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Original poster

Trying so hard with my twitching

283 replies

Terrifiedshakes · 01/08/2024 00:46

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 01:28

I don't know whey I've just typed that. I never talk about that. I crack on with it. But I hold my phone close every day he's at school. I've given my job up to be available for him.

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 01:27

My son has epilepsy. Full tonic clonci seizures that stop breathing. I have to give him mouth to mouth and pumo his heart for him until the paramedics arrive. Then he will have abother and another.He has intention tremours and he constantly had little x
zappy jerks in his fingers, hands and body all day every day. He has ataxia and can't walk or talk but he understands everything. He is such a very happy little boy who finds everything funny.

This is not genetic. He has a gene change in himself which causes this.

I see his struggles everyday.

OP posts:
FluentRubyDog · 01/08/2024 01:25

Zusammen · 01/08/2024 01:22

I don’t mind reassuring someone who’s struggling, which she clearly is. Twitching is scary, I have it myself and I go through times when I feel absolutely terrified. Your mind runs away with you and you need someone to talk you down with logic and facts.

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If you could reassure her, that would be fantastic. Thing is, she'll keep banging on about MS/MND now and no matter what you say anxiety wise will be swiftly ignored.

Garlicfest · 01/08/2024 01:24

Terrifiedshakes · 01/08/2024 01:17

The head jerking when I was falling asleep then felt like a head tick. Very forceful. Its hard to accept anxiety can do that when I'm alseep.

It's really normal to have violent jerks as you fall asleep, or soon after you've fallen asleep. It's really normal for this to happen at times of stress and anxiety.

From the article @Luc99 shared:
How is myoclonus treated?
Normal forms of myoclonus typically don’t need treatment.

This tells you that "normal forms of myoclonus" exist.

Sounds like you've got yourself into a spiral, where your health anxiety prompts more twitches, so you get more anxious and ...

You really need to ask your GP about treatment for the anxiety. Did the meds help before?

Meanwhile, you're on holiday! Try and wear yourself out with swimming, running, whatever's available that you can do. Then have a warm shower before bed.

Original poster
Terrifiedshakes · 01/08/2024 01:24

Thanks Zusamme,

The Ms explanation makes sense. The MND explanation I kind of already knew as I've read it on here a couple of times. It's just very tricky to rationalise things when I get myself into such a state.

I do have burning joints and stiff joints but I've mentioned before I run very long distances, most days and never rest. I'm on holiday this week so resting from running, so I'm hoping the ankle and knee burning pain improves by the end of the week.

OP posts:
OlderGlaswegianLivingInDevon · 01/08/2024 01:23

Go to your GP and sort your anxiety out, stop Googling, take the advice given on your thread just the other day.
Taking kalms is not enough, also get a referral for a therapist or counsellor.

as for your head jerking as you are falling asleep, did you never see your children when they were little nodding off coz they were so tired but the nodding woke them again, have you never seen an adult sitting in a chair and nodding off whilst watching TV or something - that's where the phrase comes from ' nodding off '

Zusammen · 01/08/2024 01:22

FluentRubyDog · 01/08/2024 01:12

Don't bother, she'll go on and on about anything but the real problem. Look her up, she has regular other threads as long as transsiberian rail line with exactly the same pattern.

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I don’t mind reassuring someone who’s struggling, which she clearly is. Twitching is scary, I have it myself and I go through times when I feel absolutely terrified. Your mind runs away with you and you need someone to talk you down with logic and facts.

WalkingonWheels · 01/08/2024 01:22

I have Benign Mucsle Fascillation and it's exactly how you describe. Muscle twitches that can be anywhere on my body. Usually my worst ones are in my eyelids, lip, side of head and inside my ear. I once had a really noticeable one in the side of my nose, which I was given anti inflammatories for as it seemed to be connected to my bad neck.

Particularly weird are the ones I get in my stomach that feel like a baby kicking. Scared the life out of me.

I was really concerned too, but my tests were clear. My GP said it could be a combination of tense muscles, stress, tiredness and anxiety.

When I'm tired, they do get a lot worse.

Airpowercper · 01/08/2024 01:21

Goodjob.

