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Any drs or nurses that could help? Please

63 replies

Potassium123 · 07/06/2024 11:16

Hi

i made a thread recently but can’t find it now arghh, I name changed for it and can’t remember what I name changed to either so just figured it would be easier to start a whole new thread,

I was unwell over a month ago and in hospital for a few days, they picked up I had low potassium and gave me a prescription for sando k and told me to get a blood test in a few days. I did that and the potassium was still low, so more sando k and another blood test. And repeat. And repeat. Now unfortunately this is my 5th (I think) prescription for sando k. I just took it 3x a day for 7 days last week and had a blood test yesterday- they’ve just called with the results because apparently the potassium was 2.8. Am I being UR to be a bit worried about this? It was previously in the low 3s so I know 2.8 is a bit lower, but it’s not serious is it? From googling it says it’s only serious from 2.5? I’ve got another prescription for sando k and more blood tests next week, just slightly worried as the last few doses of sando K didn’t do much and if it’s 2.8 now I’m worried it’ll keep falling. I’ve tried eating loads of potatoes and bananas but I’ve been having awful headaches and pins and needles which I’m not sure if is down to the low potassium or me worrying about it!

can anyone please offer any advice or knowledge about this? Or any advice at all? Thanks in advance, just a bit of an anxious person in general x

OP posts:
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MissMoan · 28/06/2024 19:17

Hopefully it is being safely monitored. I wish you all the best OP.

Zerotoonehundred · 28/06/2024 18:39

MissMoan · 28/06/2024 17:55

I have experience of this. If a blood level of 2.8 is unusual for you, then normally you would be sent to A&E for an infusion.

I think it’s maybe area specific, as they said here the GP can give treatment as long as it’s not below 2.5 x

MissMoan · 28/06/2024 17:55

I have experience of this. If a blood level of 2.8 is unusual for you, then normally you would be sent to A&E for an infusion.

Thisoldheartofmine · 28/06/2024 17:14

Thanks for updating @Potassium123 . What a mystery, I do hope it can be sorted out for you soon .Flowers

Zerotoonehundred · 28/06/2024 14:58

Hi!

sorry, I’m the OP- I meant to update and then I forgot to and since then I’ve forgot the bloody password to my MN account so had to make a new one. Just wanted to post an update in case anyone is still around

so it’s been a few weeks since I’ve made this post and basically it’s still happening. I’ve been back and forth to the GP and the hospital, the lowest it’s been to was 2.2 (or something like that) and now it seems to be hovering about the low 3s/high 2s. It was better last week then I felt the symptoms start again- fast heart, weird feelings in my hands and feet and just general exhaustion. It honestly feels as I’ve been knocked down by a tractor. I had another blood test at the GP because of this to check the potassium and the results came back today at 2.7 so more sando K and another blood test to check it in a week but thankfully don’t have to go back to hospital which is the main thing! I’ve never felt as shit as I’ve felt recently in all my life so hoping it goes up and stays up soon.

thanks everyone for all the help and advice.

Destiny123 · 08/06/2024 13:06

penguinbiscuits · 07/06/2024 22:00

'Please don’t start implying that non clinicians will be acting independently on blood tests. That would never happen.'

So receptionist discusses test results with the patient? Whether the Dr passed on the message or not, I stand by what I said. That is very grim. I don't want a receptionist to discuss my results with me, I want to be able to ask questions related to the results that only a qualified Dr would be able to answer.

Why would I want to discuss my personal health results with someone who answers a phone? How interpersonal and almost insulting. I have a doctor-patient relationship with my doctor and it is nice to discuss things with him only as he'll be able to see (and knows) my whole medical history.

And how far do they take it? Would they discuss Pap smear results too? STI results? What is someone has gonorrhoea?

What a dire state this is in.

Receptionists don't "discuss" bloods. They read out the message the gp have attached to the results. Normally "bloods are fine" "go to a&e" "make a routine appt with Dr x to discuss y"

Stop scare mongering

Munchyseeds2 · 08/06/2024 10:23

@Potassium123 I'm hoping you are ok and got some help yesterday?

