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To want a head scan for headaches and dizziness

84 replies

DontYouStartMadam · 20/05/2024 18:38

Hi everyone. I’ve had constant pressure headaches and dizziness for 2 weeks now. They started quite strong and now they’ve died down but I still have residual dizziness, nausea, eye pain, headache and brain fog.

It’s not severe now but it is lingering and I’ve tried ruling out other issues. Had my eyes examined at Specsavers and they said my prescription is pretty much the same and they couldn’t see any other problems. Had my ears looked at a pharmacy and they couldn’t see anything that would cause my symptoms. They gave me Sudafed and migraine tablets for the nausea. I don’t feel able to drive now.

I‘m hesitating to go to the GP because I feel I’m always there. Beginning of this year I was seen for fatigue and was prescribed iron tablets which have helped. Then recently I was seen as I thought about starting antidepressants (haven’t yet but I likely will). Now I’m calling about this … I feel like they’re going to give me a label of hypochondriac or Münchausen syndrome lol. But I do feel off and it’s worrying me a little, I’ve tried to rule everything else out, as well as take medications, get more rest/sleep, light exercise, drink water etc.

I want a CT or MRI to rule out that there’s something seriously wrong. I don’t want to be brushed off but I don’t feel serious enough to request a scan. I keep gaslighting myself and telling myself to wait and see if it’ll go away but it’s been 2 weeks. To be honest I had them before that but they weren’t constant. Sorry to waffle, outside perspectives welcome.

OP posts:
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DontYouStartMadam · 21/05/2024 10:36

I've just rang the GP and they put me on a vasoconstricting migraine medication and some anti nausea tablets, and booked me for a blood test. Thanks for all of your suggestions

OP posts:
DontYouStartMadam · 21/05/2024 08:56

@Exasperatednow no I've not had it investigated .. I have a tendency to go anaemic I just thought it was my diet or periods. I don't think I have high blood pressure, I do have a BP machine at home and my readings are always normal or slightly low

OP posts:
DontYouStartMadam · 21/05/2024 08:54

@Aguinnessplease tbh yes I do have some neck pain and back of head pain. How did you resolve yours, new pillow ?

OP posts:
Aguinnessplease · 21/05/2024 06:34

Do you have any - even slight - neck pain? I suffered from a near continual headache and periodic dizziness (3 or 4 out of 10 on pain scale) for months. Turned out it was from mild neck pain due to the way I slept.

Exasperatednow · 21/05/2024 06:22

Low iron and high blood pressure can both cause headaches.

Have you had the cause of your low iron investigated?

notanotherrokabag · 21/05/2024 06:11

FlugelHugel · 20/05/2024 23:30

I just want to add, if not already said because I haven't RTFT, but high blood pressure can very much cause a persistent bad pressure headache as my DH discovered around 5 years ago. After 5 days of a headache not shifting he was finally persuaded to see a GP back in the days when you could and she took his blood pressure and sent him straight to the hospital with instructions not to drive himself. Five years later and two different medications each day, I am incredibly grateful that the GP recognised what his headache could be a symptom of or things could've had a far worse outcome.

HBP is generally symptomless but I had to correct this.

I did say with the very rare exception of malignant hypertension,.which sounds like your dad had.

notanotherrokabag · 21/05/2024 06:10

Somuchgoo · 20/05/2024 21:56

Thank you.

She's ok. It's low grade and we are muddling through ok after a tricky couple of years.

She had a headache for a few weeks, 2 GPs fobbed her off. Then a thunderclap headache (hand to head, screamed, fell to floor with pain, holding head and sobbing, then back to being fine), and still told it was fine, it was probably her ears, and even if it was her head, he'd do nothing about it.

Thankfully GP4 referred us up.

So hearing a GP say you don't get headaches with tumours makes me worry about the other poor kids with a less persistent mother! So I'm glad you'd refer up for a small child. That gives me some peace.

100%, we do phone triage and TBH with that history on the phone I'd have probably said 999 to A&E without even coming via me.

FlugelHugel · 20/05/2024 23:30

notanotherrokabag · 20/05/2024 18:52

Brain tumours pretty much never present with a headache. Neither does high blood pressure by the way, @IroningThrone

Go to their GP for their opinion.
Not with a fixed thought about what test you want.

Edited

I just want to add, if not already said because I haven't RTFT, but high blood pressure can very much cause a persistent bad pressure headache as my DH discovered around 5 years ago. After 5 days of a headache not shifting he was finally persuaded to see a GP back in the days when you could and she took his blood pressure and sent him straight to the hospital with instructions not to drive himself. Five years later and two different medications each day, I am incredibly grateful that the GP recognised what his headache could be a symptom of or things could've had a far worse outcome.

