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Share your dilemmas and get honest opinions from other Mumsnetters.

To be pissed off with transport for my SEN child?

218 replies

blackwhitegrey · 24/06/2024 12:18

Urgh. We live 2 miles from SEN autism school. DS14 has been there for 4 years and DH gave up work to look after him when mainstream failed him and he was at home for 2 years. He's doing really well at school now and really thriving. DH really wants to go back to work (and we REALLY need the money). He has been offered a job for September.

  • School transport refused as we live too close. They feel it's appropriate to expect a parent to take him to school and that's not disability discrimination (most 14yos don't have a parent walk them to school). Appeal done and refused.
  • can't pay for school taxi as it's not a guaranteed place and they don't accept applications until after October half term
  • can't pay for a private taxi as all the DBS drivers are doing LEA runs.
  • DS can't walk alone the 4 mile round trip as it's a main road, he's autistic, sensory averse, highly anxious and a flight risk
  • DS can't get the bus alone as it's too cognitively complex (plus anxious / sensory) and involves crossing 2 major roads.

DS is ok in the house for an hour ish pre and post school. He's pretty good / safe in the house. Would be fine getting dressed and waiting for taxi / waiting for me to get home 30 mins after drop off.

But out the house alone - total disaster.

What do we do??

OP posts:
AmelieTaylor · 25/06/2024 08:32

blackwhitegrey · 24/06/2024 16:33

No, probably not actually.

I can try and look again at a private taxi hire. I just imagine it will be SO expensive twice a day.

@blackwhitegrey

@dahliadraws is incorrect. Yes taxi drivers have a licence, but it doesn't mean much.

Some taxi drivers work through a company that logs their journeys but LOTS do not.

the problem is less likely that it's too expensive, it's much more likely it's so small a fare it's just not worth tying their time up for. Sadly that's the reality. In most areas taxi drivers have to charge the meter rate if the journey is in their borough it would meter around a fiver here. To commit to those times twice a day for a tenner just isn't worth it as they have to turn down better paid fares.

i think all you can do is follow the advice, already given, to get them to provide transport

he should be getting it.

best wishes!

Zanatdy · 25/06/2024 08:30

blackwhitegrey · 24/06/2024 13:01

Because at 14, without disabilities, he would be able to walk to our local MS secondary which is less than a mile away. Or he could get a school bus and have the skills to manage.

The LEA places him in this school because his needs are severe.

Does every parent of a 14yo take their child to school, there and back every day??? I wasn't aware of this. I took myself to school at that age because I was not disabled?

My DD is 16 and I’ve taken her (or her dad has) every single day of secondary. She’s got health issues, low iron / vitamins and there’s a big hill and woods to walk through. She’s got the bus home now and then but I adjust my job generally to do this. I drop her on the way to the office or I go back and work from home and if I’m collecting I take a late lunch and pick her up, then log back on again at home. I often join teams calls on my work phone with headphones in when driving. It’s not easy, and 2 more years of this for sixth form coming up in September. My sons both walked to secondary but they didn’t have the same health challenges as their sister

Mathsbabe · 25/06/2024 08:24

Isitovernow123 · 24/06/2024 12:52

Possibly slightly contentious, but you’re 2 miles from the school so why should the council pay for transport?

You will have to take responsibility for getting them to a place which is in great demand, especially with the lack of money in the sector.

Yes your husband might need to go back to work but you still need to care for your child. Part time hours to fit around the schooling is your best hope - many a parent have been doing this for a long time.

I completely disagree with you. The OP, and many others, have a child with additional needs. As a society we need to support families facing additional difficulties. Most 14 year olds don't need this kind of help getting to school but this child does and this at least is somewhere where help could, and should, be given.
This family is facing many difficulties that "normal" families don't and this is a difficulty that governments can help with.

mitogoshi · 25/06/2024 08:14

@Crumpetsssss

Sen is not a universal situation, they are all different. My dd was assessed as capable of using public transport, she had a free bus pass from the council, and did successfully for secondary. We spend 3 months preparing her to do it. As an adult now she struggles with many things, asd is lifelong after all, but has learned how to adapt her life to be able to do what she wants, typically dealing with background noise, wears sunglasses and lot and loves a mask!

