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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To just remind you that autism is genetic?

261 replies

robotgun · 02/07/2024 16:05

Research tells us that 60 to 90% of the risk for autism comes from your genome. Maternal and paternal age are also a significant factor. Also genetic variants exist that cause autism-like behaviours and go undiagnosed because we don't routinely run genetic tests on our children. We also don't routinely institutionalise children that are different to their peers.

There's 'more' autism because people are having babies at older ages. And we are better at spotting autism.

It isn't heavy metals, microplastics, or the MMR.

Sorry, but it seems like every day I open this app and there's a new post saying 'What's going on with all this autism around, eh?' and a slew of replies blaming environmental factors that have no science behind them whatsoever. Or, worse, blaming mothers for reproducing too late in life or eating tuna in pregnancy or taking prescribed meds.

If you see enough of these threads every day you could well start to believe the nonsense that people write, much like people that read the Daily Mail every day start to believe that Meghan Markle is the devil.

Autism has always been here. It's not better or worse than it used to be.

OP posts:
Marscapn3 · 02/07/2024 19:36

WorriedMama12 · 02/07/2024 19:18

Yes, as you say, they are both ND. But ND doesn't only mean autism, it means neurodiverse. Which encompases a variety of conditions including but not limited to autism. Yet autism seems to be the catch all diagnosis for so many people.

Not it isn’t.

  1. Autism, or Autism Spectrum Conditions
  2. ADHD: Attention Deficit Hyperactivity Disorder, or ADD: Attention Deficit Disorder
  3. Dyscalculia
  4. Dyslexia
  5. Dyspraxia, or Developmental Coordination Disorder (DCD)

are all neurodiversities and you get a separate diagnosis for each. My daughter has 3 x diagnosis on that list.

Runsyd · 02/07/2024 19:33

RatHole · 02/07/2024 16:36

Most of my family are on the autism spectrum.

Having had a child suffer side effects from a prescribed drug and seen first hand how the pharmaceutical companies close ranks and deny I’ve lost my faith in them and no longer trust them to be honest. I was going to be part of an exposè in a National newspaper, I talked to a journalist and a doctor about this, but they were later warned to not discuss it and the article was dropped.

Thousands of people a week join the support group for this drug so it’s still ongoing. The company conceded to add the side effects to the drug info several years ago, but refuse to support any research, so any medical findings are down to patient groups who have done the work.

My autistic son went from being fine and supportable to being very high needs, unable to go to school and needing an awful lot of support.

I suspect more children’s/people’s autism is more disabling to them and their families because of certain pharmaceutical and dietary factors but the might of these huge corporations keeps it well under wraps and parents who talk about this are dismissed as conspiracy theorists or stupid.

I think a lot will come out about certain pharmaceutical products in the next 10-20 years. There are already films about certain coverups (Dopesick, Painkiller, Dark Waters). There will be more to come.

I completely agree. There's a high degree of suppression of research data by medical companies, which have a stranglehold on regulatory bodies.

robotgun · 02/07/2024 19:33

Leah5678 · 02/07/2024 19:17

Op you moan that people say maternal age has an impact but then you admit it has an impact yourself?
Not really sure what your point is I barely see any posts blaming vaccines or heavy metals on Mumsnet. If we want to talk about Instagram however that would be a different story 😳

I saw maternal age is a factor, but that it isn't the predominant factor. And that women who have babies later in life aren't to be blamed for having autistic children, as paternal age is also a factor. And the idea of blame is weird to me too. My ND kiddo is brilliant.

OP posts:
AirportObs · 02/07/2024 19:21

Tomnooktoldmeto · 02/07/2024 16:23

As you quite rightly point out, it’s generally genetic

Our family is a good example, father in law was obviously autistic but undiagnosed and had 2 sons. Both sons had 2 DC all 4 are now diagnosed ND. Of the back of this DH was assessed and also diagnosed

For years what was referred to as the Bloggs family temperament was actually high functioning autism. They are all intelligent individuals with good careers and degrees but most definitely autistic

We actually live in an area where due to the local employer there are lots of what would previously be called Aspies, during the school years they all gravitated towards each other and you could guess which kids would end up with the diagnosis (and did)

The CAMHS specialist who diagnosed one of mine actually called it ‘company name’ disease in jest because of it’s historical link

Is that Jaguar Land Rover?

WorriedMama12 · 02/07/2024 19:18

hotandpremeni · 02/07/2024 19:11

So hello question.

They lump it together because the traits are the traits.

Sarah who is "highly functioning" has low support needs but may struggle in different areas and excel in others.

Sally who need additional help around the clock ,has high support needs. And requires help in many different areas of her life.

