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Help with 6 year old not eating

90 replies

Summertimewoes · 20/08/2024 10:50

I’ve posted in AIBU as I need as much traffic to get some help !

This is going to be very long - sorry !

My 6 year old dd had a near choking incident four months ago and since then has been barely eating .
She has an active phobia now of swallowing .
She lives off certain crisps, mini Oreos , vanilla ice cream , the cheese part of dairy Lea dunkers , one bite of waffle with Nutella per day , one or two pieces of pasta with ketchup .
If we are out in a cafe , she will eat some donut or some cake .
Sometimes before bed she is so hungry and will accept a chopped up banana- will only eat two pieces .
she will have two innocent smoothie and one Ella’s kitchen fruit pouch per day as well .

Backround is she was diagnosed with sensory processing disorder at age 5.
she’s on a private waiting list to assess for autism .
She is what you would call high functioning . Very bright in school, masks incredibly well , and Then can’t cope once we are at home .
School has seen no issues whatsoever up until June when she could no longer mask as she was so hungry all the time .

I’ve been to the gp three times , sent to children’s hospital to rule out any physical problems with swallowing ( none )
She attends OT for past 18 months for sensory regulation. ( private )
She Is seeing a child councilor ( private ) weekly but seeing no difference.
Gp has referred her to a dietitian and a psychologist but not sure how long we will be waiting .
I had been referred to a child psychologist - Public - who said there was nothing they could do - this is the HSE so our public healthcare system .
Ive emailed private psychologists who either are not taking on new patients or say she’s too complex .

Her OT thinks she is showing signs of PDA and is experiencing burn out.

Her behaviors are very difficult at the moment but we are doing low/no demand in the hope she will regulate and the eating will follow .

Here’s my question (after all that !)
Has anyone got any experience with this ? I can deal with the behavior ( just about ) but we are extremely worried about the eating . I’m not sure how she is surviving.
I’ve tried different approaches with food but maybe there’s something I havevt tried ?

Our healthcare system in Ireland is broken , no one knows what to do with her and we basically don’t know where to turn .
Gp mentioned Arfid so I’ve been researching a bit on that too .

Anything else I can do to encourage eating , get some help ?

OP posts:
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Summertimewoes · 23/08/2024 07:57

Makingchocolatecake · 22/08/2024 23:20

Will she eat pureed stuff or even baby food pouches of spaghetti bol etc

Edited

I picked up an Ella’s kitchen pasta tomato pouch yesterday- for 10 months plus
She ate half the pouch !! Took her 30 mins but even this small achievement is huge at the moment !
She said she will have more for dinner today so I’m really hoping she will eat it again.
She did leave some of the pasta pieces but ate the sauce .
I just want her to get back to the flavors of dinner foods and hopefully she will crave them again

OP posts:
Summertimewoes · 23/08/2024 07:53

RandomMess · 22/08/2024 18:41

@Summertimewoes no idea about hypnotherapy.

I would image maybe a clinic in London could have a specialism in it?

Thanks, I’m in Ireland . I googled yesterday but nothing coming up for children .
Il see what gp thinks - I’m sure she will think I’m mad but il try anything at this stage!

OP posts:
Summertimewoes · 23/08/2024 07:52

ALittleDropOfRain · 22/08/2024 15:51

Your creativity is excellent! So sorry it’s not working. You’re a fabulous parent and there will be a solution, hope you‘ve been able to pick up some help from this thread.

