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To be annoyed at GP attributing physical health problems to mental/emotional state

55 replies

Betty789 · 11/07/2024 21:55

I have ongoing unresolved health issues.

Might be long covid, or an autoimmune issue...lots of investigation going on.

It is very frustrating, and it's causing me no end of stress and worry as I don't know what's wrong and I'm worried I won't be able to keep working.

Whenever I have a bad spell, or am in for tests, the GP always makes a comment about my emotional state. Today I was in for bloods and was explaining my concerns about seeming to catch so many more bugs now, which impact on my ongoing condition. I wondered if there was some reason my immune system was low, and she waffled something me being susceptible to catching things with my "physical and emotional stress".

I also noticed in my notes that she had put me down as being "distressed" at some point.

What I am, is incredibly pissed off that i have experienced this spell of ill health which is currently unexplained and with no end in sight! Prior to becoming ill I was not stressed or distressed in any way, and I don't understand how this has somehow become part of my "case"!

AIBU to think it is unhelpful to have this emphasis on my (presumed) emotional state in my notes? I really just want to find out what's wrong with me!

OP posts:
leeverarch · 12/07/2024 14:34

Motherrr · 11/07/2024 23:17

Hi, nurse here. I can understand you being annoyed but there is so much evidence now about how the mind, mental state, stress etc affects the body. In so many previously unrecognised ways. They aren't the separate systems that they were once thought to be. So your GP could well be on to something. I hope you feel better soon 💕

Well yes, but more often than not, your mental state is not causing your physical symptoms. You feel stressed and miserable BECAUSE you physically feel rotten, and it is even more stressful when your GP doesn't take your physical symptoms seriously.

sugarbyebye · 12/07/2024 14:29

The mind isn't separate from your body. Mental anguish causes physical symptoms. Both need treating. This is why Western medicine isn't enough for lots of people, they need holistic support too. Yoga, meditation, things that help you focus away from the pain.

Betty789 · 12/07/2024 14:25

How did people finally get their diagnoses?

OP posts:
Betty789 · 12/07/2024 14:24

I'm so sorry everyone has had these experiences. My GP is female, which I'd always thought was good, no problem with prescribing HRT for example. So I'm baffled and annoyed as to why I now seem to be suffering mainly from "emotional distress". Interestingly there has been no suggestion for treatment for this! I just have to rest and give it time. Ffs

OP posts:
Funnywonder · 12/07/2024 13:54

It took DP several years to be diagnosed with a debilitating autoimmune condition because it was repeatedly dismissed as being all in his head. He saw that one of the GP's had scribbled 'seems very anxious' on the inside cover of his file (before the days of everything being computerised.) Well of course he was anxious. Nobody was taking him seriously. And the stress of worrying made the condition worse. It didn't cause it. And, what's more, the same thing happened to him AGAIN with another autoimmune condition (albeit a rarer, harder to diagnose condition.) One GP said 'Don't worry. Nobody has ever died of these symptoms.' Oh, that's ok then. So patronising. He was told to go to bed earlier at night and to stop focusing on his symptoms!

voiceofastar · 12/07/2024 13:24

girlwhowearsglasses · 11/07/2024 23:53

Yanbu

there is a brilliant book called ‘Unwell Women’ by Elinor Cleghorn about the interplay between women’s illness and the male world of medicine. Fascinating and enlightening.

Hope you feel better soon

This is such a great book, well worth reading.

God help women with a history of trauma and/or MH problems who feel physically unwell. It's like it's not possible to have both. Books like The Body Keeps the Score really don't help with this either.

Allthehorsesintheworld · 12/07/2024 12:37

SpooderMon · 11/07/2024 23:29

Yanbu. Woman are treated so badly in the NHS and it's so deeply embedded in their culture that it will never change.

I recently made a similar post under another name. I've had multiple appointments with my GP since the start of the year for lower back pain.

I keep telling them it's coming from inside where the organs are and they keep telling me it's 'muscular'. After 7 or 8 appointments, they have decided to prescribe me antidepressants and told me to loose weight, instead of listening to me and finding out the cause.

Surprise, surprise. Yesterday I pissed out a 1-2mm kidney stone!!! The pain is now gone and I feel normal again. It turns out the meds I take, make me a higher risk of developing them.