They are both ND.

It's a spectrum, not a barometer. You're not a tiny bit autistic, you are or you aren't.

ND people have variable needs like any other human.

Yes, as you say, they are both ND. But ND doesn't only mean autism, it means neurodiverse. Which encompases a variety of conditions including but not limited to autism. Yet autism seems to be the catch all diagnosis for so many people.

Leah5678 · 02/07/2024 19:17

Op you moan that people say maternal age has an impact but then you admit it has an impact yourself?
Not really sure what your point is I barely see any posts blaming vaccines or heavy metals on Mumsnet. If we want to talk about Instagram however that would be a different story 😳

Reugny · 02/07/2024 19:14

robotgun · 02/07/2024 16:52

I would v much imagine that a hefty proportion of women who are depressed/anxious to the point of needing to continue SSRIs through pregnancy could have a certain underlying disorder causing their anxiety/depression... called autism...

Some of them have ADHD.

hotandpremeni · 02/07/2024 19:11

WorriedMama12 · 02/07/2024 19:04

Autism seems to be a given diagnosis for so many different conditions. The fact that Sarah who holds down a job, normal-ish life etc and likes to post on tiktok about her autism has the 'same' condition as Rebecca who requires 24/7 care, doesn't communicate verbally, smears etc is crazy. I know there can be varying degrees but it just seems as though they lump people together under one diagnosis if they don't have any other answers for what condition a person is presenting with.

So hello question.

They lump it together because the traits are the traits.

Sarah who is "highly functioning" has low support needs but may struggle in different areas and excel in others.

Sally who need additional help around the clock ,has high support needs. And requires help in many different areas of her life.

They are both ND.

It's a spectrum, not a barometer. You're not a tiny bit autistic, you are or you aren't.

ND people have variable needs like any other human.

WorriedMama12 · 02/07/2024 19:04

Autism seems to be a given diagnosis for so many different conditions. The fact that Sarah who holds down a job, normal-ish life etc and likes to post on tiktok about her autism has the 'same' condition as Rebecca who requires 24/7 care, doesn't communicate verbally, smears etc is crazy. I know there can be varying degrees but it just seems as though they lump people together under one diagnosis if they don't have any other answers for what condition a person is presenting with.

SwordToFlamethrower · 02/07/2024 19:01

BlackeyedSusan · 02/07/2024 16:22

Possibly autistic mothers and autistic fathers reproduce later in life....

This is the case for us. Both diagnosed late in life, after having our babies.

Geiyotue · 02/07/2024 19:00

Could we please talk about the chance of a child being autistic, rather than the risk of a child having autism? Language matters.

Cryingout1994 · 02/07/2024 18:59

My daughter is 4 and has autism, I accept it's probably genetic although neither me or her father are diagnosed as neurodivergent, not to say neither of us are though I suppose.

I've always thought her traumatic birth could have been a contributing factor. Or maybe that was just the way she was always meant to be. Whatever the cause it dosnt matter. My daughter is amazing just the way she is.

behindthemall · 02/07/2024 18:59

robotgun · 02/07/2024 16:10

Did you not note the inverted commas?

Yes. But even with them the comments you make infer that there are more people with autism, not just more people diagnosed with autism.

The conclusions my (potentially autistic) brain makes based on your comments:

Maternal and paternal age are also a significant factor / There's 'more' autism because people are having babies at older ages.
We know that parents are statistically older now than they used to be. Which means more babies are born to older people. If this is a factor in autism diagnosis (and I don’t think the factor is older parents are better at spotting medical needs) then there are likely to be more autistic babies than there used to be.

We also don't routinely institutionalise children that are different to their peers.
This implies by ‘allowing’ autistic people to have babies, their genetics mean that there are more autistic babies born than if we institutionalised autistic people. As we no longer do this, more autistic babies are born. I otherwise have no idea how this sentence is possibly relevant to people saying that autism is more prevalent nowadays.

Important caveat: this is of course right and fine and autism isn’t a death sentence and we shouldn’t curtail reproductive rights of anyone to prevent births of autistic children.

And we are better at spotting autism.
This is true. And the rest of your posts seem to imply this is what your OP meant.

Crystallizedring · 02/07/2024 18:55

I don't know. I actually thought it still wasn't proved what caused autism. I have 2 autistic children. One I had at 28, the other at 39. I suppose I could have caused DS to be autistic but no family history so where did DDs autism "come from"?

Tinkerbot · 02/07/2024 18:43

@Foxxo
I know when my son went through his, the questions i was asked by his Dr also covered some of my history, and his Dr told me that he strongly believed over our appointment that i was also Autistic and ADHD.