Thank you so much

OP posts:
Summertimewoes · 23/08/2024 07:52

WinkyTinky · 22/08/2024 15:37

@Summertimewoes I completely relate to you and your daughter. I have two boys, and the youngest one DS12 is under a dietician as he is below the 1st centile for weight. They have given us every type of high calorie drink and milkshake to try, but all they do is make him feel sick and then less likely to eat, so we have stopped trying those. The dietician has advised just to increase portion sizes of things he does eat (bread buns, toast, bananas, Wildlife yoghurts, Ritz crackers) and introduce food chaining as has already been mentioned. I do manage to get some other things into him in the form of a cake that I bake (again, mentioned lots of times above!) which has lots of eggs and butter, and I have recently added in grated carrot, and also courgette. Even though he seems to lean towards sweet food, he doesn't like things too sweet, so I use about half the brown sugar in the recipe for this cake so it's semi-savoury, and he likes it. I even made some to take on holiday with us recently, and he lived on that and bread buns and bananas from a nearby Lidl. Unfortunately his older brother DS16 is pretty much the same. Whereas DS12 lives on bread, DS16 lives on potato products. I definitely think they both have ARFID, and dietician agrees, but I can't see any solution in changing this for either of them without some kind of hypnotherapy or other mental health intervention. They are both desperate to eat normally and want to put weight on, it's not that they're restricting themselves on purpose.
If it's any consolation, DS16 is a strapping 6'3" although on the skinny side, and has today got a great set of GCSE results, so they do manage to get on in life! I do hope you manage to find some help OP.

Thanks, that’s very hard with two of them !
Glad to hear your ds did so well with his exams - well done to him - and you !

OP posts:
Makingchocolatecake · 22/08/2024 23:20

Summertimewoes · 20/08/2024 11:04

Thank you ! Unfortunately we tried that . Even bought a new nutra bullet contraption and made milkshakes with her in the hope I could add stuff to it but she refuses any smoothie that’s not the innocent brand .
Although she was a picky eater before this , she would still eat huge portions of what she liked - bolognese, pesto pasta etc - we were actually worried about her weight at one stage as she ate such vast amounts .
Now she’s lost half a stone since end of April and I’d do anything to see her eat a bowl of pasta

Thanks for your reply ☺️

Will she eat pureed stuff or even baby food pouches of spaghetti bol etc

RandomMess · 22/08/2024 18:41

@Summertimewoes no idea about hypnotherapy.

I would image maybe a clinic in London could have a specialism in it?

JLT24 · 22/08/2024 15:57

Summertimewoes · 20/08/2024 11:04

Thank you ! Unfortunately we tried that . Even bought a new nutra bullet contraption and made milkshakes with her in the hope I could add stuff to it but she refuses any smoothie that’s not the innocent brand .
Although she was a picky eater before this , she would still eat huge portions of what she liked - bolognese, pesto pasta etc - we were actually worried about her weight at one stage as she ate such vast amounts .
Now she’s lost half a stone since end of April and I’d do anything to see her eat a bowl of pasta

Thanks for your reply ☺️

Have you tried to give her a liquid multivitamin and mineral supplement?

Maybe try making a smoothie and filling the empty innocent bottle so she thinks it’s from that brand.

For optimum nutrition I’d try a banana, strawberries, a tbsp flaxseed (cannot taste it at all), apple juice/milk, scoop of Nuzest Vanilla protein powder (it’s a protein powder that it not full of nasties like some others and you can buy sachets to give it a try)

ALittleDropOfRain · 22/08/2024 15:51

Summertimewoes · 22/08/2024 14:58

I tried that but she wouldn’t eat it because it doesn’t look very appealing!
I also purred the mince into a smooth sauce and added to spaghetti . She will occasionally have one/two bites of it like this - maybe once a week .

Your creativity is excellent! So sorry it’s not working. You’re a fabulous parent and there will be a solution, hope you‘ve been able to pick up some help from this thread.

StrawberrySquash · 22/08/2024 15:47

Summertimewoes · 20/08/2024 18:47

I tried with her helping and preparing but unfortunately she just didn’t eat it.
Also tried the hidden veg trick but she’s not eating sauces at the moment!
Havevt tried the cake option though so will definitely give that a try , thanks!

Ottolenghi has a cauliflower cake that is very nice and could maybe be adapted. Or try some vegetable savoury muffins or a cornbread?

