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Original poster

Trying so hard with my twitching

283 replies

Terrifiedshakes · 01/08/2024 00:46

See my other threads. I'm at a loss

I'm trying so hard to sort out why I'm twitching. I'm taking Kalm tablets now and I'm trying hard with breathing techniques

Yet I still continue to twitch all over my body. Every few mins there is a twitch and it can be anywhere.

I'm bow trying to fall asleep but I keep getting woken up by a massive twitch that feels like it's coming from my head. I'm terrified it's a seizure that I can't go back to sleep.

I am so very anxious though about these twitxhes. It's a vicious cycle. If they are anxiety related how do I break the cycle and why are they coming from my head and waking me up with such a jolt..

Please be gentle with me with your advice as I'm so scared I've got MS or a brain tumour or MND I'm sat here trembling with fear and the trembling is fear , the twitches are muscle.

OP posts:
PinkyPonkyLittleDonkey · 01/08/2024 03:16

SwingTheMonkey · 01/08/2024 01:04

I can only hope you listen this time and go and get help - whether that’s further tests or mental heath support.

If the op gets her twitches sorted, she won’t need mental health support 🙄

oneniltothem · 01/08/2024 03:10

Cherelle thinks on YouTube have a look at her muscle twitching video

Allthehorsesintheworld · 01/08/2024 02:58

This is how I started with fibromyalgia. Odd twitching, then itching ( thankfully that wore off after a year or so) Then the bloody pain and sleeplessness set in. And is still here, hence why I’m awake at nearly 3 am. Again.

Original poster
Terrifiedshakes · 01/08/2024 02:19

Zusamenn, what are we like. Its horrific feeling like this. I'm guessing we could have a dance off with our muscle twitches of Micheal Jacksons thriller. Subconsciously. My shoulders and arms love to twitch on their own.

OP posts:
ButterCup1997 · 01/08/2024 02:18

Terrifiedshakes · 01/08/2024 02:15

I think I can eventually accept its not MND. It just doesn't fit.

I've said it. And I won't go down that rabbit gone again.

MS, I'm not convinced. I do know when the Dr tests my upper reflexes. They were good apparently but this was for something unrelated to my twitches. It was an appointment for an insurance claim. Nevertheless he tested my reflexes and they were normal.

That’s good and very reassuring. Just try and think about this whenever you get a negative thought, just keep telling yourself this

Original poster
Terrifiedshakes · 01/08/2024 02:15

I think I can eventually accept its not MND. It just doesn't fit.

I've said it. And I won't go down that rabbit gone again.

MS, I'm not convinced. I do know when the Dr tests my upper reflexes. They were good apparently but this was for something unrelated to my twitches. It was an appointment for an insurance claim. Nevertheless he tested my reflexes and they were normal.

OP posts:
FumingAintTheWord · 01/08/2024 02:12

Op I had this and I had a disregulated vagus nerve. A proper daith piercing ( not from a salon ) from a migraine clinic put enough pressure on my vagus nerve to stop loads of anxiety based symptoms I was having - migraines and twitching. Give it a look into.

Zusammen · 01/08/2024 02:10

Terrifiedshakes · 01/08/2024 02:00

Why are you all awake at this hour anyway?

If you all tell me its because you have been woken up by a head jerk , then I give up. :)

Same as you OP. Worried because I’ve got pain and twitching. Trying to believe those things my doctors told me about it not being serious.

Original poster
Terrifiedshakes · 01/08/2024 02:09

SwingtheMonkey I know what you meant haha.

Thanks everyone. X

OP posts:
SwingTheMonkey · 01/08/2024 02:06

SwingTheMonkey · 01/08/2024 02:03

Im in a different time zone, its only 6pm
here.

Your experiences with your child sound horrific and I’m not surprised you’ve got anxiety. There’s nothing anyone on here can do about it though - you must go to your gp and get it sorted. Best of luck

Show quote history

Sorry I just read that back and it hasn’t come out like I intended! I don’t mean there’s nothing we can do about your child’s situation - I meant we can’t help you with your twitching. Please get yourself sorted, you don’t have to live with this level of anxiety.

ButterCup1997 · 01/08/2024 02:04

I’m up as my 5 year old just woke from a bad dream bless her but just managed to get her back to sleep.

Hope you manage to get some rest @Terrifiedshakes. Try and enjoy the rest of your holiday.

maybe some CBT might help? Just an idea

SwingTheMonkey · 01/08/2024 02:03

Terrifiedshakes · 01/08/2024 02:00

Why are you all awake at this hour anyway?

