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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if its fair that inclusivity has excluded my DC from their hobby?

341 replies

DImplesandCheese · 26/06/2024 13:43

TLDR: ND child is causing my DC to quit much loved hobby as ND child's behaviour is ruining it for them.

Full Story: DC (13) attended a hobby/club and has done for years. 2 years ago a new child joined. The child is ND and their particular behaviours include shouting out, not listening, inappropriate use of kit and refusal to fully participate in activities. DC has complained on and off since this child joined that it is spoiling it. I have encouraged DC to be understanding and supportive, I have spoken with the staff at the club to ask if more support for this child can be put in place. Nothing has changed.

Part of the club involves some unsupervised time and this is DC's favourite part of the club. The last two unsupervised sessions have been completely ruined by this child's behaviour, the group have had to call staff for help to sort it out and therefore their final result for the session has been effected. 2 months ago after the last ones of these sessions I spoke with staff and asked why this child doesn't have a 1 to 1 support/parent staying with them as this is hugely effecting everyone else's enjoyment and I was told that my DC is exaggerating and 'fixating' on this child.

DC came home last night as said he's quitting. This child has wrecked the night's activity again. I spoke to the staff and was told that they 'are an inclusive club and they pride themselves in being open to all' and hinted that DC leaving may well be for the best if he's not happy.

I have 2 ND DC, I get the difficulties, I get that they should have access to clubs and activities, I get that allowances need to be made for their behaviour. I am in no way suggesting the child should be kicked out but surely if you have children leaving because of another child then the support in place for that child isn't right?

AIBU to think that more should be done to support this child correctly so DC can continue to enjoy their hobby and that my DC having to leave is not an acceptable situation?

OP posts:
Twototwo15 · 26/06/2024 18:28

Crying babies are not comparable as being a baby doesn’t last a lifetime. People can avoid cafes or take their crying babies out for the couple of years they have them, although they should not have to, but at least they don’t have a lifetime of being unwelcome by some people.

Scattery · 26/06/2024 18:27

BruFord · 26/06/2024 18:19

@Scattery You’re clearly not affected by the COL like many MN’ers then. A small business losing customers, who cares? Being inclusive of everyone’s needs, such as ppl hard of hearing like me, who cares about that?

I...honestly have no idea why you think I'm not affected by COL because I'm arguing for people to show tolerance toward short-lived verbal stims. Once again, you're more concerned here about business profits than inclusion, but go off, I guess.

I am deaf in one ear. My other ear is sensitive to loud noises. I carry Loop earbuds. I have NEVER felt disincluded when a learning disabled person is loud in a cafe.

I don't think I can actually bring myself to say anything else other than that I sincerely hope you are able to dig deep and find some tolerance for folks in our society who are different.

BruFord · 26/06/2024 18:27

Jimmyneutronsforehead · 26/06/2024 18:12

Who says Timmy has a carer? Who says the only thing Timmy can do is vocal stim? There's a massive spectrum of ability in disabilities, and our non verbal ND people can still live independently. Being non verbal or only having vocal stims isn't in itself a measure of intelligence or understand but is simply a measure of speech apraxia and processing.

Also vocal stimming doesn't mean distress, it can, but it is usually used simply to process the world. We all process the world differently. We all process happiness differently.

There's absolutely no reason for Timmy to remove himself from a situation he is not distressed in.

To equate vocal stims only with distress is a very narrow minded way of looking at things.

@Jimmyneutronsforehead

I appreciate that you’re advocating for inclusivity, but your examples do seem to have wider implications.

In Knit and Natter, it seems that only Nina’s needs really count, Nora and the other participants don’t. Same in the cafe. I don’t know how this approach includes other people.

oakleaffy · 26/06/2024 18:25

@DImplesandCheese The ND child needs a parent there.
It’s ridiculous to spoil the enjoyment of many because of the behaviour of one.

There was a child recently that was screeching raggedly every few minutes- It sounded like an alarm call, but wasn’t.

That definitely disturbed people within hearing distance.

Noisy screeching is incredibly off putting to others .

I do feel sorry for your son - it must be very frustrating if there isn’t a parent or carer there.

Twototwo15 · 26/06/2024 18:23

BruFord · 26/06/2024 18:03

@Jimmyneutronsforehead They’ll have to lose business, I suppose. People losing their jobs doesn’t seem to be considered an issue.

What do you think they should do?

Luckily most people are reasonable and wouldn’t leave and never come back because a noisy disabled person was there occasionally, so I doubt the business would go bust.

BruFord · 26/06/2024 18:19

Scattery · 26/06/2024 18:13

Obviously.

I'm not the one in this thread worried about a disabled kid bringing down a cafe's profits though, LOL.

@Scattery You’re clearly not affected by the COL like many MN’ers then. A small business losing customers, who cares? Being inclusive of everyone’s needs, such as ppl hard of hearing like me, who cares about that?

Reallybadidea · 26/06/2024 18:16

Would you complain about crying babies too?

Not so very long ago it was seen as considerate for the responsible adult to remove a crying baby from a cafe so as not to disturb the majority of other customers who found it distressing.

