I'm terrified of these urinary issues I'm having - what could this be?!

Or go to a pharmacy and get some tablets from there, they won’t test your urine. Just describe the symptoms, don’t mention your GP and they’ll prescribe. Sorry this is happening to you.

I would get a second opinion. If you possibly can, I'd try a private GP.

I had a UTI m, it cleared, the symptoms remained, and eventually it was discovered it was bladder spasms caused by the infection, and I was put on oxybutinin for a few months. Symptoms cleared instantly. Ask the GP.

I've had maybe 40 UTIs and never get pain when I wee
My symptoms start with going more at night then I get a weird feeling like someone is squeezing my sides. Eventually I just constantly need the loo even when I've just been

This 100%. I was diagnosed with IC in my teens after years of bladder pain. Turns out I have a deep underlying infection. Push them, the tests are little better than chance.

Been in this situation a few times. Previously I’ve waited until the pain is horrific then gone back to the doctor who ended up confirming there was a UTI. It may just not be enough to show up on a test. Push hard with GP about the pain level and see if they’ll give you antibiotics. Keep calling the GP as necessary, don’t be fobbed off. If it’s not a UTI, it’s clearly something that needs treating.

I'm not a doctor and really have not had that many utis but as other posters have said, I wonder if you have a kidney stone.

I had similar symptoms and it was infuriating everything coming back clear. After weeks back and forth, my dr eventually speculated that it could be a part of the bladder that had folded slightly, causing irritation, and that was the last thing they could think it could be.

Then I passed a kidney stone.

After 3 negative UTI tests the GP assistant suggested it might be pelvic floor issues so I immediately made an appointment with a pelvic floor physio specialist (who luckily could see me within a week - called in sick for work in the meantime) and she confirmed it with an internal. I was terrified it was prolapse but GP and physio confirmed it was overstressed.

I started pelvic floor relaxation exercises straight away 3x per day and she monitored me once a week for the next 2 months. After a few sessions with her I had problems with my piriformis as well.

I'm not in the UK so could make a physio appointment immediately but don't know if you'd need a referral in the UK.

With respect you're talking bollocks and have no idea what you're talking about. I have IC and it plagued my life until I had my little girls and my hormone mix changed slightly. I had bladder cocktails inserted into my bladder at first weekly, then biweekly, then monthly, until I got to 3 monthly. Don't disregard what you know nothing about. OP - I would insist on a referral to a urologist and ask them for a cystoscopy and bladder distention if you're still having these symptoms.

The tests are inaccurate, as others have said.

If you can afford it, try a test from Focus labs.

If you can't afford it, take a really clean catch (wash around your vulva with really hot water and mild soap first), first morning urine. In a very clean container. Leave it in a dark cupboard for at least 24 hours. Insist that your GP surgery send it to the lab for culture (don't tell them you left it out). The tests have a ridiculously high threshold for what they consider the amount of bacteria cells in the urine constitutes a UTI, it's based on a study of pregnant women with kidney infections in the 1950s!!

I had this tested over and over and kept coming back clear.
Had sti tests all clear.

Eventually my GP did a random swab for bv and I had it. 5 days of anti biotics and I feel so much better.

I felt like I had internal burn, like constant around my cervix area that felt worse b4 and after I peed

Sounds like you have a UTI. Dip tests are notoriously poor at confirming UTI especially when higher up.

Boots or any pharmacy will prescribe antibiotics for a uti.

Have you tried this? Please do before continuing to suffer.

I've been taking d mannose for 2 weeks after I had a uti that lingered, even after 3 days of antibiotics from the pharmacy. The uti has now cleared up perfectly so I'd definitely recommend d mannose too. Got from amazon in a black packet, take 2 in the morning and 2 at night so its a 2 week course.

Agreed, painful bladder syndrome definitely does exist. I’ve had it for about 8 years now. It was very painful for 6 months or so then it’s been controlled and now only bothers me mildly every now and then.

Sounds to me however, like a UTI and agree what others have said about the tests not being accurate. If the doctors won’t give you tablets, I’d go to a pharmacist and describe UTI symptoms and get some nitrofuriton tablets. I’d push to be given enough though, standard dose used to be up to 7 days now generally it’s 3 which doesn’t always work and then the problem remains.

Once you’ve got rid of a possible infection, D Mannose is good taken every day to stop bacteria sticking to the wall of your bladder.

If it is painful bladder syndrome, diet is used to help control it. Means cutting out acidic foods, spice, alcohol. If tablets don’t work it might be worth keeping a food diary and seeing if anything triggers it. https://www.ichelp.org/understanding-ic/diet/foods-to-avoid/

Also, I’m not sure I read how old you are, but if you’re anywhere near perimenopause age it could be hormonal which the GP should be able to help with.

I had this yrs ago.Funny stop start peeing.Heavyness down in pelvis.
Tests were clear but I woke up feeling hideous pain and weeing blood in urine as a stone was being passed.!!
Had tests to rule out any nasty bladder things and scan shows kidney stones.

£20 for 14 d mannose tablet is extortionate! You can get 180 for £12 from nuke nutrition

Do you have diabetes?

Agree with a lot of this. Poor DS has had a few UTIs. They never show on tests but have always responded to antibiotics.(Doctors in the past have prescribed based on symptoms. It's now more difficult to persuade some, although pretty obvious imo what the problem is given they've previously responded and there have been years in between episodes- the last time we had to see a private GP for a prescription which worked in a day or so).
There have been various research studies, I think, stating that diagnostic tests are pretty hit and miss. I'd definitely try antibiotics ( I have personally always needed these to clear UTIs) and would then take d mannose as suggested up thread to prevent further flare ups.

This is spot on.
I had symptoms of UTI but all tests were negative. My CA125 was raised so I was referred for scans and saw a gynaecologist who thought it might be interstitial cystitis and she sent me to a urologist.
The urologist was very dismissive of lab tests for UTIs. He said that's what I had and it should be treated as such. He didn't think it was interstitial cystitis.
Also told me to drink cranberry all the time. (I can't as it's too acidic for my stomach problems but I take cranberry tablets and drink lots and lots of water.)

Apologies for the misunderstanding. If you have been sexually active since you were tested I'd get checked out at the GUM. It is their speciality!

Kidney stones? Could be that it has migrated to the bladder and is causing the cystitis related symptoms. This may sound grim, but I recommend peeing through a sieve and seeing if you pass anything. Drink plenty of water too .

If you start to feel worse please seek medical attention. UTIs/cystitis/stones are miserable. Hope you feel better soon.