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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if you've ever successfully challenged a GP refusal to prescribe under a shared care agreement

217 replies

OptimismvsRealism · 31/07/2024 17:23

Debilitating illness - NHS consultant waiting list 5 years - used up significant savings and went to a private doctor who set up a plan - GP says no it's got to come from the NHS and no they won't take your diagnosis and adopt it you go back to day 1 on a 5 year waiting list. The same private consultant btw works on the NHS team that would make the diagnosis.

Cost of the medication to NHS is actually not that much but cost to an ordinary individual on private prescription isn't within realms of possibility.

Is there any alternative?

Oh and the aibu, aibu to despair that the NHS seems to actively want people to suffer?

OP posts:
Ottervision · 01/08/2024 11:30

HollyKnight · 01/08/2024 11:09

Which is why there have been news reports of online psychiatrists diagnosing people after a 30 min Skype conversation. You can't prove that they are not being genuine with their diagnosis or that the patient doesn't have ADHD, but anyone who knows anything will know that 30 mins is not enough time to conduct a thorough enough assessment to make a positive diagnosis.

No, its not. But again, that isn't all private consultants is it? It's some.

Ottervision · 01/08/2024 11:29

HollyKnight · 01/08/2024 11:04

Their registration isn't at risk though. Something like ADHD can't be proven with a scan or a blood test. A diagnosis is based on an individual consultant's interpretation of the results of questionnaires, forms, and interviews. So in "borderline" cases, the consultant can easily state that in his or her experience this patient fits the ADHD profile, even if their symptoms actually fit another condition better. They're not lying, they're just not interested in exploring an alternative diagnosis.

Oh so they're not lying for financial gain? I thought that's what was being said that anyone can pay for a diagnosis?

They can't can they. They'd have to be at the very least borderline as you say. If someone shows no signs of adhd in their questionnaires or qb check and whatever else, if they got a diagnosis and especially if they receiver medication for it, their registration would be on the line. Wouldnt it?

It's baffling how we can be like oh gps cannot possibly prescribe something directed by a consultant because their reg is on the line but don't trust any private consultants because their registration isn't. Except it is when they work for the nhs. Doing the same job. Using the same tools.

I don't know what you expect people to do then? Live with it or?

Because we can't trust private consultants, apparently. Because they're only in ut fot financial gain.

We can't see those same consultants through the nhs.

Gps can't prescribe it at all because it's a controlled drug.

So what is it people should do if they think they have adhd and don't want to be apparently swindled by a completely unethical consultant?

HollyKnight · 01/08/2024 11:09

Which is why there have been news reports of online psychiatrists diagnosing people after a 30 min Skype conversation. You can't prove that they are not being genuine with their diagnosis or that the patient doesn't have ADHD, but anyone who knows anything will know that 30 mins is not enough time to conduct a thorough enough assessment to make a positive diagnosis.

HollyKnight · 01/08/2024 11:04

Ottervision · 01/08/2024 10:48

No I don't "seem to think" that, it is the case for some of the bigger companies. I never stated they all work like that.

Whichever way you look at it. It's unethical to pay anyone based on positive diagnosis. And if you think this is going on then you should be reporting the companies or individuals involved surely.

Its funny because on one hand we are supposed to trust nhs staff implicitly because they're doing the right thing and won't risk their registration to prescribe for you. But you absolutely shouldn't trust anyone who diagnoses you privately because clearly they don't give a fuck about their registration, even though a lot of these people in question are the very same nhs staff we should trust implicitly.

It can't be both so which is it? Or are we saying that everyone follows the rules in their day job but goes rogue whilst working privately and all their ethics go out the window?

Their registration isn't at risk though. Something like ADHD can't be proven with a scan or a blood test. A diagnosis is based on an individual consultant's interpretation of the results of questionnaires, forms, and interviews. So in "borderline" cases, the consultant can easily state that in his or her experience this patient fits the ADHD profile, even if their symptoms actually fit another condition better. They're not lying, they're just not interested in exploring an alternative diagnosis.

