Please or to access all these features

AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To think she doesn't *really* have coeliac disease?

160 replies

CookiePookie · 19/07/2024 17:00

Coeliac disease - I understand from other friends who have been diagnosed with this that it's tricky but OK to deal with being gluten-free forever. My MIL has been diagnosed with this a year or so ago. Out of the blue she just announced she cannot have gluten any longer, and has Coeliac disease.
Just a bit of history - my opinion is that she seeks attention in all situations. My husband and my wedding - she demanded my private list of 'to-do' items including such things as 'wax bikini line', and when I did not give it to her she threatened not to come to the wedding until I apologised. Now, she may have CD and we always get in lots of gluten-free foods when they visit. She always asks in restaurants for the GF options. (and bemoans how poor they are). But most times we see her she will eat something containing gluten, like a regular biscuit or a bit of batter off fish and chips my FIL is eating. Can you just have a minor allergy to gluten? But she does insist it's Coeliac disease.

OP posts:
MyPeppyTaupeFox · 19/07/2024 17:48

I know someone like this. It's exhausting especially cos others in our group have legitimate food needs including anaphylactic allergies so it really severely limits our already limited options (absolutely no issue with legit food issues but I hated that mine were always trumped by the clearly fake one!)

Rosebud21 · 19/07/2024 17:47

@Luminousalumnus for your nephew 😀www.tesco.com/groceries/en-GB/shop/drinks/beer-and-cider/gluten-free-beer

Birdingbear · 19/07/2024 17:45

She can watch the same foods but it will cause her to have a sore tummy and need to go to the loo. I know someone with it who pretty much ears what he wants and it's not pretty.

irishmurdoch · 19/07/2024 17:44

CD is an autoimmune condition - the body's immune system attacks the intestinal lining causing inflammation, malnutrition, and 300-odd other symptoms including neurological/skin issues and bowel cancer. You can't be 'a bit' coeliac - even a molecule of gluten can set off a reaction, snd sometimes even proteins that the body mistakes for gluten, like avenin.
Going by her behaviour, she is more likely to be gluten intolerant, which causes IBS-like symptoms.
Having said all that, some people have silent CD, where symptoms aren't obvious but damage is being stored up for later, so if she does really have CD, she needs to be more careful!

wilteddandelion · 19/07/2024 17:43

I will say - it doesnt make me violently ill as in diarrhead/vomiting but I am very bloated all the time and have nerve damage in my lower legs and hands, chronic anaemia, dizziness fatigue and chronic pain.

MrsBuntyS · 19/07/2024 17:42

I have been completely gluten free for 7 years after being diagnosed with coeliac disease. (DNA and biopsy) if I eat even a tiny bit I vomit. Horrible. My DS also has it and can eat gluten without any symptoms. My dad who also has it is the same as me, if he eats gluten he is very ill. But dad can eat oats and I absolutely can’t. Everyone is different I think.

wilteddandelion · 19/07/2024 17:41

I have diagnosed coeliac and don't eat gf at all because I can't afford it.
What people do/do not choose to put into their own bodies is their concern and nobody else's.

Aussieland · 19/07/2024 17:37

Apolloneuro · 19/07/2024 17:27

Coeliacs cannot just eat a biscuit. They would be very ill.

This is not true for all coeliacs!

Luminousalumnus · 19/07/2024 17:36

FuzzyStripes · 19/07/2024 17:11

Coeliac isn’t an allergy. Some people knowingly decide a small amount of gluten is worth the consequences but for most people with the disease, once you cut out gluten altogether it’s horrendous to have even a small amount in your diet.

Absolutely. It's not an allergy. Nephew was biopsy diagnosed 25 years ago. Usually he is very stringent. Occasionally he will have a beer. And get somewhat ill.

DataPup · 19/07/2024 17:32

You can have coeliac disease and not be violently ill after consuming gluten. It's still doing damage internally but there can be no apparent external symptoms.

TheShiningCarpet · 19/07/2024 17:32

To be honest I wouldn’t give it head space.

MrsCarson · 19/07/2024 17:31

Testing for CD doesn't include poo samples being tested.
They do blood tests, a Coeliac panel. Then if that shows positive an endoscopy to get biopsies from the stomach lining.
My CD didn't cause any of the usual gastric symptoms. After years of being GF I now get stomach ache when glutened.

KikiShaLeeBopDeBopBop · 19/07/2024 17:30

Coeliac disease is a serious bowel condition where gluten damages the bowel. Even a molecule of gluten causes damage.

