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Holiday with another family and behaviour of their ASD child

436 replies

upoutandin87 · 21/08/2024 15:54

Currently on holiday with my family and another family (old friends) they have 2 older children same age as my kids and they also now have a 6 yr old. We have holidayed with them before but not since the youngest was born. Youngest is ND (autism and suspected ADHD). My son is 15 and autistic so I know about ASD but there DD seems out of control and we can't cope with it. She swears spits hits and throws furniture if she doesn't get her own way - there is no routine and she basically gets what she wants - she slapped my DD earlier today and called her a f b because she didn't want to go in the pool with her - my friends answer to this was you cannot say no to her - if you don't do what she wants she kicks off so we have to let her do what she wants. My friends DH and 2 older kids can't cope with her so they go to the beach and take my 15 yr old with them - I prefer being by the pool so I stay with them and my DD 17. We honestly don't know what to do as our holiday is being ruined by a 7 yr old. She threw my bag in the pool yesterday and I was fuming. We are trying to do stuff without them but they seem to be constantly appearing - they never raise their voice at their DD or tell her to stop as negative language makes her worse. Last night their 15 yr old told my son that she has been permanently excluded from her primary school and she currently has no school place from September - I was aware she has had several exclusions for violence but only short term exclusions but her parents have not mentioned to us about the exclusion. My DH wants us to cut all ties with them until they start parenting their child properly. We are only 3 days in to a 10 day holiday and are tempted to fly home to get away from them. I feel so bad as I am an SEN parent myself but they won't take any advice from us about maybe having a routine and setting boundaries. I so feel for them as they are completely broken by her behaviour but I don't actually know what I can do to help.

OP posts:
SunQueen24 · 22/08/2024 10:07

JaneFallow · 22/08/2024 10:05

I'll think you'll find that when in a state of complete overwhelm, one of the ways people try to cope and protect themselves, is to try limit demands and reduce intolerable sensory circumstances, sometimes by controlling others.

Yes true - but it can also be to bring about desired outcomes.

ND children are still capable of manipulation and if they understand kicking off gets the results they want they will.

JaneFallow · 22/08/2024 10:05

Nowordsformethanks · 22/08/2024 07:20

The child's behaviour sounds more like PDA

It really doesn't. She isn't avoiding demands or expectations. She's aggressively making demands of everybody else and not taking no for an answer. That has nothing to do with PDA.

Seriously, PDA has become the new self-diagnosed Autism, BPD, ND, Anxiety and Depression, etc. People learn about it and suddenly every autistic person now also has an internet diagnosis of PDA no matter what they do. Boils my piss.

I'll think you'll find that when in a state of complete overwhelm, one of the ways people try to cope and protect themselves, is to try limit demands and reduce intolerable sensory circumstances, sometimes by controlling others.

SunQueen24 · 22/08/2024 10:05

x2boys · 22/08/2024 08:42

The fact that you are ND and have ADHD is irrelevant, it's a huge spectrum and everyone is impacted differently what works for one person doesn't work for another.

I think mentioning it shows they have an awareness and understanding that others might not. It’s not the same as saying their experience is the same as everyone else with the same headline diagnoses.

StolenChanel · 22/08/2024 09:23

YANBU at all. I’m not going to comment on how they parent their SEN child as I know all children have different needs and it’s not my place to judge, but their child’s needs are not your problem. I would explain to them that you and your children are finding it difficult to cope and would like to continue to holiday separately. If changing accommodation is an option, I would also be doing that. If they’re offended by that then so be it, but you’ve spent your hard-earned money on a holiday and your children were likely looking forward to it too so it’s unfair for that to be spoilt for you.

Soccergearmissingagain · 22/08/2024 09:21

calamarisandwich · 22/08/2024 09:06

This. It’s not “unkind” to have appropriate boundaries. So sick of people misunderstanding what kindness actually is.

Kindness isn’t throwing one person under the bus so everyone else can feel safe. Kindness is communicating your needs in a polite and calm way whilst respecting that person’s needs/struggles/boundaries too.

You can be supportive and kind whilst also keeping your own boundaries intact.

