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AIBU?

Share your dilemmas and get honest opinions from other Mumsnetters.

To be absolutely sick of DH's family poisoning him with gluten

317 replies

Dippidydoppidydoo · 10/06/2024 08:35

My DH has coeliac disease - diagnosed about five years ago. He's also T1 diabetic. It seems that virtually every time we eat with his family the food is contaminated in some way and it makes him ill. Family meal at his sister's yesterday - she promises everything down one side of the table is gluten free. Then last night as usual he's up all night being ill. His blood sugars are all over the place (having a coeliac attack makes them impossible to control). Last time we went round there his mum served him beef cooked in beer and then when he realised suggested that it may have been 'cooked off' in the process. A few weeks ago they took us for lunch ('their treat') to a place that had some gluten free options but was essentially a pie shop with a very gluten heavy kitchen. Surprise surprise - he's ill again.

We have small children and I'm having surgery this week. I now have to rely on him to do all the parenting while he's ill because his family seemingly can't get it together enough to make a single gluten free meal.

I get that it's hard. I get that it's difficult to make sure there's no contamination but AIBU to think that you don't cook for someone unless you're confident you can accommodate their dietary needs?

Any tips from any coeliacs about how to deal with this welcome!!

OP posts:
Dentistlakes · 10/06/2024 11:45

If they can’t ensure the food is gluten free then I would just say you can’t eat with them any more, or take my own food. It’s unacceptable for him to be ill every time he eats with them and you all having to deal with the impact.

DreadPirateRobots · 10/06/2024 11:45

Dippidydoppidydoo · 10/06/2024 11:39

@DreadPirateRobots He didn't! No way would he ever knowingly make himself unwell. His mum cooked some meat and said it was gluten free (pretty low risk food on a plate on its own so he trusted it and ate some). Only later did it become apparent that it was cooked in beer when I overheard his mum telling someone else that's how she'd prepared it.

Well that's something. His DM is clearly not where she needs to be in terms of knowledge though, and while that's true then not eating anything he hasn't either made himself or thoroughly vetted himself is going to be necessary. It's even more critical for him than someone who "only" has coeliac given that he's also a T1 and the impact of unmanaged blood sugars. It's astounding that his family haven't tried harder to learn - has he really spelled out to them the severity of the potential impact on him?

tkwal · 10/06/2024 11:44

It's not a fad, it's not a preference or even an intolerance it's an actual illness. If his family can't be respectful enough to cater to his NEEDS then stop eating with them or take a meal with you that is suitable for him. Cross contamination is difficult to avoid in a domestic situation (not impossible but it does take a lot of effort to avoid any possibility) even eating chips from a fryer that has been used to cook battered fish (for example ) can cause problems. Hope you and your DH recover soon 💐

Dippidydoppidydoo · 10/06/2024 11:39

@DreadPirateRobots He didn't! No way would he ever knowingly make himself unwell. His mum cooked some meat and said it was gluten free (pretty low risk food on a plate on its own so he trusted it and ate some). Only later did it become apparent that it was cooked in beer when I overheard his mum telling someone else that's how she'd prepared it.

OP posts:
pontipinemum · 10/06/2024 11:39

My niece is coeliac my sister just brings her dds food places. Like mine for a family BBQ last year. I had offered and she does (I think) trust me but said she is just more comfortable bringing her own. I guess that's her kind way of saying she doesn't trust me😂which if fine she does not want to risk DD getting sick. think you DH is annoyingly going to have to bring his own food in future.

OllyBJolly · 10/06/2024 11:37

Like @JustMarriedBecca , I had no idea the extent of the dietary restrictions until my diagnosis. I didn't even know that coeliac is an autoimmune disease - I assumed it was an allergy. Even now I probably explain daily that "Yes just one biscuit will hurt". I was in a four star hotel a few weeks ago who "cater for dietary requirements." There was two packets of GF cornflakes, half a gf loaf but the toasters were on the main buffet. Ignorance is rife.

DD2 (also diagnosed coeliac) is a bit more direct than me. Her response is "That biscuit/sandwich/cake will increase my likelihood of bowel cancer. I don't want to die."

I carry cereal bars and bananas around with me so I always have something to eat.

