Active discussions

Please or to access all these features

Talk
AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Original poster

Trying so hard with my twitching

283 replies

Terrifiedshakes · 01/08/2024 00:46

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

OP posts:
Original poster
Terrifiedshakes · 05/08/2024 18:00

DH absolutely can not have any time off work and he works 12, 13 hour days. If he came home now we would loose money and he would let a lot of people down.

OP posts:
Original poster
Terrifiedshakes · 05/08/2024 17:58

I'll try and get in drs tomorrow. I'll have to take my son as I'm not telling anyone that I'm back at the drs again, I've been quite often recently and it's embarrassing.

OP posts:
Original poster
Terrifiedshakes · 05/08/2024 17:57

I'm trying my best. Ive taken him out for a new toy, done a food shop, okayed some games but its a lomg day and my company can be shit for him, even thought I've thrown a few silly things in and songs. I've also cooked a good tea but I don't want it.

My knee buckled before but tbf, I was stood reading on reddit, stood on one leg, rigid knee reading about NOT taking paracetamol to end your life for a good few mins and then my knee buckled. I didn't realise i was stood stiff on one leg for a while until it went.

OP posts:
EatMoreFibre · 05/08/2024 17:32

Hi OP, I was wondering how you would be today.

I think you are going to have to insist at your doctor's surgery, clearly stating that you think you are suffering a breakdown and that you are caring for a young disabled person. Just stating the facts.

Once you are at the appointment you can explain the context (serious caring responsibilities plus a history of anxiety and health anxiety, and by the sounds of it over-exercising); then list your symptoms; then explain the impact they are having on your life. You are at a point at which you are struggling to eat or sleep and your mind is spiralling. You, and by extension your family, are at breaking point.

Watching videos about whatever disease your anxiety has focused on today is part of the health anxiety circle. Make a list of your symptoms, set your alarm for the doctor's tomorrow, then move on and do something else that will make you feel good.

KeirSpoutsTwaddle · 05/08/2024 15:44

Why are you exercising so hard? Many people would tremble after intense exercise. I don’t do intense exercise so have no personal experience!

Original poster
Terrifiedshakes · 05/08/2024 14:56

The shoulder twitch doesn't happen when I'm awake, only when I'm going into a sleep

Also I dunno if I have clinical weakness in my back it's so shaky but cohkd this be due to extreme tension

OP posts:
Original poster
Terrifiedshakes · 05/08/2024 14:53

I tried very hard last night. Went for a good run (came back shaking but I think I had a panic attack whilst running) I've kept off the Internet until now. It's the sleep mycolonus and the weakness in my back when I do crunchs and the pop corn twitches

I'm edging very closely to a breakdown I can tell I'm guilty as I can't enjoy my son hes sat here on a switch while I'm watching people talk about their ALS diagnosis journey.

I'm popcorn twitching all over my body and I've just tried to sleep but my shoulder jumps up and wakes me up every time I'm drifting off

I can't get into drs as no appointments left. What does a breakdown feel like as I'm lied in the hallway on my back typing this with tears. I'm so tense and I feel so guilty on my son

OP posts:
KeirSpoutsTwaddle · 04/08/2024 14:16

Well done.

Nip it in the bud every time it starts!

Original poster
Terrifiedshakes · 04/08/2024 14:00

I do need a slap.

Reading my book now. Calmly.

OP posts:
Zusammen · 04/08/2024 13:36

Terrifiedshakes · 04/08/2024 12:20

I have got clinical weakness.

When I try to do a crunch on the floor my torso is shaking and vibrating as a come back up. It's been like this for weeks.

This could be ALS couldn't it. Or maybe a deficency that's causing my muscles to be weak.

I'm definitely not dropping anything and I can hold and carry very heavy things but my torso vibrating is worrying. Or could it be that tension is causing my muscles to be so tense in my back and middle that they are going weak. The top of my back is feeling very creaky and it's aching like I need a massage.

I've not ran or exercised for 7 whole days now and I've never gone this long.

OP you don’t have clinical weakness. You wouldn’t be able to do a crunch at all. You’re misunderstanding what clinical weakness is.

KeirSpoutsTwaddle · 04/08/2024 13:28

You know what it is. Take some responsibility.

Give it a name. Call it Fight or Flight syndrome. Treat it by managing your anxiety with yoga/meditation/taichi etc.
get a massage if you can afford one.

Stop taking iron if it upsets your stomach and you don’t need it.

