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DD current medical investigations and GP response

57 replies

Sparklybutold · 19/07/2024 18:25

Our beautiful DD has started investigations for either a genetic disease or a tumour. She is a toddler and will have to undergo lots of invasive testing over the coming days. Today I let her grandparents know. They asked which hospital, which I let them know, they then replied that it wasn't far and that they were now going to go visit a national trust. Cue a few hours later and DD grandma sent a photo of her trip.

I have posted in the past about the in laws lack of emotional intelligence but this has been particularly difficult today.

Should I say something or let it go?

OP posts:
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Ksqordssvimy · 19/07/2024 22:04

As a seriously ill person, I find people (and that includes those close to you) fall into two camps. Those that get it and those that don't. I don't know why. Some people are possibly more empathetic, or helpful. Maybe illness scares others. Could just be thoughtlessness or a situation they've never had to endure so don't really understand. It's a shit, scary time for you. My advice would be, lean on the people who are there and try and accept her for who she is.
I'm thinking of you - it's a frightening time, I hope you have some support.

howdydude · 19/07/2024 21:49

I'm shocked by some of the responses on here. Family drama?? OP must be so worried, it's it's totally inappropriate for the GP's to send pictures of their day trip. I would be sick with worry, no way I would be able to go out gallivanting

Plumpribbon · 19/07/2024 21:36

Tell them what you’ve written to us OP. That you’re scared and lonely. Say you’re tired and you need them to stay at the hopsital
for a couple of hours while you get sleep at home or Ask for a handhold when you have to go talk to the doctors or are waiting for her to come out from testing.
You have to ask, they will support you but be clear what you need.
That will change over time and in the coming weeks- so be very open with them. Tell them how you’re feeling (honestly) and what you need (honestly)

Plumpribbon · 19/07/2024 21:29

Ask for help if you need it. You can’t expect someone to mind read. Some people don’t want to feel like their are interfering etc.

Just ask what you need: food shopping, laundry done. I’m sure they will help.

Very gently, with the anguish you are experiencing, I think you’re taking out your pain on your in-laws, who will be none the wiser that they’ve upset you. This is honesty the least of your problems. Don’t create further upset for yourself

Sparklybutold · 19/07/2024 21:25

Plumpribbon · 19/07/2024 21:17

OP you’ve got a tough few weeks with all these tests. Don’t let this negativity take over your mind. Just ignore them. If they knew how much they’ve upset you, I’m sure they would feel bad.

Just concentrate on you DD and don’t try to judge others actions. It’s difficult for some people to express their feelings, doesn’t mean they don’t love Dgd.

I agree I think they would be saddened to hear this. I'm just tired, lonely and scared. When life hits you with shit, you just want someone to say ‘ive got you- what do you need?’. I guess its not just them I'm angry at but the fact I don't have any other family. Next week is going to be awful - she will have to undergo lots of invasive and scary investigations and I'm holding my head up for her so she knows I've got her, I just want someone to do that for me.

OP posts:
Sparklybutold · 19/07/2024 21:22

@Countymayo

No I'm not expecting hovering at the hospital would help but there are lots of other ways they could help if they thought to ask?

Even after today - just to ask questions about it? Ask how we are? It shouldn't be rocket science surely?

OP posts:
Sparklybutold · 19/07/2024 21:20

elliejjtiny · 19/07/2024 21:13

I'm so sorry you are going through this and that your in-laws are being so cold. I've been there with a child in and out of hospital and difficult inlaws. I understand that you're desperate for support and probably for someone to sit with your little one while you have a shower, go to the loo and get some food.

Yes! Just to be proactive. When she stayed with us a few weeks back she literally became another person to look after. Even when we went out and the cafe was closed but they had free tea/coffee so I got her a tea, she just looked at me after I handed it to her and said ‘its cold?’ with no proactiveness on her behalf to do anything about it. All the while I was caring for my daughter whilst she just watched. Got home, made everyone crumpets and she just sat there and ate her crumpets. Minimal interaction with the grandkids as she played on her phone whilst I was trying to get on with housework etc. Cue dinnertime, and she was served her dinner. Wine? Offered and received. Crisps? Offered an received.

Yup - I need to communicate when they do visit that this wont be happening.

