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To wish I could stop paying into the utterly broken NHS black hole

357 replies

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

OP posts:
Thread gallery
5
Blinkingbonkers · 29/08/2024 18:58

Yep - changing from proper smear tests to just an HPV check is flipping insane ….and make me fume too as I have also had part of my cervix removed due to previous changes. Far cheaper to give me a proper smear than a hysterectomy & possible chemo etc. We need to go to a better system - possibly like the French model.

Preo · 29/08/2024 18:54

Serencwtch · 29/08/2024 18:36

Cancer services are better than the rest of the NHS. Wait until you watch an elderly loved one die of neglect and in pain, or lose a child to suicide because MH staff are lying bullies.

You are welcome to pay for your own cancer treatment but I think you are in for a shock when the bill is far higher than the amount you think you have contributed

Cancer treatment and diagnosis lags behind europe
https://www.macmillan.org.uk/healthcare-professionals/news-and-resources/blogs/cancer-care-decades-behind

and to get to the cancer services which are apparently the best parts of the nhs with is something that is a struggle which some people end up going private for diagnosis, as demonstrated by several posters on this thread.

Sunglow1921 · 29/08/2024 18:38

StMarieforme · 29/08/2024 16:40

Do grow up. You would owe them circa £100k for your childbirth.

I doubt that a quarter of your wage goes to the NHS alone.

You are b vvvvv u. And ridiculous.

Actually, people who give birth in the UK and don’t have access to free NHS services are charged around £10k, which is similar to the cost of a private birth. So no clue where you got your number from but you are being ridiculous.

Dorisbonson · 29/08/2024 18:36

Gave up on the GP when I was in the UK and paid to go private. My partner had multiple GP appointments over about 6 years for an ongoing issue. It was cured with two courses of a £40 cream bought privately after a private consultation. The NHS caused years of unnecessary suffering with a relatively minor ailment that was easy and cheap to cure.

I get same day GP appointments with my overseas health provider. NHS just burns money. Incredibly inefficient

Serencwtch · 29/08/2024 18:36

Cancer services are better than the rest of the NHS. Wait until you watch an elderly loved one die of neglect and in pain, or lose a child to suicide because MH staff are lying bullies.

You are welcome to pay for your own cancer treatment but I think you are in for a shock when the bill is far higher than the amount you think you have contributed

Didshejustsaythatoutloud · 29/08/2024 18:31

letmego24 · 29/08/2024 17:49

You're angry at the wrong people. Very rude about a service which is actually free. You are paying taxes like everyone else not peoples wages don't sound so entitled. Campaign for improved funding and restoration of staffing levels etc.
if you had a totally private service remember it's the same staff and services only you pay.

Improved funding??? No fuckin way. The NHS is a money pit. You could give it an extra 3 billion a month and the managers at the top would STILL find a way to squander it or syphon it off to pals.
It needs an in depth audit.

TheSnootiestFox · 29/08/2024 18:30

letmego24 · 29/08/2024 17:49

You're angry at the wrong people. Very rude about a service which is actually free. You are paying taxes like everyone else not peoples wages don't sound so entitled. Campaign for improved funding and restoration of staffing levels etc.
if you had a totally private service remember it's the same staff and services only you pay.

It absolutely isn't the same service! People maybe.

Shesshinysheila · 29/08/2024 18:24

MigGril · 29/08/2024 18:20

I agree the NHS is a bit broken. But I think you've come up against the problem I was actually really worried would happen when they introduced the HPV vaccine in the first place.

They have scaled back testing in order to save money because MOST cancers are HPV. Let's just forget about those that aren't because there are a small minority.

Yep. And most skin lesions on young people are fungal so keep sending them home with cream. Except for those that happen to be melanoma. Those guys are fucked, sadly.
It's a disgrace.

