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How many non verbal children did you know growing up? How many do you know now?

217 replies

MaryMaryVeryContrary · 01/06/2024 22:53

Not a goady thread and I wont be engaging with posters who want to speculate on the causes by starting debates about parenting and screen time.

But in the absence of any proper data, I’m interested to know whether others think there has been a rise in non verbal children (age 3 and over). I didn’t know any growing up, and now I know 3. So it seems to me there has been a rise but it may just be the area I live in.

OP posts:
zingally · 02/06/2024 12:07

Growing up, none.

As an adult, I've worked with non-verbal children for my job, so lots. But if I'm thinking more in my personal life, family, friends, neighbours etc... Also none.

Personally, I don't think children with those sorts of significant needs are as prevalent in society as social media would have us believe.

I think as a society, there's a lot more "out there" for families with children with those sorts of needs, and less of the stigma. Not THAT many generations ago, those sorts of children would have fairly widely been in residential institutions/care homes. There weren't the specialist provisions and government support that there is now.

VickyEadieofThigh · 02/06/2024 11:57

None and none.

I'll add that I was a secondary school teacher from 1980 to 2007 and didn't meet any in any of the schools I worked in, either.

dumpertruckbigmouth · 02/06/2024 11:55

I grew up in the 1960s, so children who were non-verbal would have been filtered out and sent to specialised institutions. There were 'very shy' children at school (including me) who hardly spoke to anyone in the school environment. However, there was a strong pressure to conform, and we were labelled as 'shy', 'awkward' and 'sullen'. I spent a great deal of my childhood, wishing I could just go up and talk to other children, and feeling that I was a 'failure' because I could not.

I had some issues as a teen in the 70s and went to an adolescent unit where there were selectively mute children, but still I had not met any children who were non-speaking through autism or learning disability. I suspect children who could not speak by this age (except for those who had physical impairments that made it impossible to speak) would be in institutions.

I do not know much about the 80s, because I was catching up in life. However, my niece did not speak until she was 4.

My own children were born in the late 90s early 2000s. My eldest son's speech delay was identified by the health visitor who had worked with my niece. My mother in law then told me that my husband (her son) did not speak until he was four. She was a teacher and was scared that if he did not start speaking before he started school he would be considered 'ineducable' (an outdated term, but one based on an Education Act that had serious consequences for children with serious SEN before 1970).

So, at a guess, I would say there were a considerable number of non-verbal children in previous decades, but societal norms, legislation and the older predisposition towards institutional or residential provision would mean it would be unlikely that we would meet non-speaking people in our everyday lives, unless we had a family member who was non-speaking or we accessed or worked in the specialised contexts.

TitInATrance · 02/06/2024 11:54

nocoolnamesleft · 01/06/2024 23:03

There were quite a lot of non verbal children in the disabled children groups I volunteered with as a teenager in the 80s. They just didn't spend much time in public sight.

Same. I don’t know any non-verbal children now, or know of any through friends and relatives.
I’d be thinking there are fewer now because most of the children I volunteered with had serious birth defects that would have been detected in the womb, and perhaps treated.

luckylavender · 02/06/2024 11:44

None and two. I'm 62.

theDudesmummy · 02/06/2024 11:33

@Perzival verbal means "using words". My DS uses words better than many adults I know. He is just non-speaking. Not through mutism but because of dyspraxia, he physically cannot speak. If a SLT called him non-verbal I would correct them (as would he).

He is also autistic, but that has not impacted on his understanding of or his use of language (apart from being a little repetitive at times about his favourite topics!).

DyslexicPoster · 02/06/2024 11:33

MaryMaryVeryContrary · 02/06/2024 07:05

No, one child is in DD’s class at school; the other 2 are children of people who live nearby. They’re not in my ‘social circle’ as such.

Non verbal children in the perfect version of the UK ( presuming you in the UK otherwise this is irrelevant) get scooped up into SLD schools pre reception age.

As a governor of such a school the relatity is budget cuts. Being completely non verbal is never a stand alone thing. You need a toolkit to communicate which doesn't have to be the spoken word but you would never access to that expert input in mainstream.

It's not always parental choice. It's the LA choice or lack of choice , lack of funding.

Even if you don't have learning difficulties and are just eg deaf, you need immersive expert education.

Laserwho · 02/06/2024 11:29

x2boys · 02/06/2024 11:12

But what about what.is in the disabled child, s best interest?
My son isn't in mainstream school and never has been his special.school can offer him.so much more than a mainstream ever could it's a fantastic school with amazing facilities, what could a mainstream offer him?

That's fantastic, Im pleased he is in a school that meets his needs so well. I'm was just pointing out that non verbal kids have always been around but we didn't notice them in the 80s because they weren't talked about and where certainly not integrated into mainstream. The fact that they now are ( if school fits their needs) and it's not a taboo subject anymore should be celebrated

x2boys · 02/06/2024 11:12

Laserwho · 02/06/2024 10:57

As a child in the 70s and 80s I didn't know anyone has they weren't integration into mainstream schools. Over the past few years I know of 5 youngsters who attended my child s mainstream school . I asked my parents about this and was told there was non verbal children when I was a child but it wasn't talked about ( especially not to children and the children where kept out of mainstream. Thankgod the world has now change, it's not taboo anymore and the children are accepted.

