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AIBU?

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I'm terrified of these urinary issues I'm having - what could this be?!

139 replies

lockost · 09/06/2024 12:49

For nearly two weeks, I've had weird (what seemed like) UTI symptoms. I've never had a UTI before (early 20s).
This week these symptoms have gotten worse. UTI tests (all 3) have come back clear, 'just a few white blood cells, no infection'.

I feel like I need a wee 24/7. Pain in my abdomen. Pain in my back.
When I do go for a wee, it's usually a weak stream and not a lot.
I keep getting shooting pains in my urethra.
Feeling nauseous.
Feeling like I'm leaking urine when I'm walking.
(No pain when I'm actually weeing).

Getting the doctors to help with the 'all clear' tests is difficult. I've tried painkillers (don't make a difference), cystopurin, a thrush tablet (as advised by pharmacist).

I've got horrendous health anxiety so I've had panic attacks about this and that makes me worried that I could be psychologically making these symptoms worse by fixating on them.

Can anyone help if they have similar experience? I'm spending so much time crying because I just desperately want to feel normal again!

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Miriad · 09/06/2024 14:29

You could have a UTI. Tests are not reliable. Treatment is available based on symptoms even if you test negative. Go to your pharmacist, they can give you a 3 day course of nitrafurantoin without prescription.

You could have thrush. Thrush can irritate the vagina and make it painful to wee. It can be very stubborn. In the past I’ve had thrush that didn’t respond to the pill you swallow and I needed the pessary that you insert. I’ve also had thrush that needed an oral pill, two pessaries and a tube of cream to get rid of it. Sometimes one brand of thrush medication doesn’t work but another does. In the past I’ve taken Canesten and it’s failed to work, then I took an unbranded one and it worked.

You could have bacterial vaginosis. The treatment that works for me is the Balance Activ gel that you squirt in for 7 nights.

If you’ve had sex you could have a STD. Get tested.

What you’re describing sounds more like thrush. When you have a UTI the pain is up inside the bladder and it hurts more when you have a wee. You said there’s no pain when you’re weeing so it doesn’t sound like a UTI. It sounds like thrush which is irritating the urethra and causing constant pain and a painful feeling of needing a wee.

I had similar a while ago. No discharge, just burning and severe pain that made me feel like I needed a wee. I tested negative for everything. I hit it with a quadruple whammy of antibiotics, oral thrush pill, pessary and Balance Activ gel. One of them worked.

MattDamon · 09/06/2024 14:27

You can order meds online yourself if your GP isn't being helpful: https://www.healthexpress.co.uk/cystitis

lockost · 09/06/2024 14:17

@autumn1610 I did about 6 months ago!

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Persianpuss · 09/06/2024 14:11

Rubbish. I've had 50+ UTIs and never had a temperature.

lockost · 09/06/2024 14:03

@Icannoteven a nurse originally. Then a doctor who said they were clear, that 'a few white blood cells' were not an indication of infection and that if I've had symptoms for 2 weeks without getting a temperature then it can't be an infection (as it would have spread to kidneys by now)

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autumn1610 · 09/06/2024 14:02

i don’t know how to put it politely but have you had an sti test? Chlamydia has some similar symptoms

Thegreatgiginthesky · 09/06/2024 14:00

I had very similar symptoms and it turned out to be histamine intolerence. I cut down on high histamine foods and the symptoms completely stopped. I had been eating lots of fermented foods which seemed to be the primary cause.

Persianpuss · 09/06/2024 13:59

Please don't scare yourself reading horror stories about interstitial cystitus. You have a simple UTI and it needs treating with antibiotics. I believe you can get them from pharmacies now.

Icannoteven · 09/06/2024 13:57

Lots of urinary tract infections present with leukocytes (e.g ‘just a few white blood cells’) and not leukocytes plus nitrates. This Can happen even when it is a nitrate producing bacteria causing the UTI as it takes a number of hours for bacteria to produce nitrates. Also, dipstick tests are not very accurate (and some medical staff just aren’t very good at doing dipsticks). It probably is a UTI.

Did you speak to a proper Dr, not just a nurse?

I had trouble with kidney and urethra pain for 2 years. I was blocked from seeing a Dr by the practice nurse who consistently told me ‘it can’t be a UTI because it’s only white blood cells’ 🙄 It took seeing an actual Dr, who agreed to send the sample off to the lab, to get a diagnosis. I actually not only had an ecoli infection in my kidney but it had caused damage!

Persianpuss · 09/06/2024 13:57

It will be a UTI. The testing they use is only 50% accurate. This was told to me by a gynae urologist after I had UTI symptoms for months and the GP kept fobbing me off. After 2 weeks of antibiotics the pain and symptoms I'd had for 6 months disappeared.

He wrote a letter to my GP saying that if I presented with UTI symptoms I should be treated for a UTI. Unfortunately a lot of GPs don't seem to be aware of how inaccurate the tests are.

I would go back to your GP and insist on being treated for a UTI.

lockost · 09/06/2024 13:56

I did see the sites about IC.
I think I was being hopeful that it isn't that as it seems to be a permanent, life-long condition and this is the first urinary symptom I've ever had and the idea of it being lifelong after a week of symptoms terrified me!

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Achillo · 09/06/2024 13:53

Interstitial cystitis has similar symptoms as UTI but without infection so tests cooke back clear. I had this and kept getting usual test from male doctor who didn't even consider it.

lockost · 09/06/2024 13:44

Hopeful bump

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