Didshejustsaythatoutloud · 29/08/2024 18:24

I'm sorry your going through this 💐
The NHS is indeed a gigantic money pit that has been incompetently run by well paid inepts for far too long. Pals giving pals contracts with their snouts in the nhs gravy train.
It really does need an honest, outside and comprehensive audit by a foreign company.
Good luck with your health issues 🫂 x

MigGril · 29/08/2024 18:20

Juanhundred · 29/08/2024 14:38

The last few years have really opened my eyes to the utter chaos of the National Health Screwers

If you've not needed them or only needed them for minor things, you honestly have no idea how bloody scary it is to be seriously ill and under the "care" of people I wouldnt usually trust to look after a dog

Every month I pay out about a weeks worth of wages in tax towards the NHS, then I pay a bit off my staggering credit card debt thats accumulated on going private when the NHS fail at life (rheumatology, gynaecology, dermatology, podiatry, basic antibiotics when my GP insisted an infected tick bite was "just allergies", the list is endless!)

I'm not rich, I earn less than 30k. Some days towards the end of the month I literally cant afford to eat what or when I want

20 years ago (when the NHS was actually the envy of the world) I had cervical cancer. Caught early by a smear test and treated in time to save my life. I was told by the consultant, "Another 6 months and your chances wouldn't have been good. Be very mindful of any changes moving forwards, and act on them immediately"
It was around the same time that Jade Goody died; she was told if she'd been seen 6 months earlier, her chances would have been infinitely better.
That brush with the Big C scared me shitless, and as per the advice given I'm super mindful of any changes and take them seriously.

Well I've probably just saved my own life this time by getting a private smear test, because despite my history and all the symptoms I am now experiencing (irregular heavy bleeding, random spotting, discharge, bleeding after intercourse, tummy and back pain), I was refused an NHS smear as I'm "not owed one" until three years after my last test, history / symptoms be damned.

The system was "reformed" in 2017. The NHS no longer do proper smear tests, just HPV tests. If you have HPV, you get a smear, if you dont, its off you go we'll see you in 3 years.

My private test showed major cell changes but HPV negative. My NHS GP surgery refused to acknowledge it or record the results on my medical record.
Luckily I'm already under an NHS gynaecologist (due to my symptoms), who initially agreed to refer me for colposcopy off the back of my private smear, but the referral was "triaged" and then rejected. My gynaecologist is just like 🤷🏻‍♀️ "You dont have HPV and around 50% cell changes rectify themselves without treatment. So yeah, bye."

50%? So 50% DONT rectify? And you think I'm betting my life on being in the lucky 50%, with my history and current symptoms? Is 50% really a good enough percentage to deny women with symptoms any further investigations? I dont think so, but apparently the NHS now does.

The NHS insists that as most (not all!) cervical cancers are caused by HPV, the women who fall into the grey area who have bad cells but no HPV are pretty rare, therefore our lives dont matter. Thats the message I'm getting.

Basically, I've just been abandoned by the NHS until I've got full-blown Big C, then maybe they might do something, if I'm lucky?

They can fuck off. I have two DDs who need their mum!

So here I am faffing around online trying to up my credit card limit so I can book myself in for a private colposcopy, and thinking to myself "If I didnt have to pay all this fucking money towards the NHS every month, I'd be able to afford this without credit!"

Sorry for the rambling ranty post I'm just stressed scared skint and at the end of my fucking tether

I agree the NHS is a bit broken. But I think you've come up against the problem I was actually really worried would happen when they introduced the HPV vaccine in the first place.

They have scaled back testing in order to save money because MOST cancers are HPV. Let's just forget about those that aren't because there are a small minority.

RadishesRock · 29/08/2024 18:19

The problem the OP described isn't just a lack of funding though is it? Its a top down system with a one size fits all approach that is causing the problem here. No one seems able to take into account that past history, symptoms and abnormal cells means that there could be cancer even though there isn't an active HPV infection.

DeLoreanLaura · 29/08/2024 18:15

HuaShan · 29/08/2024 18:03

If you earn £30K you will be paying about £300 per month in tax. The NHS receives around 20% of tax revenue and so you are contributing £60 per month, £720 per year.
I agree that no-one should put up with incompetent care but NHS care has to be rationed in some way - there is simply rising need, rising morbidity, ageing population, underfunding, inability to retain good staff because of intolerable pressures. The idea is a difficult one that some care needs to be rationed in order to ensure that priority needs are met - someone has to make difficult decisions about access to screening or what diagnostic tests are needed. None of that is any excuse for rudeness or incompetence but please see the bigger picture.