Kindness is not allowing any behaviour no matter how damaging it is to other people under the guise of “support”. I’m not sure how OP allowing her child to be slapped and called names is remotely “kind” to anyone in this scenario.

Another thing kindness isn't - slapping this up online and complaining about your 'friends' poor parenting.

localnotail · 22/08/2024 09:20

JaneFallow · 22/08/2024 07:09

You really have no idea.

I agree - I have no idea but I have a lot of sympathy for parents who have to deal with issues like this. I would never judge parents struggling with a difficult child, but I also would not like seeing this sort of extreme behaviour being completely ignored or justified as normal.

Tractorsanddiggers · 22/08/2024 09:19

I wonder if they are in denial and blame school for her suspension and naively thought she would fair better on holiday.
I also wonder if they thought you have a dc with asd so would be able to help or wouldn't mind and therefore thought it would be a good idea and is why dad keeps leaving you and mum is seeking you out. They are maybe using you in this scenario

Paisleyb · 22/08/2024 09:16

I would be looking for alternative accommodation and if not be up and gone out every day first thing.
Your friends care don't care for your holiday at all.
I wouldn't be interested in seeing them again.
They are clearly very lazy parents and everyone can suck it up.
That child is paying an awful price for their lazy approach.
Protect your family from this, even if it means leaving early.

LeontineFrance · 22/08/2024 09:15

JaneFallow · 22/08/2024 07:09

You really have no idea.

Also, we need t look into the future. If boundaries are not being set at this stage, what is the girl going to be like when she hits teenage years, and, even worse, adulthood. If they are given firm 'tram lines' they know what boundaries to fall back to when they frighten themselves.

calamarisandwich · 22/08/2024 09:06

MillyMollyMandHey · 22/08/2024 08:49

she slapped my DD earlier today and called her a f b because she didn't want to go in the pool with her - my friends answer to this was you cannot say no to her - if you don't do what she wants she kicks off

Just remove all of yourselves from the situation. Not sure how you’re supposed to be supportive of your friend in this situation above.

This. It’s not “unkind” to have appropriate boundaries. So sick of people misunderstanding what kindness actually is.

Kindness isn’t throwing one person under the bus so everyone else can feel safe. Kindness is communicating your needs in a polite and calm way whilst respecting that person’s needs/struggles/boundaries too.

You can be supportive and kind whilst also keeping your own boundaries intact.

Kindness is not allowing any behaviour no matter how damaging it is to other people under the guise of “support”. I’m not sure how OP allowing her child to be slapped and called names is remotely “kind” to anyone in this scenario.

MillyMollyMandHey · 22/08/2024 08:49

she slapped my DD earlier today and called her a f b because she didn't want to go in the pool with her - my friends answer to this was you cannot say no to her - if you don't do what she wants she kicks off

Just remove all of yourselves from the situation. Not sure how you’re supposed to be supportive of your friend in this situation above.

x2boys · 22/08/2024 08:42

offyoujollywelltrot · 22/08/2024 06:14

Your husband is right. Until they start parenting their child, steer clear. I wouldn't blame you for going home, but if you can move into another villa so you can enjoy your time there in peace, do that.

(I'm ND with AuDHD before anyone says I don't understand, it does nobody any favours to leave the behaviour properly unaddressed).

The fact that you are ND and have ADHD is irrelevant, it's a huge spectrum and everyone is impacted differently what works for one person doesn't work for another.

L1ttledrummergirl · 22/08/2024 08:37

@Tinymrscollings you didn't mention the need for constant positivity, avoiding the words don't and no. Always offering limited choices, do you want water or squash, do you want a green cup or an orange cup? You can't offer an unlimited choice because they'll choose something that's unavailable and then have a meltdown.

When leaving anywhere fun, giving an allowance, so if you need to leave the pool at 2 0'clock, you tell them you need to leave at 130. You show them the time on the clock and give reminders as it approaches, when they inevitably ask for more time, start to disregulate, you cave and give them 10 more minutes, then another 10 with the promise that they need to leave straight away, no arguing or being upset, and they must get dressed quickly as they've had extra time. Lots of praise for following instructions.

You need tactics, plans, counterplans. You have to be on the alert for anything you haven't thought about and mentally prepared yourself step by step for everything you do.