Zusammen · 01/08/2024 01:19

MS is a lesion on the brain which affects whatever part of the body it’s related to. It doesn’t present all over at once. And it has very specific signs that a doctor would spot. I won’t tell you what because you’ll be convinced you have them, but the doctor would know.

MND is about failing not feeling. A muscle just painlessly fails to work. If you don’t have clinical weakness then you don’t have it. My doctor was very clear that sensory symptoms are not part of MND. It also has a tendency to start in one place not all over at once. Twitching is a very late stage symptom, weakness is first.

My doctor said she had seen hundreds of patients with twitching over three decades and none were MND. There are much more likely causes such as vitamins, anxiety or hormones.

I understand your worries. I have the same worries myself. But we have to be logical - our symptoms don’t match these diseases.

Original poster
Terrifiedshakes · 01/08/2024 01:17

The head jerking when I was falling asleep then felt like a head tick. Very forceful. Its hard to accept anxiety can do that when I'm alseep.

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 01:14

FluentRubyDog is correct.

I am struggling.

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Original poster
Terrifiedshakes · 01/08/2024 01:13

I've tried so hard these last 2 days to control the anxiety. Taking Kalm tablets I hoped would help, I've been trying to breath more calmly. Eaten better. Taken supplements.

I went to see the GP on Monday to discuss blood results about my liver but I didn't mention this twitching so much. We mentioned I'm very anxious but he didn't want to put me on seetraline or anything again

OP posts:
FluentRubyDog · 01/08/2024 01:12

Zusammen · 01/08/2024 01:09

Tonight as I'm trying to fall asleep, being woken up by a jerl coming from my head
I know that symptom well and it definitely is anxiety, and will go away if you calm yourself.

Don't bother, she'll go on and on about anything but the real problem. Look her up, she has regular other threads as long as transsiberian rail line with exactly the same pattern.

Original poster
Terrifiedshakes · 01/08/2024 01:11

Zuzamemen, I hope your right. I'm really frightened. I'm on holiday so can't get into the drs until next week. I'm sonscared if the tests and waiting for results. I'm thinking of paying to see private.

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Original poster
Terrifiedshakes · 01/08/2024 01:09

MS and MND, does not being systematic mean that they can often focus on one place on the body?

So because my twitches are all over. Face, neck, arms, legs, fingers, feet, bum, lips etc. Luke a symphony, the likelihood is that its not MS or MND?

OP posts:
Zusammen · 01/08/2024 01:09

Tonight as I'm trying to fall asleep, being woken up by a jerl coming from my head
I know that symptom well and it definitely is anxiety, and will go away if you calm yourself.

Zusammen · 01/08/2024 01:04

I have the same problem. Been struggling with it for nearly a year. Doctors best guess at this point is a combo of anxiety and perimenopause. It’s very unlikely to be anything sinister.

I think I posted on your other thread and said if you don’t have weakness and the twitching is in several different spots, it’s obviously something systemic and not MS or MND. Doctors told me “the symptoms are not subtle, if you had it we would know”.

I can recommend mindfulness and meditation classes for learning to control the mind. I find my twitches are worse if I get more anxious, so I’m trying to keep it under control.

SwingTheMonkey · 01/08/2024 01:04

I can only hope you listen this time and go and get help - whether that’s further tests or mental heath support.

Original poster
Terrifiedshakes · 01/08/2024 01:01

I'm sat here really scared. My children and husband are in bed. I really tired but I'm too scared to go back to sleep incase it happens again.

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 01:00

I'm not attention seeking.. I'm very scared and concerned..

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FluentRubyDog · 01/08/2024 00:59

OK, you're forcing me to do this...

Trying so hard with my twitching
Original poster
Terrifiedshakes · 01/08/2024 00:57

But what if this isn't health anxiety. What if I'm having a seizure in my sleep.

I can't go back to the drs again, this will be the third time in 4/5 weeks.

But they don't know I'm still twitching..

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 00:55

I've not had one head jerk while I'm been awake this last 20 mins. Just a couple of twitches in my quad, arm and finger.

I know for a fact I like in a state of hyperventilating with my breathing.

OP posts:
FluentRubyDog · 01/08/2024 00:55

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