Care rationing is OK when it's things that really don't matter. You know, like drunk people in A&E or visiting the doctor for a cold.

But that's not what we're talking about here. People are actually dying or being left severely injured/disabled due to the lack of care.

Early treatment is the single most important determinant of survival and return to long-term health in many debilitating conditions. If people can't even get that, they've failed.

Also it would save a lot of money compared to the more aggressive and complex treatment needed when eventually caught... Penny wise, pounds foolish.

Why are you so resistant to accepting that more needs, less funds = payment needed? What is your problem with the model of so many of our European neighbours?

I'm all for reasoned arguments, debate etc but most people don't seem to do any thinking beyond 'it should be free' and 'omg USA bankruptcy'.

bluebee17 · 29/08/2024 18:14

Yes the NHS is not the best at the moment and I'm really hoping it will get better until then I've took out private health for my family very fortunate that we can I know.
But I think your math is way off.

DeLoreanLaura · 29/08/2024 18:10

TheSnootiestFox · 29/08/2024 14:51

Speaking as someone who had to sell their house to avoid becoming wheelchair bound recently I'm with you. And sick to the back teeth of people telling us it's ok and we should be grateful, or we got our moneys worth having two kids etc etc.

Either we have a state funded healthcare system or we don't. Not bothered either way tbh but if we do then it should be good enough for us not to have to pay twice. If we don't, then super, I'll save my NI and again pay just the once. And before anyone starts with the other common rhetoric seen on here, I did live and work in the US when I was younger and I was involved in an RTA that nearly killed me. I got the best healthcare I've ever had and no-one asked me for my credit card details before I was put in the ambulance, not least because I was unconscious. No-one even mentioned paying until some hours later in the hospital when they'd saved my life and ensured I'd live, and then we had the conversation about insurance which covered everything. I even got my taxi fares to my daily physio covered. You are most definitely not being unreasonable!

Completely agreed.
We have a two tier 'private by stealth' system now because nobody has the ducking balls to do anything about it! It makes me so angry.
Free treatment on paper but it's so shit that you'll end up dying or severely disabled/injured unless you can pay.

Agreed on the USA also but that aside we don't need to look far... The Nordic utopia, even France, Germany etc so many have some form of paid healthcare. And they have much better access than us.

As a high earner I'd much rather pay into state health insurance than do pay twice, as I do now. Once for tax/NI and also private insurance.

SleepwalkingInTesco · 29/08/2024 18:04

piccolorhinoceros · 29/08/2024 17:46

Your response makes no sense in reply to my post. I said 'most of us' are doing our best. I didn't say everyone. You're speaking to someone who works within the system. I'm fully away of the competence issues. We have a lot of incompetent staff, worsened by recruitment and retention issues.

My reply absolutely makes sense. You took issue with OP mentioning lack of care, and said she should blame other things. I have pointed out that lack of care is absolutely an issue that can and should be pointed out.

HuaShan · 29/08/2024 18:03

If you earn £30K you will be paying about £300 per month in tax. The NHS receives around 20% of tax revenue and so you are contributing £60 per month, £720 per year.
I agree that no-one should put up with incompetent care but NHS care has to be rationed in some way - there is simply rising need, rising morbidity, ageing population, underfunding, inability to retain good staff because of intolerable pressures. The idea is a difficult one that some care needs to be rationed in order to ensure that priority needs are met - someone has to make difficult decisions about access to screening or what diagnostic tests are needed. None of that is any excuse for rudeness or incompetence but please see the bigger picture.

Shesshinysheila · 29/08/2024 17:56

letmego24 · 29/08/2024 17:49

You're angry at the wrong people. Very rude about a service which is actually free. You are paying taxes like everyone else not peoples wages don't sound so entitled. Campaign for improved funding and restoration of staffing levels etc.
if you had a totally private service remember it's the same staff and services only you pay.

