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To think NHS guidelines are made on pure whim?

38 replies

pinkzebra02 · 04/06/2024 20:42

I honestly don't know whether to laugh or cry. I've been let down by the health service multiple times but the latest letdown really goes beyond a joke.

I've been complaining of fatigue and low mood for months and had blood tests, nothing was flagged so I assumed it must be something else. I access my health record and it shows my serum ferritin (iron stores) are at a grand total of 12. NICE guidelines say that anything below 30 is a deficiency, but because the NHS for some reason ignores this and sets their lower range for 10?

Not only have I not been told about this (had to download nhs app just to view my results) but since being tested over a month ago I've developed blurred vision and frequent headaches, on top of the worsening fatigue. So essentially my organs have been starved of oxygen whilst healthcare staff happily pick up their pay packets for inadequate work. Yay.

AIBU to imagine that NHS guidelines are based purely on the mood of whoever is at a keyboard somewhere, rather than actual scientific evidence/ advice? And why exactly are our taxes being spend on funding this horrendously awful service? A literal farce.

To think NHS guidelines are made on pure whim?
To think NHS guidelines are made on pure whim?
OP posts:
Piggletta · 04/06/2024 21:35

I think you've got your guidelines and reference ranges muddled.

Serencwtch · 04/06/2024 21:35

Low ferritin isn't really a problem if your red blood cells & harmaglobin are normal.
Ferritin is just back up iron storage it doesn't have any other function & definitely doesn't transport oxygen. That's the haemoglobin in the red blood cells. Low ferritin definitely doesn't mean your body is starved of oxygen.

I have a medical condition which means I have frequent severe anemia needing blood transfusion. My ferritin nearly always reads <4 which essentially means zero. It doesn't have any affect on me.

The Hb is the test to look at to determine if you are anemic. It's possible to have low ferritin but not anemic which I'm guessing is what your doctor is saying.

There's many, many reasons for fatigue & it sounds like you have had extensive tests to rule out anything serious. Alot of the time no reason is found for fatigue. That's not because the doctor is rubbish it's just they don't have all the answers.

You are likely to benefit from improving your diet or taking a supplement.

littlegrebe · 04/06/2024 21:33

ILikeItWhatIsIt · 04/06/2024 21:22

Are you serious? You think the NHS provide a good service? They're completely incompetent.

The bits of the NHS that treated my husband's stage 4 cancer were pretty competent - he doesn't have it any more and I'm pretty sure that's not because it was abducted by aliens.

OP, I'd go back to the GP and ask them to investigate what the problem is if it isn't your iron levels. And if they're not sure, then suggest perhaps treating that might help to rule things out.

Droolylabradors · 04/06/2024 21:30

Mine was low for 15yrs and no one told me until one brilliant GP tested me and the blood results flagged me as being low and I am now up near 100 with a mirena coil in.

But I don't blame the NHS, I blame myself for not asking about the results and being informed.

ILikeItWhatIsIt · 04/06/2024 21:28

socks1107 · 04/06/2024 21:25

ILikeItWhatIsIt

You won't mind when it is privatised then and you have to pay?

I already pay for it. Why do people think it's free? They should be done under the trade descriptions act for calling it a service.

Boomarang · 04/06/2024 21:28

Where I work (U.K. NHS primary care) < 30 is considered deficient (and 30 is lower end of normal range on the hospital lab quoted parameters)… and if symptomatic most GPs top up anything < 50 and consider cause.

We’re not all shit, I’m sorry you have had such bad experiences though.

foodtoorder · 04/06/2024 21:26

@ILikeItWhatIsIt
Who is "they"?

socks1107 · 04/06/2024 21:25

ILikeItWhatIsIt

You won't mind when it is privatised then and you have to pay?

ILikeItWhatIsIt · 04/06/2024 21:22

Liliee · 04/06/2024 20:49

Not sure about your take on the NHS more widely though.

Are you serious? You think the NHS provide a good service? They're completely incompetent.

Liliee · 04/06/2024 20:49

Not sure about your take on the NHS more widely though.

Liliee · 04/06/2024 20:48

Low ferritin in particular is treated very dismissively in the NHS. It's mainly a women's issue due to menstruation so who gives a fuck if we're practically on our knees with fatigue?

pinkzebra02 · 04/06/2024 20:46

NICE guidelines

To think NHS guidelines are made on pure whim?
OP posts: