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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To ask if its fair that inclusivity has excluded my DC from their hobby?

341 replies

DImplesandCheese · 26/06/2024 13:43

TLDR: ND child is causing my DC to quit much loved hobby as ND child's behaviour is ruining it for them.

Full Story: DC (13) attended a hobby/club and has done for years. 2 years ago a new child joined. The child is ND and their particular behaviours include shouting out, not listening, inappropriate use of kit and refusal to fully participate in activities. DC has complained on and off since this child joined that it is spoiling it. I have encouraged DC to be understanding and supportive, I have spoken with the staff at the club to ask if more support for this child can be put in place. Nothing has changed.

Part of the club involves some unsupervised time and this is DC's favourite part of the club. The last two unsupervised sessions have been completely ruined by this child's behaviour, the group have had to call staff for help to sort it out and therefore their final result for the session has been effected. 2 months ago after the last ones of these sessions I spoke with staff and asked why this child doesn't have a 1 to 1 support/parent staying with them as this is hugely effecting everyone else's enjoyment and I was told that my DC is exaggerating and 'fixating' on this child.

DC came home last night as said he's quitting. This child has wrecked the night's activity again. I spoke to the staff and was told that they 'are an inclusive club and they pride themselves in being open to all' and hinted that DC leaving may well be for the best if he's not happy.

I have 2 ND DC, I get the difficulties, I get that they should have access to clubs and activities, I get that allowances need to be made for their behaviour. I am in no way suggesting the child should be kicked out but surely if you have children leaving because of another child then the support in place for that child isn't right?

AIBU to think that more should be done to support this child correctly so DC can continue to enjoy their hobby and that my DC having to leave is not an acceptable situation?

OP posts:
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ichbrauchenichts99 · 27/06/2024 23:40

It's not inclusive if they're not supporting those who need more support.

LadyAddle · 27/06/2024 23:31

@saraclara You sound to have been an exemplary teacher, persevering, imaginative, and sensible - the children you taught were fortunate.

BruFord · 27/06/2024 19:50

@Sniffle555 I agree that carrying weaker members of the team is a life skill. The kids need to be taught how to do this- that if X refuses to participate, for example, it’s fine for someone else to do his part and let him play.

Children learn and are taught life skills, they aren’t born with them. It sounds as if they need some guidance in this situation and they’re not getting it.

FrippEnos · 27/06/2024 19:37

Sniffle555 · 27/06/2024 19:35

One child says they’re not. Adult leaders say he’s exaggerating. Nobody else has complained.

The OP says that the group he was in complained.

As for the Adult leaders, I don't know them anymore than I know the OP.

Sniffle555 · 27/06/2024 19:35

FrippEnos · 27/06/2024 19:34

If the child in question was taking part in the activities, I would agree with you, but from what the OP says they are not. #

So this isn't about carrying weaker members of the team or life skills.

One child says they’re not. Adult leaders say he’s exaggerating. Nobody else has complained.

FrippEnos · 27/06/2024 19:34

Sniffle555 · 27/06/2024 18:55

Carrying weaker members of a team is a life skill. Kids are used to this as children aren’t now packed off to special schools, every class has kids refusing or not participating in group activities. Trust me schools don’t have 121s to support them all to join in either.

If the child in question was taking part in the activities, I would agree with you, but from what the OP says they are not. #

So this isn't about carrying weaker members of the team or life skills.

tiggergoesbounce · 27/06/2024 19:01

Maybe go back to the group and explain the easier way around is that this child simply doesn't get paired up with your son or in his group, if they are claiming your DS is fixated on this child, they will be happy to accommodate.
Don't allow your DC to give up based on this, teach him that we try to find ways around it.

We ensure parents stay with some of our SEN kids or kids that are struggling to get involved, another set of hands and eyes can be vital.
We adapt activities to suit the needs of some of our children to try and ensure it is a good space for all.

Also it's a waste of everyone's time and money if the activities can't get completed properly.

Sniffle555 · 27/06/2024 18:55

BruFord · 27/06/2024 18:38

@Sniffle555 But the rest of the children could still do the activity?

That what I think is the real issue in the OP’s example. The kids are told to work together as a group and presumably not to exclude anyone. If one child refuses to do it, they try to accommodate them, it doesn’t work, and then they don’t do the activity/it’s badly done.

The adults need to tell them what to do if the child refuses to participate- and reassure them that they won’t get into trouble if they go ahead without him. Job done.

Carrying weaker members of a team is a life skill. Kids are used to this as children aren’t now packed off to special schools, every class has kids refusing or not participating in group activities. Trust me schools don’t have 121s to support them all to join in either.

BruFord · 27/06/2024 18:38

Sniffle555 · 27/06/2024 18:33

Nobody cared.

@Sniffle555 But the rest of the children could still do the activity?

That what I think is the real issue in the OP’s example. The kids are told to work together as a group and presumably not to exclude anyone. If one child refuses to do it, they try to accommodate them, it doesn’t work, and then they don’t do the activity/it’s badly done.

The adults need to tell them what to do if the child refuses to participate- and reassure them that they won’t get into trouble if they go ahead without him. Job done.

Sniffle555 · 27/06/2024 18:33

BruFord · 27/06/2024 18:32

@Sniffle555 What happened if your child didn’t want to do a group activity?

Nobody cared.

BruFord · 27/06/2024 18:32

Sniffle555 · 27/06/2024 18:27

Nope, the pack thankfully didn’t have a child trying to oust her. The leaders have said the child is exaggerating. Nobody else has complained. So lovely seeing posters never the less baying for a child with a disability to be removed.

@Sniffle555 What happened if your child didn’t want to do a group activity?

TorturedPoetsDepartmentAnthology · 27/06/2024 18:32

Sniffle555 · 27/06/2024 18:27

Nope, the pack thankfully didn’t have a child trying to oust her. The leaders have said the child is exaggerating. Nobody else has complained. So lovely seeing posters never the less baying for a child with a disability to be removed.

Being removed? No. Being supported so they are happy, well cared for and safe? Yes.

Sniffle555 · 27/06/2024 18:28

I left my daughter every time.

Sniffle555 · 27/06/2024 18:27

BruFord · 27/06/2024 18:22

@Sniffle555 I imagine that your child was appropriately supported at Brownies and Guides though?

It sounds as if lack of guidance and appropriate support is the real issue in the OP’s example. The other children have no idea what to do when the ND child refuses to participate in group activities-because the adults haven’t given them any guidance!

Nope, the pack thankfully didn’t have a child trying to oust her. The leaders have said the child is exaggerating. Nobody else has complained. So lovely seeing posters never the less baying for a child with a disability to be removed.

TorturedPoetsDepartmentAnthology · 27/06/2024 18:24

Sniffle555 · 27/06/2024 18:19

I don’t think you get to speak for all ND children or lecture to their parents actually. I didn’t stay at guides or brownies.

I’m sure you didn’t throw your child and brownies or scouts and leave though?
most parents will prepare their child - as much as possible. Some children will manage it very well and have a positive experience. Some children, like those who do not have SEND, just won’t enjoy it and won’t cope it and maybe will hate it?

BruFord · 27/06/2024 18:22

@Sniffle555 I imagine that your child was appropriately supported at Brownies and Guides though?

It sounds as if lack of guidance and appropriate support is the real issue in the OP’s example. The other children have no idea what to do when the ND child refuses to participate in group activities-because the adults haven’t given them any guidance!

Sniffle555 · 27/06/2024 18:19

saraclara · 27/06/2024 17:30

We are doing ND children no long-term favours by shoehorning their behaviours into situations such as the OP's.

Yes. For those who read my posts about the girl who I had to remove from the West End theatre, she should never have been put in that position. I knew her very well, I knew that she'd find it sensorally difficult, and I knew she'd respond by being loud and physical and ruining it for all those who'd looked forward to it and spent a small fortune to go. But I was over-ruled by those for whom inclusion was gospel.

But that does NOT mean that we give up on helping severely ND people access acitivities and events.
I had another pupil who was at a different level of severity, and verbal. His mum said that they'd tried to go to the panto as a family and had to bail after five minutes due to his distress, and how sad that was. In this child's case, I knew that if he could manage the dark and the sound, he would really enjoy it. So over the next ten months, we worked on that. We had two trips to the very small local theatre, and I negotiated with the theatre to take him to the back of the auditorium where no-one else was seated, and where there was easy access to the exit. I talked him through it, he climbed on my knee for comfort initially, and I whispered to him encouragingly and explaining to him what would happen next. He gradually relaxed a little, end ended up in his own seat, just holding my hand.

