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How many non verbal children did you know growing up? How many do you know now?

217 replies

MaryMaryVeryContrary · 01/06/2024 22:53

Not a goady thread and I wont be engaging with posters who want to speculate on the causes by starting debates about parenting and screen time.

But in the absence of any proper data, I’m interested to know whether others think there has been a rise in non verbal children (age 3 and over). I didn’t know any growing up, and now I know 3. So it seems to me there has been a rise but it may just be the area I live in.

OP posts:
mitogoshi · 01/06/2024 23:22

I growing up, my friends brother, severely autistic .

Now I know a handful, mixture of autism and other miscellaneous severe disabilities. My dd was non verbal until 4 but learned to speak, she's autistic, and has unusual skills in certain areas just not social interactions!

Wakeywake · 01/06/2024 23:17

Lots growing up, but only because my cousin went to a SEN school. 1 now, my nephew, severely autistic.

saraclara · 01/06/2024 23:17

My brother (born 1960) didn't speak until he was four.

As for school aged children... well we didn't see them. They didn't go to shool. In fact in my generation they didn't go to special schools either. Many of them got locked up in residential children's 'mental homes'.

The daughter of one of my mum's friends had to go to one of those places for two weeks for reasons I wasn't party to. My mum went to see her and took me with her. It was the most traumatic of visits. The children there were like the children I spent my career working with in special schools. Except they were just crowded in a room, given no attention, and were rocking and wailing One was just wearing a nappy and smearing her faeces on the wall.

That was c 1968. 30 years later I'd look at some of my pupils and know that that's where they'd have been, and who they would have been, just a few decades earlier.

Sorry...a bit of a tangent. But basically we can't compare numbers of 'people we came across' in different periods. Thank goodness we're now in a time when people with disabilities are visible.

MummyCushion · 01/06/2024 23:16

None growing up.

I have met one child who was 3 and non verbal, but he seemed to understand everything, and in every other way seemed like any other happy go lucky and curious 3 year old. His Mum was on the spectrum and believed the boy to be as well.

There is also a child at the local school in reception who can't speak yet, but he seems to have additional needs.

That's it, and I have met a lot of small children (but I'm not a teacher or medical professional).

StarDolphins · 01/06/2024 23:12

None growing up, 3 now.

pinkstripeycat · 01/06/2024 23:12

Years ago children with learning disabilities went to special schools. These days they are often encouraged to attend a regular school at least for some time

Rav3 · 01/06/2024 23:12

Zero and zero.

Lokioh35 · 01/06/2024 23:10

None and none (presently in day to day life)

i did work though in a sen school for teenagers with GDD and autism and they were all non verbal. Most did use other forms of communication.

elevens24 · 01/06/2024 23:09

None growing up, but now 100's. I work in an autism assessment team though.

Weallnamechangesometimes · 01/06/2024 23:09

None and 5

I don't think non verbal children would have been in mainstream education whereas now they are.

cestlavielife · 01/06/2024 23:09

MaryMaryVeryContrary · 01/06/2024 22:58

I know it’s a blunt instrument but let’s say age 3+ (as not speaking until 2 can be normal development), unable to speak at all (rather than a bit delayed), for a reason that can’t be medically tested for (so I suppose ASD counts for the purposes of this thread as there’s no physical test for it).

I am still not sure what you mean or what you trying to say. My ds in his 20s has no verbal speech. He uses aac to his level. He has a microdeletion syndrome. In his SEN school there were several who had no verbal speech. Any child who hasn't verbal speech well there will be a reason genetic syndrome or other. Even if undiagnosed syndrome. Who are these children you know? Do they have SEN ? Are they otherwise cognitively able? Or have eg c p? . Are they using aac to communicate?

MaryMaryVeryContrary · 01/06/2024 23:08

NeverDropYourMooncup · 01/06/2024 23:06

One girl with selective mutism, who disappeared from school by the end of term. My brother didn't speak much until he was about 9 - it was believed he couldn't read, but he definitely could; he just wouldn't/couldn't perform on demand to prove it.

The rest were hidden away/never made it into school in the first place.

So selective mutism isn’t non verbalism, you can speak but are unable to in certain situations

OP posts:
MolkosTeenageAngst · 01/06/2024 23:07

I work in a SEN school and the majority of the students are non verbal, but I don’t know any non-verbal children (discounting babies!) outside of work; no children of friends/ family/ colleagues/ neighbours etc.

Growing up I had an adopted relative who was profoundly disabled and non verbal and one of our neighbours had a son with autism who was non verbal and at a specialist residential school.

So 2 in my group of family/ friends/ neighbours growing up. 0 now.

NeverDropYourMooncup · 01/06/2024 23:06

One girl with selective mutism, who disappeared from school by the end of term. My brother didn't speak much until he was about 9 - it was believed he couldn't read, but he definitely could; he just wouldn't/couldn't perform on demand to prove it.

The rest were hidden away/never made it into school in the first place.

CJ0374 · 01/06/2024 23:06

None and none!

EatTheGnome · 01/06/2024 23:05

1 & 0.

Treesaleaving · 01/06/2024 23:04

Three. Well two and one was my dad who didn't utter a word until he was almost 5. My brother has verbal dyspraxia and didn't speak properly until he was over 12 and DD didn't speak until she was 3.5. My dad is a professional but very quiet in nature. My DD has been diagnosed with ASC albeit 'high functioning', but she speaks clearly and has good language skills although her inference skills are nowhere near in line with where her numeracy skills are. She has however passed 11+. My brother is 40 and has had a lifetime of therapy. He's sadly turned to drink and drugs due to confidence issues.

There's a couple of cousins on my dad's side who didn't speak and then had unintelligible speech and one was in and out of prison I believe.

I think today we are more aware how late speech can affect development and that is why we talk about it more and don't do as my parents did and say, 'oh it'll come.' They refused to let my brother have what we now call EHCP. He's a shadow of the little sweet boy he once was.

ManchesterGirl2 · 01/06/2024 23:04

None and none (but several in my 20s when I volunteered with a special needs charity).

Velvian · 01/06/2024 23:04

One and one.

whiteboardking · 01/06/2024 23:04

None None

Firebird83 · 01/06/2024 23:03

I think there has been a rise. I also know many people with children with ASD, whereas I didn’t know anyone with it when I was a child. I don’t think it’s only down to an increase in diagnosis.

nocoolnamesleft · 01/06/2024 23:03

There were quite a lot of non verbal children in the disabled children groups I volunteered with as a teenager in the 80s. They just didn't spend much time in public sight.

DinaofCloud9 · 01/06/2024 23:01

Zero and two.

LikeWhoUsesTypewritersAnyway · 01/06/2024 23:01

None. And none.

WithOneLook · 01/06/2024 23:00

Several growing up but one now, but my brother attended a special needs school so I mixed in circles where I was more likely to come across people with different needs. I suspect there isn't so much a rise in non verbal children but rather a greater acknowledgement/acceptance that they exist more broadly within society. Disability awareness still has a long way to go, but even 20 years ago having a severely disabled child (as non verbal children usually are) was still a taboo and they were largely hidden/kept out of mainstream society. This is, rightly, changing. Slowly.