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AIBU?

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AIBU to worry about the surge in school-suggested ASD diagnoses?

280 replies

cremebrulait · 27/07/2024 13:10

Fellow mums, I'm worried about a trend I've noticed in our schools. It seems some are pushing parents to seek ASD diagnoses to secure funding for support. While I absolutely believe children with autism deserve all the help they can get, I'm concerned about the following:

  1. The high rate of suggested ASD diagnoses in some classes (much higher than average)
  2. Schools advising parents to get diagnoses to continue enrollment
  3. Long NHS waiting times leading to private evaluations

I worry this might lead to:

  • Misallocation of resources
  • Inappropriate interventions for children
  • Overlooking other potential issues
  • Psychological impact on misdiagnosed children

Shouldn't there be equality in support for children with other learning or developmental issues too? Like ADHD, emotional and behavioural disorders, sensory impairments, physical disabilities, intellectual disabilities, developmental delays, health conditions, sensory processing disorder, specific learning differences, or twice-exceptional children?

AIBU to think this system is flawed? Has anyone else experienced this? Am I overreacting, or is this a genuine concern? What are your thoughts on how we can ensure all children get the right support without resorting to potentially inaccurate diagnoses?

(I'll post more thoughts on misdiagnosis in comments.)

OP posts:
Thread gallery
13
ArseholeCatIsABlackAndWhiteCat · 28/07/2024 00:11

@cremebrulait the funding thing is in the same vein as people saying "parents push for ASD assessments to get benefits". There's certain things that are stated as fact by people who generally know very little about it.

Schools can't push for anything. They might imply, suggest, advise , but they can't diagnose or refer without parents' permission ,support and consent. They can't even state "Jimmy has autism".Once the referral is made all they do is fill in some forms with concerns and how they manifest in the classroom environment. Then that gets sent off (alongside parent questionnaire)and then it is decided if further assessment is needed.

There's a bigger issue with schools refusing to help or saying they don't see any issues and parents fighting tooth and nail to actually get their kid seen by someone,anyone. If there was all this free money being thrown around why would schools say "nope, no thanks"?

There's an even bigger issue with assessments being sent back with "significant level of need" AND "we won't be taking any further action". Or refusals to issue EHCP's and having to go to tribunals and appeals.

Yes the system is fucked , but that's not because Miss Random in Randomville thinks Jimmy might have autism. It's fucked because good provision costs money and LA use any loophole available to them to avoid using that money. Extra funding my arse.

Apolloneuro · 28/07/2024 00:02

I think if you had posted asking how assessment/support was done in different areas, you would have got a very different response.

The post you wrote claimed that schools were disingenuously pushing for diagnoses as a way of obtaining funds. That’s what put people’s backs up.

cremebrulait · 28/07/2024 00:01

MigGirl · 27/07/2024 23:20

Op I don't think you understand, element 1 funding is the funding all schools get, element 2 funding is funding schools have to apply for the EHCP's. There is no requirement for a diagnosis for this funding anymore (I believe there was under the original statement system but that was many years ago). The school just has to evidence need as the funding can cover many different needs not just educational, possibly medical, adaptions for physical needs/disabilities ect. Element 3 is a higher need probably for special school provision.

Thanks. I’m just trying to figure out why they’re saying it’s to get funding. I did not make this up. I thought it was based on need but they’re pushing some and others for specific diagnosis. I haven’t heard of any others. Thanks for then info

OP posts:
cremebrulait · 27/07/2024 23:51

Apolloneuro · 27/07/2024 21:25

OP, are you concerned that your child is not getting the support you’d like, due to too many other children being diagnosed with conditions?

Not at all. I’m concerned about misdiagnosis. And worried about whether there are better ways to get more kids help. I keep hearing about people being pushed for assessments for specifically ASD. I’ve also learned about how some places appear to have different ways of supporting SEN earlier before supports are in place. Like having people that can go help children for certain subjects when required. I wonder how we can be more innovative. I figured people would share info. I did not expect people to be offended, threatened, accusationsal. My mistake. I’ve helped change a law before, changed funding, street safety around schools. I have a tendency to solve problems or at least try. But as we started school outside the UK I helped a lot of parents navigate SEN outside the UK but it is very different here and I bear/read a lot of conflicting information.

