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To be upset by suggestion I am neurodiverse?

139 replies

RaggyDollsFan · 12/05/2024 11:55

I went to see a psychologist privately (proper BACP-registered one before anyone asks) about birth trauma.

About 10 mins into the appointment she suddenly asked, ‘Are you neurodiverse? Has anyone ever asked you that before?’

They have not. I know she meant to be helpful as I gather there are lots of women out there for whom a late discovery of neurodiversity has been extremely positive. Suddenly their whole lives have started to make sense to them and they’ve been able to ‘connect to their tribe.’

The question came up because she’d asked whether I had a good support network and I’d said no, not really. Although I have some good friends I’ve collected over the years, they’re now very geographically scattered and at different life stages. Through having a baby I’d hoped to create a new social network locally but I’ve found this a lot harder than I expected. I’ve been disappointed with baby groups and have struggled to find others I really connect with.

Since the neurodiversity suggestion, I’ve become a bit paranoid, wondering whether it’s obvious to everyone that I’m somehow strange and different. I’m much less likely to take social risks now than I was before and overall it’s just made me more unhappy. I’m not sure where to go with this now and am genuinely confused as to whether I am ND or not. My OH asks, ‘Does it matter? Regardless, you are you and have come this far.’ Yet having a professional raise this has brought up a lot of self-doubt and upset.

OP posts:
BananaLambo · 12/05/2024 13:49

BACP are counsellors and Psychotherapists. They’re not qualified psychologists (although some may also be) and shouldn’t be asking you questions about neurodiversity. You should be looking for a Chartered Clinical Psychologist registered with the BPS and HCP.

RaggyDollsFan · 12/05/2024 13:48

Sorry I didn’t mean to offend anyone here.

I suppose it’s reading about traits like impoliteness, not being able to tell when you’re boring others, talking so much that nobody else can get a word in edge ways, that have made me upset and paranoid. I feel really awful that maybe I have done these things without meaning to and cringe at not even been aware of it.

OP posts:
Rainyspringflowers · 12/05/2024 13:44

EnglishBluebell · 12/05/2024 13:38

What is with all the ND bashing threads lately. Thanks for insulting my DC by implying it's an insult

I think statements like this are really naive to be honest.

Autism can be horrendous, both for the individual who has it and those who care about them. In no way does this personally insult your children.

Fluffywigg · 12/05/2024 13:43

“that I’m somehow strange and different”

As the mother of a child who is ND, I find this description offensive!!

Achillo · 12/05/2024 13:39

Many of not most of the most talented, interesting and high achieving people who have lived are ND so I don't interpret it as any kind of insult. Most people recognised as geniuses would be, whether in tech development these days or the great composers and artists.
Along with their achievements they may have had struggles in life. So if someone is struggling socially it is definitely a wise question to ask.

Maybe a lot of the outdated and negative stereotypes and tropes about ND people are colouring this experience?

My husband's line of the family are mainly ND and both my daughters are. One is an artist and one is a writer.

I am not ND but have childhood PTSD which presents very similarly in many ways and makes us all understand each other. So that is definitely another good avenue to explore. Pete Walker has a great book about childhood PTSD.

EnglishBluebell · 12/05/2024 13:38

What is with all the ND bashing threads lately. Thanks for insulting my DC by implying it's an insult

RaggyDollsFan · 12/05/2024 13:35

YetAnotherSpartacus · 12/05/2024 13:24

I suggest you ignore her and her comment OP. Personally I think it was entirely inappropriate given that she had barely met you.

Find someone who will actually help you process and resolve your birth trauma.

Thank you. Yes I am now seeing another psychologist and we’re doing EMDR. It’s just that the first one’s comments are still bothering me.

OP posts:
RaggyDollsFan · 12/05/2024 13:32

ballytravlr · 12/05/2024 13:18

They simply want money.

It's likely they give the same script to everyone.

Imagine if they see 10 people a day and say the same thing they told you.

Imagine 2 actually go along with the offer. That's £2600 a day.

Yeah, not bad is it? My DH has said this too.

OP posts:
YetAnotherSpartacus · 12/05/2024 13:24

I suggest you ignore her and her comment OP. Personally I think it was entirely inappropriate given that she had barely met you.

