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To think that we need to have an honest conversation about euthanasia and care costs

722 replies

Noras · 18/08/2024 17:41

So there are some interesting stats published by the Gov about the cost of cares the end of life and whatever way you look at it, it’s expensive. Obviously the most expensive is hospital care at about £400 to £500 per day but also care in care homes is high.Most of that could be avoided with an injection.

I have watched both my parents die and I have been left traumatised by it. My mother died from starving to death due to dementia in a non nursing bed with no pay relief other than paracetamol. She was clutching the sheets and morning for 14 days. My father died of the most gruesome cancer. We nursed him at home but we still had one 24 hour carer at the end paid for by CHC ( he was plus 2 for eg the commode and washing hence we still did it).

Whilst my parents were dying I could not bear to let them go but now after several years I think ‘What on Earth was that?’ With the benefit of hindsight I regret every mouthful of food that I fed my mother. She did not even know who I was and was in a different World but yet she was my beautiful mother.

I regret every time that I carefully measured morphine for my dad because I did not want to give him an overdose

I am haunted by the prospect of getting dementia. I am scared sick of cancer and dying from it as the pain meds never kept uo with the pain. When we just had the pain patches they were always too weak and we were always behind the race to keep up with the pain. When we got the end of life kit, as a relative I was always too scared to give ( I think ) enough morphine to top up the pain patches so my dad would he in agony. I could not bear to let my dad go - it was so painful,

So this is the question; Do we need to grow up and really think about euthanasia?

Over two years of my life were consumed by the impending death of my parents ( I still visited and cared for my mum in a care home despite it costing my dad several hundred pounds weekly as I wanted to care for her).

OP posts:
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Noras · 20/08/2024 17:07

Hi Everyone

Please can we keep this conversation pleasant as it means quite a lot to me. Everyone’s views have helped me a lot to process my emotions and try to make sense of my thoughts on what is a difficult topic. I thank everyone for adding to this.

You all have so much to give on this topic.

OP

OP posts:
Needanewname42 · 20/08/2024 17:05

XenoBitch · 20/08/2024 16:43

I remember a patient I had when I was a student ODP on placement in recovery.
A chap in his 80s with advanced dementia. He was with us as he had to have a GA to take a biopsy of a potential cancer. As soon as he was awake, he was combative (more so towards women). He had no family or anything... and he absolutely lacked capacity.
As awful as it sounds, I did wonder what the point of a biopsy was. Would he have been put through cancer treatment too?

Exactly what's the point, in trying to treat someone with dementia for cancer. Dementia is a terminal illness.

Lots of dementia patients are aggressive too. It's only a few weeks since it was in the news about a man killing his wife. They'd been married for decades. He'd gone to a neighbour- there's a body in my kitchen - zero clue who it was or he'd killed her.
Tragic all round, both him the wife, and family.

Imtheproblemitsmeapparently · 20/08/2024 17:04

Starlingexpress · 20/08/2024 16:39

So your latest logic is that we shouldn’t prolong life if we can administer medication to end it? Therefore killing someone? You may find the wording and terminology uncomfortable but if that’s the practice you’re advocating, then at least have the courage to call it what it is.

I’ll give you the benefit of the doubt by assuming that you’re definitely not in a specialist palliative care role. But your attitude to end of life care and drug administration is troubling and may be something you need to explore further with a clinical supervisor.

Not alt all my logic and you are aware of that. Please conduct a proper conversation in good faith about this without hyperbole, we need to be able to discuss this sensibly without endless point scoring.

Donyou have any interest in an open conversation?

Needanewname42 · 20/08/2024 16:59

Prenelope · 20/08/2024 16:38

I'm sure most people would prefer to have a retirement at 65 and a a few years of good health to enjoy rather than a few extra years loitering around in a care home at 90 getting you arse wiped for you and living on pills

Seriously? You think people would rather die at 70?

Mumsnet really hates old people!

That's not what I said or if that's how it comes across I'll make it clearer.