If she says she had it, believe her. If she's stupid enough to continue to consume gluten, that's on her. The point is, it's her choice to do so and to live with the resulting consequences and even if you see her snaffle an entire pack of hobnobs it's not ok to give her something containing gluten.

She's probably finding it difficult to make the dietary switch, some people do.

She should also have completely different cooking implements, pans and preparation area which never come into contact with gluten (since molecules can stick into miniscule scratches for a long time).

As someone who has a different condition resulting in a severely restricted diet, its bloody hard, especially when out at restaurants or other peoples home. I can understand why she might sometimes think its easier to put up with pain than make a fuss

BobbyBiscuits · 19/07/2024 17:28

If she was celiac eating a biscuit or fish batter would make her incredibly unwell. No celiac would ever choose to do that.
She could have a wheat or gluten intolerance. That means you get varying degrees of bloating/discomfort but often can tolerate small amounts, like maybe one biscuit.
Id take her word for it she feels gluten doesn't agree with her, and politely serve non gluten food if she does eat at yours.
But she sounds awful tbh. Food habits non withstanding. I'd just keep minimal contact bc she's an arse, rather than worry about the sensitivity of her bowel. Haha.

Apolloneuro · 19/07/2024 17:28

It’s called ‘being glutened’ and is unpleasant.

Apolloneuro · 19/07/2024 17:27

Coeliacs cannot just eat a biscuit. They would be very ill.

CookiePookie · 19/07/2024 17:25

Bluebirdover · 19/07/2024 17:02

What did she say when you wouldn't apologise or give her your personal to do list?

What does she say when you point out the biscuit is not GF?

Just 'it's fine' to the biscuits... and the apology, of course she came anyway to the wedding.

OP posts:
masomenos · 19/07/2024 17:23

Forget the coeliac disease: what on earth did she want with your wedding To Do list??? I can’t think of a single reason a MIL would want that!

RottenApplesSpoilTheLot · 19/07/2024 17:23

one of my DSis has gluten intolerance, the other has CD. Very different! The Sis with coeliac has to be super careful.

nooobeginnings · 19/07/2024 17:22

CD is tested for in a lab. They send your poo away I think and then have to try and culture it over several weeks to see if you have CD. I was tested and didn't have it.

I do however sympathise - a lot of wheat containing foods are highly processed e.g. British bread (its an embarrassment compared to other cultures). Gluten free bread simply contains other highly processed ingredients. Whereas sourdough is usually just wheat and flour. However these options are more expensive.

I've flip flopped into telling people I'm gluten free in the past but now I just buy the more expensive breads like sourdough and Crosta Mollica. Its helped my gut health a lot such that I don't have to super strict at all times as the bulk of my diet is free of ultra processed ingredients.

In short diet is confusing about what we should be eating and it takes a while to figure out what works for you and it may change over a lifetime.

LoveSandbanks · 19/07/2024 17:18

I have non coeliac gluten allergy. I can get away with eating a couple of chips that have been fried in oil and with malt vinegar on them but a biscuit would have me breaking out in hives with skin swelling and joints swelling, along with a digestive system that slows to a crawl. The last time I had gluten I also had a sense of impending doom and panic.

what I’d give to be able to enjoy a Chinese takeaway.

NeverDropYourMooncup · 19/07/2024 17:15

Some people with coeliac don't adapt too well and occasionally can't resist a taste of the things they're missing, even though it has consequences you won't be there to witness. This is even more common with what's called silent Coeliac, where there's no direct observable impact from eating something, as all the damage is happening inside.

I worked with somebody like that - very occasionally, she'd have an I HATE THIS DISEASE moment and eat a packet of Mini Cheddars. I don't, because although it's a bastard of a disease, I have symptoms following cross contamination far too frequently to deliberately do that to myself.

Aussieland · 19/07/2024 17:13

She might have coeliac disease. Some people are asymptomatic. She absolutely shouldn’t be eating gluten but some people can get away with small amounts. (I also projectile vomit with any accidental ingestion more than a crumb) Has she had biopsies/blood tests?

ThistleWitch · 19/07/2024 17:13

Its not important whether she has it - the issue is that shes a crappy bossy friend and you dont really like her?

Chickychoccyegg · 19/07/2024 17:11

I have coeliac disease, if I have gluten I come out in a severe rash,blisters, feel/can be sick, literally feel awful.
My friend has gluten intolerance, she is to have no or low levels of gluten as advised by Dr, she becomes bloated, constipated, feels nauseous, but will on occasion have a some gluten ,if she feels its worth the risk, doesn't get a reaction with small amounts really.
So there are wide and varied reactions to gluten.

Swipe left for the next trending thread