Tell me you're a parent of a ND child without telling me...

Sometimes the only way to calm him down is with a big, tight squeeze. Can feel him melt into you after a little while. Timers to help with time management, having to repeat instructions constantly because he gets distracted, things needing doing in a specific order, went through a phase of disappearing from his classroom (thankfully this one seems to have stopped)

Almost a year into a 2 year waiting list for an ASD assessment so we'll see what happens

The school office lady has seen me cry more times than I care to admit.

Definitely had the being called back from school before I'd even reached work. So. Many. Times.

The worst interaction was a mum phoning me to tell me that her DS was really upset and troubled because he'd seen my DS trying to strangle himself with his coat sleeve in the playground (of course no supervisors cared/saw). The mum was really worried and needed to tell me. I ended up comforting her that we were dealing with it.

DS was 9 and had tried cutting himself with knives and attempted to jump out out of a 3rd floor window in the previous weeks.

(On the plus side, once he started taking his adhd meds his emotions calmed down loads and he is now generally stable emotionally, even though going through puberty. Fingers crossed for the teen years)

Liquidising bolognese sauce, but burgers, Moroccan mince and chilli are served as the recipe intended.

Trying to wash and dry teddy bears in a day so she can sleep.

Calling sweet potatoes "pink potatoes" so she'll eat them.

Searching out non mint toothpastes and mouth wash with the right amount of fluoride, multivits that don't smell funny, and having to give ID to collect her prescriptions.

She's 17.

6 hours sleep at night is a decadent luxury!

We have breakfast at 7.00am exactly. Every. Day.

I changed my start time to 10.30 to allow me an hour to get dc actually into the school building

Oh yeah your daughter has to stay away from mine (even tho the other one had been winding mine up)

Covering her ears and having a meltdown at hand dryers.

So much more I could say but this is upsetting me as it is.

It cost me £950 just to attend hospital appointments last month!

Just discovered just dance and unlimited. Plays cotton eye Joe and eye of the tiger repeated for 4,5, 7 to 8 hrs only t find they are now getting rid of unlimited and those songs aren't on the newer platforms. Ubisoft not helpful

She threw Pencils about the class as she was overwhelmed. (She was then threatened with being thrown out of school but she doesn't have an ECHP in place yet but I get disability payment for her so she should be protected)

She hits out when people are in her personal space.

When she is a danger to herself and others without realising.

She presents as a lot more socially able than she actually is; please keep that in mind.

Oh, she had a meltdown because she was frustrated and overwhelmed… you don’t say? 🤦‍♀️

As a brownie leader we would always take a child in a trip no matter what their disability. If something was an absolute no-go, we just wouldn’t do that trip.

however, conversely as a parent of a ND child, you do also have to parent them effectively like ever other person to fit in with society, your family, school and to help them to develop as an individual.

Which dinner are you having tonight, the hot dinner or the cold dinner?

No, I am not willing to agree to that school place 73 miles away. Yes I know the first names of all the members of staff at the ehcp team, and I can share some tactics to get them to answer the phone. Yes we are waiting to go to panel AGAIN.

Yes I know he looks "normal" Joey, do an autism for the lady please..

Oops, posted on wrong topic, was meant to be parenting! This isn't the easiest site to edit, apologies as it's not aibu, well suppose it could be as iabu as to whether people can differentiate between SEN and a child being obnoxious. Xx

I spent £5 a pair on socks for years because DD could only tolerate these socks and otherwise would not wear shoes. If I find clothes she likes, I buy multiples but even then sometimes the new ones ‘aren’t the same’.