I think most people would rather die at 80 or 90 when ever their body starts to really fail than too be kept going for an extra few expensive years making it to 83 or 93, but relying on carers and homes to look after them.

EatCrow · 20/08/2024 16:53

XenoBitch · 20/08/2024 16:44

Yep, it costs £thousands... and if you have ever been sectioned under the mental health act, then it is even more difficult to be accepted by them.

I looked into this a few months back. £16,000 in today’s prices. The rules are that you have to find a place to stay for a while before they will consider you. The thought of doing that, possibly alone, whilst suicidal, hopeless and suffering mental health problems, seems impossible to me. Particularly if someone has agoraphobia.

XenoBitch · 20/08/2024 16:48

Prenelope · 20/08/2024 16:45

He was a person.

Well, he was not a mineral or vegetable.
Of course he was a person (I am not sure what the gist of your comment was)... but my point was that he was in the stages of advanced dementia and would not be able to understand or consent to cancer treatment.

Prenelope · 20/08/2024 16:45

XenoBitch · 20/08/2024 16:43

I remember a patient I had when I was a student ODP on placement in recovery.
A chap in his 80s with advanced dementia. He was with us as he had to have a GA to take a biopsy of a potential cancer. As soon as he was awake, he was combative (more so towards women). He had no family or anything... and he absolutely lacked capacity.
As awful as it sounds, I did wonder what the point of a biopsy was. Would he have been put through cancer treatment too?

He was a person.

XenoBitch · 20/08/2024 16:44

Prenelope · 20/08/2024 16:41

It's very difficult and expensive to go to Dignitas. If you are serious then start saving.

Yep, it costs £thousands... and if you have ever been sectioned under the mental health act, then it is even more difficult to be accepted by them.

XenoBitch · 20/08/2024 16:43

Needanewname42 · 20/08/2024 16:36

I'd agree that's part of the issue. We are keeping people alive artificially, which makes the whole end process worse.
Maybe there should be agreements not to treat infections etc when people no longer have capacity.

Looking at an even bigger picture, people are having to work until nearly 70 because the average death age has gone up.
But are people in their 60s much healthier and fitter than people in their 60s were 50 years ago? Probably not.

If anything with obesity rates they are probably less fit. And office jobs have become even more sedentary with the advent of paperless offices, no getting up to get files or put them away.

I'm sure most people would prefer to have a retirement at 65 and a a few years of good health to enjoy rather than a few extra years loitering around in a care home at 90 getting you arse wiped for you and living on pills.

I remember a patient I had when I was a student ODP on placement in recovery.
A chap in his 80s with advanced dementia. He was with us as he had to have a GA to take a biopsy of a potential cancer. As soon as he was awake, he was combative (more so towards women). He had no family or anything... and he absolutely lacked capacity.
As awful as it sounds, I did wonder what the point of a biopsy was. Would he have been put through cancer treatment too?

Prenelope · 20/08/2024 16:41

WeWillGetThereInTheEnd · 20/08/2024 16:40

Look at your life now and make the changes you need to be happy and fulfilled now, not try and control a process that it is impossible to control.

I’d be off to Switzerland, when I got a terminal diagnosis or dementia. In no account, do I want to go, the way I’ve seen older relatives go! My cats were much luckier. DS did work experience at two vet’s practices and he said, they regarded owners, who let their animals suffer for too long, as cruel.

It's very difficult and expensive to go to Dignitas. If you are serious then start saving.

WeWillGetThereInTheEnd · 20/08/2024 16:40

Look at your life now and make the changes you need to be happy and fulfilled now, not try and control a process that it is impossible to control.

I’d be off to Switzerland, when I got a terminal diagnosis or dementia. In no account, do I want to go, the way I’ve seen older relatives go! My cats were much luckier. DS did work experience at two vet’s practices and he said, they regarded owners, who let their animals suffer for too long, as cruel.