But what about what.is in the disabled child, s best interest?
My son isn't in mainstream school and never has been his special.school can offer him.so much more than a mainstream ever could it's a fantastic school with amazing facilities, what could a mainstream offer him?

Laserwho · 02/06/2024 10:57

As a child in the 70s and 80s I didn't know anyone has they weren't integration into mainstream schools. Over the past few years I know of 5 youngsters who attended my child s mainstream school . I asked my parents about this and was told there was non verbal children when I was a child but it wasn't talked about ( especially not to children and the children where kept out of mainstream. Thankgod the world has now change, it's not taboo anymore and the children are accepted.

NineChickennuggets · 02/06/2024 10:51

My son is non verbal as is every young person in his class at his asc special school. These are teenagers not young children. I know others outside of school who are non verbal or have only a few spoken words. They have autism or cerebral palsy or suffered brain damage during birth.

There will be some increase due to more very early prem babies surviving.

MaryMaryVeryContrary · 02/06/2024 10:50

helpwhichcar · 02/06/2024 10:45

Growing up: none.

Now I am a primary teacher and have had 2 non-verbal chilren in the last 2 cohorts.

2 per class or 2 in total?

OP posts:
Idtotallybangdreamoftheendlessnotgonnalie · 02/06/2024 10:50

My mum (b 1959) was a selectively mute child, it was described as shyness.

My daughter (b 2016) is selectively mute. She receives support to communicate in different ways.

My cousin (b 1981) did not talk until he was 9. He was not allowed to go to mainstream school.

helpwhichcar · 02/06/2024 10:45

Growing up: none.

Now I am a primary teacher and have had 2 non-verbal chilren in the last 2 cohorts.

jay55 · 02/06/2024 10:40

Growing up 3 who had cerebral palsy who couldn't speak and one who was autistic and didn't have many words other than no until he was about 8 and then only a handful more.

I don't know any now.

I was Born mid 70s.

MaryMaryVeryContrary · 02/06/2024 10:27

Thehop · 02/06/2024 10:24

I work in early years. There's been a definite rise.

Can you elaborate?

OP posts:
Thehop · 02/06/2024 10:24

I work in early years. There's been a definite rise.

Elleherd · 02/06/2024 10:23

Quite a few, but I went through 'unsuitable for fostering or adoption' disabled training institutions for a time. A couple of the adults that had never left were also non verbal.
Some were able to vocalize with noises but it wasn't allowed. (Tbf talking wasn't allowed most of the time either.)
If you were non verbal but 'biddable' as it was then classed, and otherwise healthy you could pass the medical to be sent to Aus for a new life.

I know three now. Two with autism, one with Angelman's, all living at home and part of their communities, but I'm in disabled, SEN, and Home ed circles.

NoWordForFluffy · 02/06/2024 09:59

Yerroblemom1923 · 02/06/2024 09:15

@clockdoc apologies, I didn't mean to offend. I simply meant that as an adult if you want to get on in life, hold down a job etc you need to be able to communicate.

You say that like you think it's bloody optional. Situational mutism isn't a choice, for god's sake.

x2boys · 02/06/2024 09:58

Piddypigeon · 02/06/2024 08:18

i didn't know any growing up but a few now. However, both DC have disabilities so we have a lot of links to the disability communities. My severely disabled child has a rare chromo disorder. I read once that many scientists believe these are more common now (environmental factors such as pollution). DC's special school says the co-hort has completely changed in the last 10-20 years and that there are a lot more severely disabled children. Nothing to do with better diagnosis - these are severity brackets which wouldn't have flown under the radar. Even many moons ago.

All the special schools in my LEA we have four two primary and two secondary have doubled in capacity over the past 10-15 years ,and continue to increase in capacity I'm.not sure what's going on my son also has a rare chromosome disorder.

NeverDropYourMooncup · 02/06/2024 09:47

MaryMaryVeryContrary · 01/06/2024 23:08

So selective mutism isn’t non verbalism, you can speak but are unable to in certain situations

OK. My point was that was the limit of knowledge/SEND as anyone else wouldn't have been at my school in the first place.

My brother would have counted as nonverbal until he was about four. His sister would interpret the sounds he made.

DuchessNope · 02/06/2024 09:47

I'm struggling to see what sort of job you could do if you're deliberately choosing not to speak - genuine question.

Well my completely non verbal
cousin doesn’t have a job. He has 1:1 24 hour care as he also can’t walk much or look after himself in any sense. He’s like a 6-9 month baby in terms of his mental capacity. He can sign thanks but does so inconsistently and he can blow kisses.

Have you never come across the idea that people can be unable to have a job?

x2boys · 02/06/2024 09:44

DustyLee123 · 02/06/2024 06:48

None and none. But I do see some due to working with children, and I’m always surprised by how many of these ‘non verbal’ children do actually speak to me.

Well obviously they are not non verbal than are they?
My son is non verbal ,he can't speak at all he's 14
.

ferryboatscrubcaps · 02/06/2024 09:42

I was not verbal so I knew myself. There was three girls in my year at school who were non verbal .

Now I don't know any but I'm aware of three (all children)

clockdoc · 02/06/2024 09:42

Yerroblemom1923 · 02/06/2024 09:38

@clockdoc sorry, once again. Please explain as I'm struggling to see what sort of job you could do if you're deliberately choosing not to speak - genuine question.

It's the bit where you think it's a choice.