BusyMummy001 · 10/06/2024 11:36

Wontubemysweetheart · 10/06/2024 08:44

Op I mean this in a way of support to you and your hubby as its clear your inlaws are incredibly ignorant to your husbands condition but I think your husband needs to take responsibility for his health and refuse to eat their food untill they fully educate themselves on the matter. As for the restaurant why didn't he pick something that was gluten free? If there wasn't anything there that was suitable he should have spoken up. He's a grown man no one can force the gluten down his throat. He needs to speak up and read the family the riot act so to speak.

He did - there’s an issue over cross contamination in non gluten-free kitchens. The issue is that is a full allergy, not an intolerance, which many restaurants don’t really appreciate - they simply want to tick a marketing box with no understanding of how ill a full allergic reaction to gluten can make people. Unless it’s nuts/peanuts, no-one understands.

Frogandfish · 10/06/2024 11:31

DreadPirateRobots · 10/06/2024 11:22

All due respect OP, but if your DH willingly ate something he was told was cooked in beer... he really does need to be a bit less passive. And if his family actively made a beer-based dish for a coeliac... they also need to try a bit harder.

Well this exactly, there's clearly no malice but they don't sound the brightest and he doesn't sound the best communicator. Rather than let it rumble on as an issue at all, just remove the problem from the table by him providing his own food. No monitoring or worrying needed and the nice family dinners can continue. He can say to his sister 'i appreciate you trying but it's hard in a domestic kitchen to prevent cross contamination so I'm going to stick to this way from now on. The symptoms the next day just aren't worth the risk. Nothing personal'.

DreadPirateRobots · 10/06/2024 11:22

All due respect OP, but if your DH willingly ate something he was told was cooked in beer... he really does need to be a bit less passive. And if his family actively made a beer-based dish for a coeliac... they also need to try a bit harder.

Trickedbyadoughnut · 10/06/2024 11:21

My GF and one of my friends have coeliacs and I now only do dishes that everyone can eat, otherwise the risk of cross-contamination is just too high, so perhaps that's something he could gently suggest? I find it much easier too.

Being proactive and volunteering to bring GF dishes too might work - cuts down on the cost for them too? I am veggie so often do that too, cuts down on the organization for the host!

ToothofaPig · 10/06/2024 11:20

@Dippidydoppidydoo yes, my DH feels the same. It would be a lot easier if they just could just leave him to it and manage their own feelings about the situation. Think they need a family therapist to navigate it Grin

Dippidydoppidydoo · 10/06/2024 11:12

@ToothofaPig thank you for your post. This is exactly it. If they just didn't care or try to cater for him then it would be easy to simply say he's not eating with them anymore. His family cook and eat together regularly and have done all his life. His mum loves finding new ingredients and recipes and enjoys making things he can have. It's shit always having to be awkward and say thanks but no thanks, knowing the effort (and often expense) people have gone to.

OP posts:
DrCoconut · 10/06/2024 11:06

My 8 year old knows how to avoid poisoning me with gluten so I always call BS on otherwise competent adults who "can't understand it". They don't want to or they can't be bothered. It's easy if you just read up on labelling and avoiding cross contamination.

BlondiBleach · 10/06/2024 11:03

Host at your home.

ohtowinthelottery · 10/06/2024 11:03

cornflour even!

ohtowinthelottery · 10/06/2024 11:02

Figuring out everything that has gluten in can be quite complicated for someone who is only trying to cater for it occasionally.
I have a friend who is gluten intolerant - so slight cross contamination not a problem but definitely have to avoid foods with gluten in them. I've done a lot of label reading and once had an on the day panic when something we were preparing had soy sauce in - and we're 5 miles from the nearest shops which may or may not stock GF soy sauce. Fortunately friend lives locally and had a bottle which we were able to collect.
I also have a SIL who is coeliac. I don't very often need to cook for her family but when I do, I stick to plain things (meat and 2 veg - with gravy made with cornflower). I now also have a repertoire of gf puddings/cakes so that's not a problem.

But it all takes time - not something everyone is blessed with. Plus you don't know what you don't know.

So your DH needs to take his own food to family meals until such time as he can properly educate his family - and by that I mean give them a comprehensive list of foods he definitely can't eat plus instructions on not mixing utensils used in any gluten containing foods being cooked ( although giving everyone gf on the day would be a far better option).If however they don't want to be educated then he needs to stick with supplying his own food.

