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To wish I could stop paying into the utterly broken NHS black hole

357 replies

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

OP posts:
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StewartGriffin · 29/08/2024 16:50

"That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?" Well @GinnyPiggie I will leave it to @CornflowerSky as she has responded much better than I can.

But to reiterate: our only options are not a failing NHS or an abusive US-style private system.

drspouse · 29/08/2024 16:48

CornflowerSky · 29/08/2024 16:45

Do you realise there are many, many alternative systems that aren't simply 100% private or 100% state funded?

In Germany insurance is compulsory, but it's underwritten by the government so that if you can't afford it it's covered. No one falls through the gap. It's affordable and works incredibly well.

People seem to think it's either the NHS or the American system which simply isn't true.

I don't know much about the German health insurance system but see my later post about German health, healthcare, and expectations.

drspouse · 29/08/2024 16:47

CornflowerSky · 29/08/2024 16:37

We have some of the worst cancer survival rates in the developed world despite it taking such a high portion of GDP.

The system is simply no longer fit for purpose. We need to stop mythologising the NHS, stop pouring money into it, and switch to a different system that is proven to work better (such as that of Germany).

There is nothing romantic or inherently good about a system that is killing people. It does NOT need more funding. It needs scrapping. But no political leaders dare touch it because it's been romanticised to such a sickening extent.

Taking on a German model would work if we were all German and didn't insist on e.g. painkillers for every little twinge!

One of the reasons we have much higher healthcare costs than we used to is because of longer life expectancy. However, another one is higher expectations of quality of life. There is nothing wrong with having a high expectation of quality of life, but we do have higher expectations than some other developed nations.

We also are much, much less active than Germans and have higher average BMI/rates of obesity despite lower calorie consumption.

CornflowerSky · 29/08/2024 16:45

GinnyPiggie · 29/08/2024 16:44

That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?

Which countries are you referring to? This certainly isn't the case in France and Germany.

CornflowerSky · 29/08/2024 16:45

drspouse · 29/08/2024 16:41

The private healthcare we have in the UK could NEVER replace what we all need that we get from the NHS. Even the private healthcare that's available in the US couldn't (because it doesn't, because overall health is much worse there, and even those with money end up over-treated because it pays to treat - think of children with autism who get ABA which can be abusive, the trans scandals, making people lifelong patients and doing damaging surgeries, etc. etc.)

We as a family could never, ever afford the healthcare we've had under the NHS if we had to go private. Most of what we get wouldn't be covered, anyway - my DS has had a hospital admission for his epilepsy and we get immediate access to the epilepsy nurse when we call, she emails the consultant and he got back to us immediately even though he was on holiday! We don't even have a private children's hospital closer than an hour and a half from us. And that's without the exclusions for pre-existing conditions - my DD might be just about insurable but she's 10, and it's hardly worth it, the rest of us would be refused care for everything that ails us.

Private healthcare is also not joined up. We forgot a new medication that the hospital had prescribed for DS, which DH had put down in a different spot to the others. We rang 111, who rang the prescribing team, who rang a pharmacy in our destination in another English region, and we picked up the meds in 4 hours. If you sign up for one healthcare company, you aren't going to get the permission to see another company in the same way that it's impossible to get "out of network" care in the US unless you either beg and plead and get lucky, or pay through the nose.

Do you realise there are many, many alternative systems that aren't simply 100% private or 100% state funded?

In Germany insurance is compulsory, but it's underwritten by the government so that if you can't afford it it's covered. No one falls through the gap. It's affordable and works incredibly well.

People seem to think it's either the NHS or the American system which simply isn't true.

GinnyPiggie · 29/08/2024 16:44

StewartGriffin · 29/08/2024 16:24

Well through my private insurance I can literally see a doctor whenever I need to, I pay a small excess for treatments in a private hospital and I am given choice and treated like an actual person.

I'm a big advocate for a national health system. What bothers me is the constant bowing and scraping as if we should be thankful for the miserly treatment we are afforded. As other posters have said-it's not a race to the bottom, and we have a right as tax paying citizens to hold the NHS to account. The NHS is meant to work for us, not the other way around.

That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?

