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Teen and PIP

129 replies

Sunshineandpool · 05/08/2024 17:08

Just looking for opinions on this and what you would do.

So teen is 17. Recently been diagnosed with Autism and ADHD. They have been awarded around £600 in PIP. All fully in their name - no one acting on their behalf.

Their mother is worried about them suddenly having a lot of money that they may not spend sensibly.

Options she is considering:
Teen has half but has to save £50 of it. The other half the mother will have and will make sure it is spent on things to support the teen with their autism/ADHD

Teen has all the money

Mother has all the money and gives teen an allowance of £100 per month. The rest of the money she spends on things to help with teen's disabilities. She will also save some for the teen to give her a small financial buffer in future.

Just to clarify the money legally belongs to the teen but she is open to her mother helping to manage it.

So wwyd? One of the options or something completely different.

OP posts:
Sunshineandpool · 05/08/2024 18:16

TiredArse · 05/08/2024 17:39

What do they need support with? How can the pip money fund that support?

Is mum able to work full time due to their needs? If not there is an argument that some of the pip should contribute to the household to make up for the time mum has to spent supporting the child.

They need quite varied support. One thing is emotional regulation. I've suggested using some of the money to come to the gym we go to.

No, mum can't work quite work full time.

OP posts:
cloverleafy · 05/08/2024 18:16

In Scotland it is Child Disability payment until 18 and I think that's a much better system.

For lots of families, DLA helps cover extra heating, laundry, OT or other therapies, or even help cover the reality that parents have had to give up work to care full time. It suddenly becoming PIP and being paid to the young person directly doesn't change those costs. How many 16 year old are going to understand their disability increases the energy bills or that their parents maintain a slush fund from their DLA to cover the tvs they break regularly?

BrumToTheRescue · 05/08/2024 18:12

Even if it remained as DLA it wouldn’t change who it was paid to. Teens in Scotland can choose to remain on DLA until 18 but if they have capacity the payments are made directly to them from 16.

If the teen has capacity to manage the claim, including any monies, then it is up to them how to spend the money regardless of how wise or not people think that is. If they want their DM’s support that could happen without the mother controlling the money. Although if they want DM to be more involved and have some control over the money that is also a choice they could make.

If the teen doesn’t have capacity to manage the claim, including managing the payments, the mother needs to request to become appointee. If the teen doesn’t have capacity they don’t have to agree to it.

The teen and mother should be careful about saving in the teen’s name if the teen may need to claim means tested benefits or will need social care support.

Sunshineandpool · 05/08/2024 18:12

nothingcomestonothing · 05/08/2024 17:34

Capacity is assumed at 16, you have to submit evidence that YP doesn't have it and it's quite hard to get authority to act for them, even if the YP wants the parents to be in charge of it the DWP want the YP to be in charge from 16th birthday (recently done this for my DD). It's a bad system, what 16 year old with challenges which meet the criteria for PIP is capable and/or wants to manage their own PIP and use it for it's intended purposes?

I actually found it pretty easy to become my DS's appointee but he was in agreement. The teen in question would not be in agreement so I think it would be very difficult for the mother to become the appointee. But I agree that expecting a disabled 16 yo to deal with PIP on their own is very unfair.

OP posts:
redkiteonatree · 05/08/2024 18:12

Sunshineandpool · 05/08/2024 17:08

Just looking for opinions on this and what you would do.

So teen is 17. Recently been diagnosed with Autism and ADHD. They have been awarded around £600 in PIP. All fully in their name - no one acting on their behalf.

Their mother is worried about them suddenly having a lot of money that they may not spend sensibly.

Options she is considering:
Teen has half but has to save £50 of it. The other half the mother will have and will make sure it is spent on things to support the teen with their autism/ADHD

Teen has all the money

Mother has all the money and gives teen an allowance of £100 per month. The rest of the money she spends on things to help with teen's disabilities. She will also save some for the teen to give her a small financial buffer in future.

Just to clarify the money legally belongs to the teen but she is open to her mother helping to manage it.

So wwyd? One of the options or something completely different.

what are the extra costs associated with the teens disability? I am my DCs appointee (so a bit different). Our main costs is my inability to earn a full time wage as DC needs 24/7 care and there is no wrap around or school holiday childcare. Pip is therefore spend on general living costs as I could not afford the mortgage or food otherwise. I would look where the extra expenses arise and make a decision based on that with the child. £600 is a lot esp for a teen may not have living costs and struggles with money/impulsivity.

wishingw · 05/08/2024 18:11

I had PIP when I was a teenager and my mum and dad put it into savings every month, never touched it unless there was something I really wanted/to treat myself to.
It was 100% the best thing for me for my parents to keep it and save it for me otherwise I'd have just spent it on silly things.
If she's happy for her mum to keep it and save it for her this is what I'd do

Malahide · 05/08/2024 18:10

Sunshineandpool · 05/08/2024 18:09

By who??

The PIP assessor.

Sunshineandpool · 05/08/2024 18:09

Malahide · 05/08/2024 17:32

This teen has obviously been assessed though as being capable to handle her own money.

By who??

OP posts:
Barrenfieldoffucks · 05/08/2024 18:09

Unless they have independent expenses, I would have mum save it for them bar a sensible allowance.

Sunshineandpool · 05/08/2024 18:09

Topofthemountain · 05/08/2024 17:31

I am planning to manage ds's. One of the questions is about managing money, it seems to go against the points I made about him not managing money if I just give him free reign of the PIP money.

Are you going to be his appointee?

