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AIBU?

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To apply for DLA for DD when we have a household income of over 300k?

535 replies

Milesandmilesandmiles · 24/07/2024 16:14

Just that really - we have an autistic daughter who needs support with most things (although is in mainstream school). Between us DH and I earn over 300k, so we don’t need the money. However, conscious that we won’t be around for ever and we could save it for DD’s needs as she grows. But is this what state benefits are for?

OP posts:
TigerRag · 26/07/2024 10:44

Pyewacketty · 26/07/2024 10:37

In which case it’s just swings and roundabouts, isn’t it? How about they spend the DLA money on daughter’s disability expenses, but save an identical amount from their own salaries for her future, does that suit you? 😂

Edited

It'll still affect her daughter when it comes to claiming benefits

Pyewacketty · 26/07/2024 10:37

TigerRag · 26/07/2024 07:46

Its for extra disability related costs. Not to save for her future. And if it's saved this will affect any means tested benefits the OPs daughter may need to claim.

In which case it’s just swings and roundabouts, isn’t it? How about they spend the DLA money on daughter’s disability expenses, but save an identical amount from their own salaries for her future, does that suit you? 😂

TigerRag · 26/07/2024 10:05

llizzie · 26/07/2024 02:22

Your mother should claim attendance allowance and she is entitled to it.

Every time I read or see on TV news about elderly people blocking beds because they cannot access domiciliary care for patients, I think about the Attendance Allowance and wonder why ward clerks do not help the patient to apply for the benefit. I don't know how much money the AA brings in, but it should be enough to pay for a private carer at least a large part of the week?

It's a maximum of £108 per week which doesn't buy much care. I have a friend who pays £25 per hour for care.

pollymere · 26/07/2024 09:57

I would definitely apply. Although you will have to reapply for PIP. And put it in a bank account for her.

Pyewacketty · 26/07/2024 09:56

Rosscameasdoody · 26/07/2024 08:14

You’ll be a pensioner one day yourself. Who will you blame then ?

I’m not blaming pensioners, if you read my post I say absolutely it’s not their fault. It’s the way the system has developed. We need to look at the big picture instead of blaming groups that have little or no political power. And like it or not the amount of money paid out by the state to pensioners far outstrips anyone else. So if we are discussing whether it’s right for a well off family to claim DLA for their child, if we are saying such benefits should be means tested (which many people on here seem to support) then we should also be looking at other non means tested welfare payments, which includes both pensioners and NHS care more generally. I personally think it’s right that the welfare programs I mentioned aren’t means tested and I would like to see social care included in that list, as I think that’s really medical care by another name. But if we are going to have these conversations then we need to be honest with ourselves about where our taxes are really being spent.

x2boys · 26/07/2024 09:50

Tiegs · 26/07/2024 09:11

It’s not something you just apply for to save for her future .. it’s if you really need the money to help with her care

Its none means tested so doesnt matter how much money you have in the bank, if The Op,s daughter is eligible ,she will get an award

x2boys · 26/07/2024 09:42

Lilacapples · 26/07/2024 03:25

I know many people that are claiming it that are absolutely not entitled to it but the system is so messed up they get it through lying and exaggerating.

How fo they get through?
You can't just say hey my child's disabled please give me DLA and they give it to you have to provide proof.
Don't get me wrong plenty of people will put in an application for the flimsiest of reasons ( as I said previously I see it daily on a Facebook dla group I'm on) and it frustrates me aa they clog up the system but they don't get awarded and they get irate about it.

T1Dmama · 26/07/2024 09:34

Allthatsbeautifuldriftsaway · 26/07/2024 09:30

My dd doesn't have an income either..I don't not feed her because of this.

DLA is because children with extra needs need more support. For example I got 3 hours sleep last night… a regular occurrence… so I personally would struggle to hold down a full time job! She also needs a phone to monitor her blood sugars, the DLA pays for her phone, she also needs lots of other things to manage her disability so it pays for those things.

T1Dmama · 26/07/2024 09:31

Technically DLA is supposed to support your child/you… it isn’t supposed to be saved.. but there’s nothing stopping you spending the DLA on things she’s needs and putting ‘other’ money aside for her for when she’s older!