HBP is generally symptomless but I had to correct this.

ThinWomansBrain · 20/05/2024 22:56

I had a brain scan when I had a few weeks of a debilitating headache - was ovr ten years ago, can't remember much of the detail.
Turned out to be caused by being given the wrong medication.

FlabMonsterIsDietingAgain · 20/05/2024 22:55

DontYouStartMadam · 20/05/2024 21:42

@FlabMonsterIsDietingAgain no hayfever, I never really get runny nose or sneezing except when I'm sick. Maybe I'll ask GP to have a look in my ears/throat just to double check

Just try an anti-histamine unless you're on other meds or have other health issues that don't mix.

I don't get a runny nose or sneezing either but I do have hayfever every year from Feb onwards. I get pressure behind my eyes and in my sinus across my cheekbones, brain fog, tiredness, sore eyes and a tickly cough.

Somuchgoo · 20/05/2024 22:40

banabak · 20/05/2024 22:09

Another parent of a child with a brain tumour coming on to this thread to highlight that we were told time and time and time again by a GP that there were no red flags suggesting a brain tumour. Utterly incorrect and my dc is frankly only alive now because we went against that advice and attended A&E where we were listened to by a pediatrician. My dc had severe headaches. Over 50% of people diagnosed with a brain tumour report headaches to their GP.

I wish we were the only ones who had experienced this but the same GP practice had failed to spot the red flags a few months before of a child who also has a brain tumour (diagnosed thanks to a private MRI scan).

I'm not saying this to suggest in any way OP that you have a brain tumour. If you're concerned, have a look at the Brain Tumour charity website as there's a lot of info there. There are multiple reasons for headaches. I wanted to post my dc's experience in case anyone else reading this thread saw the confident post from the GP saying that headaches aren't a red flag and perhaps felt that their worries were not well founded. And to the GP I say, I wish I could unsee the devastation caused by late diagnosis to my dc and the many many others I meet in the oncology wards whose parents tell of depressingly similar stories of not being believed by a GP.

Hey. I remember you from other brain tumour related posts, and how supportive you are. Thank you for that.

It's so infuriating though isn't it!!
I'm glad I wasn't the only one who felt compelled to post. I don't tend to use the word 'triggered' frequently, but reading that GP so confidently dismissing headaches as being a BT symptom made me feel sick.

Thank goodness we were persistent mums.
Being fobbed off by GPs seems to be a depressing universal experience when it comes to kids and brain tumours.

Again, OP, the overwhelming likelihood is that your headaches aren't anything serious. Please don't let my comments worry you.

Cofaki · 20/05/2024 22:35

DontYouStartMadam · 20/05/2024 20:59

@Cofaki That sounds a bit silly on their part surely !? First thing I would be pressing for would be some sort of scan if their GP had those concerns. I do hope it all turned out well

They explained why they didn't do one. Basically their observations reassured them she didnt have a tumor and there was no need for a scan. I did ask why but it made sense when they explained.

saraclara · 20/05/2024 22:29

DontYouStartMadam · 20/05/2024 22:24

@saraclara wow that reassurance must have been really nice ! Glad it all worked out

To be honest it was frustrating in the end! I was planning to go to visit the family in Australia, but as I'd been referred for tests with no diagnosis, it was impossible for me to get travel insurance!
The MRI appointment came through in time, but the ECG waiting list was over a year! So for the first time in my life I went private, otherwise my trip would have had to be cancelled. As it was I already had to go later than ideal.

So though I was grateful for a thorough GP, I was also incredibly frustrated!

DontYouStartMadam · 20/05/2024 22:24

@saraclara wow that reassurance must have been really nice ! Glad it all worked out

OP posts:
saraclara · 20/05/2024 22:17

DontYouStartMadam · 20/05/2024 22:15

@saraclara wait so you got an MRI just because you were lightheaded ? Were you referred or did you go privately ? And was everything okay ?

Yep. My GP said he was going to go 'belt and braces' and referred me for an MRI and a 24 hour ECG.

Both came out fine, and the lightheaded episodes stopped of their own accord.

DontYouStartMadam · 20/05/2024 22:17

@banabak so sorry to hear you were fobbed off and are now dealing with the consequences of late diagnosis. Thank goodness you listened to your intuition. I hope things improve for your family

OP posts:
DontYouStartMadam · 20/05/2024 22:15

@saraclara wait so you got an MRI just because you were lightheaded ? Were you referred or did you go privately ? And was everything okay ?