Starlingexpress · 20/08/2024 16:39

Imtheproblemitsmeapparently · 20/08/2024 16:11

You’re using deliberately inflammatory language here which isn’t helpful to the discussion. No one is administering pain relief to ‘kill someone’ - the diseases or old age has already taken care of that. HCP’s are administering pain relief to relieve pain, as they should. The secondary impact of which is, in many cases, a faster death. I’m not sure what your problem is - if you’ve been anywhere near clinical practice at the end of life you know full well what I’m talking about but appear to exist in a parallel universe where we prolong the life and therefore the suffering of dying people to what end? More suffering? That’s not, in any way, what happens and you know it.

Of course I’ve witnessed rattling and in every case let someone know the inevitable is happening, do you even know how care at the end of life works? I cannot believe you’ve been anywhere near clinical practice because you seem so completely detached from the reality of the management of death in the majority of cases for elderly and dying people.

So your latest logic is that we shouldn’t prolong life if we can administer medication to end it? Therefore killing someone? You may find the wording and terminology uncomfortable but if that’s the practice you’re advocating, then at least have the courage to call it what it is.

I’ll give you the benefit of the doubt by assuming that you’re definitely not in a specialist palliative care role. But your attitude to end of life care and drug administration is troubling and may be something you need to explore further with a clinical supervisor.

Prenelope · 20/08/2024 16:38

I'm sure most people would prefer to have a retirement at 65 and a a few years of good health to enjoy rather than a few extra years loitering around in a care home at 90 getting you arse wiped for you and living on pills

Seriously? You think people would rather die at 70?

Mumsnet really hates old people!

Needanewname42 · 20/08/2024 16:36

pavillion1 · 20/08/2024 15:33

i work in care and i agree wholeheartedly. The suffering for so many is just unacceptable. Its almost we have eradicated people dying from old age . So many times they are rushed of to hospital literally on the cusp of death and they pump them with whatever and then return them to us another notch worse .
Why are we so afraid of letting people die 🤷🏻‍♀️

I'd agree that's part of the issue. We are keeping people alive artificially, which makes the whole end process worse.
Maybe there should be agreements not to treat infections etc when people no longer have capacity.

Looking at an even bigger picture, people are having to work until nearly 70 because the average death age has gone up.
But are people in their 60s much healthier and fitter than people in their 60s were 50 years ago? Probably not.

If anything with obesity rates they are probably less fit. And office jobs have become even more sedentary with the advent of paperless offices, no getting up to get files or put them away.

I'm sure most people would prefer to have a retirement at 65 and a a few years of good health to enjoy rather than a few extra years loitering around in a care home at 90 getting you arse wiped for you and living on pills.

Noras · 20/08/2024 16:31

Starlingexpress · 20/08/2024 16:08

Self administration and administration by family involves oral medication only. A family member would never be expected to administer injectable morphine or sedation, because despite the narrative that some keep pushing, those drugs are carefully prescribed, monitored and managed.

It is virtually impossible for you to cause death by administering oral opiods or sedation if used as prescribed. If the dose titration is incorrect, you may cause the person to become sleepy, drowsy or confused. Unless your intentions were questionable it would be unlikely that you would be able to administer further oral medication to that person and instead would seek medical advice.

Family members and carers need significantly better support, education, information and advice on managing symptoms at end of life that what is currently available in the UK. That’s s priority for legislators IMO.

Yes I think so.

My dad had patches and oral morphine top up as required. He never got a pump driver.

OP posts:
Prenelope · 20/08/2024 16:31

Babybirdmum · 20/08/2024 16:28

If you’re worried about yourself at the end of your life because of your parents, then have a look at advanced decisions to refuse treatment. If I was ever diagnosed with anything, I’d make one and let my family know.

Look at your life now and make the changes you need to be happy and fulfilled now, not try and control a process that it is impossible to control.

Babybirdmum · 20/08/2024 16:28

If you’re worried about yourself at the end of your life because of your parents, then have a look at advanced decisions to refuse treatment. If I was ever diagnosed with anything, I’d make one and let my family know.

