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To not have told my dd everything

91 replies

Happyface246 · 25/08/2024 18:40

My dd is going to uni. She sometimes has seizures if she is stressed, tired or overwhelmed. She doesn’t drink and is bed most nights around 9.30 as she gets tired really easily. She is under Cahms for an autism assessment. Unbeknown to get I have emailed the uni and asked them to allocate her modest accommodation ie for students who aren’t the partying type/who don’t drink. Her place has come back that this is the accommodation she has been allocated. I don’t know if I have gone the right thing - I haven’t given her the choice. Would you fess up and admit, tell her or leave it? She can move accommodation if she wants to. This was coming from a good place and I realise I’ve overstepped the mark.

OP posts:
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BunnyLake · 27/08/2024 10:25

Wouldn’t she have had to fill in an options form, putting her choices down (usually about 7 or so options). What options did she choose? They would have sent her (direct) the results of her halls based on that form (if it was her firm choice).

Pieandchips999 · 27/08/2024 00:09

Always the best way @Happyface246 rather than turn it into a massive thing between you. I'm still curious how they followed your wishes unless she was 17 at the time but glad it worked out.

Crazycatlady79 · 26/08/2024 23:46

If this actually happened, don't ever tell her.

Pieceofpurplesky · 26/08/2024 23:39

Just to add - don't beat yourself up as you did this for your daughter with love and care!

Wineaddict · 26/08/2024 22:58

Happyface246 · 26/08/2024 15:39

Thank you for all your advice. I’ve spoken to my dd this afternoon and told her what I’ve done. She was very understanding and we be composed an email together to the accommodation office. Lesson learned.

Glad to hear this update

Ladymeade · 26/08/2024 21:36

She's an adult so I daresay the Uni wouldn't have acted on your behalf/request anyway as it is not within their AOR to do.

easylikeasundaymorn · 26/08/2024 18:20

NeverEnoughPants · 25/08/2024 18:55

"How is she going to manage independently if you've taken independent decision making away from her?"

This isn't a decision that the DD could have made - it's allocated by the uni. No decision making by the daughter has been affected.

Edited

yes but it seems very likely that it was allocated by the uni because OP specifically requested it. Otherwise they wouldn't have bothered emailing her back to confirm it, they would just say 'we can only act on preferences from the student themselves, not their parent,' or whatever.

Obviously we don't know that for definite (and to me it seems very odd they would do that without consulting the student themselves) but OP clearly think it's the case, and tbh I would imagine that most students would otherwise have been put in 'normal' housing unless they made a specific request.

They aren't going to randomly put any student into 'quiet' housing because once you get one or two students who don't want to be there, and decide to make as much noise as they want, it stops being quiet housing!

So yes, the decision whether to request 'quiet' housing or not has been taken out of the DD's hands. While the final decision would have been the accommodation team's, realistically most people would just automatically go to the standard housing unless a specific request had been made, so if OP hadn't emailed it's more likely than not the DD wouldn't have been allocated that space.

Tuskanini · 26/08/2024 18:15

You realise that 'modest' accommodation is basically provided to isolate observant Jewish and Muslim girls? Probably mostly Muslim. I intend no criticism of these beliefs. Just a heads-up.

JanglyBeads · 26/08/2024 17:56

Well done OP

Happyface246 · 26/08/2024 15:39

Thank you for all your advice. I’ve spoken to my dd this afternoon and told her what I’ve done. She was very understanding and we be composed an email together to the accommodation office. Lesson learned.

OP posts:
Ophelia24 · 26/08/2024 09:30

Notmynamerightnow · 26/08/2024 09:07

I can well believe the doctors comments. DS has an epilepsy diagnosis from a neurologist and receives care from a neurology centre and yet we still get the odd shit comments and treatment from A&E doctors. I really worry about him at uni, having to navigate this without an advocate.
"Pseudo seizures" is a term that shouldn't be used now. Non epileptic seizure disorders are as involuntary as epilepsy and are not fake in any way.
The older I get, the less faith I have in the medical profession.
A friends son was diagnosed with epilepsy whilst he was at med school - he was bullied horribly by his peers - these are our future doctors.

I don’t know if you’re aware but you can apply for Disabled Students’ Allowance if your DS would agree.
https://epilepsysociety.org.uk/living-epilepsy/young-people/university/practicalities-going-university

Disabled Students’ Allowance is also available for autistic students, who can have a mentor and a tutor separately from the university, funded by Student Finance England (not a loan).

