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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

Once spent most of the past 3 years in bed, without anyone knowing…

112 replies

SinkingFeelingSoph · 03/07/2024 16:04

Late 40s, one young child. After I’ve got DC off to school I have zero energy to clean or work or do anything really. I sort of zone out and often go back to bed. I then go get DC from school and function til their bedtime. Then I’m exhausted again.

Nobody knows. I’m a single parent and look presentable when out. But I’m barely living.

On antidepressants recently and feel
even more frozen. Tried HRT but even under the guidance of a well-respected professional, couldn’t get the dose right (suspected PMDD) and felt suicidal. Better off it and too scared to experiment again.

Hate the small town I live in. I need help but having talking therapy and telling the GP has done nothing.

I don’t know what to do. Feel I’m living in The Hours, or as an incapacitated retiree. I spent years in an abusive relationship and still need to deal with him. Sounds extreme but I feel I’m in some sort of prolonged PTSD

OP posts:
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GenAvocadoOnToast · 15/06/2025 19:24

I’m really glad you’re in a better place OP, thanks for updating. I went through the first couple of pages again and saw I posted saying I felt similarly and was just about to start ADHD medication. Happy to report that Elvanse has been an enormous help for me. I went from needing to go back to bed every day to only once in a blue moon when I felt unwell or the PMDD was particularly bad, and my motivation increased enormously. Getting stuff done became a hobby. I hope a diagnosis is helpful for you too, whether you choose to take medication or not.

Iamtired123 · 15/06/2025 16:22

Anti histamines and birth control are good for PMDD

Summerpigeon · 15/06/2025 16:11

Sorry , I only just saw you asked me how getting a diagnosis helped me .
I thought I had bipolar,I was so sure that was what was wrong with me
It turned out my moods were shutdowns and meltdowns..I had no idea at all.
I still don't really understand autism very much
My brain can't concentrate enough to read the huge piles of books I have on it .
I was tried on every antidepressants possible,and I could feel them working within hours of taking one ,just turning me in to a zombie.so none of them were suitable for me .they stopped me from reacting in dangerous situations.
I'm awaiting ADHD meds , hopefully this year .
But since diagnosis,I'm kinder to myself,I say no a lot more to things and people I know are not good for me .
I do understand myself better,and things I felt I shouldn't or should be doing because other people did the same ,I now give myself permission to not be same as everyone else ...if that makes sense.
I'm still struggling, diagnosis hasn't been a magic wand.but it has given a sense of peace within myself,and I'm forever greatful to the NHS for diagnosing me ,as an adult I thought i wasn't a priority,and thoroughly expected to be told to get a grip .but it just took one doctor to actually care enough to refer me ,and he made all the difference to my life ,after a lifetime of being dismissed by other doctors

Codlingmoths · 15/06/2025 14:24

aww this is a great update, I’m so happy to hear you’re doing much better. A year isn’t long in the grand scheme of things. Stop, copy the link to this thread, and put it in a reminder for this time next year :)

SinkingFeelingSoph · 15/06/2025 14:18

hi all, thought I’d give an update a year on. I got into a new relationship shortly after writing this, I think partly thanks to the sertraline helping me function normally (not on it anymore because of side effects). That seemed quite healing - although of course was an external thing rather than looking into myself. But helped me get out and about. And I’m part-way through an ADHD diagnosis, but ASD is also seeming likely. I got a three-day a week job (one day in the office) which is overwhelming but gives me some structure. The relationship is currently on the rocks (he has undiagnosed quite severe ASD) and we both experience Rejection Sensitive Dysphoria so that’s been hard. Bi-weekly therapy has been helpful. I started taking progesterone and that helped! But was off licence and now have been switched to something else I’m nervous to take. Have found support with friends who have experienced similar… also a saffron supplement seems to help mood stay stable.

So many women seem to be suffering and struggling for answers. There’s a woman on IG - mrspaularickard who is researching the link between ADHD, trauma and how it affects our hormonal sensitivity and brain function. But still no real answers yet!

But despite the relationship drama, I’m in a better place than this time last year. Just rereading this thread and there’s so much good advice and support. Thank you all

OP posts:
Differentstarts · 04/07/2024 23:08

Meadowwild · 04/07/2024 16:09

What dietary changes did you make? That would interest me. My energy and motivation have dipped a lot recently due to stress.