Imtheproblemitsmeapparently · 20/08/2024 16:11

Starlingexpress · 20/08/2024 14:22

If you’re an HCP who witnessed a patient experiencing a symptomatic ‘death rattle’ and didn’t act to reassess or refer for reassessment by somebody qualified to do so, and failed to reassess the efficacy of the prescribed anti cholinergic regime and the need for dose increases and amendments, then YOU are part of the reason why we need more investment and training for those involved in the provision of palliative and end of life care.

And at the risk of being repetitive, the doctrine of double effect is an ETHICAL justification for the use of drugs with potential lethal consequences. It has no basis in the law or in clinical guidance or decision making. You can justify your actions in your own head all you like

If I suspected for one second that any of my staff were administering analgesia and sedation on a whim to kill somebody I would expect, and ensure that they felt the full force of the law

You’re using deliberately inflammatory language here which isn’t helpful to the discussion. No one is administering pain relief to ‘kill someone’ - the diseases or old age has already taken care of that. HCP’s are administering pain relief to relieve pain, as they should. The secondary impact of which is, in many cases, a faster death. I’m not sure what your problem is - if you’ve been anywhere near clinical practice at the end of life you know full well what I’m talking about but appear to exist in a parallel universe where we prolong the life and therefore the suffering of dying people to what end? More suffering? That’s not, in any way, what happens and you know it.

Of course I’ve witnessed rattling and in every case let someone know the inevitable is happening, do you even know how care at the end of life works? I cannot believe you’ve been anywhere near clinical practice because you seem so completely detached from the reality of the management of death in the majority of cases for elderly and dying people.

Starlingexpress · 20/08/2024 16:08

Noras · 20/08/2024 15:33

And you wonder how traumatic this is for family members just given the morphine and told to give it as we see fit. This is why we probably give too little.

Self administration and administration by family involves oral medication only. A family member would never be expected to administer injectable morphine or sedation, because despite the narrative that some keep pushing, those drugs are carefully prescribed, monitored and managed.

It is virtually impossible for you to cause death by administering oral opiods or sedation if used as prescribed. If the dose titration is incorrect, you may cause the person to become sleepy, drowsy or confused. Unless your intentions were questionable it would be unlikely that you would be able to administer further oral medication to that person and instead would seek medical advice.

Family members and carers need significantly better support, education, information and advice on managing symptoms at end of life that what is currently available in the UK. That’s s priority for legislators IMO.

pavillion1 · 20/08/2024 15:33

i work in care and i agree wholeheartedly. The suffering for so many is just unacceptable. Its almost we have eradicated people dying from old age . So many times they are rushed of to hospital literally on the cusp of death and they pump them with whatever and then return them to us another notch worse .
Why are we so afraid of letting people die 🤷🏻‍♀️

Noras · 20/08/2024 15:33

Starlingexpress · 20/08/2024 14:22

If you’re an HCP who witnessed a patient experiencing a symptomatic ‘death rattle’ and didn’t act to reassess or refer for reassessment by somebody qualified to do so, and failed to reassess the efficacy of the prescribed anti cholinergic regime and the need for dose increases and amendments, then YOU are part of the reason why we need more investment and training for those involved in the provision of palliative and end of life care.

And at the risk of being repetitive, the doctrine of double effect is an ETHICAL justification for the use of drugs with potential lethal consequences. It has no basis in the law or in clinical guidance or decision making. You can justify your actions in your own head all you like

If I suspected for one second that any of my staff were administering analgesia and sedation on a whim to kill somebody I would expect, and ensure that they felt the full force of the law

And you wonder how traumatic this is for family members just given the morphine and told to give it as we see fit. This is why we probably give too little.

OP posts:
Starlingexpress · 20/08/2024 14:35

Prenelope · 20/08/2024 13:28

Trying to control death leads to all sorts of anxieties. Best to be more accepting.

The perception of suffering and quality of life is so nuanced even within families and our perception of what somebody else is suffering is impacted by so many variables including our own emotional wellbeing, resilience and coping strategies.

