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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Or is there a solution I can't see?

137 replies

Emeraldiisland · 24/08/2024 09:14

Two weeks ago my 16 year old DD had an unexplained seizure. She is okay now but the hospital advised she is not to be left alone until she sees neurological team (5 month wait).
Admi we don't stick to this all the time, as she obviously doesn't sleep in our room or anything but in the day either me, DH or eldest are with her.
She wants to go to college in September and DH said to me I will have to take her and pick her up every day but I don't think I can. To start with it's a round trip of 90 minutes so 3 hours a day and second what do I do with my son?
He's starting school on a very reduced timetable but I can't get him in for 8:45 and get my daughter to college for 9. I mean l could drop her off early but I'd probably have to leave at 7 and drag my son along (totally ready for school) to make sure I'm back in time for school.
DS will be shattered and that leads to huge meltdowns (he's severely autistic)..
I will then have to take him with me to pick her up. I can't leave him at home as DD1 and DH will be at work.
The only solution I can see is to defer DS until January and pray she's seen by then but I fought so hard to get him starting in September and tbh he needs some routine and since leaving nursery he's become quite clingy so I was hoping school would help in that way. He's going to be at a disadvantage when he starts school due to addional needs but think he'll be at an even bigger disadvantage if he starts when the class is established, they all know the routine and have friends and he is new and on his own.
Uber isn't going to be practical until January as the cost will be too much and obviously going by bus could be a risk if she has another seizure.
At the moment options seems to be
Take her to college super early
Risk her getting the bus
Defer DS (which is easiest but I really really want to avoid).
I don't think there's an answer but if anyone can think of something please let me know.

OP posts:
Calamitousness · 24/08/2024 09:26

Ok. I might be missing something but why can’t she take the bus? I know you said not to leave alone. Well she won’t be alone on the bus. If she has another seizure then they will stop the bus and call an ambulance which is presumably what you would do driving her to college so what’s wrong with her going on public transport?

LutonBeds · 24/08/2024 09:26

I’d look for a closer college.

Those berating the DH, have you considered he might have a job such as; police/train driver/postie where it’s not possible to alter your hours/shifts? Not all jobs have flexibility.

Ratfinkstinkypink · 24/08/2024 09:26

She gets the bus and you get her a medic alert type necklace/bracelet/card she carries in the meantime?

Flourpowwer · 24/08/2024 09:25

Does she have ASD too? The overlap between ASD and epilepsy is around 1 in 3 so it is common in that cohort. BTW I would put your DS in school that is extremely important too.

Peclet · 24/08/2024 09:24

Bus with friend
Nearer college?
DH does the reception school run.

Flourpowwer · 24/08/2024 09:22

In this instance I’d relook at her college place and move to somewhere nearer. We got a baby monitor in for DS after a seizure for nighttime if she is willing. DS was much younger though in fairness so your DD might not be keen. If she has epilepsy then you might be dealing with unpredictable seizures until medication is sorted and for the moment I’d want to be nearer than 90 minutes away.

Shinyandnew1 · 24/08/2024 09:20

She wants to go to college in September and DH said to me I will have to take her and pick her up every day

Is DH your boss?!

There will always be someone on the bus every day-even if it’s the bus driver. The. make sure she tells people she travels with about the seizures.

KellyJonesLeatherTrousers · 24/08/2024 09:19

You describe this as if DH has just thrown this ball over the fence and walked away! What does he suggest? What is his role in this, how can he temporarily alter his day to make sure everyone gets to where they need to get to safely?

GabriellaMontez · 24/08/2024 09:17

She gets the bus with a friend who knows what to do if it happens again.

DH takes one of them.

Velvian · 24/08/2024 09:17

What is DH doing towards this and why is he 'telling' you that you will have to do this? He needs to make arrangements with his work during this period of crisis, as you can't be in 2 places at once.

Miley1967 · 24/08/2024 09:16

Any of her friends parents who would be driving their kids to the same college who could take her ? Sorry I know that's a big ask of someone else given the possible circumstances. Or another parent dropping your ds off once he is past the settling in stage of course.

Theunamedcat · 24/08/2024 09:16

Can DH not take her? Not sure why he is delegating this task like your staff but that's how it's coming across

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