Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

AIBU to worry about the surge in school-suggested ASD diagnoses?

280 replies

cremebrulait · 27/07/2024 13:10

Fellow mums, I'm worried about a trend I've noticed in our schools. It seems some are pushing parents to seek ASD diagnoses to secure funding for support. While I absolutely believe children with autism deserve all the help they can get, I'm concerned about the following:

  1. The high rate of suggested ASD diagnoses in some classes (much higher than average)
  2. Schools advising parents to get diagnoses to continue enrollment
  3. Long NHS waiting times leading to private evaluations

I worry this might lead to:

  • Misallocation of resources
  • Inappropriate interventions for children
  • Overlooking other potential issues
  • Psychological impact on misdiagnosed children

Shouldn't there be equality in support for children with other learning or developmental issues too? Like ADHD, emotional and behavioural disorders, sensory impairments, physical disabilities, intellectual disabilities, developmental delays, health conditions, sensory processing disorder, specific learning differences, or twice-exceptional children?

AIBU to think this system is flawed? Has anyone else experienced this? Am I overreacting, or is this a genuine concern? What are your thoughts on how we can ensure all children get the right support without resorting to potentially inaccurate diagnoses?

(I'll post more thoughts on misdiagnosis in comments.)

OP posts:
Thread gallery
13
Secondguess · 27/07/2024 13:17

You assert:
Children with anxiety and trauma often get misdiagnosed with oppositional defiant disorder and therefore keep getting disciplined incorrectly exacerbating the problems.

ADHD is overdiagnosed in the youngest children in a class who are simply not at the same level as the oldest children.

What proof do you have to back up your claims about misdiagnoses?

I think you're scaremongering.

SummerScarf · 27/07/2024 13:17

Oh goody just what these boards need - another ASD-bashing thread

Sirzy · 27/07/2024 13:15

An autism diagnosis doesn’t bring any extra funding. That only happens if needs are sufficient to get an echp

ElecticBetty · 27/07/2024 13:14

Same vibes Grin

30 Rock Fellow Kids GIF by Peacock
cremebrulait · 27/07/2024 13:13

I’m truly concerned by the potential negative consequences of pursuing an ASD diagnosis when it may not be accurate, versus identifying the real underlying needs.
It’s proven that kids with anxiety and trauma that get ABA therapy by a team used to working with autistic children - can be harmed more than helped.

Children with anxiety and trauma often get misdiagnosed with oppositional defiant disorder and therefore keep getting disciplined incorrectly exacerbating the problems.

ADHD is overdiagnosed in the youngest children in a class who are simply not at the same level as the oldest children. (Did you know there are private schools that divide the year into 3 groups so that children are only a few months apart?

A misdiagnosis could lead to inappropriate educational strategies, potentially holding a child back or pushing them in the wrong direction. I have a relative who was given a label of autism which shaped other people’s perspective of them. They never got appropriate support because once that diagnosis was given nobody considered the other possibilities. If someone has taken the time to properly evaluate them they could have performed much better in school and succeeded more in life! Some family members had “What’s wrong with Autism?” view - implying that not accepting an autism diagnosis itself was problematic.

Limited resources for ASD support might be stretched thin, or professionals inaccurately estimating the need for professionals trained to support autistic children and not recruiting or providing training for the right supports.

I hear a lot of people in England say that ASD children will not be treated differently in school But we live in a global society. I know that not all countries are like this.

An inaccurate diagnosis on medical records could impact future opportunities or assessments. A friend had a child that suddenly started having muscle spasms and twitching. The child had an ASD diagnosis to get school support - but the evaluator said it was a stretch. A paediatric neurologist in minutes - after only going through the medical history and doing basic tapping on the knees exams - provided a leaflet to the mum stating that autistic children commonly have ticks!! Down the road it was identified that medication ALONE was responsible for the issue and eventually the child was given a different diagnosis! Not autism.

I keep hearing about 1 to 1 support - but the children they support don’t need 1 to 1 help all the time! Isn’t that a wasted resource other parents could benefit from?

OP posts:
Swipe left for the next trending thread