Keto, but even just cutting portion sizes and potentially eating 4 small meals rather the 1 or 2 larger meals. I think eating heavy carb meals messed up my blood sugars (I'm not diabetic), and kept putting me in food comas which made me sluggish all the time.

Theothername · 04/07/2024 21:20

I don’t mean to focus on your house particularly but A Slob Comes Clean is a brilliant resource when you’re overwhelmed and underpowered. Hugely understanding, non judgemental and very attuned to neurodiverse brains.

Meadowwild · 04/07/2024 16:09

Differentstarts · 03/07/2024 20:16

I could of written this needed 15 to 18 hrs of sleep a day to function. Suffer with severe mh conditions and physical health issues and take a ridiculous amount of meds a day. I know your going to roll your eyes at this as I did to but changing your diet works wonders iv never had so much energy and theirs a lot of studies showing mental health and gut health are closely linked.

What dietary changes did you make? That would interest me. My energy and motivation have dipped a lot recently due to stress.

Stripesandchecks543 · 04/07/2024 13:10

Sorry about the strange formatting in my last post, not sure what happened when I edited it, but hope essential info still clear. My executive function could do with improvement too 😆

Stripesandchecks543 · 04/07/2024 13:07

SinkingFeelingSoph · 03/07/2024 21:14

@Stripesandchecks543 goodness, that is so spot on. I’m totally unaligned and gone down the wrong path, and feel utterly out of control of my own life. My ex “placed” me for want of a better description, in a cheap, deprived part of the country where he had an house. I’d always lived and worked in a big city so have absolutely struggled with that - and unable to work making me dependent on him. Long story but I’m clearly too in freeze mode to properly sort it, as he becomes abusive if I try (it suits him to keep me like this).

Going from an affluent part of London in a nice house, to the opposite isn’t easy - plus all the health issues, I can see how I got here.

Thank you for the excellent insight. I must start with small steps. Volunteering. I do do some work but it’s from home, so not helping much

Heavens op. Anyone would feel depressed in the circumstances you find yourself in. It's a totally understandable and sane response to not having autonomy over your own life and your own decisions.

Getting back on your feet with your MH, or at least having evidence to show to job centre or benefits agency could possibly help perhaps? Or help you explore strategies that will help your executive function issues?

Perhaps seeking an ASD or ADHD diagnosis might help:

www.autism.org.uk/what-we-do/autism-training-and-best-practice/diagnostic-services]]" rel="noopener noreferrer" target="_blank">https://www.autism.org.uk/what-we-do/autism-training-and-best-practice/diagnostic-services]]]]

And maybe the Freedom Programme will help you with your abusive ex:

www.freedomprogramme.co.uk/]]" rel="noopener noreferrer" target="_blank">https://www.freedomprogramme.co.uk/]]]]

Ditto, Women''s Aid: www.womensaid.org.uk/]]" rel="noopener noreferrer" target="_blank">https://www.womensaid.org.uk/]]]]

refuge.org.uk/i-need-help-now/coercive-control/]]" rel="noopener noreferrer" target="_blank">https://refuge.org.uk/i-need-help-now/coercive-control/]]]]

Good luck op. I really am batting for you. 💐

One's life does get put on hold to a certain degree when you are in sole control of a young child but you might take small, incremental steps to help yourself towards greater independence once he is a little older:

In terms of housekeeping, there is a very helpful and friendly long-running thread on here that follows the best bit of the Flylady system; looking under housekeeping topic:

www.mumsnet.com/talk/housekeeping/5108212-july-flylady-thread-would-july-k-to-join-us]]" rel="noopener noreferrer" target="_blank">https://www.mumsnet.com/talk/housekeeping/5108212-july-flylady-thread-would-july-k-to-join-us]]]]

And another very simple app which helps is the TOMM method especially the clean along podcasts:

theorganisedmum.com/]]" rel="noopener noreferrer" target="_blank">https://theorganisedmum.com/]]]]

Apolloneuro · 04/07/2024 12:39

In the functional medicine world, optimal ferritin level is at least 100. You know you can buy iron tablets over the counter and they won’t hurt you.

Andante57 · 04/07/2024 12:38

I agree with pp who have suggested you get your thyroid checked - if this hasn’t already been done.
I felt exactly as you describe and when it was eventually diagnosed I started on thyroxine and within 10 days I felt a completely different person.