Zyq · 25/06/2024 08:09

blackwhitegrey · 25/06/2024 07:26

We don't have a BB for him but I think as they are using the new guidance, it's irrelevant. They've said they expect us to accompany him on roads / bus etc to manage his safety.

Point out to them that the guidance is unlawful and discriminatory, and that you will challenge it through the courts if necessary.

Scruffily · 25/06/2024 08:07

FoxSwiss · 24/06/2024 23:10

Well good luck fighting them. The kid will have left secondary by the time anything gets sorted unlawful or not.

It's actually quite easy. Legal aid can be obtained in the child's name and this sort of claim is dealt with relatively quickly.

mitogoshi · 25/06/2024 08:06

Has he been assessed as capable of travelling to school alone? If so that is the issue. Autism doesn't mean automatically you can't travel alone, it's down to individual assessment. Gently ask yourself, are you being overprotective? My dd always travelled on public transport to secondary school, but she wore headphones to help with sound

Morph22010 · 25/06/2024 07:59

Riversideandrelax · 25/06/2024 07:39

I do understand where you are coming from as I still have to take my high school age DC to school.

Can he go into school early for breakfast/club and then stay for a club or homework in the library after school?

Edited

You clearly don’t understand at all where she is coming from or you wouldn’t have made those suggestions as they aren’t options at special schools

Morph22010 · 25/06/2024 07:56

Riversideandrelax · 25/06/2024 07:42

But DC can go in early for breakfast in the morning and/or do a club and then stay late for more clubs in many high schools.

My sons sen school doesn’t have any after school clubs he has to be picked up at 330 no other option. his does have a breakfast club that starts from 815 but that’s fairly unique most special schools don’t have a breakfast club either.

x2boys · 25/06/2024 07:54

Riversideandrelax · 25/06/2024 07:39

I do understand where you are coming from as I still have to take my high school age DC to school.

Can he go into school early for breakfast/club and then stay for a club or homework in the library after school?

Edited

Do you have a child in a special school?
Because it generally ime at least doesn't work the same way that it does in mainstream because those children will need a lot more support which requires.more staff etc
It's really not the same as a child in mainstream going to chess club or whatever after school.

x2boys · 25/06/2024 07:49

Riversideandrelax · 25/06/2024 07:42

But DC can go in early for breakfast in the morning and/or do a club and then stay late for more clubs in many high schools.

Not in any special schools that I know of anyway
The point being most 14 years are able to independently care for themselves, a lot of children with SEN particularly those whose needs can only be met in a specialist setting will need a lot more support and guidance .

Riversideandrelax · 25/06/2024 07:42

Morph22010 · 25/06/2024 07:34

Most parents of 14 years olds don’t need to do this so it’s not having to do the same as everyone else, that’s why mainstream secondary schools don’t tend to have breakfast or after school clubs like primary does as typical 14 year olds can get themselves to school if they are at the local school.

But DC can go in early for breakfast in the morning and/or do a club and then stay late for more clubs in many high schools.

Riversideandrelax · 25/06/2024 07:39

I do understand where you are coming from as I still have to take my high school age DC to school.

Can he go into school early for breakfast/club and then stay for a club or homework in the library after school?

Crumpetsssss · 25/06/2024 07:37

And, yes, to all the ‘just do what normal parents do’ posters, check your privilege. Parenting a child with SEN is a whole different world.

Morph22010 · 25/06/2024 07:36

Beautiful3 · 24/06/2024 13:59

I've worked with young adults 18 plus, for 8 years. They don't have free transport at all. The higher the needs, the higher the disability allowance. This is supposed to allow the parents to be more financially comfortable, if one needs to stop work or reduce to part time hours. Your son will always need support travelling even when school ends, like college.

Disability benefits for adults belong to the disabled adult the parent isn’t allowed to take them to replace their lost wages.

Crumpetsssss · 25/06/2024 07:35

if he’d be okay at home for an hour or so in the morning and evening, would he be okay in school for a short period at either end?

At the school I work in, pupils are frequently dropped off up around 45 minutes before school (when the canteen is open but there’s no formal provision) and after school there are homework clubs and the library open for around an hour most nights.