OP posts:
cremebrulait · 27/07/2024 23:32

ArseholeCatIsABlackAndWhiteCat · 27/07/2024 21:18

@cremebrulait and I have experience of plenty of parents that refuse to accept that anything AT ALL is going on with their child. Ironically, the vast majority of them came back crying when for different reasons they couldn't manage anymore and asking for help. Then frustrated it takes so long and their kid is headed to secondary or whatever and needs it NOW!Well.. we did mention it in y2.

Should I start a thread staring that I'm concerned so many parents refuse to accept their children's needs? Or accept that there is a variation in circumstances and people and presentations and not generalise and pretend it's a wide spread phenomenon?

If it’s a thing, why not start it?

To be clear, I have no issue with anyone getting support. I want people to get more support but not the wrong support. I strongly believe in getting the right diagnosis. I strongly want to know how we can make the system better. Giving kids the wrong diagnosis is wrong. I find it interesting that a lot of people commenting suggests I am offended by a diagnosis. Or suggest I am in denial. I don’t want to share details but while I have relatives who’ve been misdiagnosed with issues in this thread - I was misdiagnosed with a medical issue for decades. It messed up my life in some ways. Once people see a diagnosis they often can’t see any others. It happens in medicine and mental health. There’s so much overlap and comorbidities people become familiar with symptoms and think they know a diagnosis. Its innocent enough. Until children aren’t getting correctly diagnosed and not getting the right treatment.

OP posts:
MigGirl · 27/07/2024 23:20

cremebrulait · 27/07/2024 23:05

This is what I’ve heard. I don’t know what to tell you. I think I’m going to forget trying to help anyone else and just advocate for my own DC as I have been.

I think this may be what they’re after?

Mainstream schools
Mainstream schools are funded based on how many pupils they have. This is called 'element 1' funding.
They get extra funding for pupils with additional needs. This is called 'element 2' funding.
The school can apply to us for additional funding for pupils with more complex needs. This is called 'element 3' or 'top up' funding.
source:
www.bristol.gov.uk/bristol-local-offer/parents-and-carers/education/funding-for-sen-in-schools-and-educational-settings#:~:text=Mainstream%20schools,-Mainstream%20schools%20are&text=They%20get%20extra%20funding%20for,or%20'top%20up'%20funding.

Op I don't think you understand, element 1 funding is the funding all schools get, element 2 funding is funding schools have to apply for the EHCP's. There is no requirement for a diagnosis for this funding anymore (I believe there was under the original statement system but that was many years ago). The school just has to evidence need as the funding can cover many different needs not just educational, possibly medical, adaptions for physical needs/disabilities ect. Element 3 is a higher need probably for special school provision.

ArseholeCatIsABlackAndWhiteCat · 27/07/2024 23:13

@cremebrulait you do know schools have to cover the first 6k of that funding ,right?

cremebrulait · 27/07/2024 23:10

Sunshineandpool · 27/07/2024 21:19

But you still haven't explained what you mean by an ASD diagnosis gets the school more support? In what way? What support?

That’s what they’re saying. Not I.

OP posts:
cremebrulait · 27/07/2024 23:08

kittensinthekitchen · 27/07/2024 21:29

@cremebrulait

Are you somehow offended that it's been suggested your child may be autistic instead of "gifted" like some of his relatives?

I’m not sure what you mean?

OP posts:
dollopz · 27/07/2024 23:08

It’s a two year wait to get an autism assessment in my area. So two years of not having his needs met

BrumToTheRescue · 27/07/2024 23:06

cremebrulait · 27/07/2024 23:05

This is what I’ve heard. I don’t know what to tell you. I think I’m going to forget trying to help anyone else and just advocate for my own DC as I have been.

I think this may be what they’re after?

Mainstream schools
Mainstream schools are funded based on how many pupils they have. This is called 'element 1' funding.
They get extra funding for pupils with additional needs. This is called 'element 2' funding.
The school can apply to us for additional funding for pupils with more complex needs. This is called 'element 3' or 'top up' funding.
source:
www.bristol.gov.uk/bristol-local-offer/parents-and-carers/education/funding-for-sen-in-schools-and-educational-settings#:~:text=Mainstream%20schools,-Mainstream%20schools%20are&text=They%20get%20extra%20funding%20for,or%20'top%20up'%20funding.