It's mentally and physically exhausting.

Dinosweetpea · 22/08/2024 08:07

Nowordsformethanks · 22/08/2024 07:20

The child's behaviour sounds more like PDA

It really doesn't. She isn't avoiding demands or expectations. She's aggressively making demands of everybody else and not taking no for an answer. That has nothing to do with PDA.

Seriously, PDA has become the new self-diagnosed Autism, BPD, ND, Anxiety and Depression, etc. People learn about it and suddenly every autistic person now also has an internet diagnosis of PDA no matter what they do. Boils my piss.

Wow.

JaneFallow · 22/08/2024 07:59

EHCPerhaps · 22/08/2024 07:35

Why is this in AIBU OP? So that a load of parents with NT kids and no relevant experience can back you up? To increase the stereotypes around parenting ND kids? All these people piling on saying that your friend should ‘learn to parent’ - your friend is clearly trying to parent in a way that suits her young child better and is trying to remove a lot of demands with her child because that is more appropriate.

This thread should be in a SEN section. OP you don’t seem to have much understanding of the diversity of how kids can be affected by autism and how differently parenting need to work accordingly. Have you spoken to your friend about why she is parenting like this?

If you don’t want to be around your friend’s child you can just do something else with your day, that’s easy enough. Your holiday isn’t ruined. You also sound extremely unsupportive of your friends.

Well said. Some people seem to need to feel better about themselves by passing judgement on parents of disabled children, when they can't possibly know the nature of the child's challenges, or the advice the parents have received from neurodevelopment specialists.

It's always autism/ADHD on these threads isn't it? There is such a poor awareness that these conditions reflect differences in cognitive functioning and delayed cognitive development. Blaming parents or children for differences in brain function just further stigmatises families who have quite enough to cope with without ignorant bystanders piling on. Children's capacities will develop with age and support - frontal lobes do not develop in response to punishment.

This is such a blind spot. No one would go on holiday with a child in a wheelchair, then complain about their attitude or their parent's lack of boundaries, if they couldn't keep up on a walk. But brain development - well that requires censure and punishment.

Maria1979 · 22/08/2024 07:54

Irisginger · 21/08/2024 23:57

This is not what a specialist psychologist would recommend.

I was talking about the specific setting being in a hotel with other people. You can do differently at home but here other people need to be considered as well. I doubt a child psychologist would have encouraged this holiday in the first place since it's hell for everyone involved, the 7 year old included.

PrincessPeache · 22/08/2024 07:49

EHCPerhaps · 22/08/2024 07:35

Why is this in AIBU OP? So that a load of parents with NT kids and no relevant experience can back you up? To increase the stereotypes around parenting ND kids? All these people piling on saying that your friend should ‘learn to parent’ - your friend is clearly trying to parent in a way that suits her young child better and is trying to remove a lot of demands with her child because that is more appropriate.

This thread should be in a SEN section. OP you don’t seem to have much understanding of the diversity of how kids can be affected by autism and how differently parenting need to work accordingly. Have you spoken to your friend about why she is parenting like this?

If you don’t want to be around your friend’s child you can just do something else with your day, that’s easy enough. Your holiday isn’t ruined. You also sound extremely unsupportive of your friends.

They are not parenting in a way that suits their child, they are insisting that “you can’t tell her no”. There’s a huge difference between removing demands and letting your child do whatever they want, including hitting other children, and doing nothing about it. This type of parenting is exactly why other parents of children with PDA have such a hard time getting anyone to understand them. I minimise demands for my child. I do not let him hurt anyone else and I do not let him get his own way all the time out of fear of him having a meltdown. This child’s needs are not more important than any other child’s needs, and most children need to not be hurt by their friends.

My friendship with a PDA Parent just like the one in the OP ended when my son told me that he has learnt that he has to do what the other child wants all the time so she doesn’t get upset or angry. From simple things like always pushing the buttons on the lift (which my son obviously wanted to do too but never could because “you can’t say no to her”) to dictating what happens for everyone else. It was not a lesson I wanted my son to learn - that he has to push his own feelings aside so that someone else can have their own way and avoid a meltdown.

