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Women with complete androgen insensitivity syndrome

262 replies

Tandora · 01/08/2024 17:22

https://www.nhs.uk/conditions/androgen-insensitivity-syndrome/symptoms/#:~:text=Girls%20with%20CAIS%20do%20not,make%20some%20sexual%20acts%20difficult.
Inspired by the dumpster fire of a certain thread that filled up just now -
AIBU to share some information about girls and women with CAIS. Many of these women and girls won’t learn about their variation in sex characteristics until adulthood. Some might never know and not without the assistance of modern technologies (that can test , eg, karyotype). For cases of CAIS identified at birth, most individuals are assigned/ registered/ raised female. (Yes sex can be assigned).

Anyone who could know a girl/ woman with CAIS in the real world, and tell her she is , in fact , unambiguously a boy/ man, because gametes, - well you would deserve worse than to be called a sexual fascist.

The NHS recognises the existence of girls and women with CAIS , and provides medical interventions accordingly.

https://www.nhs.uk/conditions/androgen-insensitivity-syndrome/symptoms/#:~:text=Girls%20with%20CAIS%20do%20not,make%20some%20sexual%20acts%20difficult.

https://www.ncbi.nlm.nih.gov/books/NBK1429/

Yes these conditions are rare, but the more we learn about the biology of sex development , the more complex the picture becomes, as with most areas of science/ biology/ medicine .

nhs.uk

Androgen insensitivity syndrome - Symptoms

Read more about the symptoms of androgen insensitivity syndrome (AIS), which vary depending on whether the insensitivity is partial or complete.

https://www.nhs.uk/conditions/androgen-insensitivity-syndrome/symptoms#:~:text=Girls%20with%20CAIS%20do%20not,make%20some%20sexual%20acts%20difficult.

OP posts:
RedToothBrush · 01/08/2024 19:09

Here's the thing. If they continue to allow competitors who have failed a gender test to compete at women's boxing at the Olympics what is the inevitable outcome from that?

Some nations will actively seek out competitors who have this advantage, which will edge out women, women will give up the sport out of fears for their safety and/or we will end up with an appalling outcome at the expense of the health and safety of a woman.

So however we deal with this, none of those outcomes are remotely desirable.

It is a medical condition which causes lifelong issues to some degree. We should not create stigma about it but it should be recognised as such and then competitors with that issue compete, in the spirit of fairness, with others with similar issues.

There isn't a way to avoid this. The IOC could have avoided this situation if they had just kept the previous bodies ruling instead of completely abolishing the government body and introducing their own crazy ruling on this.

I hope the other women in the same category refuse to compete. Their sport is at stake.

FOJN · 01/08/2024 19:08

Tandora · 01/08/2024 18:44

But it really doesn’t matter what value judgements you attach to their development- (I’m sure god would be displeased and all , and feel free to consider them to be broken/ disordered all you want etc, being gay used to be considered a disorder it’s also a useless reproductive strategy after all!!). Regardless of all that, people are who they are and they are born with the bodies they are born with . This is natural human variation that exists in the world.

The point is simply that the physiology of human sexual development is varied and complex and it’s not as simple as saying if your karyotype is XY , or if you have this type of gamete you are a man , and therefore you have an advantage in sport, etc etc.

What value judgement? It's a statement of fact that you cannot have CAIS unless you have XY chromosomes.

The gametes of XX people and XY people have to meet for the human race to reproduce, again just facts.

The phenotype of the majority of people is exactly as you would expect for their karyotype. DSD's can only be recognised as anomalies because we understand the reproductive process of the human race.

Natural variation exists but it does not mean that sex is a spectrum or that we should avoid making any generalisations in case someone's feelings are hurt. Categorising by sex may seem like a blunt tool if we accept natural variation exists but it's is reasonable and proportionate when safety and fairness are at stake.

Regardless of all that, people are who they are and they are born with the bodies they are born with.

