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To wish I could stop paying into the utterly broken NHS black hole

357 replies

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

OP posts:
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Oldfatandfrumpy · 29/08/2024 17:38

The NHS is not fit for purpose when it comes to women's healthcare - the policy seems to be 'fob them off, fob them off some more, tell them they are just being hysterical about normal bodily function, fob them off, gaslight, gaslight, gaslight, tell them they need mental health support, fob them off'.

At least that was my experience over the course of a decade and a half. Eventually I went private and my consultant apologised that they'd left me to get in such a bad state for so long. He didn't have to do that as he hadn't been involved, but I appreciated it as I lost 15 years of my life to crippling vomit inducing pain and heavy bleeding, while looking like was in late stages of pregnancy

piccolorhinoceros · 29/08/2024 17:37

@Shesshinysheila she said WOULD owe. OP was suggesting she could stop paying tax to fund the NHS. PP was highlighting that if it wasn't for the tax-based national system, she'd owe a fortune in healthcare that has so far been funded. So. Calm down, I think you misunderstood.

Shesshinysheila · 29/08/2024 17:35

GinnyPiggie · 29/08/2024 16:44

That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?

Sure but here there's a good chance of just dying before you actually find out you have any of those illnesses since it's impossible to get seen and if you actually do get seen you'll likely just get dismissed,so I'd take my chances

Shesshinysheila · 29/08/2024 17:34

StMarieforme · 29/08/2024 16:40

Do grow up. You would owe them circa £100k for your childbirth.

I doubt that a quarter of your wage goes to the NHS alone.

You are b vvvvv u. And ridiculous.

Is this a joke??? She doesn't OWE them for her childbirths - that's the whole point of a national health system funded by taxation.
OP has delivered children, the cost of birthing those children was shared amongst tax payers. Those children will grow and become tax payers themselves. That's how it's meant to work.
A system that won't see a high risk patient with obvious potential red flags is a system that is absolutely not fit for purpose and should be bloody scrapped. And people like you are part of the problem, expecting people to be GRATEFUL for being left without the potentially lifesaving care they need because they've used their allocation up??
OP I'm really sorry to hear you've had such a shit experience, and I'm sorry there are so many un-empathetic people spewing their bile onto you here as well
FWIW I agree with you. I've had so many experiences of absolutely shit care or none.
Including a friend who was repeatedly turned away and accused of time-wasting who was eventually diagnosed too late with cancer and died at age 32.
More than 1 occasion where my children also almost died because of absolute negligent treatment.
I can't believe people.are still bleating on that at least we don't have a US system or we could end up bankrupt. I mean I'd rather be bankrupt than fucking dead. And it's not the NHS or the US system anyway. I have family in Europe. Their care is in a completely different league to the state of the system here.

HairyMolly1 · 29/08/2024 17:25

So as a nurse who carries out smear tests daily, I just want to clarify that every woman who has a smear test has her sample tested for HPV. If HPV is found, the cells are then looked at under the microscope. Depending on what is seen in that instance, the patient is either referred to colposcopy or back to the GP Nurse for a repeat smear in 12 months to see if the body has naturally cleared the HPV.

In the Practice I work in, you would be referred to Gynae on the 2 week pathway because you're ri1ght, the lab won't entertain smears that are not due and I think it's the same with colposcopy. I am surprised that you have dismissed in this way and I would suggest going back to your GP and getting a little pushy.

I also totally empathise because I also had cervical cancer 11 years ago and it frightened the life out of me which is one of the reasons I am so passionate about smear testing. I also wish that they would start them younger than 25 but that's another story.

Mumistiredzzzz · 29/08/2024 17:19

The NHS is a sack of shit, I have zero faith in the entire system, myself and so many members of my family have been badly let down time and time again. I go private every time I can.

user556453 · 29/08/2024 17:16

GinnyPiggie · 29/08/2024 16:44

That's fine - at the moment. But in countries where private healthcare is the norm, it only works so far: once you have X cancer, or X neurological condition, or X mental health condition, you are no longer covered and have to pay as you go. What then?

While there are many issues with healthcare in the US, that's actually not true, thanks to the Obama/Biden-era reforms. A lot of the insurance available isn't perfect, but that part isn't accurate.

MouseofCommons · 29/08/2024 17:16

(Not read whole thread).
Why won't they just do a hysterectomy? I had one 15yrs ago after two bouts of severe CIN and having two dc's. I'm glad it's been ticked off my to do list.

Haggia · 29/08/2024 17:10

Sorry you’re going through such a stressful time.

I don’t understand why your GP isn’t referring you for the symptoms you are having? My relative had spotting and had all manner of scans and examinations (with a biopsy) at our local hospital. Surely it’s not about a smear test battle - it’s a referral on a potential cancer pathway?