Allthatsbeautifuldriftsaway · 26/07/2024 09:30

IClaudine · 26/07/2024 09:23

DLA is not means tested. As with several other state benefits a person's income and capital are irrelevant. Anyway, it is the OP who has the income, not her daughter.

My dd doesn't have an income either..I don't not feed her because of this.

IClaudine · 26/07/2024 09:23

Allthatsbeautifuldriftsaway · 26/07/2024 08:52

You earn 300K and what to claim a state benefit? No

DLA is not means tested. As with several other state benefits a person's income and capital are irrelevant. Anyway, it is the OP who has the income, not her daughter.

IClaudine · 26/07/2024 09:19

Tiegs · 26/07/2024 09:11

It’s not something you just apply for to save for her future .. it’s if you really need the money to help with her care

Again, it isn't a case of "if you need the money". If it was based on monetary need it would be means tested.

There is a lot of misinformation on this thread!

My DH has been getting DLA/PIP for 25-30 years. We have never had to prove anything other than his disability and how it impacts his life. No auditing of spend, no means testing to check whether we "need the money".

Tiegs · 26/07/2024 09:11

Milesandmilesandmiles · 24/07/2024 16:14

Just that really - we have an autistic daughter who needs support with most things (although is in mainstream school). Between us DH and I earn over 300k, so we don’t need the money. However, conscious that we won’t be around for ever and we could save it for DD’s needs as she grows. But is this what state benefits are for?

It’s not something you just apply for to save for her future .. it’s if you really need the money to help with her care

Boomer55 · 26/07/2024 09:03

NineChickennuggets · 26/07/2024 07:19

"As part of applying for the benefit you agree to keep proof of what you’re spending it on. I know it’s unlikely most people will religiously but just be aware."

No you don't. I don't understand why people keep making stuff like this up.

I agree. It’s total rubbish.🙄

Allthatsbeautifuldriftsaway · 26/07/2024 08:52

You earn 300K and what to claim a state benefit? No

newmummycwharf1 · 26/07/2024 08:38

ConstantlyFuriosa · 26/07/2024 04:06

So the benefits/welfare bill is out of control and each government is trying to rein it in. How are we supposed to do that if everyone who is ‘entitled’ but doesn’t actually need the money claims, simply because they are ‘entitled’. That should be the catchword of the century.

The OP doesn’t need this money and neither does their child at present. Why claim, then? It just puts a further dent into the taxes that everyone has paid - not just the OP! We all pay them. I have no problem paying into the pot to protect those in need; this op is not in need at present.

Ah but do you have an issue with people who use private healthcare or private school? If they can afford to save the state money - should they?

The social contract is that everyone can access benefits that are not means tested - PIP/DLA, School, NHS etc. Not based on whether you can afford to cover it yourself.

The NHS is chronically underfunded - by your line of thinking, if you are wealthy enough to pay for yourself, it is immoral to use the NHS....It does not work that way!

whistleblower99 · 26/07/2024 08:27

I would. You pay more than enough in tax to fund it and are still comfortably funding the majority. Your child will then have access to potential support. It’s a passport benefit. It’s not means tested yet for those reasons - as it stands.

HappyWorkingMummy · 26/07/2024 08:17

Milesandmilesandmiles · 24/07/2024 16:14

Just that really - we have an autistic daughter who needs support with most things (although is in mainstream school). Between us DH and I earn over 300k, so we don’t need the money. However, conscious that we won’t be around for ever and we could save it for DD’s needs as she grows. But is this what state benefits are for?

And the rich get richer.

I couldn't do this in your position. Too much of a social conscience.

Rosscameasdoody · 26/07/2024 08:14

Pyewacketty · 26/07/2024 00:23

I think we are of the same opinion on this one. It just annoys me when I hear pensioners saying ‘I’ve paid my NI, now I’m entitled to it’ it being the state pension, NHS treatment, warm home payments etc. The NHS thing is an odd one, of course they should get prompt treatment, but they are no more entitled to it than anyone else. We are now looking at the first generation of people who have literally had access to free healthcare from cradle to grave, but the vast majority don’t seem to understand that they have taken out far more in monetary terms than they ever paid in. It’s not their fault, it’s inflation. When they were young they paid in pennies but now require treatment that costs £thousands. This is really the fundamental problem we are facing. But of course most would rather blame refugees and the disabled instead of looking in the mirror!