WittyFatball · 10/06/2024 11:01

Icannoteven · 10/06/2024 10:23

Hos family sound like cunts. Can you just stay away from them?

if not, then he really needs to be -) taking his own food ( which absolutely sucks!) or asking very specific questions about food prep, storage and examining labels.

Was he diagnosed late in life? Don’t any other family members have coeliacs? I’m just wondering how in earth he survived as a child with a family this clueless 🙄

It doesn't sound like they're cunts, just that they've made mistakes.
There's a big difference between wheat-free and completely uncontaminated with gluten. The SIL probably went to an effort to ensure half the food was gluten free, but then might have accidentally used a knife or chopping board that was contaminated. It's really hard to cook gluten and gluten-free foods in the same small family kitchen and keep it totally separated.
Same with the beer - easy mistake to make. If you asked 100 random people in the street if beer contains gluten, how many would know?

I can't see how the parents can be blamed for the DH eating gluten free options in a restaurant and getting ill.

MikeRafone · 10/06/2024 10:59

I would purchase something ready made that can be microwaved when you get to their place - take his own food and eat it. There is no way I would give my SIL food containing gluten, its unfair to make someone ill. If they are not listening or understanding then its safer to take your own ready made food and eat that.

Id also explain that each time you visit sadly he is very ill afterwards and its got so bad that action has to be taken as it could affect his longterm health.

Maybe they will then realise how serious it is but regardless you ll both know he will not be unwell after a visit.

maudelovesharold · 10/06/2024 10:55

I remember 30 odd years ago, my (lovely, but v. trad.) MIL being really thrown by the fact that I was a vegetarian. I often used to offer to bring my own food to family meals/gatherings, and was almost always gratefully taken up on the offer! I’d rather eat my own food than be constantly on the alert, I think.

WittyFatball · 10/06/2024 10:55

It does sound like your DH needs to take some control/responsibility for what he eats and not rely on his family to provide gluten free food.

For whatever reason, they're not able to do so to the extent he needs.
Providing 'gluten free options' is pretty different to avoiding any contamination to a level suitable for someone who is coeliac. Realistically that's hard to do in a home kitchen where there are lots of gluten containing foods too.

Wethairwendy · 10/06/2024 10:53

Don’t eat with them again.

Dippidydoppidydoo · 10/06/2024 10:50

Thank you for all your input. Of course you're all right and the only way forward is to bring his own food to family events and not go to eat out at places he hasn't been able to vet first, which is what we'll have to start doing now.

His family don't not give a shit, are very lovely, and have been mortified every time he's told them they've made him unwell. This is what makes it harder. They're definitely trying to cater for him, and we've had some lovely meals together since his diagnosis that he's been absolutely fine after. We've spoken to them about cross contamination and about common foods you wouldn't think contain gluten that do so we thought they were on it.

I hear that it sounds like he's being too passive, and it's true that he has sometimes discreetly just not eaten anything rather than make a fuss. It is difficult when someone makes a point of cooking a special gluten free thing (as happened yesterday) that they've gone out of their way to buy special ingredients for to say you don't trust it and won't be eating it. But yes, this is what will have to happen henceforth.

For posters confused about why I mentioned going into hospital, I'm just frustrated that he's unwell again when I need to rely on him over the next few days is all. I think he has underplayed how unwell these attacks make him and how much they impact our family life, which will have to change going forward. I'm just frustrated on his behalf really!

OP posts:
GerbilsForever24 · 10/06/2024 10:49

It's frustrating that his family is not willing to do the work to support him on this. I know from a few coeliacs I've met over the years that it's not as simple as avoiding wheat. I have a friend who is gluten intolerant, but not coeliac, so she's quite happy to eat at my house as log as I'm not providing actual wheat based food. But I'm aware that if she was actually coeliac, I'd have to take a different approach. I don't think it's bad that lots of us don't know this. But it is bad that his family is so indifferent to the issue.

ChampagneLassie · 10/06/2024 10:46

If this was a child then it would be your responsibility but he’s an adult and should be capable of working this out himself, surely he should always check food and if unsure not eat it? His family sound horrid but I think rather than you getting involved it needs to be him

Neverwithasoftmint · 10/06/2024 10:45
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