I agree. It's funny how middle aged men can put on a dress and identify as the "woman" they've always been but teenage girls must medically and surgically alter their bodies to become the "men" they've always been.

Tandora · 01/08/2024 19:07

EsmaCannonball · 01/08/2024 19:03

Your goady-ness is showing.

I’m being totally sincere. Just because women with VSC are overrepresented in women’s sport it doesn’t mean we conclude , they have an unfair advantage and must be excluded. There are lots of similar patterns with various demographic groups.

OP posts:
OpizpuHeuvHiyo · 01/08/2024 19:06

Tandora · 01/08/2024 18:37

If a person is totally unaffected by male hormones and their body doesn't respond to testosterone at all so they had no male puberty at all then I agree that their chromosomes are irrelevant and there is no harm done if they compete in the female category

progress towards recognising the issue isnt black and white.

Now what if the body recognises testosterone a little, but not what is expected / typical for men (eg people with PAIS) ? Where is the cut off. What about other types of VSC?
What if the person is on hormone replacement therapy, how does that affect their advantage? Etc.

In that case the proposal of having DSDs treated as a paralympic category so that a points system to measure the level of disadvantage someone has starts to gain merit.

In the current setup of a binary distinction where the sport has exactly two categories, and 99.9% of people firmly go in one category or the other, it's obviously difficult to decide where the 0.1% who are exceptions to typical rules go. However the context is everything. E.g. in the context of social activities - it's fine for someone to go where they feel comfortable.

When the context is olympic sport, where you are trying to identify the most talented 0.0000000001% of people at a particular activity, and one of the categories of people has a typically at least 20% advantage then it's obvious to me that exactly zero of the shades-of-grey people belong in the "disadvantaged" category. Because you have to make a choice, whether the reason for a second category is for the benefit of people who have advantages (to remove people with disadvantages from their radar) or for the benefit of people with disadvantages (to enable a level playing field). Someone who is disadvantaged but only by 5%, 10% or 15% compared to the advantaged category - as opposed to the 20% for the rest of the people in the second category - still has far too much advantage and it cannot be fair.

WolfFoxHare · 01/08/2024 19:05

whattywhattaa · 01/08/2024 17:34

But most people have a genetic advantage one way or another.

Big feet, long legs, height.

So why do we bother dividing sports by sex at all? Why do we have different weights in boxing? Why do we have the Paralympics? After all, some people are just genetically better.

Tandora · 01/08/2024 19:05

Underthinker · 01/08/2024 18:59

Not to anything like the same degree.

And if we say that the male advantage is just the same as someone like Michael Phelps having long arms and big feet, then the logical conclusion of that isn't DSD athletes in women's sport - it's the end of women's sports. They are not needed, because there is no categorical male advantage. The very best female athletes can try their luck against males, maybe one could break into a world championship one day, but there would be virtually no household name sportswomen. In that world you'd probably never have even heard of the Williams sisters.

It’s a complex question and clearly there need to be diff sporting categories for diff groups- we have the paraolympics after al!

But perhaps it isn’t as simple as just division by sex, perhaps we need to look at a range of stratified categories?

Or perhaps the solution is that we do keep it men and women, but recognise that not all women are cis and endosex.

I don’t have all the answers here, but the solution doesn’t have to be banning trans people and people with variations in sex characteristics from sport- that isn’t right at all.

OP posts:
EsmaCannonball · 01/08/2024 19:03

Tandora · 01/08/2024 18:55

They are overrepresented in female sports. Is that enough to say they have an unfair group advantage and should be banned from participating?

Your goady-ness is showing.

ditalini · 01/08/2024 19:02

Tandora · 01/08/2024 18:52

Lesbian women are also overrepresented in female sport. Black men are overrepresented in many male sports. Do they have an unfair advantage because of their physiology / genetics?

Edited

Jesus! That's desperate!

Actually, I'd love there to be research to investigate why lesbian girls are more likely than heterosexual girls to continue with sport as they grow. It's a much healthier way to be, both physically and mentally.