Find someone who will actually help you process and resolve your birth trauma.

5475878237NC · 12/05/2024 13:22

RaggyDollsFan · 12/05/2024 12:56

To those who have asked about the AQ test…

My score is right on the cusp. However I find a lot of it contextual. Particularly the statements like, ‘I enjoy social occasions,’ ‘I am good at social chitchat,’ etc. A couple of years ago I would have answered yes to these questions without much thought. Most of my social contact then was through work and with colleagues or clients. I was pretty confident at what I did which gave me confidence generally I suppose. Plus I work in a field which tends to attract people with a similar outlook so we often had a fair bit in common. The best friends I’ve ever had (the ones who are now geographically scattered and at different life stages) are those I trained with plus a few I’ve met at conferences.

Now, as a new mother, my answer would be a clear no. I dread small talk. So many parenting topics feel like such an emotional hotbed I’d rather avoid. ‘How is she sleeping?’ ‘Are you planning to sleep train?’ ‘Are you still breastfeeding?’ ‘How was the birth?’ I think I was naive and overestimated how much I’d have in common with the other mothers I met just because our babies were born at the same time.

So I’m not sure how indicative my answers actually are of neurodivergence.

Given you're seeing her about birth trauma I think she was a bit clumsy but asking as part of the initial assessment is really the best time.

The AQ seems to be an interesting one in that the people who think it's poorly worded and not specific enough or want to be able to respond in this precise context my answer is X, in this it would be y tend to have neurodiversity in common.

ballytravlr · 12/05/2024 13:18

RaggyDollsFan · 12/05/2024 12:08

@fieldsofbutterflies She did give me details of a psychiatrist I could see for a diagnosis. It’s £1300 though. This feels quite drastic. It was not what I was consulting her about.

They simply want money.

It's likely they give the same script to everyone.

Imagine if they see 10 people a day and say the same thing they told you.

Imagine 2 actually go along with the offer. That's £2600 a day.

Unexpecteddrivinginstructor · 12/05/2024 13:12

It sounds like an initial assessment and in that context asking about any diagnosis or consideration of a diagnosis is quite appropriate. Perhaps she thought about it when you mentioned that you didn't have much of a support network but she might have asked it at some point in the initial assessment anyway.

Your confusion might suggest that you do have some traits but many people do without it affecting their lives or they manage fine until something happens and they are overwhelmed. Like @TheDefiant I have traits but generally my lifestyle and friends mean that I manage fine in everyday life, I don't need adaptations from others, but my awareness of the traits help me sometimes to think 'ah that might explain it'.

Willyoujustbequiet · 12/05/2024 13:11

RaggyDollsFan · 12/05/2024 12:16

I hear you. Rationally I know it’s not an insult.

I suppose I had a lot of social anxiety already. I’d come to really hate going to baby groups but have been pushing myself to keep going anyway as I know it’s not good to be isolated at home. I so often feel like I don’t fit in that well, that there are cliques I am not a part of and fear the others judging me - for my baby being unsettled, for the disaster that was her birth, for not having managed to wash my hair as often as I’d like and generally looking a mess, etc.

This has just made it so much worse by adding the worry of, ‘Oh heavens, do I also just come across as weird? Am I missing social cues in the way that autistic people do? Are they all thinking I’m massively lacking in social skills and pitying and/or laughing at me behind my back?! I just want to go home.’

Don't underestimate the impact of trauma and indeed hormonal changes. Often people jump to ADHD for example when in reality there can be another explanation. Especially in women of a certain age.

Dc have ADHD. I have some textbook traits so I wondered. However I didn't even consider that some particularly tragic bereavements, an abusive marriage (SA/DV survivor) and becoming menopausal would have impacted me in such a way. Turns out I am neurotypical but have PTSD. It absolutely fits as I had none of the traits when I was younger before the events happened.

I would suggest anyone exploring this route consider if there was a history at a younger age or have certain things only become noticeable after a triggering event. I think we are only just beginning to appreciate the effect personal trauma can have on the brain.

RaggyDollsFan · 12/05/2024 12:58

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No actually.

Good question.