OP posts:
banabak · 20/05/2024 22:09

Another parent of a child with a brain tumour coming on to this thread to highlight that we were told time and time and time again by a GP that there were no red flags suggesting a brain tumour. Utterly incorrect and my dc is frankly only alive now because we went against that advice and attended A&E where we were listened to by a pediatrician. My dc had severe headaches. Over 50% of people diagnosed with a brain tumour report headaches to their GP.

I wish we were the only ones who had experienced this but the same GP practice had failed to spot the red flags a few months before of a child who also has a brain tumour (diagnosed thanks to a private MRI scan).

I'm not saying this to suggest in any way OP that you have a brain tumour. If you're concerned, have a look at the Brain Tumour charity website as there's a lot of info there. There are multiple reasons for headaches. I wanted to post my dc's experience in case anyone else reading this thread saw the confident post from the GP saying that headaches aren't a red flag and perhaps felt that their worries were not well founded. And to the GP I say, I wish I could unsee the devastation caused by late diagnosis to my dc and the many many others I meet in the oncology wards whose parents tell of depressingly similar stories of not being believed by a GP.

saraclara · 20/05/2024 22:07

Kitkat1523 · 20/05/2024 21:07

Book an mri…will cost you about £1.5k….you won’t get a scan on the nhs with those symptoms

I got a head MRI after going to see my GP about episodes of light headedness. And nothing more.

Grannywithnoplanny · 20/05/2024 22:03

notanotherrokabag · 20/05/2024 21:44

Your GP is a highly trained professional. You could tell them your symptoms, which are ones they will deal with regularly, and trust them to know what to do......

Yes. Or you could pay hundreds of pounds for a scan that is unlikely to give you the answers you want, may show incidental findings that are meaningless and make you more anxious, and in the case of a CT scan, also expose you to a load of unnecessary radiation.

Somuchgoo · 20/05/2024 21:56

notanotherrokabag · 20/05/2024 21:42

I'm familiar with headache red flags and there are none in the OP, and she isn't a toddler. A toddler complaining of a headache is exceptionally unusual and I would refer same day to paeds. Hope your daughter is OK.

Thank you.

She's ok. It's low grade and we are muddling through ok after a tricky couple of years.

She had a headache for a few weeks, 2 GPs fobbed her off. Then a thunderclap headache (hand to head, screamed, fell to floor with pain, holding head and sobbing, then back to being fine), and still told it was fine, it was probably her ears, and even if it was her head, he'd do nothing about it.

Thankfully GP4 referred us up.

So hearing a GP say you don't get headaches with tumours makes me worry about the other poor kids with a less persistent mother! So I'm glad you'd refer up for a small child. That gives me some peace.

noctilucentcloud · 20/05/2024 21:54

Dizziness is a really common thing, a larger proportion of doctors appointments are due to it than you'd think! It also covers everything from a spaced out feeling to being off balance through to the world spinning and not being able to sit/stand. And equally there's a massive range of causes including lots of none serious ones. I'd say go to your GP if you're worried, as well as bloods and listening to your symptoms (which also helps pinpoint cause), they can do a few basic tests (like finger to nose to finger) which helps them tell whether there's a brain issue or not. You'll only get referred for a scan if there's some concerns but from my experience as someone with dizziness unless you have some big red flags you'll be waiting months / over a year anyway. And hopefully you'll be feeling a lot better long before then.

notanotherrokabag · 20/05/2024 21:44

Your GP is a highly trained professional. You could tell them your symptoms, which are ones they will deal with regularly, and trust them to know what to do......

DontYouStartMadam · 20/05/2024 21:42

@FlabMonsterIsDietingAgain no hayfever, I never really get runny nose or sneezing except when I'm sick. Maybe I'll ask GP to have a look in my ears/throat just to double check

OP posts:
notanotherrokabag · 20/05/2024 21:42

Somuchgoo · 20/05/2024 21:03

That's not true at all.

And the only reason I'm on this thread is to beg you please to make sure your are familiar with the NICE guidance on red flags for kids with headaches, and also the guidance for professionals by Headsmart.

A GP was dismissive of my toddlers headaches (yes she could verbalise that they were headaches that young). 48 hours later she was undergoing an emergency craniotomy to remove a large tumour which was starting to press against her brain stem.

Thank goodness we didn't listen to that GP.
Most of the other BT kids we met also presented with headaches.

Please, please make sure you are familiar with the red flags (all of which relate to headaches).

OP - go to your GP, though I wouldn't hold out much hioe for a scan given us still quite a 'new' headache and seems to be getting slowly better.

The likelihood of it being a tumour is tiny.

I'm familiar with headache red flags and there are none in the OP, and she isn't a toddler. A toddler complaining of a headache is exceptionally unusual and I would refer same day to paeds. Hope your daughter is OK.