To think getting any help for my SEN child is nigh on impossible...

So sorry you’re having such a tough time getting what you need. I’m a big fan of the Charlotte hale parenting adhd guides- this” raising rebels “one is a really comforting read for anyone who has a child with ODD that constantly pushes boundaries or challenges authority. She seems to really get how exhausting and frustrating it can be, and this book made me feel less alone. It gave me a fresh take on my child’s behaviour and helped me approach things with a bit more patience instead of just reacting.
Xx

The lack of appropriate support and provision is shocking. And that’s before we even get to the parent blaming, gas lighting and ignoring. I couldn’t have imagined how hard this journey would be until I was on it.

Dsis requested a re-assessment for my nephew. That alone was a battle. The Ed Psych wrote a brilliant report, made it clear that his learning difficulties are so significant that he cannot possibly sit GCSEs (his reading, vocabulary, maths etc assessed a 9yo - he's 15) and should not be in mainstream. He needs functional skills for semi-independent living. This was all accepted and an updated ehcp granted. Nothing has changed, they won't move him. They're telling him to revise for a mock GCSE exam he has no hope of sitting through and no hope of passing.

So sorry op, the system is very broken.

My Twin 2, aged 6, was diagnosed with ADHD and ODD this year. She's got an EHCP and she's still...floundering.
Everything that is place for her is because of my nigh on monomaniacal pursuit of support for her. The 'fight' nearly broke me mentally last year.
Now, it's 'game on' re: Twin 1. And, I'm tired of having to almost be an arsehole to get the support my daughters need (with no backing from family etc).
It's fucking relentless.

If a Tribunal names a SS in an EHCP they must admit even if the school or LA claim they don’t have a space.

My experience is you won't get special school without tribunal. The. When you battle for months and suffer serious stress and finally win it none will have space

I genuinely don't know how so many people home educate SEN kids. Apart from them not listening to a word I say, there would be no way of financing our life. Literally couldn't eat and I know that universal credit doesn't pay you to educate, or cover mortgage. Yes ds2 has 60% attendance, no social interaction, needs a disability push chair and keeps leaping out to run off into traffic. The provision is appalling and not on anyone's agenda to fix after the gentleman election either.

Yep, early on in this process I said to my DP ‘wow there’s really no support is there?’ It has just felt like parent blaming & everything being turned back on us to facilitate. Our DD is now home ed. We did get an EHCP but we were exhausted by that point & didn’t think we could face trying her in another mainstream school even with support. We also had a very heavy handed social worker that got involved with no understanding of autism whatsoever. The whole process was a nightmare. You’re not alone OP!

If you are meaning a draft with the proposed amendments following AR then the LA has 4 weeks from the meeting rather than 2 weeks to inform you if they are going to amend or not and if they are going to amend send the draft at the same time. If the LA hasn’t stuck to this timescale, have you sent IPSEA’s model letter? You won’t be able to appeal to SENDIST without having the right of appeal.

When did you request a reassessment of needs and has the LA agreed to a reassessment?

Sorry to say it, but it does sound like appeal is your best recourse.

I don't understand schools who say this.

My son is SEN but does ok. There's a boy in his school who has such significant needs that he has a 1 to 1 everywhere he goes. He learns separately with her and she tries to integrate him at playtime but he struggles. He had an EHCP. You need something like this if there are no suitable schools nearby.
It's such a postcode lottery. You have to keep fighting. Appeal is the only way.
If you can afford assessment of need in the learning environment you could pay for that but that would be costly.

Appeal. There is no other way.

Go to the IPSEA website and look for “model letters” then find the one that is about applying for a reassessment. Use that to apply for a full reassessment. It is kind of like starting from scratch but you already have a baseline. The LA must then re do the shit reports you’ll have got in 2020 lockdown year. If they refuse you have the right of appeal. Your EHCP and provision therein is only as good as the reports you have which inform it.

If you think a SS is required and the LA has refused, have you appealed to SENDIST? If not, do you currently have the right of appeal?

I’m in the same boat. My son is 10 and can’t read or write better than a 6 year old. Has no social skills and also has dyspraxia.
his EHCP has been declined.
We need to apply for secondary schools in September, no way he will cope in a mainstream school but no EHCP means no special school

Can you afford to get your own ed pysch, sensory occ therapy etc? It sounds like you need a new EHCP and a suitable school named.

YANBU to think getting the support is incredibly difficult and hugely exhausting to fight.

Hi OP, what does his school say re annual review of his EHCP?

Annual reviews are legal requirements and they should be taking your views into account