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Share your dilemmas and get honest opinions from other Mumsnetters.

To find that going to the doctors doesn't resolve the issue

131 replies

Mairzydotes · 08/05/2024 16:05

I've recently had an appointment and it's got me thinking that I always feel fobbed off ( I feel a bit fobbed off with this one too)and they never solve the issue.

Once I had been referred for a scan , and when I spoke to a clinician for a follow up, I was told the nurse who referred me was working their notice and was referring everyone , and they wouldn't be doing anything further.

The only time I've ever felt like my issues have been taken seriously, and dealt with was in pregnancy, when my pre-eclampsia showed up in my ante- natal check up.

Some people make appointments and it seems like the health care professionals bend over backwards to help them and I feel dismissed. And these are about physical things , that can be seen . I dread to think what mental health would be like.

Does anyone else find this happens to them?

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CharlieDickens · 12/05/2024 09:21

I have to be honest, my GP is brilliant. I've been depressed recently and I've actually felt like he couldn't have done enough. I think it helps that I come from a medical family but so have learnt what to say. I think the other point is asking yourself what you want the GP to do and the expectations. As a PP said, you can't expect to be referred to a gastroscopy for a one-off stomach pain. They have to show that they've taken appropriate steps and followed procedures.

Mairzydotes · 12/05/2024 09:10

Grawlix · 09/05/2024 17:46

Interesting thread and I often wonder whether, if I had anything really serious (heaven forbid) I’d stand any chance of our GP picking it up at all.

I really try to avoid seeing the doctor and tbh rarely go but a few years ago I had an issue with something that sent me to our local urgent care centre as it was a bit worrying (it was over a weekend, GP closed). To cut a long story short, I was roundly scoffed at by a nurse-practitioner who said it was my age, she got the same thing, go away but see my GP if I was really worried. I did and the GP professed herself mystified, prescribed something that tbh didn’t help much, and it gradually kind-of eased off, but since then has never really gone back to normal.

Cut to today and I’ve recently been diagnosed (privately) with a condition that isn’t life-threatening but is something you don’t really want to have. If the GP (and the angry nurse) had actually taken me seriously they might have spotted it in the early stages and I could have had treatment that would have helped a lot.

That said, I had an actual same-day GP appointment recently - only the second since we’ve been with this surgery in over 20 years - and the (young, female locum) GP was phenomenally thorough and I felt completely 'heard'. So maybe it’s just down to luck, unfortunately.

The young doctors do seem to have a better manner with their patients. We saw a registrar, who was temporarily at our surgery for my dc and she was lovely.

Perhaps gps become disillusioned with dealing with minor and non deadly ailments and issues rather than saving lives. Or perhaps the bureaucracy gets to them .

And like every public facing role, there are gps and health centre employees who don't have the personality type to be working with the public.

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Mairzydotes · 11/05/2024 17:47

OliveK · 11/05/2024 12:05

I feel bad, as so many people struggle to get HRT and I just literally asked once and that was that! But now everything is down to my age when I go in, and instead of being pleased that my GP acknowledged it, I'm ruing the day it was mentioned. I understand the wide and weird range of things that menopause can do, but it can't be the cause of everything!

I feel like I've got no chance of getting hrt. I'm going down the birth control route for now , and they spoke ' at ' me , rather than to.

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OliveK · 11/05/2024 12:05

I feel bad, as so many people struggle to get HRT and I just literally asked once and that was that! But now everything is down to my age when I go in, and instead of being pleased that my GP acknowledged it, I'm ruing the day it was mentioned. I understand the wide and weird range of things that menopause can do, but it can't be the cause of everything!

RosesAndHellebores · 11/05/2024 11:53

Mairzydotes · 10/05/2024 16:57

I bet people who use Doctor as their title get treated with more respect in a lot of situations. Especially if they think it's a male Doctor.

DH regularly gets "ah, I see you're a lawyer, we won't take any chances". So much fkr NHS equality.

Mairzydotes · 11/05/2024 08:06

I've also noticed the way the doctors speak. At a gp appointment, they will state what the issue is , and that this treatment will sort. They are so convinced. And then so are we because they should know better.