None of that funding is based on having a diagnosis.

cremebrulait · 27/07/2024 23:05

MigGirl · 27/07/2024 22:31

@cremebrulait but an ASD diagnosis on its own won't bring in extra funding to a school, only if a child has significant needs and they apply for an EHCP (or in my day it was a statement). This has no relationship to what the actual diagnosis is so it could be ASD, ADHD, Dyslexia, Dyspraix, metal health needs, medical needs a combination of the above or something else entirely.

There is therefore no advantage in the school encouraging any specific type of diagnosis, just the correct one for the child. I believe the reason why the system was changed from the old system in the first place.

This is what I’ve heard. I don’t know what to tell you. I think I’m going to forget trying to help anyone else and just advocate for my own DC as I have been.

I think this may be what they’re after?

Mainstream schools
Mainstream schools are funded based on how many pupils they have. This is called 'element 1' funding.
They get extra funding for pupils with additional needs. This is called 'element 2' funding.
The school can apply to us for additional funding for pupils with more complex needs. This is called 'element 3' or 'top up' funding.
source:
www.bristol.gov.uk/bristol-local-offer/parents-and-carers/education/funding-for-sen-in-schools-and-educational-settings#:~:text=Mainstream%20schools,-Mainstream%20schools%20are&text=They%20get%20extra%20funding%20for,or%20'top%20up'%20funding.

OP posts:
MigGirl · 27/07/2024 22:31

@cremebrulait but an ASD diagnosis on its own won't bring in extra funding to a school, only if a child has significant needs and they apply for an EHCP (or in my day it was a statement). This has no relationship to what the actual diagnosis is so it could be ASD, ADHD, Dyslexia, Dyspraix, metal health needs, medical needs a combination of the above or something else entirely.

There is therefore no advantage in the school encouraging any specific type of diagnosis, just the correct one for the child. I believe the reason why the system was changed from the old system in the first place.

kittensinthekitchen · 27/07/2024 21:29

@cremebrulait

Are you somehow offended that it's been suggested your child may be autistic instead of "gifted" like some of his relatives?

Apolloneuro · 27/07/2024 21:25

OP, are you concerned that your child is not getting the support you’d like, due to too many other children being diagnosed with conditions?

Bibblebobblebibble · 27/07/2024 21:23

Who the hell are you to 'be concerned' about this?

YesIamahippie81 · 27/07/2024 21:22

I've not read the whole thread but as it has taken years for my blatantly obviously autistic son to be diagnosed and get support that he needs yes I think you're being unreasonable!

Sherrystrull · 27/07/2024 21:20

I worry that this thread will put off parents and teachers from seeking support. My advice would always be to seek support and diagnoses if you feel your child might need it and benefit from it. The waiting list is long due to funding and need not because parents and teachers are stupidly (sadly implied on this thread) referring for no good reason.

Sunshineandpool · 27/07/2024 21:19

cremebrulait · 27/07/2024 21:11

I’m concerned because a much higher than normal % of students appear to have an ASD diagnosis. I have a child with developmental delays that have another reason. DC has been evaluated outside England. Not everyone is aware of that and have come to me insisting ASD. They’re not qualified to make a diagnosis. This concerned me. I then heard other parents discussing same situation. I have had people tell me it is a thin to get a diagnosis for funding. Parents I know then disclosed it’s happened to them.

In another country I had to fight for the right support. I have seen what happens when kids get the wrong diagnosis. I thought maybe others would agree. It turns out some do. If you look through the comments a paediatric professional said what I described happened to her. Some others have said teachers have insisted to many parents.

if anything some of the responses on here remind me of how quick people are to judge. Social media seems to cause people to fill in the blanks rather than ask questions. No innocent till proven otherwise here.

i was compelled to ask - and asked AI to summarize my original far too long post because I think there has to be a better way to get OUR children help. Why anyone would assume I’m against getting children appropriate help is beyond me. not here but abroad I’ve spoken at events about the impact of my DC not getting the right support. However having moved abroad before my DC started primary and having been back less than a years some of this is new. Still that doesn’t justify anyone here attacking me.

So no. No arse talking.