Edited

You’ll be a pensioner one day yourself. Who will you blame then ?

BrumToTheRescue · 26/07/2024 08:13

Rosscameasdoody · 26/07/2024 08:10

I’ve had this as l’m the appointee for my mums’ attendance allowance. It’s just a reinforcement of the original appointee agreement and gives the appointee the chance to ask about anything they’re unsure of. As has been said, there is no legislation to control what the money is spent on and no responsibility on the appointee to justify expenditure.

I know! If you read both posts I have mentioned this i you will see nowhere have I said the appointee does have to justify expenditure. Quite the opposite.

Rosscameasdoody · 26/07/2024 08:12

Sirzy · 26/07/2024 08:01

I have never had to sign and return any sort of agreement for DS in the 10 years he has been getting DLA. A letter to tell me I am the appointee and that’s it.

You would have signed the appointee agreement at the beginning, to say you understand your responsibilities as such. Occasionally DWP will send out an appointee review form but they’re not interested in how the money is spent because you’ve agreed to spend it for the benefit of the disabled person.

RickyGervaislovesdogs · 26/07/2024 08:11

Milesandmilesandmiles · 24/07/2024 20:35

Thanks for all the responses! Interestingly many (not all) of the comments are supportive of claiming but the vote is very much not (currently 64% of people say IABU)

Yes, there are already plenty of hidden costs as we had to pay for a private diagnosis and (for example) DD doesn’t cope well with school holidays due to change in routine, meaning we need to take extra (unpaid) leave from work. She only eats certain foods so there is a cost to that rather than just eating family meals. Those are just some examples.

Yes, we pay a lot into the system - probably almost £150,000 in tax and NI between us. So net contributors there.

I think what might persuade me to apply is that many people have pointed out that claiming DLA as a child might make it easier for her to claim as an adult (if needed) which is definitely something to think about.

The money is for the child and extra costs associated. Your salary doesn’t come into it- it’s not means tested and even if it were the money isn’t yours as such.

I would apply- that’s was it’s there for and I’m a fraud manager.

Rosscameasdoody · 26/07/2024 08:10

BrumToTheRescue · 26/07/2024 08:04

DLA do sometimes send a review of appointee letter. It is the BF57B letter/form. It asks you to sign saying you understand your responsibilities. And it gives you a box to write in if you don’t understand something, want to ask something or want more information - and a box to include your contact number so they can contact you about anything you write in said box. It doesn’t ask about expenditure.

I’ve had this as l’m the appointee for my mums’ attendance allowance. It’s just a reinforcement of the original appointee agreement and gives the appointee the chance to ask about anything they’re unsure of. As has been said, there is no legislation to control what the money is spent on and no responsibility on the appointee to justify expenditure.

Rosscameasdoody · 26/07/2024 08:06

TigerRag · 26/07/2024 07:46

Its for extra disability related costs. Not to save for her future. And if it's saved this will affect any means tested benefits the OPs daughter may need to claim.

This is spot on. DWP literature states that Child DLA is not intended to be saved for future needs, beyond saving it for specific purchases to benefit the child. It points out that as the benefit is paid to the parents as appointees, any savings resulting from it would be taken into account for other means tested benefits. Savings are also taken into consideration by LA’s when deciding eligibility for disabled facilities grants, so any decision to save should be considered for it’s impact on other things.

BrumToTheRescue · 26/07/2024 08:04

Sirzy · 26/07/2024 08:01

I have never had to sign and return any sort of agreement for DS in the 10 years he has been getting DLA. A letter to tell me I am the appointee and that’s it.

DLA do sometimes send a review of appointee letter. It is the BF57B letter/form. It asks you to sign saying you understand your responsibilities. And it gives you a box to write in if you don’t understand something, want to ask something or want more information - and a box to include your contact number so they can contact you about anything you write in said box. It doesn’t ask about expenditure.