Scattery · 26/06/2024 18:13

BruFord · 26/06/2024 18:08

@Scattery When a baby or toddler becomes really distressed in a business, responsible parents take them outside. Isn’t that what you do, @Scattery?

The dementia sufferers I’ve met in cafes have someone with them and if they got distressed, I imagine their carer would suggest a change of scene. Surely that’s what Timmy’s carer would do as well if the stimming became very loud?

Obviously.

I'm not the one in this thread worried about a disabled kid bringing down a cafe's profits though, LOL.

Jimmyneutronsforehead · 26/06/2024 18:12

BruFord · 26/06/2024 18:08

@Scattery When a baby or toddler becomes really distressed in a business, responsible parents take them outside. Isn’t that what you do, @Scattery?

The dementia sufferers I’ve met in cafes have someone with them and if they got distressed, I imagine their carer would suggest a change of scene. Surely that’s what Timmy’s carer would do as well if the stimming became very loud?

Who says Timmy has a carer? Who says the only thing Timmy can do is vocal stim? There's a massive spectrum of ability in disabilities, and our non verbal ND people can still live independently. Being non verbal or only having vocal stims isn't in itself a measure of intelligence or understand but is simply a measure of speech apraxia and processing.

Also vocal stimming doesn't mean distress, it can, but it is usually used simply to process the world. We all process the world differently. We all process happiness differently.

There's absolutely no reason for Timmy to remove himself from a situation he is not distressed in.

To equate vocal stims only with distress is a very narrow minded way of looking at things.

Scattery · 26/06/2024 18:11

Errors · 26/06/2024 18:05

Same here. And I’m NT.
People pay money to do things, we are in a capitalist society after all, and people vote with their feet and money gets lost.

So a disabled kid's money isn't as good as yours? Check.

I'm in cafes a lot, and I've only left a handful of times because of noise. Never has it stemmed from a crying baby, nor a disabled person. Instead it's from some dickhead taking a conference call, on speaker, from their laptop, at high volume.

But no let's go ahead and blame.... disabled people. For making noise. Cool. That's real tolerance right there.

JenniferBooth · 26/06/2024 18:10

Its not noise thats the problem In the case i mentioned its dangerous things like throwing a bucket of water everywhere. Health and safety law would supersede the Equality Act in this case. Staff and customers are entitled to a safe environment. Its not the fault of the child. Its the dad who is usually with her.

Lopine · 26/06/2024 18:09

They are letting the disruptive child down as well as your own. The leaders should be insisting on 1:1 support if they cannot provide this from their volunteer group.

WearyAuldWumman · 26/06/2024 18:08

olympicsrock · 26/06/2024 18:01

I couldn’t cope with a persistently crying baby in a cafe either. I would have to leave it they didn’t.

My late husband and I sometimes had to do that. From his 60s onward, he wore hearing aids. Unfortunately, they didn't allow him to discriminate between background noise and conversations, so if the background noise got too loud he'd have to switch off his hearing aids, meaning he couldn't join in conversations.

In some situations, we simply had to eat up as quickly as possible and then leave.

BruFord · 26/06/2024 18:08

Scattery · 26/06/2024 17:56

In 99.99% of situations, Timmy's not gonna be in the cafe for hours on end.

One of my local cafes has visits from high support need students (with 1-1s) at a local schools. They are loud. It's never disrupted my conversation for more than a few minutes. Worst case scenario I have to repeat myself. If I'm on my own and the stimming is loud I have loop earbuds (I am sensitive to noise).

Would you complain about crying babies too?

What about an elderly person with dementia?

Or should they stay out of cafes too?

@Scattery When a baby or toddler becomes really distressed in a business, responsible parents take them outside. Isn’t that what you do, @Scattery?

The dementia sufferers I’ve met in cafes have someone with them and if they got distressed, I imagine their carer would suggest a change of scene. Surely that’s what Timmy’s carer would do as well if the stimming became very loud?

Jimmyneutronsforehead · 26/06/2024 18:06

BruFord · 26/06/2024 18:03

@Jimmyneutronsforehead They’ll have to lose business, I suppose. People losing their jobs doesn’t seem to be considered an issue.

What do you think they should do?

They can tolerate a temporary inconvenience.

In fact, being disability inclusive and promoting that you're disability inclusive is a wonderful way to promote your business to services and service users as a safe space, attract a regular clientele and foster a wonderful environment for those who are able and willing to be tolerant.

Timmy wouldn't be there all day. Timmy has as much right as any one else to be there. Timmy is paying them money like everybody else.

Errors · 26/06/2024 18:05

olympicsrock · 26/06/2024 18:01

I couldn’t cope with a persistently crying baby in a cafe either. I would have to leave it they didn’t.

Same here. And I’m NT.
People pay money to do things, we are in a capitalist society after all, and people vote with their feet and money gets lost.

BruFord · 26/06/2024 18:03

Jimmyneutronsforehead · 26/06/2024 17:59

So what would you have the cafe do please?

@Jimmyneutronsforehead They’ll have to lose business, I suppose. People losing their jobs doesn’t seem to be considered an issue.

