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To wonder if “friend” is right and people are judging me (disability)

166 replies

Redgreenfroggy · 04/08/2024 05:13

This has been on my mind all night and I can’t sleep

in a nut shell I have epilepsy, was diagnosed at 21, had to give up work for a year while I got to grips with the seizures that were never controlled dispite different treatments, medications etc.

I managed to go back to work after a year. 6 years later after having about 2 years of pain I was dignosed with fibromyalgia. The symptoms of this aggravated my epilepsy such as tiredness and pain and I ended up having up to 20 seizures a week, some grand mal and some small.

2 years ago I gave up work as my fibro was bad and I was still having up to 20 seizures a week and went on esa and pip. I was spending the time I was not working sleeping or crying in pain. I was not able to do things with my son and DH. DH was taking full responsibility for the house dispite working full time (he never complained). It just got to a point where I was either working, sleeping, recovering from seizures or in terrible pain. Work was becoming impossible and they were making moves to get rid of me on health grounds as I was having so much time off.

Now I am still having as many seizures and am in pain but I do manage to do some house work and get out and about with my husband and little boy. I feel removing work from the equation means I am less tired and not in as much pain. When I increase my levels of doing stuff the pain gets worse so I need to plan that if I am really busy one day the next day I am likely to be wiped out the next day or even a couple of days. I also seem to get more intense seizures with the pain and tiredness increase that take longer to recover from.

A friend came round today that I have known since high school and to tell you the truth if we met now we would not be friends as we have very little in common. She asked when I would be going back to work. I said at the moment I have no plans to but in the future maybe. She then said everyone judges me behind my back. My DH who overheard asked her who is judging me, when she did not name anyone he asked if she judged me. When she said yes DH asked her to leave.

As she left she said that I was the clever one at school and it should be me with the big house in a posh area instead of her and it’s a shame my son has to live on a half council estate. (Our area is about half council and half privately owned). My husband said she was a nasty bitch and i am worth a million of her. She was then out the door and my husband slammed it behind her. I will never talk to her again. Her husband is a friend of my DHs unfortunately but he said he is willing to let the friendship go if he has to same stupid opinions as his wife.

I am not worried those people I think of as friends are judging me. I don’t have any joint friends with her. My husband said my real friends will never judge but I just feel like I have had the wind taken out of me.

OP posts:
HRTQueen · 04/08/2024 12:23

she isn’t a friend she is one of those people that like to make others feel bad about themselves they have no real friends

You have a lovely family a supportive husband and all muddling along the best you can in very challenging circumstances

as for judging yes some people will but you just have to ignore them and they will soon turn their internal bitterness elsewhere and be judging someone else

Redgreenfroggy · 04/08/2024 12:15

Did someone make a dig about council houses? We actually own our house. I said we lived on a half council half privately owned and we own ours. I just did not think it was relevant to say if ours was or not

OP posts:
Ihadenough22 · 04/08/2024 12:06

You have both fibromyalgia and epilepsy. Both of these conditions on their own would have the ability to have an major impact on your life day to day and could stop you working in the normal 9-5 Monday to Friday job. With both conditions your physically not able to work. The reality is that you were in work. You realised that working was making you worse and your employer was beginning to manage you out. You then had to apply for the various disability payments you are entitled to.

You are doing what's best for your own health at the moment and trying to go places and do things without making things worse for you health wise.

Your so called friend then called around and asked when were you going back to work and you said not at the moment. She then made the comments she made. I have to say what a bitch. Most people would prefer to be in work and have more money than benefits provide.
I am sure your other friends see how your medical conditions effect you but are supportive. They make the effort to see and spend time with you.

I am glad you husband heard her and told her to get lost after what she said. My feeling is that she resented that you did better in school, probably had a better job and had a child before all this happened and she to make those comments to make her feel better.
The reality is that she showed her true colours and you don't need or want her in your life.
I tell all your friends about her behaviour and you might find out that other people have had similar or are pulling away from her because of this.

Life does not always go according to plan and sometimes you have to make the best of a situation until things improve or change things to make life easier for you. Hopefully in your situation you can get on to better medication that will ease the symptoms you currently have and give you a better quality of life.

Redgreenfroggy · 04/08/2024 12:06

I had 9 seizures in London. Including 4 grand mal
One in the morning when I had to stay in for the day. Plus my fibro was awful
One when out and about that meant my husband had to bring me back to the hotel at about midday
2 when I was back at the hotel in the evening
Is that enough for you?