If they had listened to me instead of treating me like a hypochondriac, I might not have suffered for 7 long months! I am livid.

Bloody hell, I bet that was painful. I really hope you’re feeling better now.
The losing weight is also a common cure all. Friend was told for 4 years her weight was causing all her problems. Four years. Then she woke up one morning unable to see. She had a brain tumour on her pituitary gland which was causing all the symptoms but the GP was convinced it was all because she was overweight.

ApolloandDaphne · 12/07/2024 12:36

I have had this too. I have a sore hip. Loads of tests but nothing diagnosed. I keep on top of it with visits to the physio. Sometimes it is very sore and i struggle to sleep so my mood is low. If it isn't too sore and I sleep well my mood is good. Last time i went to the GP all she focussed on was my mood and she prescribed anti depressants. I don't want any depressants. I want my hip not to hurt and to sleep well! I am no further forward with the hip pain.

StormingNorman · 12/07/2024 12:33

Welcome to chronic illness! Unfortunately, this will be a recurring theme.

pointythings · 12/07/2024 12:32

There was an excellent article in The Guardian about this a few days ago. Basically medicine is inherently misogynist and women's concerns are routinely dismissed. It's unacceptable.

curiouscat1987 · 12/07/2024 12:31

Totally feel you on this. When i was suffering from a set of symptoms for years, id had a test for something that came back within normal range. I asked the gp what the reference range used was, as i was aware there'd been a recent NICE recommendation to lower the range fairly substantially. He looked at me and announced 'you seem disappointed, its like you want to have something wrong with you'. I was fuming, and couldnt on the spot explain that there already was in fact something wrong with me and i just wanted a name for it!

Later went private with specialist in the area and got the diagnosis for what id suspected all along and the gp had assured me it wasnt.

Iheartmysmart · 12/07/2024 12:29

My mum was fobbed off repeatedly by her male GP when she went with some worrying symptoms. He told her on numerous occasions over several years that she was stressed and anxious and to try practicing mindfulness. Nope, she’s got Parkinson’s as both me and my sister suspected. All the classic signs. Had she been taken seriously in the first place the disease would be nowhere near as advanced as it is.

I wanted to make a formal complaint about the GP but mum won’t let me.

Betty789 · 12/07/2024 12:19

@user1471526265 I'm so sorry to hear that, it's just crap isn't it. I totally get what you're saying.

OP posts:
user1471526265 · 12/07/2024 09:56

That's exactly how I feel. I was doing just fine before getting sick. Sure, my mood is a bit all over the place and I'm frustrated and angry, but I'm in pain every day, too dizzy or fatigued to do more than the bare minimum each day. My "life" is very restricted by this to the point that it's really little more than existing. I'd be surprised if anyone in this position wasn't a bit depressed quite honestly.

Betty789 · 12/07/2024 09:48

I don't know if these are depressing or reassuring to read!
Sorry to hear from those of you that are struggling.
@user1471526265 I suspect long covid but my GP seems disinterested in that.
I am tempted to pay to see a private GP just to get a fresh set of eyes on it, but am pissed off that my notes will have me down as a hysterical person!
@Motherrr I absolutely agree with what you are saying. I think the link between mind and body is fascinating and it's scary what stress for example can do to you physically. But I was ticking along quite happily until my body decided to stop working!

OP posts:
user1471526265 · 12/07/2024 00:59

It's not just the NHS. I'm in Ireland and get the same kind of stuff every gp visit.

I was fit and healthy with normal BP, cholesterol, relatively pain free, held down a full time job, 2+ hour daily commute, kids, husband and all that family life entails etc etc until I caught covid.

Now finally being seen in the long covid clinic but it wasn't until I had tried hrt, antidepressants, cbt etc etc that they decided to refer me. 8+ month waitlist for neurological appointment, sleep clinic, cardiology etc, but closer than I was for the last 3 years.

girlwhowearsglasses · 11/07/2024 23:53

Yanbu

there is a brilliant book called ‘Unwell Women’ by Elinor Cleghorn about the interplay between women’s illness and the male world of medicine. Fascinating and enlightening.