EHCPerhaps · 22/08/2024 07:35

Why is this in AIBU OP? So that a load of parents with NT kids and no relevant experience can back you up? To increase the stereotypes around parenting ND kids? All these people piling on saying that your friend should ‘learn to parent’ - your friend is clearly trying to parent in a way that suits her young child better and is trying to remove a lot of demands with her child because that is more appropriate.

This thread should be in a SEN section. OP you don’t seem to have much understanding of the diversity of how kids can be affected by autism and how differently parenting need to work accordingly. Have you spoken to your friend about why she is parenting like this?

If you don’t want to be around your friend’s child you can just do something else with your day, that’s easy enough. Your holiday isn’t ruined. You also sound extremely unsupportive of your friends.

saffronflower · 22/08/2024 07:30

@Tinymrscollings thank you so much for your post, I learnt a lot from it and its very well explained.

It illustrates that there are strategies that can help that dont merely involve sitting back and allowing anything to happen because that approach is clearly causing the daughter obvious distress

GemmaS21 · 22/08/2024 07:29

It sounds to me that the parents aren’t having a great holiday either and they can’t just move accommodation or go home because their high needs kid will be with them all the time. No one just gives up and lets their child behave like that if it’s as simple as disciplining them - living with a high needs child is relentless and exhausting and you know at times you do just let things go because you are broken and it feels hopeless.

maybe they wanted to go away with you because they thought a friend would empathise and support them and they for once didn’t want to feel the incredible loneliness that is SEN parenting where everything is a fight. Maybe you could have stepped up and been a good friend rather than judging them all over a forum that is predominantly filled with ableist posters.

oh and the reason why these kids weren’t seen in the past is cos they were shipped off to institutions and I’m afraid for those of you wanting your perfect holidays we don’t tend to do that anymore

Fivebyfive2 · 22/08/2024 07:24

Tinymrscollings · 22/08/2024 02:40

@altmember

All kids need consistently applied boundaries, discipline and to some extent, routines. I've always been led to believe that this is especially crucial with ASD kids? Any child that's got used to always getting their own way is going to have a tantrum when told something different, and they know this is the route to getting their way. If the parents can't/won't apply appropriate boundaries then they're making a rod for their own back.

You’re right, but the way in which those boundaries are enforced when a child is demand avoidant/PDA are entirely different. People with PDA cannot tolerate any loss of autonomy or the sense that another person (parent, teacher usually) is ‘in charge of them’. Not cause they’re spoiled (although they certainly can be) or poorly parented. Demand causes overwhelming anxiety and leads to the kind of behaviours the OP is seeing.

Most kids:
Parent: Timmy, If you throw that in the pool I will take you back to the room for the rest of the afternoon
Timmy: throws bag in the pool
Parent: ok, let’s go.
Timmy: cries in the room for 5 minutes, says sorry, learns lesson, remembers next time

PDA:
Parent: Timmy, If you throw that in the pool I will take you back to the room for the rest of the afternoon
Timmy: throws bag in the pool
Parent: ok, let’s go.
Timmy: has to be dragged to the room, scrapes his elbow and accuses parent of hurting him on purpose. He screams, swears, hits, bites for the ensuing 6 hours. He’s completely overwhelmed and tries to overturn a buffet at dinner so has to be removed, again by force. One parent has to sit in the room with him whilst he spits at them and laughs. They don’t get dinner. Timmy is far beyond the reach of reason and so disregulated that he kicks a wall repeatedly for 8 hours and keeps his whole family up. The next day they go to the pool and he immediately finds a bag, makes full eye contact with the parent and throws it in because you’re not the boss, he’s the boss

OR:
Parent: Timmy, what does it say on the Swimming Pool Info Sheet (1) about other people’s things?
Timmy: pauses, goes to throw bag in pool
Parent: Timmy shall we look at the information sheet together?
Timmy: comes to look at information sheet
Parent: What will happen if we don’t follow the swimming pool information sheet?
Timmy: We have to leave because the hotel manager doesn’t let people throw things in the pool
Parent: Yes, and we’re having a great time so if you’re feeling in a throwing mood we could throw these (2) to each other?