Butterflies878 · 29/08/2024 17:08

Some of your comments are unreasonable particularly around the finances of it all but on the whole you’re not. I’ve had similar issues with GPs and smear tests. I’ve recently gone private for a birth injury (that the NHS missed) and was told by the gyno that due to my history of grade 3 abnormal cells I should be having a smear test every year for 10 years. I specifically asked about this at my post natal check up having read it online and was told by my GP I was wrong - but I’m not. That was after having to go private for my smear test that highlighted the cells in the first place due to an inability to get an appointment. The grade of my cells meant I should have been seen on the 2 week pathway and AGAIN the GP told me I was wrong (when I was right). When I finally heard from the hospital about an appointment for a colposcopy they told me that it was delayed because my GP didn’t make the referral at all until they chased it up as I’d gone to PALS there directly.
My child was also recently very ill and whilst most of the professionals on the ground were incredible at their jobs, I saw complete incompetence in management and communication that put her life at risk. I can now see why people die who shouldn’t, including young children, and I felt very fearful for anyone who is not able to push back, ask questions or does not speak English very well.
My birth and the births of almost all my friends have been a total shit show but I won’t go into that.

Prawncow · 29/08/2024 17:07

I’m sure there are lots of different ways that healthcare could be delivered in the U.K. and changes will be made over time. It may be that the NHS can’t deliver what we expect from it under the current funding model.

Decisions should be made based on facts not feelings or ideology. There seems to be a gap between public perception of NHS funding and our own contributions to it and actual funding.

Beekeepingmum · 29/08/2024 17:06

If you earn less than £30k you aren't really a net contributor so an average will be getting more benefit from government services that you pay for. Private Healthcare is all well and good until there is an emergency when you are shipped straight back to the NHS in ambulance.

Wolfpa · 29/08/2024 17:05

I understand the need to rant but I think you have misunderstood how taxes work. There is no way that you are being charged a weeks worth of wages every month for the NHS.

Demonhunter · 29/08/2024 17:02

For starters, health tourists need to be turned away if they don't have the relevant insurance to cover them.

pinkfleece · 29/08/2024 17:00

How do you work out that one quarter of your wages goes to the NHS? You are a net beneficiary by miles.

GinnyPiggie · 29/08/2024 17:00

ThePure · 29/08/2024 16:56

Why do you think that paying for it in a different way would automatically make it better?

Would you not wind up paying the same or more for care in an insurance system as a taxation funded system?

The NHS monopoly purchase power reduces drug prices which is in itself a huge good.

Yes, this is part of the frustration of these conversations: countries with different models are largely just paying for a similar thing (massive monopoly) but perhaps separate it from government, for example - which is a good thing, as it can enable long-term planning. But you've still essentially got a state-wide system.

TheYearOfSmallThings · 29/08/2024 16:59

I've always found secondary care in the NHS excellent it's primary care that is difficult to access in our area.

Agreed.

TheYearOfSmallThings · 29/08/2024 16:58

If you're earning 30k you aren't paying much at all, and it is worth it in case you have an accident. I broke my arm last year and I must say the care was better than I expected and my arm is fixed with pins etc.

I understand how frustrating it can be though.

sleepyscientist · 29/08/2024 16:57

The NHS is evidence based invasive surgery when 50% self rectify sounds like a bad idea. What have they proposed as a plan? Watch and wait I'm guessing. You can ask for a second opinion.

I've always found secondary care in the NHS excellent it's primary care that is difficult to access in our area.

ThePure · 29/08/2024 16:56

Why do you think that paying for it in a different way would automatically make it better?

Would you not wind up paying the same or more for care in an insurance system as a taxation funded system?

The NHS monopoly purchase power reduces drug prices which is in itself a huge good.

Prawncow · 29/08/2024 16:55

CornflowerSky · 29/08/2024 16:40

It's one of the best-funded health services in the world and yet one of the worst performing. Pouring more money into it is only making it worse. It needs to go.

That’s just not true.

Prawncow · 29/08/2024 16:53

My mother had cancer treatment in 2008 and it was dealt with so quickly from concern to referral to surgery to chemo. It was actually very tricky to pick up and the GP was 50:50 about the referral. The consultant found it straight away and confirmed it with tests.Waiting times were short. Then in 2010 we had Cameron, Osborne and austerity. By 2011 when she saw her consultant for her regular check up, she told my mother that the trust was cutting back her NHS clinical hours. After going to a couple more check ups and being examined by more junior doctors because the consultant was so jammed for time, my mother ended up switching to seeing her privately for check ups through health insurance.

If you cut funding, over time, this is what happens. Missed diagnoses and policies that take referrals out of the hands of experts and put them in the hands of accountants.

VickyEadieofThigh · 29/08/2024 16:52

National Insurance contributions don't only fund the NHS.

Yes, the NHS needs better funding (and better management). But nobody wants to pay more - do they? Hence the very long threads about rumoured tax increases.