Practicalities of going to university | Epilepsy Society

So, you’ve decided you’re going to university, and selected your course. What next? Planning ahead...

https://epilepsysociety.org.uk/living-epilepsy/young-people/university/practicalities-going-university

Ophelia24 · 26/08/2024 09:24

Notmynamerightnow · 26/08/2024 09:07

I can well believe the doctors comments. DS has an epilepsy diagnosis from a neurologist and receives care from a neurology centre and yet we still get the odd shit comments and treatment from A&E doctors. I really worry about him at uni, having to navigate this without an advocate.
"Pseudo seizures" is a term that shouldn't be used now. Non epileptic seizure disorders are as involuntary as epilepsy and are not fake in any way.
The older I get, the less faith I have in the medical profession.
A friends son was diagnosed with epilepsy whilst he was at med school - he was bullied horribly by his peers - these are our future doctors.

I have had epilepsy training from an excellent neurology nurse and I wouldn’t use that term - it was in a book by an A + E doctor. I think epilepsy training should be mandatory for HE providers.

Notmynamerightnow · 26/08/2024 09:07

Ophelia24 · 26/08/2024 08:37

That’s correct, the young woman was misdiagnosed. I read a book by an A + E doctor recently and was shocked that he wrote a whole chapter on so-called “pseudo seizures” saying that the people presenting at A + E were faking them and were time wasters. I really am trying to be helpful by suggesting that the disability team and accommodation are made aware and can receive training. I apologise if you found my comment unhelpful but I am trying to raise awareness in my own small way. I won’t mention it again.

I can well believe the doctors comments. DS has an epilepsy diagnosis from a neurologist and receives care from a neurology centre and yet we still get the odd shit comments and treatment from A&E doctors. I really worry about him at uni, having to navigate this without an advocate.
"Pseudo seizures" is a term that shouldn't be used now. Non epileptic seizure disorders are as involuntary as epilepsy and are not fake in any way.
The older I get, the less faith I have in the medical profession.
A friends son was diagnosed with epilepsy whilst he was at med school - he was bullied horribly by his peers - these are our future doctors.

DrinkElephants · 26/08/2024 09:07

I asked the uni to do similar for me because of my anxiety and not being partying type, I asked to go in halls which only had 5 people per flat rather than up to 15!!!

My parents suggested it and I got a doctors note to back me up. They didn’t go behind my back and do it. I’d have been devastated if they did.

IdgieThreadgoodeIsMyHeroine · 26/08/2024 08:57

NeverEnoughPants · 25/08/2024 19:40

What uni accepted international students with poor English? That's shocking! My son's girlfriend had to pass a language test before she was even able to apply to uni here.

Sussex accept tons! It's very lucrative for the university, as international students pay more.

DancingNotDrowning · 26/08/2024 08:52

She’s an adult. I appreciate you’ve done it from a place of care but it’s an outrageous overstep.

she’ll also almost certainly find out. “Modest accommodation” tends to be oversubscribed and needs to be specifically requested (for posters not familiar this is accomodation that is set aside to accommodate primarily those who want a no alcohol environment) and it will quickly become apparent that she has been placed there deliberately.

MegsNaiceJam · 26/08/2024 08:46

My son is off to uni. He has autism and epilepsy. We spoke, together, about his medical needs with his epilepsy nurse, the inclusion team and the accommodation team.
His halls are the furthest away from the bars, and typically are quieter. However with his potential for social isolation, the university was keen to ensure he isn’t isolated.
We will find out in a few weeks time how he gets on. But the key for us is to discuss everything together. I can help guide him, but he has to become more independent even though it causes me anxiety, and make his own decisions, where possible informed decisions.

Ophelia24 · 26/08/2024 08:37

Notmynamerightnow · 26/08/2024 07:35

Really, that's not helpful. If your friend's child died of SUDEP, then they were misdiagnosed and didn't have non epileptic seizures.
Non epileptic seizures aren't medicated. Problems with poor medical treatment is common however. My son has epilepsy and A&E doctor's attitudes can be woeful, he doesn't always have typical seizures and most HCPs can only recognise the main type. SUDEP is always a worry, there isn't much that can be done, other than a monitor, but my DS refuses one.
People's knowledge and opinions of epilepsy and seizure disorders are often in the dark ages, it's shocking, I read some appalling comments on MN.