OP posts:
Plumpribbon · 19/07/2024 21:17

OP you’ve got a tough few weeks with all these tests. Don’t let this negativity take over your mind. Just ignore them. If they knew how much they’ve upset you, I’m sure they would feel bad.

Just concentrate on you DD and don’t try to judge others actions. It’s difficult for some people to express their feelings, doesn’t mean they don’t love Dgd.

Countymayo · 19/07/2024 21:15

Sparklybutold · 19/07/2024 19:15

@combinationpadlock just to be present?

What they’re at the hospital taking up space and doing nothing effective? I truly cannot think of anything worse! Are they supposed to sit at home worrying? How does that help?

elliejjtiny · 19/07/2024 21:13

I'm so sorry you are going through this and that your in-laws are being so cold. I've been there with a child in and out of hospital and difficult inlaws. I understand that you're desperate for support and probably for someone to sit with your little one while you have a shower, go to the loo and get some food.

Sparklybutold · 19/07/2024 21:12

combinationpadlock · 19/07/2024 21:06

I think you are being quite unreasonable and demanding. Sending nice pictures is often a way of sharing something nice with someone who is having a bad day. I don't think there is anything they could have done which would be acceptable to you, whatever they did would be worng.

I don't think they are doing anything wrong in going about their normal business rather than dropping everything and running around like headless chickens at every family drama - that doesn't help anyone

Also ‘family drama’? Just reread that back to yourself to see whether you can grasp how awful that sounds in the context of whats happening here?

OP posts:
Sparklybutold · 19/07/2024 21:11

combinationpadlock · 19/07/2024 21:06

I think you are being quite unreasonable and demanding. Sending nice pictures is often a way of sharing something nice with someone who is having a bad day. I don't think there is anything they could have done which would be acceptable to you, whatever they did would be worng.

I don't think they are doing anything wrong in going about their normal business rather than dropping everything and running around like headless chickens at every family drama - that doesn't help anyone

And sending a nice picture when someone is having a bad day? Yes I agree that this can be nice but it is also important to ‘read the room’.

OP posts:
Sparklybutold · 19/07/2024 21:09

combinationpadlock · 19/07/2024 21:06

I think you are being quite unreasonable and demanding. Sending nice pictures is often a way of sharing something nice with someone who is having a bad day. I don't think there is anything they could have done which would be acceptable to you, whatever they did would be worng.

I don't think they are doing anything wrong in going about their normal business rather than dropping everything and running around like headless chickens at every family drama - that doesn't help anyone

To be clear - I wouldn't expect them to drop everything nor cancel there day, but asking the simple questions? Surely this isn't a big ask?

OP posts:
combinationpadlock · 19/07/2024 21:06

I think you are being quite unreasonable and demanding. Sending nice pictures is often a way of sharing something nice with someone who is having a bad day. I don't think there is anything they could have done which would be acceptable to you, whatever they did would be worng.

I don't think they are doing anything wrong in going about their normal business rather than dropping everything and running around like headless chickens at every family drama - that doesn't help anyone

Sparklybutold · 19/07/2024 20:50

LizzieBennett73 · 19/07/2024 20:45

My Mum just shows constant apathy, OP and it's miserable. All I can do is learn from it and never be that parent to my own DC. I've built a wall round me and my family, and rarely let the drawbridge down these days. My sense of self preservation kicked in a few years ago (better late than never) and it's been life changing.

I'm so sorry to hear about your DD. I would perhaps cancel their visit while you have so much going on, or message to warn them ahead of time that you won't be the hostess with the mostess on this occasion so can they bring food/drink and they'll need to make their beds up etc.

I'm sorry to read about your mum. I completely empathise with how miserable it can feel. I just don't expect it as I know I wouldn't dream of being so out of touch with my own kids and grandkids down the line. I am trying to go out, socialise etc, I see other grandparents and hear how involved they are, even the sister or my FIL who travels to support her daughter with her kids owing to chronic health conditions and yet FIL remains so aloof.

OP posts:
Sparklybutold · 19/07/2024 20:46

LizzieBennett73 · 19/07/2024 20:45

My Mum just shows constant apathy, OP and it's miserable. All I can do is learn from it and never be that parent to my own DC. I've built a wall round me and my family, and rarely let the drawbridge down these days. My sense of self preservation kicked in a few years ago (better late than never) and it's been life changing.