I'm guessing it's a social and community thing but you tell yourself it's in the genes if it makes you happy 😂

Seaglassandchampagne · 01/08/2024 19:02

titchy · 01/08/2024 17:30

And of course individuals with a DSD must be treated with compassion and empathy.

But equally not be able to enter sporting competitions where their enhanced testosterone levels and male puberty gives them an unfair advantage over natal females.

Not sure posting some details about the condition really changes that.

How far do you take this suggestion that there is no space for genetic differences in sport?

Eero Antero Mäntyrants, a Finnish cross country skier, had a congenital condition which increased red blood cell mass, increasing the ability of his blood to transport oxygen and therefore giving him an advantage over his competitors. Maybe he’s a bad example because he was also actually caught doping, but consider also Adam Peaty, who has hypermobility and double jointed ankles - both genetic advantages. Michael Phelps also has multiple double joints. Usain Bolt has a specific gene, ACTN3, which makes his muscles particularly effective at generating more power over short distances.

montysma1 · 01/08/2024 19:02

Tandora · 01/08/2024 18:34

I mean measuring all of that and determining the average distribution across each is really complex. And how are different factors to be prioritised? If we find eg an athlete is of a “stature” / twitch muscle speed/ hip width, that would be normal/ in range for a female athlete , but they have a male karyotype do they have an advantage? Can they compete?

If they have gone through male puberty they have a male physiology and as such will have an advantage over women.

It's that simple.

Now clearly a fit 20 year old woman who trains is liable to beat a fat 50 year old man with heart disease, in a road race.
But that's not what we are talking about. We are talking about elite sportsmen competing against elite sports women or in this case punching an elite sports woman.
His punch strength incidentally will be 172% more than his female opponent. His female opponent will also have around half the neck and shoulder muscle strength with which to support her head and prevent her neck snapping when subjected to these punches.
So essentially a double advantage to the athlete who has gone through male puberty. ( Which is irreversible no matter what hormone suppressants are taken).

Ereshkigalangcleg · 01/08/2024 19:01

Absolutely it does - we shouldn’t pass ableist value judgements on disabled bodies either. No idea at all why you think that is a callous thing to say

I think it's callous to dismiss people's disabilities as just "natural variation". It affects people's lives. People with DSD have a medical condition which can impact them to a greater or lesser extent. Sex is a binary, human reproduction is dimorphic, and DSDs are atypical, because something has gone wrong in sex development.

I'm not passing value judgments on anyone, except for males taking advantage of lax standards competing in women's sports. I'm correctly stating that there are only two sexes, and some people of both sexes have disorders of sex development.

ExhaustedHousewife · 01/08/2024 19:00

Oh,you again.

nameynamenamenamename · 01/08/2024 19:00

Tandora · 01/08/2024 18:52

Lesbian women are also overrepresented in female sport. Black men are overrepresented in many male sports. Do they have an unfair advantage because of their physiology / genetics?

Edited

Wow, you really jumped the shark there 😂

But well done for demonstrating your true motivation.

Underthinker · 01/08/2024 18:59

WickieRoy · 01/08/2024 18:51

I was listening to something about the olympic boxers on the radio earlier. I do have sympathy for anyone living with this condition and they are not trying to gain an unfair advantage by assuming a different gender. However, if they have physiological traits which give them an unfair advantage, particularly in a sport like boxing where physical harm could be done to an opponent, then it just cannot be allowed.

It's a really difficult question to answer, because pretty much all professional athletes have physiological traits that give them an advantage. Typical example would be Michael Phelps's wingspan. How do we decide which advantages are allowed and which aren't.

It's not a black and white subject. I feel very sorry for the women at the centre of this, having their anatomy scrutinised like this.

Not to anything like the same degree.