HollyKnight · 07/06/2024 22:15

@penguinbiscuits It's not a discussion. They just read out the note that the doctor has left for you on the system. You don't need an appointment to be told "Prescription left at reception." If the doctor feels that a discussion is needed, they will phone you, or you will be told to make an appointment. As for PAP/STI/whatever, the doctor's note will just say "everything is normal" or "make an appointment". The receptionist doesn't give diagnoses. They don't normally give results either unless you specifically ask them what was the result.

Edinlassy · 07/06/2024 22:14

My mum was blue lighted to hospital when she took a really bad turn. Her potassium like yours was found to be 2.8. Please please go get checked out

TraitorsGate · 07/06/2024 22:06

It's been like this for years, I had a call from receptionist recently telling me I needed to book in for a blood test, no idea what test, id had no conversation with the doctor and yes they have read out results to me, one even read out my ct scan result, it's a
bloody disgrace.

penguinbiscuits · 07/06/2024 22:00

'Please don’t start implying that non clinicians will be acting independently on blood tests. That would never happen.'

So receptionist discusses test results with the patient? Whether the Dr passed on the message or not, I stand by what I said. That is very grim. I don't want a receptionist to discuss my results with me, I want to be able to ask questions related to the results that only a qualified Dr would be able to answer.

Why would I want to discuss my personal health results with someone who answers a phone? How interpersonal and almost insulting. I have a doctor-patient relationship with my doctor and it is nice to discuss things with him only as he'll be able to see (and knows) my whole medical history.

And how far do they take it? Would they discuss Pap smear results too? STI results? What is someone has gonorrhoea?

What a dire state this is in.

ImPunbelievable · 07/06/2024 17:43

This reply has been deleted

Message deleted by MNHQ. Here's a link to our Talk Guidelines.

Jesus you are so awful to post like this. Op is seeking medical advice as advised. It's not enough to say lots of posters have told her to go A&E when she doesn't know if they're medically qualified or not!!!

MumblesParty · 07/06/2024 17:15

penguinbiscuits · 07/06/2024 14:22

Receptionist interpreting test results to patients? Is this really the norm in the UK now ?Sad

@penguinbiscuits no of course it’s not. The receptionist will have been relaying the message given by the doctor, who will have seen the result. Please don’t start implying that non clinicians will be acting independently on blood tests. That would never happen.

TheShellBeach · 07/06/2024 16:09

There's no point ringing 111.

You need to go to A and E.

TraitorsGate · 07/06/2024 16:07

ChickpeaPie · 07/06/2024 16:03

Rather than go to A&E, where it will be a bit strange to say “my potassium is low so I’ve come to A&E”, wouldn’t it be beneficial to ring the GP and talk through their rationale for the plan they have given you and discuss whether more urgent care is needed? The GP is better placed to get you seen by the appropriate team in the hospital if on reflection they deem it necessary

You can turn up in hospital and say you've been advised your K is 2.8. It's not strange and what would a gp do if you actually suffered as a result of them saying take another course and come back next week.

TraitorsGate · 07/06/2024 16:05

Please don't add to your anxiety, they won't accuse you of not taking it. The gp, labs and pharmacists are paid and trained to monitor patients and should query and ask themselves is there a reason why 5 cycles of the same medication hasn't made a difference.

ChickpeaPie · 07/06/2024 16:03

Rather than go to A&E, where it will be a bit strange to say “my potassium is low so I’ve come to A&E”, wouldn’t it be beneficial to ring the GP and talk through their rationale for the plan they have given you and discuss whether more urgent care is needed? The GP is better placed to get you seen by the appropriate team in the hospital if on reflection they deem it necessary

Hahahashower · 07/06/2024 15:54

penguinbiscuits · 07/06/2024 14:22

Receptionist interpreting test results to patients? Is this really the norm in the UK now ?Sad