The teen didn't want her mother to be her appointee - she feels she can manage it herself.

OP posts:
Sirzy · 05/08/2024 18:08

Sunshineandpool · 05/08/2024 18:05

Well, no, they don't get assessed to have capacity to deal with it themselves.

You've reminded me of the other thing I wanted to ask. If she gets all/half the money should her mum expect her to pay for all her own things (beyond the basics?)

Should some go towards living costs? PIP isn't meant to be for normal living costs. It's for the extra cost of having a disability.

But if the parents think that she doesn’t have capacity they should have applied for appointeeship in order to ensure they can control things.

Octavia64 · 05/08/2024 18:08

I wouldn't (and don't) expect my DD to pay for all her own things.

We'd be using the PIP to pay for things that help her get launched into the world of work.

Mum just taking it all off her for food when it could pay for adhd coaching, meds, visual timers, etc etc isn't really on (unless mum is literally on the bones of her arse)

Sunshineandpool · 05/08/2024 18:05

Sirzy · 05/08/2024 17:28

Presumably they have been assessed as having capacity to deal with it themselves - and the mother will have been part of that? In which case ultimately she needs to be supported to make her own decisions on how best to spend it to support herself. As with any income this should include some going towards living cost.

Well, no, they don't get assessed to have capacity to deal with it themselves.

You've reminded me of the other thing I wanted to ask. If she gets all/half the money should her mum expect her to pay for all her own things (beyond the basics?)

Should some go towards living costs? PIP isn't meant to be for normal living costs. It's for the extra cost of having a disability.

OP posts:
Octavia64 · 05/08/2024 18:05

I have a child with adhd and will shortly be helping her apply for PIP.

A lot depends on context here.

At 17, is the child in college, doing an apprenticeship, or nothing?

If there are obvious costs relating to the disability (taxis, standing desk, visual timer, adhd coach) then agreement could be made to spend on the which mum arranges.

If the child has plans to go to uni some could be saved for uni (although this depends on funding etc).

Sunshineandpool · 05/08/2024 18:01

nothingcomestonothing · 05/08/2024 17:26

PIP is meant for the extra expenses which come with having a disability. Is teen likely to spend it on that? Maybe an unpopular opinion but I disagree with under 18s having PIP paid to themselves - the government's choice not the family's. It's the family who bear the extra expenses when they're under 18, not the young person who is quite likely to just see it as fun money. It's a bad system.

I completely agree - it should stay as DLA until they are 18.

OP posts:
elliejjtiny · 05/08/2024 18:00

I am my 18 year old's appointee for PIP so I control it all. Any money he controls himself goes on strawberry ice cream and CD's

Sunshineandpool · 05/08/2024 18:00

Malahide · 05/08/2024 17:22

Who are you exactly in relation this situation OP?

Teen’s PIP money, not the mother’s. They can do what they like with it but some parental financial guidance is a good place to start.

I'm aunty.

OP posts:
Boredlass · 05/08/2024 17:53

My DS gets PIP at 16 and I’m his appointee as there is no way he’d manage it. The whole lot would be spent in a day

TiredArse · 05/08/2024 17:39

What do they need support with? How can the pip money fund that support?

Is mum able to work full time due to their needs? If not there is an argument that some of the pip should contribute to the household to make up for the time mum has to spent supporting the child.

Sirzy · 05/08/2024 17:36

Topofthemountain · 05/08/2024 17:31

I am planning to manage ds's. One of the questions is about managing money, it seems to go against the points I made about him not managing money if I just give him free reign of the PIP money.

You need to apply to be his appointee to be able to manage it for him. Otherwise it will be assumed he has capacity to do it himself.

nothingcomestonothing · 05/08/2024 17:35

Malahide · 05/08/2024 17:32

This teen has obviously been assessed though as being capable to handle her own money.

No it's not assessed it's assumed. It's a stupid system.

nothingcomestonothing · 05/08/2024 17:34

Sirzy · 05/08/2024 17:28

Presumably they have been assessed as having capacity to deal with it themselves - and the mother will have been part of that? In which case ultimately she needs to be supported to make her own decisions on how best to spend it to support herself. As with any income this should include some going towards living cost.

Capacity is assumed at 16, you have to submit evidence that YP doesn't have it and it's quite hard to get authority to act for them, even if the YP wants the parents to be in charge of it the DWP want the YP to be in charge from 16th birthday (recently done this for my DD). It's a bad system, what 16 year old with challenges which meet the criteria for PIP is capable and/or wants to manage their own PIP and use it for it's intended purposes?

Malahide · 05/08/2024 17:32

nothingcomestonothing · 05/08/2024 17:26

PIP is meant for the extra expenses which come with having a disability. Is teen likely to spend it on that? Maybe an unpopular opinion but I disagree with under 18s having PIP paid to themselves - the government's choice not the family's. It's the family who bear the extra expenses when they're under 18, not the young person who is quite likely to just see it as fun money. It's a bad system.

This teen has obviously been assessed though as being capable to handle her own money.

Topofthemountain · 05/08/2024 17:31

I am planning to manage ds's. One of the questions is about managing money, it seems to go against the points I made about him not managing money if I just give him free reign of the PIP money.

InDsocialworker · 05/08/2024 17:30

My ds gets this at the same rate for the same conditions. I get it paid to me as his appointee . He’s in his 20s now been getting dla and then PIP since age 8. He is not capable of making any financial decisions so I have the money and use it for all his needs. If he had it he would spend it within 24 hours or give it away.

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