In hospital, when my dm was in with cancer, , the way the doctors and spoke was different. They would say they ' didn't anticipate any problems/ any further treatment ' .

I dont trust what the gp says.

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Mairzydotes · 10/05/2024 17:44

Dweetfidilove · 10/05/2024 17:15

I had a GP tell me once , many years ago , while I was telling him why I came, that ‘I shouldn’t make it too many things’ 😢.

I pointed out to him that I was likely one of his most irregular patients, so I would be using all the 10 minutes slots I believed I accrued, so he could help me, or I’d start making a habit of being there until I was satisfied. Cheeky fucker!

I was there last year after feeling a lump in my lower abdomen and the nurse told me she couldn’t feel anything, so it must have been discomfort because of my period. Well thank you ma’am, but after 30+ years of periods, I know what period pains and discomfort are, and having spent 42 years in this body, I know when something is abnormal; so I’ll take a referral for scans please 😒.
Turns out I have quite a few fibroids, and the lump I felt was one that has grown quite large and is now outside my uterus. That one scan explained the ridiculous pain, nausea and lightheadedness and bladder problems I have been experiencing.

My advice is go prepared, go strong and know exactly what you would like to happen. If that fails, remind them of the ‘collaborative care approach’ they now bang on about.

Ours is one appointment for one issue.

We know our bodies , we know when something is wrong / different.

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Dweetfidilove · 10/05/2024 17:15

I had a GP tell me once , many years ago , while I was telling him why I came, that ‘I shouldn’t make it too many things’ 😢.

I pointed out to him that I was likely one of his most irregular patients, so I would be using all the 10 minutes slots I believed I accrued, so he could help me, or I’d start making a habit of being there until I was satisfied. Cheeky fucker!

I was there last year after feeling a lump in my lower abdomen and the nurse told me she couldn’t feel anything, so it must have been discomfort because of my period. Well thank you ma’am, but after 30+ years of periods, I know what period pains and discomfort are, and having spent 42 years in this body, I know when something is abnormal; so I’ll take a referral for scans please 😒.
Turns out I have quite a few fibroids, and the lump I felt was one that has grown quite large and is now outside my uterus. That one scan explained the ridiculous pain, nausea and lightheadedness and bladder problems I have been experiencing.

My advice is go prepared, go strong and know exactly what you would like to happen. If that fails, remind them of the ‘collaborative care approach’ they now bang on about.

Mairzydotes · 10/05/2024 16:57

BallaiLuimni · 10/05/2024 13:20

One way to get taken seriously is to put 'Dr.' in front your name. My DH has a PhD and some of his paperwork has Dr on it so GPs always think he's a medical doctor. This backfires a bit as they use medical terms to describe things, but it's amazing how seriously they treat everything he says.

Sometimes I use medical terminology and the GP's head always snaps up, followed by 'are you medical?' The first time I was asked that I didn't know what it meant - it's such a weird way to put it. Now I just answer vaguely so they're not sure. That helps.

I bet people who use Doctor as their title get treated with more respect in a lot of situations. Especially if they think it's a male Doctor.

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Superscientist · 10/05/2024 14:43

BallaiLuimni · 10/05/2024 13:20

One way to get taken seriously is to put 'Dr.' in front your name. My DH has a PhD and some of his paperwork has Dr on it so GPs always think he's a medical doctor. This backfires a bit as they use medical terms to describe things, but it's amazing how seriously they treat everything he says.

Sometimes I use medical terminology and the GP's head always snaps up, followed by 'are you medical?' The first time I was asked that I didn't know what it meant - it's such a weird way to put it. Now I just answer vaguely so they're not sure. That helps.

I have a PhD and work in medical research. I always find myself holding my tongue to avoid coming across as a "know it all" or undermining the Dr.
I do use my knowledge to ask leading questions like "is there any adjustments to my daughters medication you can make?" Knowing full well as that as she's 2kg heavier than the last time her medication was adjusted that the dose can go up from X to y.
My former GP used to joke I knew more about my medication than she did. Possibly true as I used to work with the person that discovered one of them!