The second time (in the meantime we'd been working on bright lights, loud sounds and darkness) those seats were available to me again. But after he was used to the dark and was managing better, and I saw him looking at his friends a few rows in front, I asked if he'd like to join them, and he did. By half way through he was really enjoying it.
That Christmas, his parents took the risk of booking the family to the panto again. We talked about it at school, he went, and he loved it. His parents were ecstatic. They just wanted to do this thing as a family, and we achieved it.

That's how including a ND child works. You DON'T put them in a situation which they know is going to end badly. You choose something where there's a reasonable chance of success (eventually) and that you know they will ultimately enjoy. And you structure it so that there's an escape route, and so that disturbance to others is minimised.

But of course it requires one to one support. So I'm afraid that parents have to be prepared to stay at something like Scouts or a hobby activity. And to choose it wisely.

Edited

I don’t think you get to speak for all ND children or lecture to their parents actually. I didn’t stay at guides or brownies.

OperationPushkin · 27/06/2024 17:41

The world is operated by the NT majority. That is a fact, whether we like it or not. However, the idea that people who are ND must conform or be ostracised is an old-fashioned notion that I had hoped was no longer considered acceptable. Helping and supporting someone doesn't mean changing everything about them. It would be impossible in any case. People who are ND can't just magically become NT, even with all the support in the world. It isn't a choice. The idea that the NT of the world shouldn't have to make any sort of accommodations for others, when the ND make accommodations every single day of their lives, is really sad.

My brother who I wrote about above has been treated terribly throughout his life. Very few people have been willing to look beyond the stimming and social difficulties to see him for the remarkable person he is. He has never hurt anyone. He's incapable of it. But the world remains a terrifying place for him, because the rules that an NT person absorbs without consciously being aware of it are unfathomable to him. It's not that he is ignoring those rules. He truly can't understand them, despite being extraordinarily intelligent from an academic perspective. But he tries every day of his life even when he is knocked back time and again (both literally and figuratively). He is quite frankly the bravest person I know. If he could receive some consideration and tolerance, it would make all the difference to him. And yet most people seem content with ignoring him, excluding him, relegating him to the sidelines. Sometimes they make a pretense of inclusion, while in fact setting him apart. This has happened all his life. And these same people have often patronisingly said they are only concerned for him, they only have his best interests at heart. What rubbish. They just feel uncomfortable around him because he is ND and they don't want to open their minds. It makes my blood boil to think about it. When it doesn't make me weep.

saraclara · 27/06/2024 17:30

We are doing ND children no long-term favours by shoehorning their behaviours into situations such as the OP's.

Yes. For those who read my posts about the girl who I had to remove from the West End theatre, she should never have been put in that position. I knew her very well, I knew that she'd find it sensorally difficult, and I knew she'd respond by being loud and physical and ruining it for all those who'd looked forward to it and spent a small fortune to go. But I was over-ruled by those for whom inclusion was gospel.

But that does NOT mean that we give up on helping severely ND people access acitivities and events.
I had another pupil who was at a different level of severity, and verbal. His mum said that they'd tried to go to the panto as a family and had to bail after five minutes due to his distress, and how sad that was. In this child's case, I knew that if he could manage the dark and the sound, he would really enjoy it. So over the next ten months, we worked on that. We had two trips to the very small local theatre, and I negotiated with the theatre to take him to the back of the auditorium where no-one else was seated, and where there was easy access to the exit. I talked him through it, he climbed on my knee for comfort initially, and I whispered to him encouragingly and explaining to him what would happen next. He gradually relaxed a little, end ended up in his own seat, just holding my hand.

The second time (in the meantime we'd been working on bright lights, loud sounds and darkness) those seats were available to me again. But after he was used to the dark and was managing better, and I saw him looking at his friends a few rows in front, I asked if he'd like to join them, and he did. By half way through he was really enjoying it.
That Christmas, his parents took the risk of booking the family to the panto again. We talked about it at school, he went, and he loved it. His parents were ecstatic. They just wanted to do this thing as a family, and we achieved it.

