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Chronically ill and sad

53 replies

Chronicallyill6 · 28/08/2024 19:19

This isn't an AIBU. It should be in health. I've posted shamelessly for traffic. I'm ill. I've been ill since I was small and there's not lots doctors can do. It's physical and serious. It's very debilitating, I can't go into details. I'm now in my mid-40s and I had maybe 10 years where medication worked, then it stopped. I can't have children, I'm often housebound, I loved travelling and would go to far-flung places on my own and do brave things. I was always so clever and did really well, but now I go for jobs and get usurped by someone with much less qualifications. It's pointless - I couldn't go into an office anyway. I don't know why I do it. I was dumped by someone who realised how ill I was (I was well when I met him). I do work (they employed me before I got sick) but my responsibilities are being pulled away and I'm bossed about by people 15 years younger in an office, while I sit alone at home. They talk about their holidays and weddings and children and I'm so sad. I want a life. I feel like such a loser, just sad and ill and housebound. I've had therapy but the issue is I'm physically unwell - just a quirk of nature that happened before I was born. I'm not after sympathy. I'm after advice but please not therapy as I have a lot of hospital appointments already, and I need to be in the right frame of mind, and I don't have the energy for a dog.
Thank you.

OP posts:
Foxxo · 28/08/2024 20:03

coming to terms with a disability is one of the hardest things to do.

I'm not 'ill' but i do have a condition that has taken away my mobility and left me with chronic pain and fatigue, and occasionally needing a wheelchair, and using crutches.

It limits what i can do, and makes every outing an effort and needing careful planning to make sure i can get there/get around/get home and have rest time before/after.

It's isolating, and i don't go out much.. i see a friend twice a month, and a couple of others once every 2 months as they come visit. My lifeline is online, gaming, chatting to friends, finding a niche hobby we all have in common.

The key is to find stuff like that, and having a supportive group of friends in similar positions to laugh and cry about the bullshit of being disabled with. I don't know where i'd be without those people.

WasThatACorner · 28/08/2024 19:58

Therapy is useless, I had a massive breakdown while coming to terms with the fact that I am and will stay disabled.

You're not a loser, there will be things that you enjoy and do well. You need to allow yourself to enjoy them and then look at ways that you can share these things.

I don't actually know how this happens but it can. I still have bad days but I am happy now.

I read a lot about other people's experience of pain and disability and put time into 'self care' even when it felt pointless. Treat yourself like you would treat a stranger.

I'm sorry, all of this advice sounds daft but eventually it did turn around.

Cookiecrumblepie · 28/08/2024 19:48

what a difficult situation OP. I think you need to realise that your life is different to others and always will be. So for you, living your best life is going to be different and you just can’t compare. But that concept also works both ways. You are special in that you have an experience others don’t have. You could start a blog or instagram to inspire and give hope to other chronically ill people? Give them a supportive ear if they need? You could enjoy things that you can, for example good books, art, film. It sounds to me like you feel that you lack agency or purpose. I would encourage you to take ownership of your situation and live the best life you can within your constraints. It’s not easy but I think you can get enjoyment and fulfilment from life, even with your challenges