Meadowwild · 04/07/2024 12:31

GenAvocadoOnToast · 04/07/2024 11:24

Or do you mean specifically @Meadowwild? After a few weeks it gave me unbearable akathisia. I felt like my blood was full of ants trying to jump out of my skin. I persevered in the hope it would go away but it didn't. It's a thing with antipsychotics unfortunately, although I think most don't experience this with aripiprazole.

Edited

Sorry, yes that is what I meant. What a shame.

SinkingFeelingSoph · 04/07/2024 12:14

@Meadowwild thank you - that’s so helpful. It does feel like a perfect storm or the “dark triad” for sure. Glad you came out of it. Love those 5 minute tips

I decided to get Floradix today as my last iron level was 10, which is basically anaemic. Vitamin d I have but need to be a routine to take it

OP posts:
SinkingFeelingSoph · 04/07/2024 12:09

@ElecticBetty the other one beginning with M apparently causes considerable weight gain, my GP said… still with the potential side effect I didn’t like. I was also tired on it but didn’t last very long in it to see if that went away. Buproprian was another drug I tried but it seems to increase the rage episodes

OP posts:
ElecticBetty · 04/07/2024 11:53

SinkingFeelingSoph · 04/07/2024 10:57

Venlafaxine did also work for me actually. But it gave me a particular side effect I couldn’t cope with. Interestingly it’s used as off-label ADHD medication too

Have you trialled a different SNRI? might be worth a go - I’ve found it much better for fatigue.

GenAvocadoOnToast · 04/07/2024 11:24

Or do you mean specifically @Meadowwild? After a few weeks it gave me unbearable akathisia. I felt like my blood was full of ants trying to jump out of my skin. I persevered in the hope it would go away but it didn't. It's a thing with antipsychotics unfortunately, although I think most don't experience this with aripiprazole.

GenAvocadoOnToast · 04/07/2024 11:21

Meadowwild · 04/07/2024 11:19

Why did you have to come off it, if it was working so well? It sounds like a miracle drug. I want to try it!

Edited

I said in my post, because I started to experience a debilitating side effect.

Meadowwild · 04/07/2024 11:19

GenAvocadoOnToast · 04/07/2024 11:10

I've had similar difficulties with antidepressants. Low dose aripiprazole (an antipsychotic) worked absolute miracles for my depression and (then undiagnosed) ADHD. I was full of energy, life, motivation and productivity. I think I got more done in those couple of months than in the almost 10 years since. Interestingly, at low doses it's been found to have a dopamine-stabilising effect. I had to come off it because I started to experience a debilitating side effect. The depression stayed away but all of the ADHD symptoms came back, I was gutted. I've never found anything like it since.

Why did you have to come off it, if it was working so well? It sounds like a miracle drug. I want to try it!

Meadowwild · 04/07/2024 11:18

Dear OP,

I had a few years just like that. Awful. Felt such shame about them. They were linked to a sort of dark triad: perimenopause, depression and vitamin and mineral deficiencies. I already had them, but then had appalling post-viral fatigue and they got worse and worse. No idea what came first but I had to work on all of them.

Did you have Covid? Could it be long Covid or other post-viral fatigue?

If you haven't already, I'd get hold of some herbal iron capsules like Floradix (expensive or feroglobin (similar but slightly cheaper.) Also please get some Vitamin D spray. D-deficiency is very common and its key symptom is acute sleepiness. If either of these are the problem, you should start to feel a fair bit better within a few days. Also take Vit B complex tablets. They are cheap. B-deficiency is very common in people with depression.In total, they should come to about £20-25. It may seem like a lot of money, if you are a single parent with no job, but I'd live on value beans for a week to buy these and try them.
You could ask the GP for blood tests but NHS ideas of suitable levels are not always in line with optimal health. They might say you're fine but you might still see a big difference.

In terms of doing stuff - I started very small. Try Flylady's 5-minute tidy ups. They are unbelievably powerful. In 5 mins you can open windows, make a bed, put dirty washing in the machine, and the bedroom looks half-way presentable. In the kitchen you can put all dishes in the sink in hot soapy water, or in the dishwasher if you have one, chuck out any junk mails, empty food and drink packaging, empty the bin, wipe the surfaces. In the bathroom, a quick polish of taps and mirrors, chuck out empty product bottles, straighten the towels and clean the loo with a loo brush. I can do each of these in 5 mins. I used to do 5 mins and rest for 55 then do another room for 5 mins and rest for 55 again. Do that even just 3 times a day and you will, over a week, have done 1 hr 45 mins of tidying or cleaning. That's better than none. And you'll probably find you do more than 3 x 5 mins a day once you get into it.

