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AIBU?

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AIBU to worry about the surge in school-suggested ASD diagnoses?

280 replies

cremebrulait · 27/07/2024 13:10

Fellow mums, I'm worried about a trend I've noticed in our schools. It seems some are pushing parents to seek ASD diagnoses to secure funding for support. While I absolutely believe children with autism deserve all the help they can get, I'm concerned about the following:

  1. The high rate of suggested ASD diagnoses in some classes (much higher than average)
  2. Schools advising parents to get diagnoses to continue enrollment
  3. Long NHS waiting times leading to private evaluations

I worry this might lead to:

  • Misallocation of resources
  • Inappropriate interventions for children
  • Overlooking other potential issues
  • Psychological impact on misdiagnosed children

Shouldn't there be equality in support for children with other learning or developmental issues too? Like ADHD, emotional and behavioural disorders, sensory impairments, physical disabilities, intellectual disabilities, developmental delays, health conditions, sensory processing disorder, specific learning differences, or twice-exceptional children?

AIBU to think this system is flawed? Has anyone else experienced this? Am I overreacting, or is this a genuine concern? What are your thoughts on how we can ensure all children get the right support without resorting to potentially inaccurate diagnoses?

(I'll post more thoughts on misdiagnosis in comments.)

OP posts:
Thread gallery
13
NineChickennuggets · 27/07/2024 16:48

"There is nothing I’ve stated which is not based on MY experience, with fellow mums."

So not your experience.

Inthemosquitogarden · 27/07/2024 16:46

Completely agree with you OP.

DS has an NHS diagnosis of ASD. Referral from community paed then the assessment was based on 2x sessions with a SALT and 1x session with a psychiatrist who didn’t spend any time with DS, the sole one hour interview with a Dr was with us parents.

i think it is overdiagnosed and the behaviour presenting as autism can be a constellation of other issues converging eg sensory integration issues.

It’s been 8 years and it’s now quite clear to both us (from the start) and medical professionals (years later) that the ASD diagnosis was wrong.

ClickClack300 · 27/07/2024 16:46

cremebrulait · 27/07/2024 16:40

I would suggest that things like “you don’t seem clued up in the facts” is unhelpful. There is nothing I’ve stated which is not based on MY experience, with fellow mums. If things are different where you are in the UK, I cannot possibly know that.

Sounds to me like scaremongering

cremebrulait · 27/07/2024 16:45

Dumdeedahdumdeedo · 27/07/2024 13:33

Where are you getting all your information from?????

Do you know for a childrens ASD assessment on the NHs the waiting list is YEARS?

schools dont get extra funding for most ASD children 🤦‍♀️

Did you know there are private schools that divide the year into 3 groups so that children are only a few months apart?

My childrens school is a public school and has inbetween classes for those close in age 🤦‍♀️

Who do you know whose been misdiagnosed?

Before they even think about going for an ASD diagnosis parents have to go through all sorts, they do trauma counselling for the child ect way before the asd waiting list,

It's more common for a childs behaviour to be blamed on trauma and asd ignored.

My DD is 9 and has only just been accepted onto the ASD waiting list. This was after 4 years of seeking support for her 🤦‍♀️

Your spouting proper rubbish get off mumsnet

Well I’m glad you think there is something wrong with my post. Because everything I wrote is EXACTLY what is going on at our school. And people are waiting 12-18 months at most in my area. Not years. I’m sorry you have waited years. I’ve literally returned to the UK less than 2 years ago and I’ve only experienced primary school in my area at one school. My mum friends are all in the same are except for one who is in private.

But thanks for being so kind and polite.

OP posts:
cremebrulait · 27/07/2024 16:40

ClickClack300 · 27/07/2024 16:21

It’s a Community Paediatrician who diagnoses ASD where I live. For someone that seems invested so much and ‘concerned’ you don’t seem clued up on the facts….

Do you realise to get anywhere near seeing one of these children’s developmental doctors, there has to be significant needs to start with. A teacher having a ‘suspicion’ that a child may have ASD isn’t enough to warrant an appointment. The referral process is stringent as there aren’t enough developmental paediatricians, so a young child who exhibits milder symptoms is likely to not get seen.

This child will get older and struggle through without then correct support and when it’s more evident that they are autistic they will finally get the diagnosis.