That’s correct, the young woman was misdiagnosed. I read a book by an A + E doctor recently and was shocked that he wrote a whole chapter on so-called “pseudo seizures” saying that the people presenting at A + E were faking them and were time wasters. I really am trying to be helpful by suggesting that the disability team and accommodation are made aware and can receive training. I apologise if you found my comment unhelpful but I am trying to raise awareness in my own small way. I won’t mention it again.

charabang · 26/08/2024 07:51

You were wrong to interfere and are not doing your DD any favours by not encouraging her to advocate for herself. Advise her to contact the university's disabilities team who can put in place appropriate support. Students don't need to be registered disabled, they can self identify or have long term health conditions.

autienotnaughty · 26/08/2024 07:50

Definitely did the right thing. I wouldn't tell your dd. Had you suggested it she may have rejected the idea but then found it difficult if she ended up in a party house. Hopefully you have enabled her to have a good start. But now you have to step back and let her make her own choices

Mummyoflittledragon · 26/08/2024 07:47

My dd would also be incensed if I did this. I would talk to your dd and get her to discuss it the university, ask who else has been allocated to the halls. You don’t want her to be isolated. If it comes up in conversation you can will have to fess up.

I get it. My dd has a seizure condition, hers is not so well known about it. Her heart stops beating. My dd would not like to be in modest halls and like yours, will also need to have an autism assessment but she is very sociable. I think a pull cord (mentioned upthread) is a very good idea and something to look into for my dd if/when she goes to university.

Izzosaura · 26/08/2024 07:46

Happyface246 · 25/08/2024 18:40

My dd is going to uni. She sometimes has seizures if she is stressed, tired or overwhelmed. She doesn’t drink and is bed most nights around 9.30 as she gets tired really easily. She is under Cahms for an autism assessment. Unbeknown to get I have emailed the uni and asked them to allocate her modest accommodation ie for students who aren’t the partying type/who don’t drink. Her place has come back that this is the accommodation she has been allocated. I don’t know if I have gone the right thing - I haven’t given her the choice. Would you fess up and admit, tell her or leave it? She can move accommodation if she wants to. This was coming from a good place and I realise I’ve overstepped the mark.

I disagree with everyone saying 'don't tell her' and from your post it does sound like you are uneasy about what you've done.

First, presumably she will twig that there is something different about her accommodation pretty quickly and question why, as I'd have thought most of the other students would know this was the option being picked for them or would have picked it themselves.

Secondly, even if being around non-drinking students would be good for her in your eyes and is a better match with her current lifestyle, she might be hoping to reinvent herself a bit or do things differently at uni. I appreciate this might not apply to your DD at all but just raising the possibility (personally my own reinvention plans suffered an early setback when my DM discovered that I'd bought some blue hair dye and packed it into my suitcase for uni... she was not amused by this).

Thirdly, even if your DD is really happy with this accommodation, is there a risk she will resent having been left out of the loop? Are you treating her fairly and laying a good foundation of trust for the future as she takes this big step and moves away from you? That would be my main concern.

My own DD is very young so perhaps I'll feel more protective and empathise with your position more by the time she is st the same life stage. I also appreciate that your DD clearly has needs that make you understandably even more worried for her.

Nonetheless in your shoes I think I would explain to her that you chose to help her get quieter accommodation as thought it would help but have now realised you made a mistake and should have given her the choice.

Doingmybest12 · 26/08/2024 07:46

I don't get how this happened without her knowing. Surely you looked at accommodation in person or online and talked about what would suit her. From how you describe the accommodation it may not be something she would ve opted for. How prepared is she for uni and how good are the plans to keep her safe and does she know what the plan is? Does she understand her own needs? I think this is not good and potentially will cause more problems. You need to talk to her about the allocation and if it'll suit her etc.

Barney16 · 26/08/2024 07:39

My DC would have gone insane if they found out I had done this. I would have gone insane if my mum had done this when I went to uni. So if I was you I would never ever mention it. Think of it as your last ever act of snowplough parenting and take the secret to your grave.

Notmynamerightnow · 26/08/2024 07:35

Ophelia24 · 25/08/2024 21:18

I’m more concerned about the seizures and what will be put in place in case of an emergency. There is usually some warning of a seizure so a pull cord to summon help could be essential.

A friend’s daughter went to university with a diagnosis of non-epileptic seizures last October and passed away in her sleep in her university room early this year. Her death certificate said SUDEP although she had never received a diagnosis of epilepsy. She was living in quiet halls with mainly international students and didn’t drink.

The OP didn’t say whether her DD is medicated for seizures but this needs to be of paramount concern rather than her social life, sorry to say. Her parents want to raise awareness even if it means one family doesn’t have to go through what they are suffering.

Really, that's not helpful. If your friend's child died of SUDEP, then they were misdiagnosed and didn't have non epileptic seizures.
Non epileptic seizures aren't medicated. Problems with poor medical treatment is common however. My son has epilepsy and A&E doctor's attitudes can be woeful, he doesn't always have typical seizures and most HCPs can only recognise the main type. SUDEP is always a worry, there isn't much that can be done, other than a monitor, but my DS refuses one.
People's knowledge and opinions of epilepsy and seizure disorders are often in the dark ages, it's shocking, I read some appalling comments on MN.