I'm so sorry to hear about your DD. I would perhaps cancel their visit while you have so much going on, or message to warn them ahead of time that you won't be the hostess with the mostess on this occasion so can they bring food/drink and they'll need to make their beds up etc.

I think I will let them know in advance that I won't be hosting like I typically do - I just don't have the energy.

OP posts:
LizzieBennett73 · 19/07/2024 20:45

My Mum just shows constant apathy, OP and it's miserable. All I can do is learn from it and never be that parent to my own DC. I've built a wall round me and my family, and rarely let the drawbridge down these days. My sense of self preservation kicked in a few years ago (better late than never) and it's been life changing.

I'm so sorry to hear about your DD. I would perhaps cancel their visit while you have so much going on, or message to warn them ahead of time that you won't be the hostess with the mostess on this occasion so can they bring food/drink and they'll need to make their beds up etc.

Sparklybutold · 19/07/2024 20:45

Zanatdy · 19/07/2024 20:41

Remember they are not a generation of people who have communicated via text message for long. In the not so distance past the news would have been communicated via Telephone and maybe that’s better as you can have a conversation about it. Unless they send long caring texts on a regular basis I’d put it down to them not being comfortable with texting about such serious news. Wishing your DD all the best

I think you're right and this does form part of it. I know I put unrealistic expectations on them but then there's a fine line between
‘Fair enough that's the way they are’ to ‘no, that's not acceptable behaviour and actually a more proactive response is needed and deserved?’

OP posts:
Sparklybutold · 19/07/2024 20:42

@Justrelax

Interesting viewpont. One I hadn't considered.

🌸

OP posts:
Zanatdy · 19/07/2024 20:41

Remember they are not a generation of people who have communicated via text message for long. In the not so distance past the news would have been communicated via Telephone and maybe that’s better as you can have a conversation about it. Unless they send long caring texts on a regular basis I’d put it down to them not being comfortable with texting about such serious news. Wishing your DD all the best

Sparklybutold · 19/07/2024 20:40

@combinationpadlock

Yes he was unconscious but present as in emotionally present. Offering practical support. Is this expecting too much from grandparents?

How can grandparents spend time at a wedding whilst one of there grandchildren lay in a hospital bed unconscious?

OP posts:
Sparklybutold · 19/07/2024 20:38

Pinkypinkyplonk · 19/07/2024 20:31

I’m so sorry for what you’re going through, and wish you all the best.
With regards to the G parents, they’re obviously not up to the job. Limit what you share with them in the future to spare yourself the upset.
Just lower the bar, they’ve shown you who they are.

I just remain gobsmacked at there responses. There other son told them a few weeks ago about a significant event in his life and when I asked for an update recently, his mum didn't know, literally hadn't thought of contacting him to see how he was.

OP posts:
combinationpadlock · 19/07/2024 20:36

Sparklybutold · 19/07/2024 19:15

@combinationpadlock just to be present?

present where? why? the child was unconscious?

Justrelax · 19/07/2024 20:34

Sparklybutold · 19/07/2024 20:28

Its either one or the other. Her clinical presentation is beyond what could be considered’normal’. Her grandparents are aware of the symptoms and so will know its serious enough to be something requiring invasive investigations and active, possibly long term treatment.

Sorry to press the point but are you ABSOLUTELY sure they understand the severity of the situation? I'm not trying to second guess you - here's my angle. I'm the parent of a disabled child. The grandparents on one side were adamant for a very long time that they 'couldn't see' my child's very obvious signs of disability and even post-diagnosis and extensive treatment, they still either don't mention it or claim that they don't really see it. I'm not sure if it's being blinded by love or old-fashioned stiff upper lip but it's annoying and just made me wonder if that was the case with you. Like if they admit it it somehow tarnishes their beloved DGD maybe. Sorry you're going through this. x

Pinkypinkyplonk · 19/07/2024 20:31

I’m so sorry for what you’re going through, and wish you all the best.
With regards to the G parents, they’re obviously not up to the job. Limit what you share with them in the future to spare yourself the upset.
Just lower the bar, they’ve shown you who they are.

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