There are many situations at end of life when the focus becomes the family member who is struggling most with what is often a very natural process.

There are a couple of instagram/tiktok pages created by hospice staff which actually try to demystify the fears that many people have about the dying process. Not for everyone but worth checking out if anybody was interested in seeing more.

The work of Dr Kathryn Mannix is also really valuable when considering our responses to end of life.

Starlingexpress · 20/08/2024 14:22

Imtheproblemitsmeapparently · 20/08/2024 12:24

Oh ok, so your problem with my position on this is semantic? Or lexical?

I absolutely suggest that nurses and doctors administer pain relief at the end of life that they know will suppress breathing and very likely hasten death, yes. This isn’t up for debate, it’s standard practice. The primary reason for administering the dose is to relieve pain, but the secondary impact is that in someone about to die, it will usually speed things up. I’m sorry if you find this distressing, have you ever seen someone die before?

When I was a practicing HCP I worked in elderly care and latterly in palliative care, so I have witnessed death many, many times. Death, particularly for the elderly, is a process that takes weeks or months in most cases. Patients will take gradual ‘steps’ downwards in their health and their QOL sometimes over many months. Death, more often than not, is a process of deterioration, not a singular event. The final stage of that process is colloquially referred to as rattling. You may have heard of a death rattle? Same thing. Essentially, the lungs fill with fluid and it is incredibly painful as the patient essentially drowns over many hours/ days. I once saw a man rattle for over a week. It’s not often a patient is conscious at this stage and almost never lucid. Occasionally, they scream or cry out because of the pain of it. Once a patient is rattling there is no chance that patient is going to recover miraculously. They will die within hours or days and gradually decline as they do, suffering more and more as they go. It is in these cases where the administration of pain relief suppresses breathing and speeds up the process. For absolute clarity (I assumed wasn’t needed) I am not suggesting doctors and nurses are running around bumping off old people with UTI’s and common colds Shipman style. I am clarifying that assisted dying (not assisted suicide) already exists in a completely sanctioned way in society.

If you’re an HCP who witnessed a patient experiencing a symptomatic ‘death rattle’ and didn’t act to reassess or refer for reassessment by somebody qualified to do so, and failed to reassess the efficacy of the prescribed anti cholinergic regime and the need for dose increases and amendments, then YOU are part of the reason why we need more investment and training for those involved in the provision of palliative and end of life care.

And at the risk of being repetitive, the doctrine of double effect is an ETHICAL justification for the use of drugs with potential lethal consequences. It has no basis in the law or in clinical guidance or decision making. You can justify your actions in your own head all you like

If I suspected for one second that any of my staff were administering analgesia and sedation on a whim to kill somebody I would expect, and ensure that they felt the full force of the law

Starlingexpress · 20/08/2024 14:21

woodenicelollystick · 20/08/2024 12:38

@Noras
Life is what it is. At times beautiful, at times horrific.
When you experience something that is horrific for you, you would do anything to protect your loved ones from it, but you can't protect them from life. And you can't tell what they will be able to handle either. If you let it take up your thoughts now, you are letting the future rob you of your present.

Feeling able to control life after our time is something you may try to latch onto, a way of feeling more in control, a way to ensure you have done what you can, but in reality life will go in the direction it wants, and you really won't be able to alter it.

You are understandably thinking of your son's future. But at the end of the day you will really have to trust that things will be as they will be. Leaving money for your son, and I would hope equally to your daughter too, will in no means guarantee a happier more fulfilled life. There are far too many possibilities, to many unforeseen consequences of every choice.

Some people will lose their parents in prolonged agony, others in their sleep and others in every way in between.

Those around you at the time of your death will manage the best they can, just as you did. Just as I would love to raise my children again, starting from now, so I may be the perfect mother, but it's not possible, I did the best I could for them at the time.
And so did you while assisting your parents.

Yes, we can and should debate issues, but I believe that every choice has a set of both positive and negative consequences.

Don't spend your time worrying about a future which has not yet come to pass.

Edited with apologies as I replied to the wrong quote.

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