WinkyTinky · 22/08/2024 15:37

@Summertimewoes I completely relate to you and your daughter. I have two boys, and the youngest one DS12 is under a dietician as he is below the 1st centile for weight. They have given us every type of high calorie drink and milkshake to try, but all they do is make him feel sick and then less likely to eat, so we have stopped trying those. The dietician has advised just to increase portion sizes of things he does eat (bread buns, toast, bananas, Wildlife yoghurts, Ritz crackers) and introduce food chaining as has already been mentioned. I do manage to get some other things into him in the form of a cake that I bake (again, mentioned lots of times above!) which has lots of eggs and butter, and I have recently added in grated carrot, and also courgette. Even though he seems to lean towards sweet food, he doesn't like things too sweet, so I use about half the brown sugar in the recipe for this cake so it's semi-savoury, and he likes it. I even made some to take on holiday with us recently, and he lived on that and bread buns and bananas from a nearby Lidl. Unfortunately his older brother DS16 is pretty much the same. Whereas DS12 lives on bread, DS16 lives on potato products. I definitely think they both have ARFID, and dietician agrees, but I can't see any solution in changing this for either of them without some kind of hypnotherapy or other mental health intervention. They are both desperate to eat normally and want to put weight on, it's not that they're restricting themselves on purpose.
If it's any consolation, DS16 is a strapping 6'3" although on the skinny side, and has today got a great set of GCSE results, so they do manage to get on in life! I do hope you manage to find some help OP.

Summertimewoes · 22/08/2024 15:06

RandomMess · 21/08/2024 20:11

A bit outside the box with this suggestion but is hypnotherapy worth trying?

She clearly wants to eat her usual safe foods but feels physically unable.

Something I haven’t thought of ?! Would they have hypnotherapy available for a child that age do you know ?

OP posts:
Summertimewoes · 22/08/2024 15:05

Createausername1970 · 21/08/2024 20:08

Can you refill a used branded bottle with a smoothie you have made? So she thinks it's the brand she likes?

My DS went through a phase of only eating certain brands, but had no clue at that age that the Cadbury hot chocolate jar actually contained a supermarket brand.

unfortunately she can always tell . I tried so many different brands (cheaper) even before this eating issue and she always knew and refused

OP posts:
Summertimewoes · 22/08/2024 15:03

BeSpoonyAquaHare · 21/08/2024 10:20

I’m so sorry OP, that sounds very hard.

I don’t have any advice on the therapeutic side and it sounds like you’re doing all you should be there.

In terms of upping her nutrients and calories here are some you could try:

Cake - would she eat carrot cake or courgette cake (especially if she doesn’t know what’s in them?). You can use the nutribullet to blend the carrot or courgette to a paste so they weren’t visible. You can also make cakes with sweet potato, there are recipes for things like sweet potato brownies online.

Muffins - attached is a recipe, these look bloody worthy from the ingredients list but they’re actually delicious and packed full of good things that even my picky 3yo doesn’t notice.

pancakes - would she eat these? If so you can make them with banana and ground almonds and that, along with the egg, is a good source of calories and vitamins

smoothies - would she notice the taste difference if you bought big bottles of innocent smoothies and blended some extra hidden fruit and veg into it (spinach, carrot etc) and then returned it to the bottle? If not then the smoothies are decent anyway so don’t worry too much.

Would she try something like hummus? It has a very easy texture but it’s a good source of iron and protein. Peanut butter too - it’s a great addition to toast or pancakes if she will have those things.

Thank you , I’m definitely going to try a cake . Lots of pp’s have mentioned too

Nope only innocent smoothies and notices the taste !

OP posts:
Summertimewoes · 22/08/2024 15:00

OwlsDance · 21/08/2024 09:37

OP, I probably won't be much help, but I had a near chocking incident as a child, although I was a bit older - probably 9 or 10. I didn't really have much sensory issues, although I suspect I do have ASD. I've always been a not very good eater even before then.