That's how including a ND child works. You DON'T put them in a situation which they know is going to end badly. You choose something where there's a reasonable chance of success (eventually) and that you know they will ultimately enjoy. And you structure it so that there's an escape route, and so that disturbance to others is minimised.

But of course it requires one to one support. So I'm afraid that parents have to be prepared to stay at something like Scouts or a hobby activity. And to choose it wisely.

saraclara · 27/06/2024 17:13

fliptopbin · 27/06/2024 17:09

In other words they should stay out of sight so that people aren't offended? Jesus Christ!

That's not remotely what that poster said.

fliptopbin · 27/06/2024 17:09

ThisOldThang · 27/06/2024 15:16

I completely agree.

The general public are not unpaid social workers and/or bit-part players in the life of Nina ND. They are going to be understandably upset if they attend an event that they've been looking forward to (e.g. a West-end musical) and it is ruined by somebody causing disruption. If they find their weekly hobby clubs are intruded upon, they'll likely vote with their feet. For smaller groups, that could easily result in the groups folding.

This is why, and I know some people will hate this suggestion, I think that the onus should/must be on ND people fitting in with the majority whenever and wherever possible. We are doing ND children no long-term favours by shoehorning their behaviours into situations such as the OP's. As soon as people are old enough to walk away, they will do and the ND children will be left wondering why they've suddenly gone from a 'thriving' social life to one of being ostracised and isolated.

In other words they should stay out of sight so that people aren't offended? Jesus Christ!

BruFord · 27/06/2024 17:08

Which is why the burden shouldn't be on children to monitor/regulate behaviour. The grown ups need to do better.

@ThatsAFineLookingHighHorse Yes, that’s the impression I’m getting about these group activities in the OP’s posts. The 13-year-olds are told to work together and simply don’t know what to do when the ND child refuses to participate- because they’re just children! They don’t know how to make the correct adjustments, how could they?

tamaribest · 27/06/2024 17:03

This reply has been deleted

This has been deleted by MNHQ for breaking our Talk Guidelines - previously banned poster.

ThatsAFineLookingHighHorse · 27/06/2024 17:02

Screamingabdabz · 26/06/2024 17:07

I totally get it op. My DS used to come home almost in tears with frustration at PE lessons (very small school) where a game would have to stopped and interrupted multiple times to allow a tantrumming year 6 pupil have the ball and to let him win.

My son would ask me despairingly what the point of playing the game was if one pupil could circumvent the rules and get more game-play by just kicking off. He understood the child’s difficulties as they’d had assemblies on it, but there seemed absolutely no concession to the disruption and unfairness to the rest of the class who just wanted to get on a finish a game of basketball or football.

My son would’ve been more than happy for Ben to have the ball once or twice and then cajoled for the rest of the game but stopping every 5 mins was infuriating. My son sadly said at the time he would rather just not bother with PE at all if it was going to be like that.

There has to be a middle ground between accommodating/including but creating conditions where it doesn’t impact on the enjoyment of the original purpose.

I completely agree. We're asking children to bend over so far backwards to accommodate and include everyone at all costs that we're breaking them. That's not sustainable or fair to anybody.

Which is why the burden shouldn't be on children to monitor/regulate behaviour. The grown ups need to do better.

Sniffle555 · 27/06/2024 16:18

ThisOldThang · 27/06/2024 15:16

I completely agree.

The general public are not unpaid social workers and/or bit-part players in the life of Nina ND. They are going to be understandably upset if they attend an event that they've been looking forward to (e.g. a West-end musical) and it is ruined by somebody causing disruption. If they find their weekly hobby clubs are intruded upon, they'll likely vote with their feet. For smaller groups, that could easily result in the groups folding.

This is why, and I know some people will hate this suggestion, I think that the onus should/must be on ND people fitting in with the majority whenever and wherever possible. We are doing ND children no long-term favours by shoehorning their behaviours into situations such as the OP's. As soon as people are old enough to walk away, they will do and the ND children will be left wondering why they've suddenly gone from a 'thriving' social life to one of being ostracised and isolated.

What an awful post and exactly the opposite to what we’ve been told by professionals.

“I think that the onus should/must be on ND people fitting in with the majority whenever and wherever possible. “

Doing this is called masking and has caused my dd massive mental health difficulties and her to make attempts on her life.

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