I did not see the comment about the women who works for a disability charity. But I can guess what she said. I actually worked for a disability charity for 6 years. None the staff had an attitude like you thank goodness. What the hell are you doing working for one?

OP posts:
Sinderalla · 04/08/2024 11:41

In my opinion it's only her, possibly her husband listens to her bang on but I'm not sure he agrees.
She's jealous of you not working ... tell her you will swap places with her.

Your husband is worth his weight in gold stepping in like that.
I've a good man here too but unfortunately he'd rather avoid any conflict with others and never stands up for me.

TheFormidableMrsC · 04/08/2024 11:37

She sounds consumed with jealousy. What a horrible woman and what a disgusting way to treat you. Your husband is a good chap and I'm glad he told her to sling her hook. She's no loss and this is not about you, it's all about her and her jealously and insecurity. Vile. Don't give it another thought!

Life2Short4Nonsense · 04/08/2024 11:34

OP, I just want to say that you and your husband are amazing people and your boy is lucky with such parents. No amount of good health could make up for the team the two of you make.

Your "friend" is an asshole. I agree with your husband's assesment. She is likely very unhappy and, since misery loves company, wants you to be miserable too.

You description of your marriage brought tears to my eyes. Ignore the shitty "friend". I hope you have some better friends than her or will have soon. I also hope you health willl improve in time. But take care of yourself, because you deserve it.

Readingallthetime · 04/08/2024 10:51

MumblesParty · 04/08/2024 10:36

He/she is sharing an alternative view, in what is otherwise an echo chamber thread.
OP specifically asked if we thought others might be judging her.
The thread has essentially turned into a character assassination of her friend, which, strictly speaking, isn’t what OP asked about. She asked if others would share the same view.

This is such a weird and pointless discussion we are having. Didn't know you were the judge of 'how to respond to an aibu thread'. I have learnt, oh wise one.

XenoBitch · 04/08/2024 10:43

Sadly, some people do judge when it comes to illness/disability. But they see your good days, and not the days you are struggling and recovering.

What makes your friend vile in all of this was that she vocalised her thoughts on your situation, when she really should have kept them to herself.

Allthegoodnamesarechosen · 04/08/2024 10:43

OP, i think you must be a very lovely person, to attract such love and devotion from your husband. It sounds as if your real friends are also very supportive and understanding, and that is because you are giving them love and support in return.On the whole , people don’t choose their partners and friends out of some sort of martyr complex, they choose them because they are kind and loving people.

That’s what your ex friend can’t grasp, and why she probably has few friends herself.

LadyKenya · 04/08/2024 10:41

OP specifically asked if we thought others might be judging her.
The thread has essentially turned into a character assassination of her friend, which, strictly speaking, isn’t what OP asked about. She asked if others would share the same view.

I read the OP differently, I must say. Either way, it stands to reason that of course some people will judge the OP. People will have different opinions on what they believe to be factual, or what makes sense to them, as they see it.

MumblesParty · 04/08/2024 10:36

Readingallthetime · 04/08/2024 10:22

That poster has posted almost the same thing three times. They haven't responded to any counter arguments. It's quite clear that they are posting their own thoughts, which are ableist and ignorant. It's also pretty obvious that they're doing it to cause upset. This isn't someone thoughtfully giving their opinion about what the OPs friends are thinking, is it.

He/she is sharing an alternative view, in what is otherwise an echo chamber thread.
OP specifically asked if we thought others might be judging her.
The thread has essentially turned into a character assassination of her friend, which, strictly speaking, isn’t what OP asked about. She asked if others would share the same view.

changedusernameforthis1 · 04/08/2024 10:33

She doesn't sound like a nice person at all OP.

I think people do judge, yes, whether they mean to or not. But real friends will try to understand and be kind.
I'm also on PIP and had to leave work due to health reasons, and I hate how so many people instantly see me as either work shy or lazy.

Hold your head up high, OP, you've done nothing wrong.

OkapiSandwichAndARoastEgg · 04/08/2024 10:29

Chaosx3x · 04/08/2024 05:47

She sounds like a fuckin tool. You’re well rid of her. Don’t worry about it.

Nutshell

JADS · 04/08/2024 10:26

Your 'friend' is jealous. Your dh sounds like a keeper, her dh may not be that nice behind the closed doors of their fancy house.

Real friends don't judge this kind of stuff. I'm sorry that they haven't found the right medication for you.