BallaiLuimni · 10/05/2024 13:20

One way to get taken seriously is to put 'Dr.' in front your name. My DH has a PhD and some of his paperwork has Dr on it so GPs always think he's a medical doctor. This backfires a bit as they use medical terms to describe things, but it's amazing how seriously they treat everything he says.

Sometimes I use medical terminology and the GP's head always snaps up, followed by 'are you medical?' The first time I was asked that I didn't know what it meant - it's such a weird way to put it. Now I just answer vaguely so they're not sure. That helps.

Mairzydotes · 10/05/2024 11:20

WingsofRain · 10/05/2024 09:38

I agree with the part about everything being put done to “anxiety”. I recently saw a neurologist for a fairly serious physical problem which untreated could be life threatening.

Not only did he write in his report that the problem is down to anxiety, he stated (among other glaring errors) that my bladder and bowels are normal. I’m doubly incontinent and have been from birth - I have an ileostomy bag which he would have discovered if he had read my notes beyond the part that mentioned I’d had treatment for anxiety in the past.

I’m no further forward with my problem and won’t get any more investigation or treatment for it because of this.

Oh , they never seem to read your notes.

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WingsofRain · 10/05/2024 09:38

dreamfield · 08/05/2024 19:30

It's not about the Tories, it's about NHS culture and how medical professionals are trained.

I was repeatedly told there was nothing physically wrong with me and I was "just anxious". Sent away with "patient just anxious". Then I nearly died and ended up in resus. I was anxious because I was seriously physically ill. Fuckers.

Any medical professional who tries to dismiss me with the "you're just anxious" line gets short shrift now. But I still only really get traction with that because my medical records document their previous fuck-up with diagnostic over shadowing (/misogyny).

My biggest lesson from NHS wards is that only the pushy assertive people receive appropriate care. If you're polite and quiet and accepting, you will at best be neglected. You have to stand up for yourself because they don't give a shit about you.

I agree with the part about everything being put done to “anxiety”. I recently saw a neurologist for a fairly serious physical problem which untreated could be life threatening.

Not only did he write in his report that the problem is down to anxiety, he stated (among other glaring errors) that my bladder and bowels are normal. I’m doubly incontinent and have been from birth - I have an ileostomy bag which he would have discovered if he had read my notes beyond the part that mentioned I’d had treatment for anxiety in the past.

I’m no further forward with my problem and won’t get any more investigation or treatment for it because of this.

DontGoJasonWaterfalls · 10/05/2024 09:13

Sidge · 09/05/2024 18:00

Don’t worry, primary care won’t exist in five years I reckon. Certainly not in its current guise.

I work in it. It’s fucked. You’ll miss us when we’re gone.

I completely get where you're coming from, but I also think that this kind of approach to people's concerns is unhelpful. There are a lot of people sharing awful experiences with primary care in this thread and I don't think we need to be told we'll miss it when it's gone as if we should be grateful for what we're given.

I'm having private counselling where one of the goals is trusting healthcare professionals again after a GP's terrible communication damaged it beyond belief. That wasn't down to funding or patient numbers or anything like that, it was a GP who - for whatever reason - didn't want to have a difficult conversation with me.

I used to work for the ambulance service, I understand the urge to defend it when things go wrong, but the system has no feelings, and the people hurt by it do. If the system falls apart it's because of the government, not because of the actions or words or lack of gratitude from anyone in this thread.

KatyMac · 10/05/2024 07:59

@Mairzydotes the hypothyroidism was diagnosed by the gp via blood tests and my stubbornness; but the others all involved multiple visits to the hospital and various tests

The ibs was 'diagnosed' in 95/96 by a consultant but I've been back to gastro several times over the years, its not polyps, or coeliac or diverticulitis. I also have a rectocele and it became suddenly worse after a surgery for a burst ectopic pregnancy (2000) which wasn't explained until they found the adhesions and scarring during surgery in 2018. Explains to some extent why fodmap/several medications didn't really work - which usually involved the gp telling me if I didn't follow my diet properly how could I expect the symptoms to stop.......
The best day at a gastro appt was when the consultant said confidently "you have a very fast transit time" not a diagnosis it's a Symptom!