Boomer55 · 29/08/2024 16:41

It needs root and branch reform, not more money slung at it. Whether this government is brave enough to do it remains to be seen.🤷‍♀️

drspouse · 29/08/2024 16:41

The private healthcare we have in the UK could NEVER replace what we all need that we get from the NHS. Even the private healthcare that's available in the US couldn't (because it doesn't, because overall health is much worse there, and even those with money end up over-treated because it pays to treat - think of children with autism who get ABA which can be abusive, the trans scandals, making people lifelong patients and doing damaging surgeries, etc. etc.)

We as a family could never, ever afford the healthcare we've had under the NHS if we had to go private. Most of what we get wouldn't be covered, anyway - my DS has had a hospital admission for his epilepsy and we get immediate access to the epilepsy nurse when we call, she emails the consultant and he got back to us immediately even though he was on holiday! We don't even have a private children's hospital closer than an hour and a half from us. And that's without the exclusions for pre-existing conditions - my DD might be just about insurable but she's 10, and it's hardly worth it, the rest of us would be refused care for everything that ails us.

Private healthcare is also not joined up. We forgot a new medication that the hospital had prescribed for DS, which DH had put down in a different spot to the others. We rang 111, who rang the prescribing team, who rang a pharmacy in our destination in another English region, and we picked up the meds in 4 hours. If you sign up for one healthcare company, you aren't going to get the permission to see another company in the same way that it's impossible to get "out of network" care in the US unless you either beg and plead and get lucky, or pay through the nose.

StMarieforme · 29/08/2024 16:40

Do grow up. You would owe them circa £100k for your childbirth.

I doubt that a quarter of your wage goes to the NHS alone.

You are b vvvvv u. And ridiculous.

CornflowerSky · 29/08/2024 16:40

Prawncow · 29/08/2024 16:21

The OP should absolutely have been referred and be receiving treatment on the NHS. The criteria that resulted in the referral being bounced back are directly linked to the chronic underfunding of the NHS.

The NHS desperately needs more funding. Calling it a ‘black hole’ and saying you’re paying a weeks worth of wages a month to the NHS and not getting care is not just exaggeration it’s damaging misinformation.

It's one of the best-funded health services in the world and yet one of the worst performing. Pouring more money into it is only making it worse. It needs to go.

CornflowerSky · 29/08/2024 16:37

We have some of the worst cancer survival rates in the developed world despite it taking such a high portion of GDP.

The system is simply no longer fit for purpose. We need to stop mythologising the NHS, stop pouring money into it, and switch to a different system that is proven to work better (such as that of Germany).

There is nothing romantic or inherently good about a system that is killing people. It does NOT need more funding. It needs scrapping. But no political leaders dare touch it because it's been romanticised to such a sickening extent.

cosyleafcafe · 29/08/2024 16:37

If you earn £30K then on average you are taking out more than you put in.

You have two children and have been treated for cancer in the past by the NHS. What you have put into the NHS will not have covered the costs of this.

And a week's worth of your wages absolutely do not go to the NHS. That's just not true, and you need to do some research on what actually happens with taxes.

The NHS is not in a good state right now because of years of a Tory government. It has a lot of problems, which Labour are trying to begin to resolve.

But starting a thread like this is ridiculous, OP. If you or someone you love were to have a major accident tomorrow then you would be very glad the NHS is there, and they are not being given a £20,000 bill before they can be treated.

Prawncow · 29/08/2024 16:32

£83 a month. That’s the amount that goes on health, per month, from the tax on a salary of £30k.

WorriedMama12 · 29/08/2024 16:26

Carriemac · 29/08/2024 14:40

I'm sorry about your diagnosis and poor treatment but you certainly do not pay about a weeks wages every month twoards the NHS . If you earn 30k you are not a net contributor.

To be fair, OP probably doesn't pay far off it. My gross monthly income is roundabout £3100. Take home pay is £2500. Monthly I pay £425 tax and £165 national insurance totalling £590 in 'taxes'. So OP isn't too far off.

However I do agree that OP (and I) are not net contributers and that over my lifetime, I'll probably get my moneys worth out of the NHS.

Bangwam1 · 29/08/2024 16:26

Having experienced healthcare in France, I’d agree. The difference is astonishing.