And buck up. You don’t want your kids to see you with ALS, well it’s no fun for them with you like this, either.

My good friend has ALS. Stop appropriating her very real condition and sort yourself out.

Kindly.

Dinkiedoo · 04/08/2024 13:26

Why be so nasty ? This person has obvious mental health issues. Is being unkind going to help ????

Balloonhearts · 04/08/2024 13:20

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Original poster
Terrifiedshakes · 04/08/2024 12:37

From a crunch*

OP posts:
Original poster
Terrifiedshakes · 04/08/2024 12:34

Nope when I come back down from a crush I'm shaking like a shitting dog.

It's ALS.

OP posts:
Original poster
Terrifiedshakes · 04/08/2024 12:33

So if I sort my breathing out i can come back down from a crunch much steadier with less vibrations from my torso.

If I come back down from a crunch and I'm panicking then my whole torso vibrates terribly.

Can the Dr definitely not prescribe diazapam? Or some CBD oil. Or laughing gas or weed or an IV drip of vodka or gas and air. Something?

OP posts:
Original poster
Terrifiedshakes · 04/08/2024 12:28

If they said MS I'd crack on with it.

I'm terrified of going drs and waiting firna scan and waiting for a result and hearing the voice of a Dr talk and tell me they have found something on my brain or spine. I'm terrified of that second pause before they tell me what they have found. Incase its a brain tumour.

If it was MS I'd crack on with it and take what life throws at me..if its ALS I'd walk off the motorway bridge. I can't let my kids see me like that.

OP posts:
KeirSpoutsTwaddle · 04/08/2024 12:24

Tell me, if they diagnosed you with something that wouldn’t get worse, would you feel better? To give it a name? Then you could treat it and manage the symptoms. Would that help?

Original poster
Terrifiedshakes · 04/08/2024 12:24

I've just done 20 quick push ups. I'm vibrating in my back and delts but I pushed up strong and fast.

OP posts:
KeirSpoutsTwaddle · 04/08/2024 12:22

Bless you. It sounds a bit like a whole body version of restless legs. Irritating but fundamentally not dangerous in anyway. Breathe. Choose to behave differently. Choose to get better by behaving differently.

I’ve had a radical lifestyle overhaul to manage anxiety and pain. It makes a huge difference. You can do it.

Original poster
Terrifiedshakes · 04/08/2024 12:22

Like when it's quiet I can almost hear my muscles in the top of my back and shoulders, deltas creaking and they feel week

Omg I'm panicking again I've got als. I wish it was a Monday as I could go drs

OP posts:
Original poster
Terrifiedshakes · 04/08/2024 12:20

I have got clinical weakness.

When I try to do a crunch on the floor my torso is shaking and vibrating as a come back up. It's been like this for weeks.

This could be ALS couldn't it. Or maybe a deficency that's causing my muscles to be weak.

I'm definitely not dropping anything and I can hold and carry very heavy things but my torso vibrating is worrying. Or could it be that tension is causing my muscles to be so tense in my back and middle that they are going weak. The top of my back is feeling very creaky and it's aching like I need a massage.

I've not ran or exercised for 7 whole days now and I've never gone this long.

OP posts:
Leanmeansmitingmachine · 04/08/2024 12:14

Normal bloods is encouraging. It could well be caused by your hypervigilance and completely unmanaged health anxiety.

Please, before your life is totally destroyed by the anxiety, seek help for it.

Balloonhearts · 04/08/2024 12:11

OP take your pulse. I guarantee you it's racing. Dead giveaway that you're dealing with an anxiety attack. That wouldn't happen with MND either. It's pure adrenaline causing these twitches, your body is permanently in flight or flight mode. It doesn't know there is nothing to be scared of, its screaming at you Run. Run. Danger.

Try going for a run, not a steady run either, proper sprint across a field or something, really get your blood pumping and keep it up until your energy crashes. Adrenaline exists for a purpose, to allow you to flee or fight. Use it up and it could help your symptoms.

Original poster
Terrifiedshakes · 04/08/2024 11:59

Thanks I was watching a very good person on you tube before,.someone recommended her on here and I thought I'd give it a shot. I've never actively done anything like that before and it felt strange taking responsibility for health anxiety. She spoke a lot of sence and ill listen to her again.

What she was saying about health anxiety and behaviours really hit home.

I managed to fall asleep before but I was woken to my shoulder rippling. When I woke it stopped. This wouldn't happen with MND would it. I couldn't just stop it could I.

OP posts:
Swipe left for the next trending thread