What do you think they should do?

olympicsrock · 26/06/2024 18:01

Scattery · 26/06/2024 17:56

In 99.99% of situations, Timmy's not gonna be in the cafe for hours on end.

One of my local cafes has visits from high support need students (with 1-1s) at a local schools. They are loud. It's never disrupted my conversation for more than a few minutes. Worst case scenario I have to repeat myself. If I'm on my own and the stimming is loud I have loop earbuds (I am sensitive to noise).

Would you complain about crying babies too?

What about an elderly person with dementia?

Or should they stay out of cafes too?

I couldn’t cope with a persistently crying baby in a cafe either. I would have to leave it they didn’t.

Twototwo15 · 26/06/2024 18:01

WearyAuldWumman · 26/06/2024 17:49

I recall a Reddit thread a few years ago where a father complained that his son was being allowed to participate in brass band practice but not to participate in competitions - he was seldom on task and his stimming involved making noises.

He was taken aback when other Redditors pointed out that bands enter competitions in order to win and that you don't compete with the band unless you're able to play at a certain level.

In the end, he seemed to accept that the brass band was doing enough to accommodate his son by involving him in practices.

Similarly, when I was at school I enjoyed hockey practice but was never good enough to get picked for the team. I could take part in practices and knockabouts at school - and even travelled with the team as a sub - but knew that I wouldn't play in competitions unless a significant number of our players were hit by the lurgy. I was happy with that.

I now know that there are several reasons as to why I've never been good at sport: lax tendons and patella alta. These problems coupled with my flat feet apparently explain why I have a tendency to trip and fall. Even if I'd known what the problem was, I wouldn't have expected our hockey coach to place me in the team. Our coach was open about her policy and I knew what I was signing up for when I joined the hockey club.

My late husband helped train youngsters in Shotokan karate. Some youngsters with difficulties trained at the club but would never have managed to represent the club in kumite (fighting) competitions.

We can strive for inclusivity, but we can't always include everyone in everything.

Re: the suggestion above that other DC can provide support for DC with needs. Sometimes this is possible - I've seen it in a school setting. However, it's up to the adults to provide ongoing support for children.

On some social media boards, if someone under 18 is being required to provide ongoing support for younger or disabled siblings, there are immediate responses of "Parentification!"

While it can be good for the development of children to help others, you can't expect them to do it all.

I've seen discussions on Mumsnet where posters have agreed that it's wrong for teachers to expect pupils to provide ongoing support for other pupils. Why is it any different in an extra-curricular situation? Surely that's the job of the adults, not the children?

Well said. A lot of disabled people have very limited lives, don’t limit them even more by expecting them to never do anything because it might cause someone a bit of temporary inconvenience once in a while.

Jimmyneutronsforehead · 26/06/2024 17:59

BruFord · 26/06/2024 17:54

@Jimmyneutronsforehead Cafes and restaurants typically operate on razor-thin margins. If they lose even one afternoon’s business, it’s serious.
Also, if customers equate the cafe with excess noise, they won’t return.

So what would you have the cafe do please?

WearyAuldWumman · 26/06/2024 17:57

Twototwo15 · 26/06/2024 17:55

It hasn’t excluded your son, no one has told him to leave. If the ND kid can’t complete tasks at all or well, why not give him tasks alongside another capable person, so there is nothing dependent totally on him alone?

That would make sense, but it's something that needs to be organised by the adults.

BruFord · 26/06/2024 17:57

Twototwo15 · 26/06/2024 17:55

It hasn’t excluded your son, no one has told him to leave. If the ND kid can’t complete tasks at all or well, why not give him tasks alongside another capable person, so there is nothing dependent totally on him alone?

@Twototwo15 You mean one of the leaders? Or should another 13-year-old be designated their support person?

WhatNoRaisins · 26/06/2024 17:57

The sad fact is that once you can vote with your feet the majority of people will just avoid situations with people that annoy them. Most people won't take it as an opportunity to "learn empathy" so I don't know why we expect children to.

Scattery · 26/06/2024 17:56

BruFord · 26/06/2024 17:46

Another example, if Timmy was a vocal stimmer, and spent a lot of time grunting and groaning and making long drawn out noises that were very loud and Timmy wanted to go and spend time at a café, Timmy is welcome to do that.

If anybody else can not or will not tolerate it and they cannot find a solution or compromise then they have the opportunity to leave.

@Jimmyneutronsforehead Your cafe example also raises the question of what happens if Timmy’s loudness impedes other customers from having quiet conversations (as is typical in a cafe), so they choose to go elsewhere.

What happens to the cafe?

Edited

In 99.99% of situations, Timmy's not gonna be in the cafe for hours on end.

One of my local cafes has visits from high support need students (with 1-1s) at a local schools. They are loud. It's never disrupted my conversation for more than a few minutes. Worst case scenario I have to repeat myself. If I'm on my own and the stimming is loud I have loop earbuds (I am sensitive to noise).

Would you complain about crying babies too?

What about an elderly person with dementia?

Or should they stay out of cafes too?

Bendrix · 26/06/2024 17:55

Why do posters bashing ND kids then always go on to claim they have ND kids themselves. 🤔 I've seen soo many. ..

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