If he could be IN school from 8am to 4.30, would that make the ‘one of you drops off and one of you collects’ option easier?

Morph22010 · 25/06/2024 07:34

MumApril1990 · 24/06/2024 14:15

Just what every parent does who needs to drop their child at school, arrange work hours around it or pay for breakfast/ after school club or childminder. The council can’t afford to pay for taxis for every child.

Most parents of 14 years olds don’t need to do this so it’s not having to do the same as everyone else, that’s why mainstream secondary schools don’t tend to have breakfast or after school clubs like primary does as typical 14 year olds can get themselves to school if they are at the local school.

countcalculia · 25/06/2024 07:28

blackwhitegrey · 24/06/2024 16:33

No, probably not actually.

I can try and look again at a private taxi hire. I just imagine it will be SO expensive twice a day.

Does he not get PIP?

blackwhitegrey · 25/06/2024 07:26

AnCùDubh · 25/06/2024 06:59

Do you have a blue badge for him?

We are in a similar position in that we are 1.9 miles. Albeit DS is 6.

We got transport on the basis that it's along two main roads and he has a BB for Risk in Traffic, plus his teacher wrote a statement.

If he has a BB point out he's considered enough of a rosk to qualify

We don't have a BB for him but I think as they are using the new guidance, it's irrelevant. They've said they expect us to accompany him on roads / bus etc to manage his safety.

OP posts:
moggle · 25/06/2024 07:24

Doubt this will be useful but one thing I’ve seen around here (Surrey, another shithole of an authority for SEN) is “lady driving services”… they’re more aimed at driving elderly people to hospital appts but I’ve also seen them dropping off kids at my kids mainstream school. They advertise having DBS.
my DS who’s at a SEN unit within a mainstream is only 6 and so far we’ve had no problems with taxi transport (I feel like the only one in the county!). Surrey’s special trick this year has been to deny transport to all reception child who’ve been given a place through SEN admissions, if they’re not of compulsory school age in September (so 3/4 of kids presumably). So much upset and stress.

x2boys · 25/06/2024 07:22

MumApril1990 · 24/06/2024 14:15

Just what every parent does who needs to drop their child at school, arrange work hours around it or pay for breakfast/ after school club or childminder. The council can’t afford to pay for taxis for every child.

How many breakfast clubs childminders etc do you know that are willing to take a 14 year old?

x2boys · 25/06/2024 07:06

TheCheeseThief · 24/06/2024 12:27

You'd need to be 6 miles away from the school, my child's Sen school is the same.

That said I'm expected to be home when he gets in by the transport/school so this may be an issue as well.

I'm guessing moving isn't a option, I'd speak to SENDIASS failing that you'll have to work out between you on doing the school run.

I don't think there is any hard and fast rule I think we are about3 or 4 miles from my Sons special school and he gets transport
It does obviously depend on the needs of the child

Darkfire · 25/06/2024 07:02

Scruffily · 24/06/2024 23:05

Did you notice that this 14 year old has quite severe learning difficulties and neurodivergence?

Yes I did.
When my DS (13 at the time) was offered a place at a specialist placement the LA wanted me to transport him. One of my arguments for a taxi was that DS didn’t want to travel with me everyday and needed some independence. Also DS is very compliant when getting ready for his taxi driver and leaves on time for him, if I take him it’s a battle to get him ready and he complains about school the whole journey meaning he’s already irritated when he arrives to school.

AnCùDubh · 25/06/2024 06:59

Do you have a blue badge for him?

We are in a similar position in that we are 1.9 miles. Albeit DS is 6.

We got transport on the basis that it's along two main roads and he has a BB for Risk in Traffic, plus his teacher wrote a statement.

If he has a BB point out he's considered enough of a rosk to qualify

FoxSwiss · 24/06/2024 23:10

Scruffily · 24/06/2024 23:04

However, it does matter in legal terms. If parents have to give up work because they have a disabled child and the LA doesn't fancy complying with its transport duties, that is grossly discriminatory and unlawful.

Well good luck fighting them. The kid will have left secondary by the time anything gets sorted unlawful or not.

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