Rude and entitled for expecting to be seen with possible cancer? Wow your standards must be pretty bloody low

MouseMama · 29/08/2024 17:56

Sorry for what you’re going through and I completely agree that with your symptoms and medical history and your genuine concern you should be offered further testing for peace of mind.

At risk of missing the point entirely though, someone who earns £30K pays less than £3.5K of income tax each year and less than £2K of NICs (which theoretically goes towards your state pension not the NHS). This is a very low tax burden compared to historical statistics.

I’d recommend looking at health insurance or finding a job with good benefits including health insurance.

letmego24 · 29/08/2024 17:49

You're angry at the wrong people. Very rude about a service which is actually free. You are paying taxes like everyone else not peoples wages don't sound so entitled. Campaign for improved funding and restoration of staffing levels etc.
if you had a totally private service remember it's the same staff and services only you pay.

Autumnismyfavouritetimeofyear · 29/08/2024 17:47

And todays Tory party propaganda thread is..........

piccolorhinoceros · 29/08/2024 17:46

SleepwalkingInTesco · 29/08/2024 17:42

My uncle got sepsis and my ex nurse aunt found the nurses faking his obs when he was deteriorating. Had to go all the way up the chain and raise hell in order for him to receive proper care. Had she not been there he 100% would have been killed. So there is absolutely a problem with lack of and substandard care.

Your response makes no sense in reply to my post. I said 'most of us' are doing our best. I didn't say everyone. You're speaking to someone who works within the system. I'm fully away of the competence issues. We have a lot of incompetent staff, worsened by recruitment and retention issues.

Lovelysummerdays · 29/08/2024 17:46

It can be rubbish. I’m waiting on test results and medics in the family have quietly suggested they’d give me cash to go private as genuinely concerned. The costs of private care are phenomenal though. Just the tests and the treatment I’ve had so far would be 5-10k.

I think overall it’s a good system. My dc needed surgery on a broken bone a few years ago. Six months later I needed surgery on a broken bone. I think if I’d of had to pay for the care For us both I’d of lost the house/ been made bankrupt.

I really don’t want a system where people are losing their homes due to medical bills.

Veganmedic · 29/08/2024 17:44

As a nhs worker we know it’s not amazing but for the amount of funding it’s actually pretty bloody good. Years of underfunding, no investment in infrastructure, expensive gimmicks in tech and fiascos like the consultants taper and annual allowance (there are hundreds of consultants who are cutting hours/can’t offer extra as it would cost them thousands in salary and pension loss so would effectively be paying to work).

Now the cracks are being papered with poorly trained ‘associate’ type staff it’ll only get worse. The people that say they’d rather pay their contribution directly into private health seem to forget that private health is relatively cheap in this country because the NHS does the rest. Take that away and you can times your nhs contribution by 10 at least.

i will say there is a lot of work needing to be done to better identify and diagnose women who are often misdirected away as hysterical/anxious etc.

Lastly, OP in your case with symptoms (anyone, not just previous cancer) a smear would be inappropriate as it’s a screening tool not a diagnostic test. You should have had an urgent referral to gynae (but in some regions even urgent referrals are at 1-2 years).

Noras · 29/08/2024 17:42

I want the French health care system where you pay a little bit to see a GP. It sounds amazing and far better than here as does their pension scheme. In France we would have had an amazing time in retirement. I think that my husband is short changed. I don’t understand how they afford to do things so much better and we are a mess here.

SleepwalkingInTesco · 29/08/2024 17:42

piccolorhinoceros · 29/08/2024 14:52

This x 100.

The NHS is broken, and I say that as staff. I don't appreciate your dig at lack of care. Most of us are trying to do the best we can with a lack of resource and shitty systems (your gynaecologist, for one).

My uncle got sepsis and my ex nurse aunt found the nurses faking his obs when he was deteriorating. Had to go all the way up the chain and raise hell in order for him to receive proper care. Had she not been there he 100% would have been killed. So there is absolutely a problem with lack of and substandard care.