The nhs left my mother so long with autoimmune disease I almost lost her to multiple organ failure at 12. She weighed about 6.5/7 stone, was yellow.

I’m sure she really appreciated their suggestion to see someone for mental health, but every organ in her body failing got in the way. My experiences have been no better.

I sympathise deeply. It’s shocking. I wish you good health and hope everything works out for you 💖

StewartGriffin · 29/08/2024 16:24

GinnyPiggie · 29/08/2024 16:13

You could stop paying a week's wages to the NHS, but you'd then be paying 2 weeks' wages to a private healthcare company or similar, who would actually still charge you when you needed an ambulance.

Well through my private insurance I can literally see a doctor whenever I need to, I pay a small excess for treatments in a private hospital and I am given choice and treated like an actual person.

I'm a big advocate for a national health system. What bothers me is the constant bowing and scraping as if we should be thankful for the miserly treatment we are afforded. As other posters have said-it's not a race to the bottom, and we have a right as tax paying citizens to hold the NHS to account. The NHS is meant to work for us, not the other way around.

Prawncow · 29/08/2024 16:21

The OP should absolutely have been referred and be receiving treatment on the NHS. The criteria that resulted in the referral being bounced back are directly linked to the chronic underfunding of the NHS.

The NHS desperately needs more funding. Calling it a ‘black hole’ and saying you’re paying a weeks worth of wages a month to the NHS and not getting care is not just exaggeration it’s damaging misinformation.

StewartGriffin · 29/08/2024 16:19

Sunglow1921 · 29/08/2024 16:04

I don’t know why people insist on being pedantic on this thread. The OP may have written the bit about tax out of frustration, it doesn’t make the way she was treated right.

Either we want the NHS to be free at the point or use or we don’t. Should they start asking people about their income when they access the NHS to determine the level of service they may receive?

Edited

This.

Inertia · 29/08/2024 16:19

YANBU to be angry under the circumstances.

The problem is a decade and a half of deliberate erosion of the NHS by a Tory govt under the thumb of the private health care system.

Relatives in countries with insurance-based systems pay absolutely unaffordable amounts for their healthcare.

Miley1967 · 29/08/2024 16:15

I've been on three cancer pathways over the past few years and had investigations done really promptly. Struggling to get a routing mammogram currently though - was offered one when i turned 50 which I couldn't attend due to work schedule and have never bene offered another since ( am now 56). have tried phoning and emailing the appropriate places and no-one ever answers either.

coxesorangepippin · 29/08/2024 16:15

Such a race to the bottom attitude

It's only supposed to be good if you give birth or have a car accident??

Wtf.

What about the other 90% of medical necessities?

GinnyPiggie · 29/08/2024 16:13

You could stop paying a week's wages to the NHS, but you'd then be paying 2 weeks' wages to a private healthcare company or similar, who would actually still charge you when you needed an ambulance.

Fluffyelephant · 29/08/2024 16:13

YANBU

Ive had to have more contact with the nhs over the last few years and it’s been a complete eye opener in the worst possible ways. The wasting of resources, the ridiculous bureaucracy and extreme inefficiency was insane and frankly insulting to all tax payers.

People keep saying ‘there’s just not enough funding, it needs more money.’ No. The nhs right now is a bucket with giant holes in the bottom. The answer is not pouring more water in so it can pour right out the bottom. We need to actually fix the holes.

Missmarple87 · 29/08/2024 16:13

YANBU. Everyday I thank my lucky stars for my private family health insurance. I can speak to a doctor same day. The wait at my GPs surgery was 10 weeks.... I will never move jobs to one that doesn't have private healthcare. This would not have occured to me 10 years ago.

HighlandCow78 · 29/08/2024 16:13

Tworedgeraniums · 29/08/2024 16:10

Totally with you OP

DD aged 31, blood in her poo. (Lots over a 9 month period) Denied a colonoscopy multiple times by GP. We saved and she went private, found out she had a large polyps that was heading toward being cancerous.

makes my blood boil especially after Deborah James and all the media coverage.

Sorry to derail thread but was it bright red? DD is having similar at the moment and not sure what to do..!