Hope you feel better soon

Echodaisy7 · 11/07/2024 23:53

There is definitely medical misogyny. It makes me very angry. Today I read an article on BBC news about a 23 year old girl called Carla Naoum who has very severe ME/CFS. She's completely bedbound, unable to eat, light sensitive, in extreme pain. She's in hospital currently and the doctors are treating it as psychological, she has a psychiatrist telling her she needs to "calm down" and "stop screaming" and they took away her pain meds and refused to turn the lights off

Her dad in the article says she's screaming because she's in pain and he's scared she's going to die

Now tell me a 50 year old man who went into hospital with the same symptoms would be treated like that...

Spacebarn · 11/07/2024 23:47

My daughter (early 20s) begged her GP/NHS 24 to take her symptoms seriously during the first lockdown and was told it was mental health issues because she had been on anti depressants as a teen. She had Idiopathic Intracranial Hypertension and very nearly lost her sight permanently. She was eventually diagnosed at an opthalmology appointment she had to beg for over the phone. She was literally going blind due to the pressure on her optical nerves and nobody would believe her. Healthcare provision for women can be abysmal in this country

Europeisourplayground · 11/07/2024 23:36

This reply has been withdrawn

This has been withdrawn by MNHQ at the request of the author

MedicalCannabis · 11/07/2024 23:32

Oh doctors all seem to be useless condescending buggers these days. One of these days I'm not going to cower under the power imbalance and I'll actually answer back to their ridiculous gaslighting!

SpooderMon · 11/07/2024 23:29

Yanbu. Woman are treated so badly in the NHS and it's so deeply embedded in their culture that it will never change.

I recently made a similar post under another name. I've had multiple appointments with my GP since the start of the year for lower back pain.

I keep telling them it's coming from inside where the organs are and they keep telling me it's 'muscular'. After 7 or 8 appointments, they have decided to prescribe me antidepressants and told me to loose weight, instead of listening to me and finding out the cause.

Surprise, surprise. Yesterday I pissed out a 1-2mm kidney stone!!! The pain is now gone and I feel normal again. It turns out the meds I take, make me a higher risk of developing them.

If they had listened to me instead of treating me like a hypochondriac, I might not have suffered for 7 long months! I am livid.

Echodaisy7 · 11/07/2024 23:20

Betty789 · 11/07/2024 22:36

Thank you, these are really helpful and interesting responses. I feel less annoyed already!
I don't think she thinks I'm making it up...but I do get a sense that she feels I am somehow emotionally stressed as well as being physically* unwell, whereas I feel I am upset/worried because I am physically *unwell. And if I got better physically I'd be very happy and fine!
I understand that chronic conditions can lead to secondary depression, but I don't think that's what she is referencing.
@Echodaisy7 it's early days, and they have ruled out things such as RA, lupus, any form of cancer. Bloods are mainly fine so I think it will boil down to a diagnosis of exclusion with something like long covid. Although obviously I'm hoping not.
I did wonder about POTs actually, what were your symptoms?

For me it causes difficulty standing or walking. As soon as I stand up I get an adrenaline rush in my chest, and my heart races, I get shortness of breath and tight chest. I also get lightheaded, and have very poor stamina/exercise tolerance. And I get the classic blood pooling - where your legs, feet and hands go blotchy or purple with standing.

The way to test for POTs is to lay down and check your resting heart rate. If when you stand up your heart rate jumps by 30 or more within 10 mins, and stays that way for an extended period, that is a sign of POTs. Easy to track with a smart watch. Mine will sometimes jump 60 or 70. My GP tested me and my heart was going 148 just standing there after like 3-4 mins. It's a horrible condition.

I also have a lot of fatigue and stomach issues, but it's hard to know if that's related to POTs or my Hashimoto's.

I hope you figure it out!

Motherrr · 11/07/2024 23:17

Hi, nurse here. I can understand you being annoyed but there is so much evidence now about how the mind, mental state, stress etc affects the body. In so many previously unrecognised ways. They aren't the separate systems that they were once thought to be. So your GP could well be on to something. I hope you feel better soon 💕

Beetrootcocoa · 11/07/2024 22:39

my GP once put down my child’s symptoms to my anxiety !!! I had to keep going back and begging for help. In the end they said ‘ok we will do the tests you are requesting but we aren’t happy as it’s for you benefit to alleviate anxiety’ … we were then at a and e less than an hour later. It was mother’s intuition not anxiety

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