancer and the close call. I'd be engaging my local MP and getting advice on how to get a second nhs opinion.

Carriemac · 29/08/2024 14:40

I'm sorry about your diagnosis and poor treatment but you certainly do not pay about a weeks wages every month twoards the NHS . If you earn 30k you are not a net contributor.

Peonies12 · 29/08/2024 14:39

YABU. you’d want the NHS if you had a bad car accident tomorrow. And you would have definitely got your moneys worth having two kids.