The receptionist will be relaying information the Dr wants them to tell the pt

Destiny123 · 07/06/2024 15:26

Potassium123 · 07/06/2024 14:28

Oh that’s good to know I didnt realise that might be contributing to the diarrhoea!

sounds stupid but can they tell from a blood test that I’ve definitely been taking it? Like, it has such a horrible taste and I’ve persevered with every single dose as awful as it’s been, but a few times I was asked if I’ve definitely taken them all and not missed a dose. Can they check something to confirm I’ve definitely been taking it? Apart from the potassium itself obviously. Just a bit worried they think I haven’t taken it when I honestly have. My poor parents have had to live with me complaining about every dose 3 times a day for the last month basically haha

No we can't tell if uve takes it, but we assume the best in people that they tell us the truth

Destiny123 · 07/06/2024 15:24

penguinbiscuits · 07/06/2024 14:22

Receptionist interpreting test results to patients? Is this really the norm in the UK now ?Sad

They don't. The gp interprets and asks the receptionist to pass on the message

guineverehadgreeneyes · 07/06/2024 15:08

Potassium123 · 07/06/2024 11:16

Hi

i made a thread recently but can’t find it now arghh, I name changed for it and can’t remember what I name changed to either so just figured it would be easier to start a whole new thread,

I was unwell over a month ago and in hospital for a few days, they picked up I had low potassium and gave me a prescription for sando k and told me to get a blood test in a few days. I did that and the potassium was still low, so more sando k and another blood test. And repeat. And repeat. Now unfortunately this is my 5th (I think) prescription for sando k. I just took it 3x a day for 7 days last week and had a blood test yesterday- they’ve just called with the results because apparently the potassium was 2.8. Am I being UR to be a bit worried about this? It was previously in the low 3s so I know 2.8 is a bit lower, but it’s not serious is it? From googling it says it’s only serious from 2.5? I’ve got another prescription for sando k and more blood tests next week, just slightly worried as the last few doses of sando K didn’t do much and if it’s 2.8 now I’m worried it’ll keep falling. I’ve tried eating loads of potatoes and bananas but I’ve been having awful headaches and pins and needles which I’m not sure if is down to the low potassium or me worrying about it!

can anyone please offer any advice or knowledge about this? Or any advice at all? Thanks in advance, just a bit of an anxious person in general x

Is this your previous thread:

https://www.mumsnet.com/talk/am_i_being_unreasonable/5074411-low-potassium-help

Potassium123 · 07/06/2024 14:56

penguinbiscuits · 07/06/2024 14:22

Receptionist interpreting test results to patients? Is this really the norm in the UK now ?Sad

Honestly I’ve probably not explained it very well but it did come from the DR, they had seen the results and left the advice and it was the receptionist who passed on their advice to pick up another prescription for sando k and book a blood test in 1 week, and then I asked the receptionist just out of interest what it was and that’s when she said it’s 2.8 x

OP posts:
namechange0998776554799000 · 07/06/2024 14:40

Oh, one more thing, pins & needles could definitely be due to low electrolytes, definitely mention it to the nurses

namechange0998776554799000 · 07/06/2024 14:37

Not surprised you were complaining, I hated that stuff! Tastes horrible and the fizzy texture is awful when you're ill anyway. I'm sure they'll believe you and have some awareness of what it's like to take, mine did anyway. They're probably confused/surprised because it doesn't seem to be working after so long. I honestly don't know if that's common, or if it points to a bigger issue. Mine was caused by chemo so not really relevant to your situation. Hopefully you can talk to a Dr and maybe they'll give you an IV and check if there's anything else going on. Try not to worry. I was phoned at midnight once to be blue lighted to A&E because my phosphate levels were zero (in a blood test taken 12 hours earlier). They treated it like an emergency but I was fine and the Drs giving me the drip were rolling their eyes

florizel13 · 07/06/2024 14:30

At my hospital trust the normal values for potassium are 3.5 to 5.3. Higher or lower potassium does put you at risk of a cardiac event. It does need investigating and possibly IV potassium.

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