I had a massive fear of chocking, and I would take absolute ages to eat a meal because I had to psyche myself each time I had to swallow, even if it was liquid. I would often spit out food when no one was looking, especially if it was something like meat. I lost quite a bit of weight. My parents were not understanding in the slightest.

I did eventually grow out of it - I can't remember how long it lasted, but I think I was 11 or 12 by that time. There wasn't anything specific that helped, it was probably just exposure, having to do it day in and day out, so over time the fear has diminished. However, for you DD having a well educated compassionate parent is far more than I had - keep doing what you're doing, you are doing a great job.

You poor thing . Glad to see you came out the other side . How awful you at the time .
My dd also spits out food and it’s heartbreaking.
If we are out with friends and eating , she will say she needs to go to the toilet and Then spit the food down the toilet 😥

OP posts:
Summertimewoes · 22/08/2024 14:58

ALittleDropOfRain · 21/08/2024 21:03

If she‘ll ask for bolognese, could you purée a portion for her?

I tried that but she wouldn’t eat it because it doesn’t look very appealing!
I also purred the mince into a smooth sauce and added to spaghetti . She will occasionally have one/two bites of it like this - maybe once a week .

OP posts:
Summertimewoes · 22/08/2024 14:56

coaltitsrock · 22/08/2024 08:31

Do you have an eating disorder team you can get referred to? I know in my area, they only takes kids from 8 onwards.

In the meantime, has anyone suggested shakes like ensure? Paed of GP can prescribe.

We don’t have anything like that , that I know of but it something I will google , thanks !

Weve been advised not to give drinks like that as they will fill her , and she needs to feel hungry to eat.
We did try pedisure though at one stage out of desperation and she wouldn’t even touch it unfortunately!

OP posts:
Summertimewoes · 22/08/2024 14:54

PuddingAunt · 22/08/2024 10:14

I don't think it's good to talk about food being "crap" or "healthy".
The first purpose of eating is to get energy. Your kid's diet may not be perfect, but getting the calories in is a good start.

I obviously don’t say crap or junk food to her but lets be honest , it’s junk food and it’s not sustainable for her to function .

OP posts:
PuddingAunt · 22/08/2024 10:14

I don't think it's good to talk about food being "crap" or "healthy".
The first purpose of eating is to get energy. Your kid's diet may not be perfect, but getting the calories in is a good start.

Summertimewoes · 22/08/2024 08:31

Thecatatnight · 21/08/2024 09:12

I think some posters don’t realise that if you have a child with potential autism/ sensory issues that they are very sensitive to the tastes & textures of certain foods. So swapping the packaging won’t work. A homemade smoothie tastes very different & has a different texture to an Innocent one. For eg. my DD will only eat certain brands of foods & we’ve tried all the usual tricks but she can always ALWAYS tell if it’s different! It’s really annoying!

This is exactly it. I’m dealing with a child who has sensory issues and on the spectrum .
She can always tell the difference, even with Heinz spaghetti hoops and tesco brand - there is no fooling her !

OP posts:
coaltitsrock · 22/08/2024 08:31

Do you have an eating disorder team you can get referred to? I know in my area, they only takes kids from 8 onwards.

In the meantime, has anyone suggested shakes like ensure? Paed of GP can prescribe.

Summertimewoes · 22/08/2024 08:29

Purplestorm83 · 21/08/2024 08:51

Also could you somehow open the innocent smoothie packs and put something else inside them without her noticing? Or maybe “lose” the straw so it has to be poured into a cup (in front of her) so she might accept other smoothies?