Ottervision · 01/08/2024 10:48

HollyKnight · 01/08/2024 10:43

Yes, but in that case the consultant also earns more the more patients they see and treat. Which is my point in my reply to that other poster who seems to think consultants in the private sector are just employees and therefore whether they diagnose someone or not makes no difference to the money they earn.

No I don't "seem to think" that, it is the case for some of the bigger companies. I never stated they all work like that.

Whichever way you look at it. It's unethical to pay anyone based on positive diagnosis. And if you think this is going on then you should be reporting the companies or individuals involved surely.

Its funny because on one hand we are supposed to trust nhs staff implicitly because they're doing the right thing and won't risk their registration to prescribe for you. But you absolutely shouldn't trust anyone who diagnoses you privately because clearly they don't give a fuck about their registration, even though a lot of these people in question are the very same nhs staff we should trust implicitly.

It can't be both so which is it? Or are we saying that everyone follows the rules in their day job but goes rogue whilst working privately and all their ethics go out the window?

HollyKnight · 01/08/2024 10:43

TheBanffie · 01/08/2024 10:28

That's not how BUPA and similar chains work - they own or rent the premises. A consultant pays them to use the premises & depending on the clinic for equipment use, nursing time. The consultant then has to pay for the admin to be dealt with (typing and sending letters). There will be other models particularly in London where the doctor does own the business or is directly employed by a company, but most of the time they are essentially freelancel

Yes, but in that case the consultant also earns more the more patients they see and treat. Which is my point in my reply to that other poster who seems to think consultants in the private sector are just employees and therefore whether they diagnose someone or not makes no difference to the money they earn.

MigGril · 01/08/2024 10:30

@OptimismvsRealism if it's a chronic pain condition your suffering from I do understand that our current health service doesn't priorities quality of life. I've had exactly this problem, even my nurse specialist has said they don't provide enough funding for our clinic because quality of life it's seen as a high priority. Even though for a lot of us it's the difference between working or not working 😕.

I mean I'm currently off sick. If they would treat me I could go back to work, but no where in the NHS funding calculations is this taken into consideration. They seem to work solely on a life and death policy which when funding is tight seems understandable to a degree, but then it can leave people like you and me with no access to treatment which could seriously improve our quality of life.

TheBanffie · 01/08/2024 10:28

HollyKnight · 01/08/2024 01:12

Private clinics are profit-making businesses. They are usually owned by the consultants who work there. They aren't working for a big company...they are the big company. Just look at Psychiatry-UK - probably the most popular private online psychiatry service carrying out ADHD assessments in the UK right now, right? Their consultants are partners in the business. So it is to their benefit as a business and as individuals to diagnose and set up treatment plans for as many people as possible. Some clinics even give commission-based bonuses. And many consultants have their own private businesses where they will see patients.

It's not unusual for consultants to work for the NHS, and out of a private clinic, and see private patients on their own.

That's not how BUPA and similar chains work - they own or rent the premises. A consultant pays them to use the premises & depending on the clinic for equipment use, nursing time. The consultant then has to pay for the admin to be dealt with (typing and sending letters). There will be other models particularly in London where the doctor does own the business or is directly employed by a company, but most of the time they are essentially freelancel

MigGril · 01/08/2024 10:23

OptimismvsRealism · 01/08/2024 09:01

I think the NHS behaves as though comfort is an immortal luxury and GPs disapprove of spending money on it. People mock the American healthcare system but at least some people get treatment there.

There is no way I would want an American style health care system. The reason most people go bankrupt in the US is medical bills, the regulations over there are shockingly poor around payment and being able to shop around. Its not a health care system we want to model here in then UK at all.

I'd happily go for more French style system where everyone has to have a relatively cheap insurance. You pay a small amount when visiting the doctor, would probably stop a lot of the time wasters which we suffer with and I think clog up the system. Free at point of use is a great idea but I don't think it's working with such a large population anymore.