(1) If it’s written down and you are simply communicating the standards expected at the pool rather than giving an instruction, Timmy is receiving information via you and will absorb the rules. Before coming on holiday you have thought out the swimming pool rules that you have to call an info sheet, typed them, printed several copies and laminated one for the swimming bag. You have taken Timmy through the sheet each and every time you go to swim and confirmed that he has understood them to avoid arguing that he didn’t know/hear/understand. Timmy has been told that if we don’t abide by the rules then we’ll have to leave the pool because the hotel manager won’t allow it. The hotel manager is a convenient made up third party that you can use to externalise the demand so it isn’t coming from you to Timmy and he doesn’t feel threatened. You have several other information sheets for other potential flash points, but forgot to do a couple and will have to wing it and hope for the best. Sometimes it will work. Sometimes he will hit his brother or throw a glass at a wall

(2) soft skim toys which you researched extensively (nothing that will hurt anyone, nothing frustrating, nothing that might break a window etc) purchased a week ago and hid in the swimming bag just in case

5 minutes later Timmy takes a child’s inflatable flamingo and we go again, always avoiding directly instructing but constantly setting and enforcing boundaries and reminding Timmy of natural consequences rather than threatening punishment. It is exhausting and it never ends.

That’s not an exaggeration. This is life when you enforce boundaries with PDA. This was long, but the vast majority of people have no idea what demand avoidance is and what ‘just enforce some boundaries’ looks like.

edit; terrible formatting

Edited

Your post really stood out for me because it's exactly the kind of thing we do for our 4.5 year old (awaiting assessment) Thankfully he's not naturally violent, but he is very anxious and thinks about/picks up on EVERYTHING - we have to word things in certain ways and prep him for most things or else we're just setting him up to "fail" BUT if he knows The Rules and the clear expectations, he can be very agreeable and reasonable. It's exhausting though, absolutely a full time job!

Nowordsformethanks · 22/08/2024 07:20

The child's behaviour sounds more like PDA

It really doesn't. She isn't avoiding demands or expectations. She's aggressively making demands of everybody else and not taking no for an answer. That has nothing to do with PDA.

Seriously, PDA has become the new self-diagnosed Autism, BPD, ND, Anxiety and Depression, etc. People learn about it and suddenly every autistic person now also has an internet diagnosis of PDA no matter what they do. Boils my piss.

Calliopespa · 22/08/2024 07:15

localnotail · 22/08/2024 06:04

Yes, some hidden away, maybe. But also, because this kind of behaviour was not tolerated. I cant imagine someone's kid throwing my mum's bag into the pool! That would be scandalous.

Dont get me wrong, its great that we are much kinder and more inclusive as a society, but I think an aggressive 7 year old terrorising adults should either be taught how to behave or have therapy and medication to help her deal with the world. She has to live among other people, and there are boundaries. Her parents are doing her a massive disservice, imagine being excluded from primary school for aggression! What kind of life awaits her when she grows up?

Yes! The parents were crazy to be relaxed about the exclusion🙄.

They will be trying @localnotail, they will be trying .

JaneFallow · 22/08/2024 07:09

localnotail · 22/08/2024 06:04

Yes, some hidden away, maybe. But also, because this kind of behaviour was not tolerated. I cant imagine someone's kid throwing my mum's bag into the pool! That would be scandalous.

Dont get me wrong, its great that we are much kinder and more inclusive as a society, but I think an aggressive 7 year old terrorising adults should either be taught how to behave or have therapy and medication to help her deal with the world. She has to live among other people, and there are boundaries. Her parents are doing her a massive disservice, imagine being excluded from primary school for aggression! What kind of life awaits her when she grows up?

You really have no idea.

AlarminglyAwful · 22/08/2024 06:21

coolpineapple1 · 21/08/2024 16:06

I have a child who is ND she wouldn't be violent but holidaying with another family would be a nightmare for her. She would be totally disregulated and anxious. All ND children are different and I can understand how this is affecting you and your families holiday so huge sympathies. I think they really should have expected this and said when you were making the arrangements that it wouldn't be a good idea.

I agree with this. I have an ND 6 year old and wouldn’t put him, or another family, in this position.

Those saying ‘just tell her off’ haven’t fully experienced PDA. I’m not necessarily saying DC’s parents are dealing with it well but they might well be over a barrel.