She knows the difference and I don’t want to start messing with what she does take because the smoothies are the only way I can get some kind of fruit in to her unfortunately

OP posts:
ALittleDropOfRain · 21/08/2024 21:03

Summertimewoes · 21/08/2024 10:07

I am very worried that she’s only eating crap . These became her safe foods when she didn’t eat any kind of food for nearly a week and only drank one smoothie and two fruit pouches per day .
Even to get her to where she is now has taken time and a multitude of different approaches

She has no problems playing with food , licking food. She will often ask for a “normal “ dinner like bolognese and then chew it until it’s basically water and then spit out

If she‘ll ask for bolognese, could you purée a portion for her?

User5462462 · 21/08/2024 20:33

June2008 · 21/08/2024 09:43

My DC went through a phase of not eating due to a fear of vomiting. (About age 6/7.) We got to the point where she was refusing almost everything. She lost a lot of weight. Our GP was very understanding but there was little other support. We were advised to simply let her eat what she wanted, which was oreos and breadsticks. That was it for weeks and weeks.
I remember getting upset which upset her further and simply had to back off (going against all our instincts) We tried everything. In the end we just had to let her just get some calories in. Nutrition became secondary.

She slowly, and we're talking months, probably years, started to eat a slightly more nutritious selection.

She still has a limited diet. She's just left school and will eat 7 meals. That's it. However they do include fruit and vegetables. It's restrictive and can be a bit frustrating even now but that's part of her and she's happy and healthy.

This was me as a child. My parents didn't know that much about nutrition so they weren't that bothered as long as I was eating something. I subsided on UPFs and junk food for years but was ironically underweight because I didn't actually eat huge portions. One chocolate bar or one bag of crisps was a meal.

If it's any consolation, I had a wake-up call after two health scares as an adult. I overhauled my diet completely and started eating 5 portions of fruit & veg with low sugar, low carb and low UPF. I enjoy cooking and make as much as I can from scratch. I obviously feel much better than when I was just living off sugar. I still have some "background noise" of emetophobia, for instance I love fruits and veg but I will prepare it myself at home instead of buying those pre-packaged salads or raw fruit salad. I tend to eat less at other people's homes when I'm not 100% sure about the hygiene standards but on the whole it doesn't affect my life to any significant extent. I do eat enough variety that nobody ever suspects I have issues with food.

User5462462 · 21/08/2024 20:15

Is there any chance she might be emetophobic? As a PP mentioned, a lot of those safe foods and tiny portions are typical of emetophobes, or a fear of vomiting. The choking incident might be triggered the fear of thinking she might be sick, rather than the stress of choking in itself. Emetophobia frequently overlaps with Audhd & ARFID, as many of the thought patterns are typical of neurodivergent thinking.

6 is young but not hugely so. My phobia started about age 7 and I already started limiting portions at that age. Sometimes I would secretly spit out food I already chewed because something in my head told it wasn't safe or might make me sick. I never admitted the true fear to anyone, so from the outside it would easily appear like arfid, anorexia or ednos.

You could broach the subject by saying which foods are good for your tummy or that having some food in your tummy actually prevents you from feeling or being sick. Start with the BRAT foods that people might typically eat after being ill. White carbs, bananas, soups, potatoes etc. The goal is to encourage her to eat more as get used to the feeling of being full. Again, it might not have that much to do with the choking but in the aftermath, she's developed an aversion to the feeling of fullness because it reminds her she might be sick. During the worst phases of my phobia, I had to be hungry at all times because the feeling of fullness would make me too anxious or trigger panic.

She might even be too young to articulate exactly what she's afraid of. Try approaching it from an emetophobic perspective and keep emphasising how some foods are good for your tummy, won't give you a tummy ache and helps your body fight off germs that might make you sick. Something along those lines and see if that makes a difference.

EDIT: I underwent therapy in my 20s and now have a completely normal diet and body weight. I love food, cooking and eating out at restaurants. I'm only a bit fussy about expiry dates and don't eat things like raw oysters but aside from that the phobia has almost no impact on my life.

RandomMess · 21/08/2024 20:11

A bit outside the box with this suggestion but is hypnotherapy worth trying?

She clearly wants to eat her usual safe foods but feels physically unable.

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