These specialists doctors have far more knowledge than a random on the internet. You needn’t be ‘concerned’ that too many children are being diagnosed, as these highly trained doctors know far more than you and I!

Lastly, the process can take years and they don’t see a child for an hour and say yes they’re autistic. Rest assured, they will know if trauma is at play or not so no need to ‘worry’ they might not be able to distinguish!

Edited

I would suggest that things like “you don’t seem clued up in the facts” is unhelpful. There is nothing I’ve stated which is not based on MY experience, with fellow mums. If things are different where you are in the UK, I cannot possibly know that.

OP posts:
Morph22010 · 27/07/2024 16:39

cremebrulait · 27/07/2024 16:35

Really?

Yes even if you are highly qualified you clearly know nothing about reality. If you do have an autistic child then you are clearly living in an alternative universe to the rest of us

NineChickennuggets · 27/07/2024 16:37

An ASD diagnosis doesn't come with any extra funding.

Dippydinosaurus · 27/07/2024 16:36

Schools can refer in our area but they are triaged by the pathway team of professionals. If accepted children are added to the waiting list. Schools (along with parents, paediatrician etc) provide supporting evidence and it's a long process to even get on the waiting list. Children aren't automatically accepted and there isn't a waste of resources - triage will filter out cases which won't meet criteria

cremebrulait · 27/07/2024 16:35

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Really?

OP posts:
PonyPatter44 · 27/07/2024 16:34

Respectfully suggest that people stop feeding the hairy-handed one.. .

ClickClack300 · 27/07/2024 16:34

Hoardasurass · 27/07/2024 16:29

It was a team of pediatric specialists lead by a consultant pediatrician who diagnosed my ds with ADHD and a separate pediatric team that gave him the ASD diagnosis and took 3+ years of assessments , yet it doesn't stop idiots claiming that anyone can get a diagnosis at the drop of a hat

I know, people are clueless yet for some reason feel like they know it all. The fake concern, yeah I’m sure this thread was started due to genuine concerns. As you say, it takes a long time to get a diagnosis and often involves several professionals.

ClickClack300 · 27/07/2024 16:31

Goslingsforlife · 27/07/2024 16:29

My question was rhetorical tbh. so much bollock in one post. I doubt OP will be back.

Agreed 👍

Hoardasurass · 27/07/2024 16:29

ClickClack300 · 27/07/2024 16:21

It’s a Community Paediatrician who diagnoses ASD where I live. For someone that seems invested so much and ‘concerned’ you don’t seem clued up on the facts….

Do you realise to get anywhere near seeing one of these children’s developmental doctors, there has to be significant needs to start with. A teacher having a ‘suspicion’ that a child may have ASD isn’t enough to warrant an appointment. The referral process is stringent as there aren’t enough developmental paediatricians, so a young child who exhibits milder symptoms is likely to not get seen.

This child will get older and struggle through without then correct support and when it’s more evident that they are autistic they will finally get the diagnosis.

These specialists doctors have far more knowledge than a random on the internet. You needn’t be ‘concerned’ that too many children are being diagnosed, as these highly trained doctors know far more than you and I!

Lastly, the process can take years and they don’t see a child for an hour and say yes they’re autistic. Rest assured, they will know if trauma is at play or not so no need to ‘worry’ they might not be able to distinguish!

Edited

It was a team of pediatric specialists lead by a consultant pediatrician who diagnosed my ds with ADHD and a separate pediatric team that gave him the ASD diagnosis and took 3+ years of assessments , yet it doesn't stop idiots claiming that anyone can get a diagnosis at the drop of a hat

Goslingsforlife · 27/07/2024 16:29

My question was rhetorical tbh. so much bollock in one post. I doubt OP will be back.

ClickClack300 · 27/07/2024 16:27

Goslingsforlife · 27/07/2024 16:23

why are you concerned about handing wrong ASD diagnoses? Do you think private assessments are akin to buying a diagnosis without a proper assessments? your posts doesn't make sense.

Also, what do you suggest parents do if the waiting list are 5-6 years long on the NHS and the child is falling apart? Watch and let it happen?

Do you have children with disabilities? Do you actually know what it is like battling the system or are you just talking out of your arse?

Edited

My guess is talking out of their arse!!