OP posts:
RaggyDollsFan · 12/05/2024 12:56

To those who have asked about the AQ test…

My score is right on the cusp. However I find a lot of it contextual. Particularly the statements like, ‘I enjoy social occasions,’ ‘I am good at social chitchat,’ etc. A couple of years ago I would have answered yes to these questions without much thought. Most of my social contact then was through work and with colleagues or clients. I was pretty confident at what I did which gave me confidence generally I suppose. Plus I work in a field which tends to attract people with a similar outlook so we often had a fair bit in common. The best friends I’ve ever had (the ones who are now geographically scattered and at different life stages) are those I trained with plus a few I’ve met at conferences.

Now, as a new mother, my answer would be a clear no. I dread small talk. So many parenting topics feel like such an emotional hotbed I’d rather avoid. ‘How is she sleeping?’ ‘Are you planning to sleep train?’ ‘Are you still breastfeeding?’ ‘How was the birth?’ I think I was naive and overestimated how much I’d have in common with the other mothers I met just because our babies were born at the same time.

So I’m not sure how indicative my answers actually are of neurodivergence.

OP posts:
Spinet · 12/05/2024 12:52

RaggyDollsFan · 12/05/2024 12:34

I was meant to be seeing her about birth trauma which is quite specific.

Yes it is. But how you respond to situations and what aspects of it caused the trauma would be very specific to you. No two people would respond in the same way. It may be that there were elements of the traumatic experience that you would look for in an ND person that you wouldn't in an NT person, like maybe the communication aspects would be especially difficult and something to focus on if you're doing EMDR or whatever. I'm not an expert on this stuff at all but a trauma response is going to involve the whole person. It doesn't mean actually this isn't trauma it's a neurodiversity.

EliflurtleAndTheInfiniteMadness · 12/05/2024 12:43

This has just made it so much worse by adding the worry of, ‘Oh heavens, do I also just come across as weird? Am I missing social cues in the way that autistic people do? Are they all thinking I’m massively lacking in social skills and pitying and/or laughing at me behind my back?! I just want to go home.’
If you met 2 of my 3 Autistic kids you wouldn't have a clue they were Autistic. The 3rd might miss cues and not be great with social skills but everyone loves him and he has a lot of friends. None of them come across as weird. You've probably met a lot more Autistic people than you realise because these BS stereotypes are just that. A psychologist isnt thinking this when she asks if you might be ND and if you are Autistic naming that doesn't make any difference to who you are or mean you fit these stereotypes.

eta: its not unusual for Autistic women in particular who mask well to end up with diagnosises like GAD, social anxiety, OCD, BPD when they're actually ND.

TripleDaisySummer · 12/05/2024 12:42

I suppose I had a lot of social anxiety already. I’d come to really hate going to baby groups but have been pushing myself to keep going anyway as I know it’s not good to be isolated at home. I so often feel like I don’t fit in that well, that there are cliques I am not a part of and fear the others judging me - for my baby being unsettled, for the disaster that was her birth, for not having managed to wash my hair as often as I’d like and generally looking a mess, etc.

It may well be ND driving the social anxiety - or it may not.

With pfb first 4 groups were awful unfriendly and made me feel a lot worse- HV group and anti natal DH came along to and said I wasn't imagining it. . Then was given leaflet with number for local groups - way out of date and people weren't nice. Did find one only went back as leader spoke to me - only person who did - but few week later some other mothers with older babies joined and that was it.

When we moved - I had similar disheartening experiences till a random walk we found a new children center and again slowly met few other mothers and then went to other groups.

I actually think they can be some of the hardest environment to walk into - many posters on here gave up entirely on them.

Cluelessaf · 12/05/2024 12:41

OP you were traumatised (hence the appointment) and probably experiencing anxiety and depression - I'm sure after a 10 minute chat how you displayed to her could be interpreted as any of those things, including neurodiversity! I don't think she was right to make that comment, and after such a short time with you. Different if you'd asked her about it.

YetAnotherSpartacus · 12/05/2024 12:41

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Eieiom · 12/05/2024 12:40

Honestly this is becoming a common experience. In my family/extended family we've had recent diagnoses of ASD in our kids. And it's become obvious that there are quite a few undiagnosed adults (their parents) as well. Some are seeking diagnoses because it's helping them understand and address their mental health better (chronic anxiety not responding to typical treatments) and others are comfortable enough as they are like @TheDefiant above. I guess it depends how challenging life is and how comfortable it feels.