For good routines, Flylady's 'homeblessing' is just an hour - I did Saturday mornings. You just open windows, empty bins, change the beds and run a quick hoover around the bits of the floor you can actually see.

Another tip is:When you wake up, stick a washload on a quick cycle - better a quick wash than no wash.. Make DC's breakfast, walk them to school and when you come back, the cycle is done so you can hang the washing out while you have a cup of tea. Do that 3 times a week. On the other days, pick anther simple job - maybe put dishes to soak in very hot water, then when you get back from school, put on a song you love, loud as you can, quick wash, rinse and let them drain dry.

I have a LOAD of other things I did to get out of this sleeping-my-life away rut I was in. Most of them a lot more fun than this. PM me if you want and I'll share some.

I really feel for you. It can pass. Mine did. But I had to dedicate about 9 months to getting better.

GenAvocadoOnToast · 04/07/2024 11:10

ElecticBetty · 04/07/2024 10:53

Venlafaxine is the one that works for me.

I had tried sertraline, fluoxetine and citalopram - all of which made me feel worse not better.

There are 2 different strands of antidepressants - SSRIs and SNRIs which stabilise moods in different pharmaceutical ways. Don’t ask me how Grin The 3 I tried that didn’t work are grouped with ssris I think, venlafaxine the other way.

Venlafaxine has some very gnarly side effects if you don’t take it routinely. My ADHD and antidepressants have had quite an ongoing battle!

I've had similar difficulties with antidepressants. Low dose aripiprazole (an antipsychotic) worked absolute miracles for my depression and (then undiagnosed) ADHD. I was full of energy, life, motivation and productivity. I think I got more done in those couple of months than in the almost 10 years since. Interestingly, at low doses it's been found to have a dopamine-stabilising effect. I had to come off it because I started to experience a debilitating side effect. The depression stayed away but all of the ADHD symptoms came back, I was gutted. I've never found anything like it since.

SinkingFeelingSoph · 04/07/2024 10:58

I have a terrible voice so not sure a choir is going to be my thing. Have considered a coffee morning at a local church so thank you

OP posts:
SinkingFeelingSoph · 04/07/2024 10:57

Venlafaxine did also work for me actually. But it gave me a particular side effect I couldn’t cope with. Interestingly it’s used as off-label ADHD medication too

OP posts:
ElecticBetty · 04/07/2024 10:53

RoundandSad · 03/07/2024 20:53

@SinkingFeelingSoph Do you have work and do you know if you feel better with or without work?

@ElecticBetty would you be okay to tell us which med finally worked for you?

@Summerpigeon how did the diagnosis help ypu please?

Edited

Venlafaxine is the one that works for me.

I had tried sertraline, fluoxetine and citalopram - all of which made me feel worse not better.

There are 2 different strands of antidepressants - SSRIs and SNRIs which stabilise moods in different pharmaceutical ways. Don’t ask me how Grin The 3 I tried that didn’t work are grouped with ssris I think, venlafaxine the other way.

Venlafaxine has some very gnarly side effects if you don’t take it routinely. My ADHD and antidepressants have had quite an ongoing battle!

Choirreality · 04/07/2024 10:44

May be controversial however I joined a church choir after a very traumatic event and it has helped me. I see the same (mainly women) every week. I have got to know some of them. I get invited to endless socials and the people are nice. Singing is good for you too.

I am not anti religion but I wouldn’t say I am a Christian. I think the community is a lifeline for many and could really increase wellbeing and decrease loneliness. This month alone I have 4 rehearsals. 2 gatherings for food at houses. 3 non service performances. 4 services I can sing at. Plus coffee mornings. Evensong. A church fete etc! It’s crazy busy. Then the other ladies do other community based choirs too. I can go to as much or as little as I want.

The peace and smell when entering the church for practice is lovely, I enjoy walking into the building and feel calm. The songs give you something to learn and some stick in your head for days!

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