Goslingsforlife · 27/07/2024 16:23

why are you concerned about handing wrong ASD diagnoses? Do you think private assessments are akin to buying a diagnosis without a proper assessments? your posts doesn't make sense.

Also, what do you suggest parents do if the waiting list are 5-6 years long on the NHS and the child is falling apart? Watch and let it happen?

Do you have children with disabilities? Do you actually know what it is like battling the system or are you just talking out of your arse?

ClickClack300 · 27/07/2024 16:21

It’s a Community Paediatrician who diagnoses ASD where I live. For someone that seems invested so much and ‘concerned’ you don’t seem clued up on the facts….

Do you realise to get anywhere near seeing one of these children’s developmental doctors, there has to be significant needs to start with. A teacher having a ‘suspicion’ that a child may have ASD isn’t enough to warrant an appointment. The referral process is stringent as there aren’t enough developmental paediatricians, so a young child who exhibits milder symptoms is likely to not get seen.

This child will get older and struggle through without then correct support and when it’s more evident that they are autistic they will finally get the diagnosis.

These specialists doctors have far more knowledge than a random on the internet. You needn’t be ‘concerned’ that too many children are being diagnosed, as these highly trained doctors know far more than you and I!

Lastly, the process can take years and they don’t see a child for an hour and say yes they’re autistic. Rest assured, they will know if trauma is at play or not so no need to ‘worry’ they might not be able to distinguish!

CurlsnSunshinetime4tea · 27/07/2024 16:20

@Poznan65 the OP mentioned ADHD as well sorry. Yes and eventually it is the psychiatrist that gets involved with ADHD treatment plans.
But the Ed Psych do a very thorough assessment which is insightful.

Poznan65 · 27/07/2024 16:16

Poznan65 · 27/07/2024 16:13

Schools and Ed psychs don’t do the diagnosis.

And there is no treatment .

Poznan65 · 27/07/2024 16:13

CurlsnSunshinetime4tea · 27/07/2024 16:10

For me the worry is the lack of Ed Psych’s available to do the full testing required for proper diagnosis and formulating treatment plans. The schools don’t have the same level of expertise.
Next comes the lack of suitable educational settings.

Schools and Ed psychs don’t do the diagnosis.

CurlsnSunshinetime4tea · 27/07/2024 16:10

For me the worry is the lack of Ed Psych’s available to do the full testing required for proper diagnosis and formulating treatment plans. The schools don’t have the same level of expertise.
Next comes the lack of suitable educational settings.

Morph22010 · 27/07/2024 16:06

Dumdeedahdumdeedo · 27/07/2024 14:03

Your right but a diagnosis does help. In my area they always reject the first application and an ECHP is really hard to get

CAHMs adviced we apply for one now as they get rejected so often hopefully she will be accepted by the time she reaches secondary school is what they said

if the la want to refuse they’ll refuse whatever. We waited till diagnosis as senco said we’d be turned down without ( things were very bad and ds was getting regular fixed term exclusions as school couldn’t manage him) and we got turned down for assessment and the la gave the reason for refusal that now he had a diagnosis they wanted to see if things would improve (not sure how a piece of paper magically changes anything). We won appeal but if I’d have applied before diagnosis we’d have been further on in the appeals process sooner

Summertimer · 27/07/2024 15:38

I can be a sceptic of early diagnosis, especially in respect of kids fresh out of pre school when panicking about compliance (terrible word/concept many randomly apply to small children and the elderly) in Reception leads to informal misinformed suggestions of ODD.

However, I’m only a sceptic because our DC initially attended a private school where they began the weeding out of anyone who didn’t fit their narrow model child profile as soon as the kids got there. A few truly gifted kids were subjected to the most bizarre treatment, unsporty children didn’t fare much better.

But the OP is wrong about schools in general and I’d defend state school teaching and SEND services all the way. A good state school will always be better for kids with minor difficulties too

kittensinthekitchen · 27/07/2024 15:36

Can we please STOP using the phrase "seeking a diagnosis"? What you seek is an assessment. It totally trivialises the often long and traumatic experience.

Sherrystrull · 27/07/2024 15:21

SaLT is ridiculous. Schools don't have lots of staff hanging about ready to complete training and then support children based on a quick Zoom meeting and a pile of old fashioned sheets of paper suggesting activities that take hours.