ItsSerious · 12/05/2024 12:39

TheDefiant · 12/05/2024 12:33

My DD is seeing CAMHS right now. They want her to be tested as they suspect AuADHD.

The person speaking to my DD (I was there the whole time) said I am probably autistic too. She is the third person to tell me this.

The first being a friend who is a specialist in the area.

I've done that test linked above and scored 28 out of 50.

You know what? I don't give a shiny shit. I am who I am and I like me.

I've a good job, I've a wonderful family and exceptional DH. I have good friends who know my foibles and tolerate them. (I'm obsessed with Star Trek, feminism and the environment - my special interests 😆) I volunteer lots and I push myself out of my comfort zone all the time.

Don't let it matter to you. Just keep being you. If there are things that get in the way - find coping strategies. I've spent my whole life doing that (before I knew it was likely I am ND).

Every friend I've told "I'm probably autistic" has said "well, we suspected, so what and we love you as you are"

I don't buy into all this super power nonsense. It probably is for some people. For me it's a set of quirks I adapt to and around.

Honestly. Keep being you and try not to worry or be paranoid.

God, lucky you if it's just a set of quirks! I find it more of a full body and brain feeling of "I'm not right for this world and i can't stand it" along with a lot of pain and suffering.

I guess it was a "super power" at school when I was doing faultless maths and spelling tests, but in adult life it's pretty miserable and limiting.

whatisforteamum · 12/05/2024 12:39

IMO it's the fact she asked you outright.
I've had lots of algorithms suggest ADHD and autism to myself so a gradual penny dropping of u like.
I thought my anxiety was just that and thinking outside the box was good.
I never realised I could be nerodivergent.
Makes sense if I am.

BertieBotts · 12/05/2024 12:38

5475878237NC · 12/05/2024 12:02

Have you done the AQ psychology-tools.com/test/autism-spectrum-quotient There's an interesting thread on here about the scoring but I can elaborate later.

I completely understand this must be a shock. My thoughts are in order to work best with you and your individual needs, it's a reasonable question to ask. Most therapy goals involve building a relationship and that's the vehicle for change. So I'm assuming the therapist was asking because something wasn't quite making sense.

You can't say this and not come back and elaborate! Please do! :) Or link the thread?

BertieBotts · 12/05/2024 12:37

It's tricky because - as someone late diagnosed, I have massive feelings of "Why did nobody pick up on this when I was younger??" so for me, I suppose, it's been such a giant relief to be diagnosed and understand I'm not actually broken, I've just been trying to fit into a mould that is the wrong shape/size, I had been metaphorically shouting into the void for years "What is wrong with me??" so it was quite nice to actually get a useful answer to that.

I don't know what exactly your psychologist was picking up on (you could always ask her, if you want to) but for example, not managing to wash my hair and generally looking a mess was definitely something I struggled with (with unmanaged ADHD) and I perceive (perhaps wrongly) that non-ADHD people don't have that problem, perhaps unless they are depressed or have some kind of chronic illness affecting mobility/energy/pain levels. As in, the idea of not managing to wash your hair is a completely alien idea to most people, because they find hair washing to be a very easy thing to do. (This is not a criticism of you, it's just an observation I've made).

Being on the outside of groups - I've always had this too - but I am totally oblivious honestly to whether this is an ND thing or whethet this is just a normal thing when you're entering into a totally new social circle. I know that so many new mothers feel alone and isolated, so you're certainly not alone or unusual to feel that way, and feeling that way does not necessarily mean that you're coming across as "weird" - it's just a very strange and isolating time of life, most people you come into contact with are sleep deprived, hormonal and adjusting to a new life so typically aren't at their best either and you sort of need some kind of external structure to push you all past the social barriers of "Oh yes fine thanks you?" into opening up and really trusting each other. It's weird because normally, to develop the kind of intimacy where you share more personal/honest responses, you need time, but when you have a new baby you have so much you need to process and discuss right now, and you have only known this person a few weeks, so that intimacy hasn't had time to develop.