And if we say that the male advantage is just the same as someone like Michael Phelps having long arms and big feet, then the logical conclusion of that isn't DSD athletes in women's sport - it's the end of women's sports. They are not needed, because there is no categorical male advantage. The very best female athletes can try their luck against males, maybe one could break into a world championship one day, but there would be virtually no household name sportswomen. In that world you'd probably never have even heard of the Williams sisters.

ditalini · 01/08/2024 18:58

WickieRoy · 01/08/2024 18:51

I was listening to something about the olympic boxers on the radio earlier. I do have sympathy for anyone living with this condition and they are not trying to gain an unfair advantage by assuming a different gender. However, if they have physiological traits which give them an unfair advantage, particularly in a sport like boxing where physical harm could be done to an opponent, then it just cannot be allowed.

It's a really difficult question to answer, because pretty much all professional athletes have physiological traits that give them an advantage. Typical example would be Michael Phelps's wingspan. How do we decide which advantages are allowed and which aren't.

It's not a black and white subject. I feel very sorry for the women at the centre of this, having their anatomy scrutinised like this.

None of Michael Phelps's records still stand so he wasn't as extraordinary as all that it turned out.

Now take his records and consider what would happen if he'd transitioned to female before competing?

Some DSDs confer a similar advantage to that of M2F transition. It's important for fairness and, certainly in boxing, safety.

PeriIsKickingMyButt · 01/08/2024 18:56

Tandora · 01/08/2024 18:52

Lesbian women are also overrepresented in female sport. Black men are overrepresented in many male sports. Do they have an unfair advantage because of their physiology / genetics?

Edited

Oh dear, bit desperate

TomDaleysShavedBalls · 01/08/2024 18:56

Tandora · 01/08/2024 18:55

They are overrepresented in female sports. Is that enough to say they have an unfair group advantage and should be banned from participating?

No.

WickedSerious · 01/08/2024 18:56

TomDaleysShavedBalls · 01/08/2024 18:53

What have lesbians got to do with it?

I wouldn't be surprised if the majority of male boxers who want to hit women turned out to be lesbians.

Tandora · 01/08/2024 18:55

TomDaleysShavedBalls · 01/08/2024 18:53

What have lesbians got to do with it?

They are overrepresented in female sports. Is that enough to say they have an unfair group advantage and should be banned from participating?

OP posts:
GrumpyPanda · 01/08/2024 18:55

Oh ffs. You do realize the AUTHOR of this article has personally debunked the misleading title?

Women with complete androgen insensitivity syndrome
TomDaleysShavedBalls · 01/08/2024 18:53

What have lesbians got to do with it?

TomDaleysShavedBalls · 01/08/2024 18:52

Also, the disproportionate number of people, with XY chromosomes + some degree of androgen insensitivity /DSD at women’s Olympic level of capability, suggests an unfair advantage, whatever way you look at it.

Tandora · 01/08/2024 18:52

nameynamenamenamename · 01/08/2024 18:50

Isn’t it coincidental how many people with DSD end up being elite athletes in women’s sports.

What are the chances?

Lesbian women are also overrepresented in female sport. Black men are overrepresented in many male sports. Do they have an unfair advantage because of their physiology / genetics?

OP posts:
WickieRoy · 01/08/2024 18:51

I was listening to something about the olympic boxers on the radio earlier. I do have sympathy for anyone living with this condition and they are not trying to gain an unfair advantage by assuming a different gender. However, if they have physiological traits which give them an unfair advantage, particularly in a sport like boxing where physical harm could be done to an opponent, then it just cannot be allowed.

It's a really difficult question to answer, because pretty much all professional athletes have physiological traits that give them an advantage. Typical example would be Michael Phelps's wingspan. How do we decide which advantages are allowed and which aren't.

It's not a black and white subject. I feel very sorry for the women at the centre of this, having their anatomy scrutinised like this.

nameynamenamenamename · 01/08/2024 18:50

Isn’t it coincidental how many people with DSD end up being elite athletes in women’s sports.

What are the chances?