Ottervision · 01/08/2024 10:03

vivainsomnia · 01/08/2024 09:51

Why is it so much worse than every other northern European country?
There isn't half the drive for ADHD/ASD diagnosis in these countries as there are in the UK.

What evidence do you have for that?

Ottervision · 01/08/2024 09:59

vivainsomnia · 01/08/2024 09:50

So it's a problem if it costs you 2k and it's a problem if it doesn't. OK lol
It is a problem if they don't follow the NHS guidance or policies and/or are not willing to be regulated similarly.

Although of course, it is only a problem for patients who want to transfer their care under the NHS. It's not a problem for those happy to continue with private treatment/have private insurance.

Yes. But you're assuming all private providers are doing the same thing. They're clearly not are they?

Again you're assuming they're not willing to be regulated similarly but by who? Who is regulating the whole of the nhs that isn't regulating private hcps?

And yes, indeed, and many people happily do pay privately but let's face it, they're only doing so because the nhs isn't fit for purpose. Nobody would pay privately for an adhd assessment if they had a cat in hells chance of getting an nhs one. My local trust would not disclose how long the waitlist even is.

You genuinely think people go private so they can get a diagnosis to pay ££££ every month. Do you not think they'd rather just simply not have adhd the first place, or would have happily gone via the nhs if that was possible?

Nobody fucking wants adhd. Believe me. Nobody pays for the label. They pay because they're desperate or their Iife is falling apart around them. It will be a small minority of people who pay for the label to "excuse bad behaviour" or whatever was said by a pp.

vivainsomnia · 01/08/2024 09:51

Why is it so much worse than every other northern European country?
There isn't half the drive for ADHD/ASD diagnosis in these countries as there are in the UK.

vivainsomnia · 01/08/2024 09:50

So it's a problem if it costs you 2k and it's a problem if it doesn't. OK lol
It is a problem if they don't follow the NHS guidance or policies and/or are not willing to be regulated similarly.

Although of course, it is only a problem for patients who want to transfer their care under the NHS. It's not a problem for those happy to continue with private treatment/have private insurance.

Allthegoodnamesarechosen · 01/08/2024 09:25

Very interesting thread, I’ve learnt a lot from it and from the professionals who have taken the trouble to explain this aspect of healthcare provision.

However the OP statement
‘ I think in particular because Brits won't even pay a tenner for it (especially the older people who cost the most).’

is degenerating into mudslinging. Actually, even in ‘other countries’ everything is not available to everyone immediately. My experience from French friends (when we lived in France) is that the insurance which picks up most of the tab is fairly scrupulous and discerning about agreeing to treatment, which has to go through the medical professionals accredited by that institution.

I’m an ‘older person’ btw. I have had serious mobility problems for many years, which I address through private, mainly ‘complementary ‘ treatments and equipment. They are not cheap ( but really worth it). The NHS don’t supply these, although they do supply the anti inflammatories which alleviate the flare ups. So maybe hold back on the generalisations..

Ottervision · 01/08/2024 09:21

OptimismvsRealism · 01/08/2024 09:11

And yes I do think the NHS has an attitude of postwar "suffering is normal you big pain relief seeking slags".

It 100% does. I don't know why people are pretending that all hcps are wonderful. I'm sure some are but I've been denied help by several and I'm not an over reactor. I was told my a midwife to stop being silly when I said I was about to push the baby out. I did push the baby out with no pain relief because they'd said I couldn't neednit yet, in induction suite. I ended up in a&e with my child struggling to breathe to be asked why i didn't know he had abnormally large tonsils and that was why. Oh that'll be because the go refused to see him and nobody had ever looked. I've had some utterly shite experiences with the nhs. Especially as a woman everything is blamed on the fact you're a woman. Oh you have breast pain? Are you sure its not just your period? Well yes because I'm not brain dead and that did occur to me.