But you still haven't explained what you mean by an ASD diagnosis gets the school more support? In what way? What support?

ArseholeCatIsABlackAndWhiteCat · 27/07/2024 21:18

@cremebrulait and I have experience of plenty of parents that refuse to accept that anything AT ALL is going on with their child. Ironically, the vast majority of them came back crying when for different reasons they couldn't manage anymore and asking for help. Then frustrated it takes so long and their kid is headed to secondary or whatever and needs it NOW!Well.. we did mention it in y2.

Should I start a thread staring that I'm concerned so many parents refuse to accept their children's needs? Or accept that there is a variation in circumstances and people and presentations and not generalise and pretend it's a wide spread phenomenon?

Sherrystrull · 27/07/2024 21:14

I've taught Year 2 for many years and also refer quite a few children every year. It becomes very apparent throughout the end of Year 1 and into Year 2 that additional needs are present.

This has been my experience for over 20 years as the curriculum expectations and independence levels increase and teachers observe before speaking to parents.

If I have concerns and they match what parents see, I will always encourage parents to seek support and outside agencies.

If issues aren't highlighted early then children can be in secondary school when support and understanding is achieved.

cremebrulait · 27/07/2024 21:11

Goslingsforlife · 27/07/2024 16:23

why are you concerned about handing wrong ASD diagnoses? Do you think private assessments are akin to buying a diagnosis without a proper assessments? your posts doesn't make sense.

Also, what do you suggest parents do if the waiting list are 5-6 years long on the NHS and the child is falling apart? Watch and let it happen?

Do you have children with disabilities? Do you actually know what it is like battling the system or are you just talking out of your arse?

Edited

I’m concerned because a much higher than normal % of students appear to have an ASD diagnosis. I have a child with developmental delays that have another reason. DC has been evaluated outside England. Not everyone is aware of that and have come to me insisting ASD. They’re not qualified to make a diagnosis. This concerned me. I then heard other parents discussing same situation. I have had people tell me it is a thin to get a diagnosis for funding. Parents I know then disclosed it’s happened to them.

In another country I had to fight for the right support. I have seen what happens when kids get the wrong diagnosis. I thought maybe others would agree. It turns out some do. If you look through the comments a paediatric professional said what I described happened to her. Some others have said teachers have insisted to many parents.

if anything some of the responses on here remind me of how quick people are to judge. Social media seems to cause people to fill in the blanks rather than ask questions. No innocent till proven otherwise here.

i was compelled to ask - and asked AI to summarize my original far too long post because I think there has to be a better way to get OUR children help. Why anyone would assume I’m against getting children appropriate help is beyond me. not here but abroad I’ve spoken at events about the impact of my DC not getting the right support. However having moved abroad before my DC started primary and having been back less than a years some of this is new. Still that doesn’t justify anyone here attacking me.

So no. No arse talking.

OP posts:
kittensinthekitchen · 27/07/2024 21:10

cremebrulait · 27/07/2024 20:54

"more likely to be diagnosed" is NOT synonymous with "overdiagnosed".

You know your title, your OP and subsequent posts are suggestive of this being a widespread phenomenon, and didn't make it at all clear that you (apparently) meant the ONE school that you have personal experience with. You are being deliberately obtuse because you were either looking to cause froth, or weren't quite expecting the pushback you've had from responders.

edit punctuation to confirm quoted phrase

Sunshineandpool · 27/07/2024 20:59

cremebrulait · 27/07/2024 17:49

Not Barcelona. But my DC did start primary abroad. I have seen by posts that maybe our LA is or school are doing things differently? It’s crazy how angry people are instead of just saying that their experience is different. I went to GP. GP made a referral to paediatrics to eval for learning issues. ASD ruled out. Other outing issue I will not post. Paediatrics phoned 8 months later. In person appointment scheduled 9 months later. In the meantime I have been asked multiple times to get ASD assessments. I spoke to other parents and learned I was not the only one and others have paid for private. I then heard other parents talking about the same. I asked around and it seemed common. I had a similar experience abroad. I did research and it seems common in some places to use ASD diagnosis to get more support. It bothers me. But apparently more people are outraged that I would be upset about any of it .

What do you mean by 'get more support'? Maybe we are misunderstanding you. Could you explain a bit more?

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