Cattyisbatty · 10/05/2024 07:45

@Olivane - this is very dismissive though. I am/do none of these (when I drank it was infrequent so I don’t believe it had any bearing on my health). Now I have the healthiest diet imaginable (taking control of my reflux), am slim, sleep ok., am reasonably active and try to reduce stress as much as I can (am mindful stress is a factor in some of my health issues and I’m starting therapy - again).
So the GP has nothing to ‘blame’ me for apart from being menopausal and I don’t really want to throw hrt in the mix cos it might aggravate things in other ways (I don’t really have many traditional meno symptoms).

duvetdayy · 10/05/2024 07:42

Yes, it took me forever to be diagnosed with hypermobility spectrum disorder. I knew that’s what it was, but I’d say it took over ten years. They did start referring me for scans etc but then I’d always be told it was normal and there was “no point diagnosing me because it won’t change anything”.

Cattyisbatty · 10/05/2024 07:38

Totally. I had worrying symptoms about 4+ years ago - on googling it could be epilepsy related. It was over a weekend so I got an urgent GP appt and she wasn’t worried. Ffwd 4+ years, it happens again (but worse), dh takes me to a&e and even though the Dr was about 12 it pushed things along a bit and I managed to get the GP to refer to neurology - the consultant was eye rolling when I told him the GP dismissed the symptoms originally and am now waiting for mri/eeg.
You have to be insistent on being referred - their knowledge is very limited on certain health issues unless v obvious and visible.

PlutosHoose · 10/05/2024 07:28

Olivane · 09/05/2024 19:40

The thing is, many people's health issues are related to lifestyle. Being overweight, smoking, drinking, getting poor sleep, being stressed. There's not a lot the doctor/nurse can do about those things (sometimes there's not much patients can do either) so they just fob you off/humour you. They try to offer people help with their overweight or drinking habits, but people don't like it.

They're also banging their heads against the walls.

I had my endometriosis symptoms blamed on being overweight. Took me five years to get diagnosed.

Mairzydotes · 10/05/2024 06:46

KatyMac · 09/05/2024 21:20

I wonder if my problem is I dont know which of my diagnoses (CFS/ME/FM/Hypermobility/Hypothyroidism/Menopause/IBS/internal scarring& adhesions) is causing the current pain, Brain fog, mobility and digestive issues I have currently

But god am I fobbed off

If you don't mind me asking, have all your conditions been officially diagnosed, or have some been offered as an explanation.?

From my own experience , ibs tends to be a blanket term based on a collection of symptoms .

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KatyMac · 09/05/2024 21:20

I wonder if my problem is I dont know which of my diagnoses (CFS/ME/FM/Hypermobility/Hypothyroidism/Menopause/IBS/internal scarring& adhesions) is causing the current pain, Brain fog, mobility and digestive issues I have currently

But god am I fobbed off

Mairzydotes · 09/05/2024 20:47

Hemakesmesmile2 · 09/05/2024 17:25

Definitely agree. I have a few things I’d ideally like to speak to my dr about but I honestly think it’s utterly pointless 🙄

Me too, I think I need a mot .

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Olivane · 09/05/2024 19:40

The thing is, many people's health issues are related to lifestyle. Being overweight, smoking, drinking, getting poor sleep, being stressed. There's not a lot the doctor/nurse can do about those things (sometimes there's not much patients can do either) so they just fob you off/humour you. They try to offer people help with their overweight or drinking habits, but people don't like it.

They're also banging their heads against the walls.

Crowgirl · 09/05/2024 19:10

Just want to say that my own GP is amazing and bends over backwards to provide an amazing service.

Don't get me wrong we're in a horrifically long list of referrals that should have happened years ago already but in terms of listening to my symptoms, not thinking I'm imagining things and taking me seriously I can't fault them. There's a few amazing Drs there but a couple I don't like and one who has given me completely wrong advice and tried to give me contraindicated things numerous times.

SunnyCoco · 09/05/2024 18:45

PlutosHoose · 09/05/2024 18:20

Oh and if you're overweight or God forbid have anxiety then literally any symptom gets put down to that.

Yeh, I wasn't at all overweight but he said doing weights would give me energy... at the time I was otherwise healthy, early 30s, yet could hardly walk down the road from exhaustion 🙄