Readingallthetime · 04/08/2024 10:22

MumblesParty · 04/08/2024 10:15

OP asked if we think she is being judged by others, as her friend has clearly judged her. She has then received 3 pages of affirmations, people telling her her friend is a nasty jealous bitch and no one should be judging her. But the fact remains that her friend has her opinion, and it’s quite possible others do too. The poster who sent the extract from the book was just giving a different perspective, one which others may have. As far as I can tell, that is precisely what the OP was asking - “will people be judging me?”.
She asked a question, she got answers.

It’s unfair to call people a troll if you don’t like the answer they give.

That poster has posted almost the same thing three times. They haven't responded to any counter arguments. It's quite clear that they are posting their own thoughts, which are ableist and ignorant. It's also pretty obvious that they're doing it to cause upset. This isn't someone thoughtfully giving their opinion about what the OPs friends are thinking, is it.

MumblesParty · 04/08/2024 10:15

Readingallthetime · 04/08/2024 10:01

But what's her opinion? What would you take from that statement? She's clearly trying to insinuate that OP is 'making up' her epilepsy, isn't she.

And taking that further, she's also saying that anything 'in your mind' ie psychological is not believable.

If you think that's acceptable then....

Edited

OP asked if we think she is being judged by others, as her friend has clearly judged her. She has then received 3 pages of affirmations, people telling her her friend is a nasty jealous bitch and no one should be judging her. But the fact remains that her friend has her opinion, and it’s quite possible others do too. The poster who sent the extract from the book was just giving a different perspective, one which others may have. As far as I can tell, that is precisely what the OP was asking - “will people be judging me?”.
She asked a question, she got answers.

It’s unfair to call people a troll if you don’t like the answer they give.

IdgieThreadgoodeIsMyHeroine · 04/08/2024 10:13

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Bloody hell. What exactly are you hoping to achieve with this post? Why are you judging someone for not working when their lack of work has zero impact on your life? What a thoroughly unpleasant attitude you have.

Readingallthetime · 04/08/2024 10:01

MumblesParty · 04/08/2024 09:54

Why would she be a troll? She’s just quoting a book. OP has posted on AIBU, wanting genuine opinions. This poster is giving an opinion. It’s clearly not what OP will want to hear, but that’s the nature of AIBU. If you don’t want to know, don’t ask.

But what's her opinion? What would you take from that statement? She's clearly trying to insinuate that OP is 'making up' her epilepsy, isn't she.

And taking that further, she's also saying that anything 'in your mind' ie psychological is not believable.

If you think that's acceptable then....

Orangeandgold · 04/08/2024 10:00

She’s petty for judging you. Doesn’t sound like she is much of a friend and I don’t know why she is making you feel bad but highlighting what she thinks you should have. As long as you are happy with your life that is all that matters.

IMustDoMoreExercise · 04/08/2024 09:56

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

You are being ridiculous.

It is had enough for someone who has no disabilities to work, let alone someone who is like the OP.

Also, some illnesses become worse with stress, which is what is happening in the OP's case.

You are lucky that you are able to work. The OP has tried and cannot.

zingally · 04/08/2024 09:55

Your husband sounds like he's really got your back.

Your "friend" sounds like a nasty bitch, and you are definitely well shot of her.

MumblesParty · 04/08/2024 09:54

Readingallthetime · 04/08/2024 09:28

🙄🙄 You're a troll aren't you.

Why would she be a troll? She’s just quoting a book. OP has posted on AIBU, wanting genuine opinions. This poster is giving an opinion. It’s clearly not what OP will want to hear, but that’s the nature of AIBU. If you don’t want to know, don’t ask.

EleanorRavenclaw · 04/08/2024 09:52

One thing I have learned since DH became disabled 12 years ago is that the situation for each person with a disability is completely different both physically and in their personal life. PP on here with disabilities openly judging should be ashamed of themselves. OP you need to do what works for you and your family. It is absolutely no one else’s business. Your DH is loving and supportive and that’s all that matters. Cut your ‘friend’ off and don’t give her another thought.

LadyKenya · 04/08/2024 09:51

What she might be judging as well, though, is you having a child that you're unable to look after or be left alone with for long periods, and that you conceived that child post-diagnosis. If she's struggling with infertility, and feels that she and her DH can provide a fantastic childhood, she's likely bitter that you've had a child in less-than-ideal circumstances when she can't have one.

That may well be the case, but it is the OP, and her Husband's choice to have had a child. The Husband would have been more than aware of the OP's condition. He is doing what he should be doing anyway, so I am not sure why he is being praised so much. People looking in, from the outside never really have any idea how challenging it can be living with a disability.