If you all tell me its because you have been woken up by a head jerk , then I give up. :)

Im in a different time zone, its only 6pm
here.

Your experiences with your child sound horrific and I’m not surprised you’ve got anxiety. There’s nothing anyone on here can do about it though - you must go to your gp and get it sorted. Best of luck

Avatartar · 01/08/2024 02:01

OP put the phone on silent in a different room, then go and wash your teeth, put pjs on and lie down in bed - sleep well x

Original poster
Terrifiedshakes · 01/08/2024 02:00

Why are you all awake at this hour anyway?

If you all tell me its because you have been woken up by a head jerk , then I give up. :)

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 01:56

I'm hoping if they were some kind of seizure, if have had another one by now. I've been up probably around 40 mins and my heads not jerked or shunted once.

I've had a couple of muscle twitches in my body, but not too bad actually the last 40 mins.

I've also embarrassingly had a cry which obviously makes you feel better when you are tense. I've not cried for some time. I'm going to try to go back to sleep. I can feel I'm holding all my tension in my neck, so here goes...

Thanks again to everyone. When I'm back from holiday I will talk to GP about these twitches again and medication. The Dr didn't think I needed to go back on medication when I spoke to him on Monday but I think I really do.

OP posts:
ButterCup1997 · 01/08/2024 01:53

Honestly this sounds like me a couple of years ago. I was completely convinced something was wrong. I went back to the doctors a few times and even ended up having a brain MRI. Everything came back normal but then I was worried something had been missed. I got into a complete spiral and the more anxious I was the worse the twitches and jerks were. I remember a few times having the sudden intense head jerk that you describe, before falling asleep. Once with a ‘flash of light’ behind my eyes. It really is a vicious cycle.
I still sometimes get occasional twitches but it’s much less often now. Please seek more help for your anxiety.

Shan5474 · 01/08/2024 01:50

Terrifiedshakes · 01/08/2024 01:45

Shan, it feel like a full on shunt of my head that I can't control. It's very scary.

I had the same and also would wake up out of breath as though I’d been holding my breath. I was so exhausted from waking up and worrying xx

Original poster
Terrifiedshakes · 01/08/2024 01:45

Shan, it feel like a full on shunt of my head that I can't control. It's very scary.

OP posts:
Original poster
Terrifiedshakes · 01/08/2024 01:43

I don't go anywhere more then about 15 mins away from him incase he has a seizure. The neurologist has told me to keep him in my bed with me which I 100 percent agree with. My phone is by my side all the time.

Don't know why I'm typing all this. I've never.made a thread about it. Just made shit loads of threads about myself recently.

OP posts:
Shan5474 · 01/08/2024 01:43

I know exactly what you mean about the head jerking thing that wakes you up. I’ve had this during a couple of times in my life when I’ve been very anxious. During those times I was convinced I had an illness but really it was stress/anxiety making me feel unwell and the symptoms making me worry even more

TiroirSousLeMiroir · 01/08/2024 01:40

Hello. The sensation of falling as you fall asleep is called a hypnic jerk or a myoclonic jerk.
It is totally normal.

Google it and you will find lots of tips.

Trying so hard with my twitching
Original poster
Terrifiedshakes · 01/08/2024 01:40

I'm in constant state of tension incase he has another seizure.

I feel guilty that he's disabled.

I fucking hate the sun because it brings out children to play outdoors and he cant independently play out, so I have to take him out and he's heavy and needs full support to access everything. It's lovely to see him so happy and socialising but he can't speak back to the children.. he must feel so locked in and I take the stress on.

We are on holiday now and the inevitable happens infront of him. We meet new children and they ask infront of him why he's in a wheelchair, why can't he talk. I do my thing of staying bright and cheery and explaining infront of him why he can't talk or walk. Inside I'm dieing. Inside he's locked in.

OP posts:
Garlicfest · 01/08/2024 01:32

Well, your son's condition helps to explain why you've become hypervigilant about twitches. If your mind can't separate your own body from his, you do need professional help. Some everyday anti-anxiety meds might do it, or you might need therapy as well.

Talk. To. Your. GP.

Zusammen · 01/08/2024 01:29

It's just very tricky to rationalise things when I get myself into such a state
Sometimes your emotions run away with you and you need someone else to tell you the facts and help you stop the cycle of worry.

Believe me - I have the same worries and I’ve seen multiple doctors. Your symptoms (and mine) don’t match those diseases. You don’t need to worry about it, go to sleep.

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