Didn't you ask him how he knew - I am adhd and possibly autistic and I've tried all my life to fit in and still at my great age do not know what it is I am doing differently from the rest.

Errors · 02/07/2024 18:39

RatHole · 02/07/2024 17:02

Surely though if there’s a chance that SSRIs are affecting foetuses it should be checked out?

I’m always a bit flabbergasted that when it comes to autism - people would rather have total acceptance and no research into what may cause it, outside of it being heritable. I’m autistic, and whilst I’m a delight there are aspects of my life that are, frankly, shit, and if future generations can be told “no SSRIs when pregnant” or whatever else is found out that may have an effect on autism, even just the severity, then that’s surely a positive thing?

This!
If there are environmental factors (which the OP seems to suggest - 60% - 90% ‘in your genes’ still leaves as high as 40% environmental) then we should surely try to understand what they are?? Not to blame parents of course, but to update current advice.

Also, not RTFT but does epigenetics come in to play here? Certain babies may have a higher predisposition towards autism but something environmental could ‘switch’ those genes on??

Foxxo · 02/07/2024 18:39

ArseInTheCoOpWindow · 02/07/2024 18:35

I’d live to meet this clinic where they test parents! You can’t even get kids tested in the NHS.

It's more an american thing, pioneered by Dr Russel Barkley who is one of the leading experts on ADHD :)

It's something that is slowly started to be picked up by other clinics, most private, because as you say.. NHS sucks.

I know when my son went through his, the questions i was asked by his Dr also covered some of my history, and his Dr told me that he strongly believed over our appointment that i was also Autistic and ADHD.

I have since been diagnosed with both as an adult.

ArseInTheCoOpWindow · 02/07/2024 18:35

I’d live to meet this clinic where they test parents! You can’t even get kids tested in the NHS.

Foxxo · 02/07/2024 18:33

There is also the fact, for those who didn't know.. that never mind ASD.

ADHD is more highly heritable. To the point that some clinics that diagnose children, will then also test the parents, because its extremely likely one or both also has it. (usually the mother believe it or not)

My Mother is obviously autistic.
Both my brother and i have AuDHD, both my kids do, and both of his do.

MadameMassiveSalad · 02/07/2024 18:32

If your kid has it should you perhaps both get tested as well then?

Itiswhysofew · 02/07/2024 18:31

The NHS AQ-10 test was mentioned in another thread today. Out of curiosity, I did it, and with my score, it would be recommended that I be considered for referral to have a specialist diagnostic assessment.

I'm honestly not surprised by this. I won't be taking it further, as I'm so used to being who I am and don't feel the need.

My DN has BPD, and she believes that her DM & DG, (my DS & DM), have autism. Who knows🤷🏻‍♀️

Tinkerbot · 02/07/2024 18:31

robotgun · 02/07/2024 16:41

It's relevant, but it isn't the 'fault' of women who have babies later in life. I am one of them. I recognise the research but I don't agree with the blaming of women for having families at the right time for them.

can you link to some statistics that support your claims in OP?

Ponderingwindow · 02/07/2024 18:31

@mickybarrysmum

thank you for that synopsis of the issues with discussing autism.

i get so frustrated when so many people discuss it as a flaw because my world is not one of co-morbidities. Im surrounded by autistic people absolutely thriving.

Foxxo · 02/07/2024 18:30

LostTheMarble · 02/07/2024 18:26

This is something I’m seriously concerned about in perusing an adult adhd diagnosis. I fully suspect autism in deeply buried under there (teenage me these days would have been diagnosed with both but I’ve learned to socially mask greatly since), but ADHD is fully at the wheel. It’s becoming increasingly detrimental to my life though, my brain is fried and I can no longer focus enough to do anything I used to enjoy, like reading.

It is still worth trying the meds :)

The slow release stuff like Elvanse didn't work for me, i'm now on the short life/quick release ones that i can take as/when i need the focus for something, they wear off quite quickly, so i'm not negatively affected.. my autism gets to hand my ADHD back the wheel after a few hours, lol.

Foxxo · 02/07/2024 18:27

robotgun · 02/07/2024 17:36

This is the sort of BS I was hoping to avoid on this thread.

It's not BS.

When you have both, and you're unmedicated, you learn how to survive, you teach yourself how to cope with the mood ups and down, the sensory processing overloads, how to manage and mask.

When you medicate the ADHD, you're literally changing your brain chemistry, and providing a thing your brain has lacked, and suddenly the things you have self taught to regulate no longer work, and you have to relearn.

I was on ADHD meds for a few months, and honestly.. didn't know who i was, it was awful.

It's a well known and well spoken about phenomenon amongst the late ADHD diagnosed AuDHD adult community.

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