OptimismvsRealism · 01/08/2024 09:11

And yes I do think the NHS has an attitude of postwar "suffering is normal you big pain relief seeking slags".

OP posts:
OptimismvsRealism · 01/08/2024 09:10

BonifaceBonanza · 01/08/2024 09:04

Are you for real???
The NHS has finite inadequate funding.
The US system has unlimited funding.

Why is it so much worse than every other northern European country?

I think in particular because Brits won't even pay a tenner for it (especially the older people who cost the most).

OP posts:
Ottervision · 01/08/2024 09:09

vivainsomnia · 01/08/2024 09:05

You don't need to pay 2k for an adhd diagnosis. Hth. And do you have personal experience of no diagnostic tests? I had diagnostic tests through rtc, by a company who also offers private assessments?
And that's the problem. Some will diagnosed in one hour session so much cheaper, yet if they followed guidance, there is no way a thorough reliable diagnosis can be undertaken in such limited time.

If they do it properly, it should take quite a few hours and at £300 plus per hour, with medication and follow ups, you quickly get to £2-3k.

So it's a problem if it costs you 2k and it's a problem if it doesn't. OK lol

What's your solution?

Ottervision · 01/08/2024 09:08

vivainsomnia · 01/08/2024 09:02

Dsm-iv is only one of the tools
class="underline">inadultsfinalguidelinesjune2017.pdf ADHD diagnosis

It should be a very comprehensive assessment that couldn't be done in just one hour as some private providers offer.

It's up to you as a patient to decide what you're happy with isn't it, choosing someone dodgy might mean no sca. I did a lot of research but in the end got seen through rtc.

vivainsomnia · 01/08/2024 09:05

You don't need to pay 2k for an adhd diagnosis. Hth. And do you have personal experience of no diagnostic tests? I had diagnostic tests through rtc, by a company who also offers private assessments?
And that's the problem. Some will diagnosed in one hour session so much cheaper, yet if they followed guidance, there is no way a thorough reliable diagnosis can be undertaken in such limited time.

If they do it properly, it should take quite a few hours and at £300 plus per hour, with medication and follow ups, you quickly get to £2-3k.

BonifaceBonanza · 01/08/2024 09:04

OptimismvsRealism · 01/08/2024 09:01

I think the NHS behaves as though comfort is an immortal luxury and GPs disapprove of spending money on it. People mock the American healthcare system but at least some people get treatment there.

Are you for real???
The NHS has finite inadequate funding.
The US system has unlimited funding.

vivainsomnia · 01/08/2024 09:02

Dsm-iv is only one of the tools
class="underline">inadultsfinalguidelinesjune2017.pdf ADHD diagnosis

It should be a very comprehensive assessment that couldn't be done in just one hour as some private providers offer.

OptimismvsRealism · 01/08/2024 09:01

I think the NHS behaves as though comfort is an immortal luxury and GPs disapprove of spending money on it. People mock the American healthcare system but at least some people get treatment there.

OP posts:
ChicaneOvenchips · 01/08/2024 09:01

wombat15 · 01/08/2024 08:43

Your case was completely different though because the GP was happy to prescribe and the ICB were refusing because of the cost.

The GP was eventually happy to prescribe, after initially a blanket refusal being applied. The OP asked if anyone had ever successfully challenged refusal to prescribe under shared care and I answered because I have.

Ottervision · 01/08/2024 09:00

vivainsomnia · 01/08/2024 08:37

It's nothing to with what "they" want they ofc should be regulated
Exactly, so why aren't they?

To answer your question, I think that yes, ADHD/ASD diagnosis is different. Very few other conditions cost £2k and often much more for a diagnosis, especially without instrumental diagnostic tests.

I mean, take that up with the government? I'm not in charge of it.

You don't need to pay 2k for an adhd diagnosis. Hth. And do you have personal experience of no diagnostic tests? I had diagnostic tests through rtc, by a company who also offers private assessments?

Or have you assumed that every company is like the recent documentary?